Parent perspectives on disclosing a pediatric neurofibromatosis type 1 diagnosis.

Franchi, Madeleine; Radtke, Heather B; Lewis, Andrea M; Moss, Irene; Cofield, Stacey S; Cannon, Ashley

Franchi, Madeleine; Radtke, Heather B; Lewis, Andrea M; Moss, Irene; Cofield, Stacey S; Cannon, Ashley.

Afiliação

Franchi M; Department of Clinical and Diagnostic Sciences, University of Alabama at Birmingham, Birmingham, Alabama, USA.
Radtke HB; Department of Pediatrics, Medical College of Wisconsin, Milwaukee, Wisconsin, USA.
Lewis AM; Children's Tumor Foundation, New York, New York, USA.
Moss I; Invitae Corporation, San Francisco, California, USA.
Cofield SS; Department of Genetics, University of Alabama at Birmingham, Birmingham, Alabama, USA.
Cannon A; Department of Biostatistics, University of Alabama at Birmingham, Birmingham, Alabama, USA.

J Genet Couns ; 32(5): 1088-1101, 2023 Oct.

Article em En | MEDLINE | ID: mdl-37183616

Palavras-chave

attitudes; genetic counseling; neurofibromatosis type 1; parents; pediatrics; psychosocial

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Texto completo: 1 Base de dados: MEDLINE Idioma: En Ano de publicação: 2023 Tipo de documento: Article País de afiliação: Estados Unidos

Texto completo

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PubMed Links

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Texto completo: 1 Base de dados: MEDLINE Idioma: En Ano de publicação: 2023 Tipo de documento: Article País de afiliação: Estados Unidos