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Building Community Engagement Capacity in a Transdisciplinary Population Health Research Consortium.
James, Aimee S; Nodora, Jesse; Maki, Julia; Harlow, Bernard L; Low, Lisa Kane; Coyne-Beasley, Tamera; Cunningham, Shayna D; El-Fahmawi, Ayah; Klusaritz, Heather; Lipman, Terri H; Simon, Melissa; Hebert-Beirne, Jeni.
Afiliação
  • James AS; Division of Public Health Sciences, Washington University in St. Louis School of Medicine, St. Louis, MO.
  • Nodora J; University of California-San Diego, Department of Family Medicine and Public Health, La Jolla, CA.
  • Maki J; Division of Public Health Sciences, Washington University in St. Louis, School of Medicine, St. Louis, MO.
  • Harlow BL; Department of Epidemiology, Boston University School of Public Health, Boston, MA.
  • Low LK; School of Nursing, Women's Studies, Department of Obstetrics and Gynecology, University of Michigan, Ann Arbor, MI.
  • Coyne-Beasley T; Department of Pediatrics, University of Alabama at Birmingham Heersink School of Medicine, Birmingham, AL.
  • Cunningham SD; Department of Public Health Sciences, University of Connecticut School of Medicine, Farmington, CT.
  • El-Fahmawi A; Department of Surgery, Division of Urology, Perelman School of Medicine, University of Pennsylvania, Philadelphia, PA.
  • Klusaritz H; Department of Surgery, Division of Urology, Perelman School of Medicine, University of Pennsylvania, Philadelphia, PA.
  • Lipman TH; Department of Family and Community Health, School of Nursing, University of Pennsylvania, Philadelphia, PA.
  • Simon M; 17Division of General Obstetrics and Gynecology, Department of Obstetrics and Gynecology, Northwestern University Feinberg School of Medicine, Chicago, IL.
  • Hebert-Beirne J; Division of Community Health Sciences, University of Illinois at Chicago, School of Public Health, Chicago, IL.
Article em En | MEDLINE | ID: mdl-39055611
ABSTRACT
Community engagement has been named a research priority by the National Institutes of Health, and scholars are calling for community engagement as an approach to address racism and equity in science. Robust community-engaged research can improve research quality, increase inclusion of traditionally marginalized populations, broaden the impact of findings on real-life situations, and is particularly valuable for underexplored research topics. The goal of this paper is to describe lessons learned and best practices that emerged from community engagement in a multi-institution population health research consortium. We describe how a foundation was laid to enable community-engaged research activities in the consortium, using a staged and stepped process to build and embed multi-level community-engaged research approaches.. We staged our development to facilitate (a) awareness of community engagement among consortium members, (b) the building of solidarity and alliances, and (c) the initiation of long-term engagement to allow for meaningful research translation. Our stepped process involved strategic planning; building momentum; institutionalizing engagement into the consortium infrastructure; and developing, implementing, and evaluating a plan. We moved from informal, one-time community interactions to systematic, formalized, capacity-building reciprocal engagement. We share our speed bumps and troubleshooting that inform our recommendations for other large research consortia-including investing the time it takes to build up community engagement capacity, acknowledging and drawing on strengths of the communities of interest, assuring a strong infrastructure of accountability for community engagement, and grounding the work in anti-racist principles.
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Texto completo: 1 Base de dados: MEDLINE Idioma: En Ano de publicação: 2024 Tipo de documento: Article País de afiliação: Macau

Texto completo: 1 Base de dados: MEDLINE Idioma: En Ano de publicação: 2024 Tipo de documento: Article País de afiliação: Macau