Detalhe da pesquisa
1.
Health-related out-of-pocket expenses for children living with rare diseases - tuberous sclerosis and mitochondrial disorders: A prospective pilot study in Australian families.
J Paediatr Child Health
; 58(4): 611-617, 2022 04.
Artigo
em Inglês
| MEDLINE | ID: mdl-34704652
2.
Beyond the Guidelines: How We Can Improve Healthcare for People With Tuberous Sclerosis Complex Around the World.
Pediatr Neurol
; 123: 77-84, 2021 10.
Artigo
em Inglês
| MEDLINE | ID: mdl-34416612