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Child and family experiences with inborn errors of metabolism: a qualitative interview study with representatives of patient groups.
Khangura, Sara D; Tingley, Kylie; Chakraborty, Pranesh; Coyle, Doug; Kronick, Jonathan B; Laberge, Anne-Marie; Little, Julian; Miller, Fiona A; Mitchell, John J; Prasad, Chitra; Siddiq, Shabnaz; Siriwardena, Komudi; Sparkes, Rebecca; Speechley, Kathy N; Stockler, Sylvia; Trakadis, Yannis; Wilson, Brenda J; Wilson, Kumanan; Potter, Beth K.
Afiliação
  • Khangura SD; Faculty of Medicine, School of Public Health and Preventive Medicine, University of Ottawa, 451 Smyth Road, Ottawa, ON, K1H 8M5, Canada.
  • Tingley K; Faculty of Medicine, School of Public Health and Preventive Medicine, University of Ottawa, 451 Smyth Road, Ottawa, ON, K1H 8M5, Canada.
  • Chakraborty P; Newborn Screening Ontario, Ottawa, ON, Canada.
  • Coyle D; Division of Metabolics and Newborn Screening, Department of Pediatrics, Children's Hospital of Eastern Ontario, Ottawa, ON, Canada.
  • Kronick JB; Faculty of Medicine, Department of Pediatrics, University of Ottawa, Ottawa, ON, Canada.
  • Laberge AM; Faculty of Medicine, School of Public Health and Preventive Medicine, University of Ottawa, 451 Smyth Road, Ottawa, ON, K1H 8M5, Canada.
  • Little J; Hospital for Sick Children, Toronto, ON, Canada.
  • Miller FA; University of Toronto, Toronto, ON, Canada.
  • Mitchell JJ; CHU Sainte-Justine, Montréal, QC, Canada.
  • Prasad C; Faculty of Medicine, School of Public Health and Preventive Medicine, University of Ottawa, 451 Smyth Road, Ottawa, ON, K1H 8M5, Canada.
  • Siddiq S; Institute of Health Policy, Management and Evaluation, University of Toronto, Toronto, ON, Canada.
  • Siriwardena K; Montréal Children's Hospital, Montréal, QC, Canada.
  • Sparkes R; Western University, London, ON, Canada.
  • Speechley KN; Faculty of Medicine, School of Public Health and Preventive Medicine, University of Ottawa, 451 Smyth Road, Ottawa, ON, K1H 8M5, Canada.
  • Stockler S; University of Alberta Hospital, Edmonton, AB, Canada.
  • Trakadis Y; Alberta Children's Hospital, Calgary, AB, Canada.
  • Wilson BJ; Western University, London, ON, Canada.
  • Wilson K; University of British Columbia, Vancouver, BC, Canada.
  • Potter BK; Montréal Children's Hospital, Montréal, QC, Canada.
J Inherit Metab Dis ; 39(1): 139-47, 2016 Jan.
Article em En | MEDLINE | ID: mdl-26209272
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Texto completo: 1 Base de dados: MEDLINE Assunto principal: Família / Erros Inatos do Metabolismo País/Região como assunto: America do norte / Europa Idioma: En Ano de publicação: 2016 Tipo de documento: Article País de afiliação: Canadá
Texto completo
Imprimir
XML
PubMed Links
Buscar no Google

Texto completo: 1 Base de dados: MEDLINE Assunto principal: Família / Erros Inatos do Metabolismo País/Região como assunto: America do norte / Europa Idioma: En Ano de publicação: 2016 Tipo de documento: Article País de afiliação: Canadá