Detalhe da pesquisa
1.
Pain attitudes and pain outcomes among people with bleeding disorders: Results from community voices in research.
Haemophilia
; 30(3): 720-727, 2024 May.
Artigo
em Inglês
| MEDLINE | ID: mdl-38415392
2.
Building the blueprint: Formulating a community-generated national plan for future research in inherited bleeding disorders.
Haemophilia
; 28(5): 760-768, 2022 Sep.
Artigo
em Inglês
| MEDLINE | ID: mdl-35700441
3.
Physical therapy within US HTCs: A multicentre survey of utilization, practice patterns and pain management approaches.
Haemophilia
; 28(2): 343-350, 2022 Mar.
Artigo
em Inglês
| MEDLINE | ID: mdl-35152533
4.
Big picture initiatives in bleeding disorders.
Haemophilia
; 28 Suppl 4: 53-60, 2022 May.
Artigo
em Inglês
| MEDLINE | ID: mdl-35521733
5.
Quality of life in a large multinational haemophilia B cohort (The B-Natural study) - Unmet needs remain.
Haemophilia
; 28(3): 453-461, 2022 May.
Artigo
em Inglês
| MEDLINE | ID: mdl-35263495
6.
Understanding the Pain Management Landscape Within the US Bleeding Disorder Community: A Multi-Center Survey.
Pain Med
; 23(2): 269-279, 2022 02 01.
Artigo
em Inglês
| MEDLINE | ID: mdl-34185087
7.
Impact of haemophilia on patients with mild-to-moderate disease: Results from the P-FiQ and B-HERO-S studies.
Haemophilia
; 27 Suppl 1: 8-16, 2021 Jan.
Artigo
em Inglês
| MEDLINE | ID: mdl-33522654
8.
Evidence of a disability paradox in patient-reported outcomes in haemophilia.
Haemophilia
; 27(2): 245-252, 2021 Mar.
Artigo
em Inglês
| MEDLINE | ID: mdl-33595148
9.
Patient preferences and priorities for haemophilia gene therapy in the US: A discrete choice experiment.
Haemophilia
; 27(5): 769-782, 2021 Sep.
Artigo
em Inglês
| MEDLINE | ID: mdl-34310811
10.
Identified unmet needs and proposed solutions in mild-to-moderate haemophilia: A summary of opinions from a roundtable of haemophilia experts.
Haemophilia
; 27 Suppl 1: 25-32, 2021 Jan.
Artigo
em Inglês
| MEDLINE | ID: mdl-33522653
11.
Natural history study of factor IX deficiency with focus on treatment and complications (B-Natural).
Haemophilia
; 27(1): 49-59, 2021 Jan.
Artigo
em Inglês
| MEDLINE | ID: mdl-33278853
12.
Awareness, Care and Treatment In Obesity maNagement to inform Haemophilia Obesity Patient Empowerment (ACTION-TO-HOPE): Results of a survey of US haemophilia treatment centre professionals.
Haemophilia
; 26 Suppl 1: 20-30, 2020 Jan.
Artigo
em Inglês
| MEDLINE | ID: mdl-32017338
13.
Reliability and validity of patient-reported outcome instruments in US adults with hemophilia B and caregivers in the B-HERO-S study.
Eur J Haematol
; 101(6): 781-790, 2018 Dec.
Artigo
em Inglês
| MEDLINE | ID: mdl-30179272
14.
Impact of hemophilia B on quality of life in affected men, women, and caregivers-Assessment of patient-reported outcomes in the B-HERO-S study.
Eur J Haematol
; 100(6): 592-602, 2018 Jun.
Artigo
em Inglês
| MEDLINE | ID: mdl-29505680
15.
Patient-reported outcomes and joint status across subgroups of US adults with hemophilia with varying characteristics: Results from the Pain, Functional Impairment, and Quality of Life (P-FiQ) study.
Eur J Haematol
; 100 Suppl 1: 14-24, 2018 Apr.
Artigo
em Inglês
| MEDLINE | ID: mdl-29498783
16.
Assessments of pain, functional impairment, anxiety, and depression in US adults with hemophilia across patient-reported outcome instruments in the Pain, Functional Impairment, and Quality of Life (P-FiQ) study.
Eur J Haematol
; 100 Suppl 1: 5-13, 2018 Apr.
Artigo
em Inglês
| MEDLINE | ID: mdl-29498784
17.
Patient, caregiver, and provider perceptions of pain and pain management in adolescents and young adults with bleeding disorders.
Haemophilia
; 23(6): 852-860, 2017 Nov.
Artigo
em Inglês
| MEDLINE | ID: mdl-28806860
18.
Impact of mild to severe hemophilia on engagement in recreational activities by US men, women, and children with hemophilia B: The Bridging Hemophilia B Experiences, Results and Opportunities into Solutions (B-HERO-S) study.
Eur J Haematol
; 98 Suppl 86: 25-34, 2017 Apr.
Artigo
em Inglês
| MEDLINE | ID: mdl-28319336
19.
Management of US men, women, and children with hemophilia and methods and demographics of the Bridging Hemophilia B Experiences, Results and Opportunities into Solutions (B-HERO-S) study.
Eur J Haematol
; 98 Suppl 86: 5-17, 2017 Apr.
Artigo
em Inglês
| MEDLINE | ID: mdl-28319338
20.
Predictors of quality of life among adolescents and young adults with a bleeding disorder.
Health Qual Life Outcomes
; 15(1): 67, 2017 Apr 07.
Artigo
em Inglês
| MEDLINE | ID: mdl-28388906