Investigating genetic discrimination in Australia: opportunities and challenges in the early stages.
New Genet Soc
; 23(2): 225-39, 2004 Aug.
Article
em En
| MEDLINE
| ID: mdl-15460616
ABSTRACT
Genetic discrimination, defined as the differential treatment of individuals or their relatives on the basis of actual or presumed genetic differences, is an emerging issue of interest in academic, clinical, social and legal contexts. While its potential significance has been discussed widely, verified empirical data are scarce. Genetic discrimination is a complex phenomenon to describe and investigate, as evidenced by the recent Australian Law Reform Commission inquiry in Australia. The authors research project, which commenced in 2002, aims to document the multiple perspectives and experiences regarding genetic discrimination in Australia and inform future policy development and law reform. Data are being collected from consumers, employers, insurers and the legal system. Attempted verification of alleged accounts of genetic discrimination will be a novel feature of the research. This paper overviews the early stages of the research, including conceptual challenges and their methodological implications.
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Base de dados:
MEDLINE
Assunto principal:
Preconceito
/
Projetos de Pesquisa
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Testes Genéticos
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Pesquisa Empírica
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Emprego
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Seguro de Vida
País/Região como assunto:
Oceania
Idioma:
En
Ano de publicação:
2004
Tipo de documento:
Article