Detalhe da pesquisa
1.
Consideration and Disclosure of Group Risks in Genomics and Other Data-Centric Research: Does the Common Rule Need Revision?
Am J Bioeth
; : 1-14, 2023 Nov 27.
Artigo
em Inglês
| MEDLINE | ID: mdl-38010648
2.
Primary duty is to communicate moment-in-time nature of genetic variant interpretation.
J Med Ethics
; 49(12): 817-818, 2023 Nov 23.
Artigo
em Inglês
| MEDLINE | ID: mdl-37734906
3.
Gene therapy companies have an ethical obligation to develop expanded access policies.
Mol Ther
; 29(4): 1367-1369, 2021 04 07.
Artigo
em Inglês
| MEDLINE | ID: mdl-33714373
4.
Preapproval Nontrial Access and Off-Label Use: Do They Meet Criteria for Dual-Deviation Review?
Am J Bioeth
; 19(6): 22-25, 2019 06.
Artigo
em Inglês
| MEDLINE | ID: mdl-31135320
5.
Ethical, legal, and social implications of genetic risk prediction for multifactorial disease: a narrative review identifying concerns about interpretation and use of polygenic scores.
J Community Genet
; 14(5): 441-452, 2023 Oct.
Artigo
em Inglês
| MEDLINE | ID: mdl-36529843
6.
A survey of pediatric hematologists/oncologists' perspectives on single patient Expanded Access and Right to Try.
Med Access Point Care
; 5: 23992026211005991, 2021.
Artigo
em Inglês
| MEDLINE | ID: mdl-36204503
7.
Oversight of Right-to-Try and Expanded Access Requests for Off-Trial Access to Investigational Drugs.
Ethics Hum Res
; 42(1): 2-13, 2020 Jan.
Artigo
em Inglês
| MEDLINE | ID: mdl-31967412
8.
Genetic discrimination: emerging ethical challenges in the context of advancing technology.
J Law Biosci
; 7(1): lsz016, 2020.
Artigo
em Inglês
| MEDLINE | ID: mdl-34221431
9.
Reactions to the National Academies/Royal Society Report on Heritable Human Genome Editing.
CRISPR J
; 3(5): 332-349, 2020 10.
Artigo
em Inglês
| MEDLINE | ID: mdl-33095048
10.
How Should Physicians Respond When They Learn Patients Are Using Unapproved Gene Editing Interventions?
AMA J Ethics
; 21(12): E1021-1028, 2019 12 01.
Artigo
em Inglês
| MEDLINE | ID: mdl-31876464
11.
The Quest for Compensation for Research-Related Injury in the United States: A New Proposal.
J Law Med Ethics
; 47(4): 732-747, 2019 12.
Artigo
em Inglês
| MEDLINE | ID: mdl-31957586
12.
Single-Patient Expanded Access Requests: IRB Professionals' Experiences and Perspectives.
AJOB Empir Bioeth
; 10(2): 88-99, 2019.
Artigo
em Inglês
| MEDLINE | ID: mdl-30964737
13.
As Gods: A Moral History of the Genetic Age, by Matthew Cobb. New York: Basic Books, 2022.
J Med Humanit
; 44(2): 277-279, 2023 06.
Artigo
em Inglês
| MEDLINE | ID: mdl-36454352
14.
Bolstering trust in the human papillomavirus vaccine through improved communication in the vaccine information statement.
Vaccine
; 37(31): 4241-4242, 2019 07 18.
Artigo
em Inglês
| MEDLINE | ID: mdl-31253445
15.
What compassionate use means for gene therapies.
Nat Biotechnol
; 37(4): 352-355, 2019 04.
Artigo
em Inglês
| MEDLINE | ID: mdl-30940936