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Equity, diversity, and inclusion at the Global Alliance for Genomics and Health.
Skantharajah, Neerjah; Baichoo, Shakuntala; Boughtwood, Tiffany F; Casas-Silva, Esmeralda; Chandrasekharan, Subhashini; Dave, Sanjay M; Fakhro, Khalid A; Falcon de Vargas, Aida B; Gayle, Sylvia S; Gupta, Vivek K; Hendricks-Sturrup, Rachele; Hobb, Ashley E; Li, Stephanie; Llamas, Bastien; Lopez-Correa, Catalina; Machirori, Mavis; Melendez-Zajgla, Jorge; Millner, Mareike A; Page, Angela J H; Paglione, Laura D; Raven-Adams, Maili C; Smith, Lindsay; Thomas, Ericka M; Kumuthini, Judit; Corpas, Manuel.
Afiliação
  • Skantharajah N; Ontario Institute for Cancer Research, Toronto, ON, Canada.
  • Baichoo S; Global Alliance for Genomics and Health, Toronto, ON, Canada.
  • Boughtwood TF; University of Mauritius, Reduit, Mauritius.
  • Casas-Silva E; Australian Genomics, Parkville, VIC, Australia.
  • Chandrasekharan S; Murdoch Children's Research Institute, Parkville, VIC, Australia.
  • Dave SM; National Cancer Institute, Rockville, MD, USA.
  • Fakhro KA; The All of Us Research Program, National Institutes of Health, Bethesda, MD, USA.
  • Falcon de Vargas AB; Department of Biotechnology, Hemchandracharya North Gujarat University, Patan, Gujarat, India.
  • Gayle SS; Department of Human Genetics, Sidra Medicine, Doha, Qatar.
  • Gupta VK; Department of Genetic Medicine, Weill Cornell Medical College, Doha, Qatar.
  • Hendricks-Sturrup R; Hospital Vargas de Caracas, Vargas Medical School, Universidad Central de Venezuela, Caracas, Venezuela.
  • Hobb AE; Hospital de Clínicas Caracas, Caracas, Venezuela.
  • Li S; National Cancer Institute, Rockville, MD, USA.
  • Llamas B; Macquarie Medical School, Faculty of Medicine, Health and Human Sciences, Macquarie University, Sydney, NSW, Australia.
  • Lopez-Correa C; Duke-Margolis Center for Health Policy, Washington, DC, USA.
  • Machirori M; DNAstack, Toronto, ON, Canada.
  • Melendez-Zajgla J; Global Alliance for Genomics and Health, Toronto, ON, Canada.
  • Millner MA; Broad Institute, Cambridge, MA, USA.
  • Page AJH; Australian Centre for Ancient DNA, School of Biological Sciences and The Environment Institute, University of Adelaide, Adelaide, SA, Australia.
  • Paglione LD; ARC Centre of Excellence for Australian Biodiversity and Heritage, University of Adelaide, Adelaide, SA, Australia.
  • Raven-Adams MC; National Centre for Indigenous Genomics, John Curtin School of Medical Research, Australian National University, Canberra, ACT, Australia.
  • Smith L; Indigenous Genomics, Telethon Kids Institute, Adelaide, SA, Australia.
  • Thomas EM; Genome Canada, Ottawa, ON, Canada.
  • Kumuthini J; Ada Lovelace Institute, London, UK.
  • Corpas M; PEALS, Newcastle University, Newcastle Upon Tyne, UK.
Cell Genom ; 3(10): 100386, 2023 Oct 11.
Article em En | MEDLINE | ID: mdl-37868041
A lack of diversity in genomics for health continues to hinder equitable leadership and access to precision medicine approaches for underrepresented populations. To avoid perpetuating biases within the genomics workforce and genomic data collection practices, equity, diversity, and inclusion (EDI) must be addressed. This paper documents the journey taken by the Global Alliance for Genomics and Health (a genomics-based standard-setting and policy-framing organization) to create a more equitable, diverse, and inclusive environment for its standards and members. Initial steps include the creation of two groups: the Equity, Diversity, and Inclusion Advisory Group and the Regulatory and Ethics Diversity Group. Following a framework that we call "Reflected in our Teams, Reflected in our Standards," both groups address EDI at different stages in their policy development process.
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Texto completo: 1 Base de dados: MEDLINE Idioma: En Ano de publicação: 2023 Tipo de documento: Article País de afiliação: Canadá

Texto completo: 1 Base de dados: MEDLINE Idioma: En Ano de publicação: 2023 Tipo de documento: Article País de afiliação: Canadá