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Initial development and pilot testing of observer-reported outcomes (ObsROs) for children with cystic fibrosis ages 0-11years.
Edwards, T C; Emerson, J; Genatossio, A; McNamara, S; Goss, C; Patrick, D L; Onchiri, F; Rosenfeld, M.
Afiliação
  • Edwards TC; Department of Health Services, University of Washington, 1208 NE 43rd St. - Campus Box 359455, Seattle, WA 98195-9455, United States. Electronic address: toddce@uw.edu.
  • Emerson J; Division of Pulmonary Medicine, Seattle Children's Hospital, United States. Electronic address: julia.emerson@seattlechildrens.org.
  • Genatossio A; Division of Pulmonary Medicine, Seattle Children's Hospital, United States. Electronic address: alan.genatossio@seattlechildrens.org.
  • McNamara S; Division of Pulmonary Medicine, Seattle Children's Hospital, United States. Electronic address: sharon.mcnamara@seattlechildrens.org.
  • Goss C; Department of Medicine and Pediatrics, University of Washington, Division of Pulmonary and Critical Care Medicine, United States. Electronic address: goss@uw.edu.
  • Patrick DL; Department of Health Services, University of Washington, 1208 NE 43rd St. - Campus Box 359455, Seattle, WA 98195-9455, United States. Electronic address: donald@uw.edu.
  • Onchiri F; Center for Biomedical Statistics, Seattle Children's Research Institute, Seattle, WA, United States; Center for Clinical and Translational Research, Seattle Children's Research Institute, Seattle, WA, United States. Electronic address: Frankline.onchiri@seattlechildrens.org.
  • Rosenfeld M; Department of Pediatrics, University of Washington, Division of Pulmonary Medicine, Seattle Children's Hospital, United States. Electronic address: mrosen@uw.edu.
J Cyst Fibros ; 17(5): 680-686, 2018 09.
Article em En | MEDLINE | ID: mdl-29358075
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Texto completo: 1 Base de dados: MEDLINE Assunto principal: Pais / Fibrose Cística / Medidas de Resultados Relatados pelo Paciente Idioma: En Ano de publicação: 2018 Tipo de documento: Article
Texto completo
Imprimir
XML
PubMed Links
Buscar no Google

Texto completo: 1 Base de dados: MEDLINE Assunto principal: Pais / Fibrose Cística / Medidas de Resultados Relatados pelo Paciente Idioma: En Ano de publicação: 2018 Tipo de documento: Article