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1.
Univers Access Inf Soc ; : 1-13, 2022 Jul 30.
Article in English | MEDLINE | ID: mdl-35966188

ABSTRACT

Technology use is a socially embedded process, especially when it comes to older adults and care. However, the restrictions associated with the COVID-19 pandemic have limited social contact to protect vulnerable groups in care homes, and even if technology use has increased in other areas, there is little known about the potential uptake of communication technology and changes in social interaction in the care context during a lasting crisis. This paper explores changes in communication technology use triggered by the pandemic at two care homes, using a qualitative diary study, online interviews and observations, and in-situ interviews within the care home with residents and workers. Our findings point to increasing use of tablets and video conference software triggered by COVID-related experiences, with implications for living and working in care homes. We also characterise the isolation experience of the residents, the workers' concerns about the residents and changes in social interaction. We observed new areas of technology usage, associated changing work practices, technical affinity issues and context-specific attitudes towards future technologies. While the pandemic has triggered the use of communication technology in care homes on a small scale, this has also caused increasing workload and in particular articulation work, which requires support structures and the re-definition of work roles.

2.
JMIR Hum Factors ; 7(4): e21145, 2020 Nov 09.
Article in English | MEDLINE | ID: mdl-33164908

ABSTRACT

BACKGROUND: Digital instantiations of positive psychology intervention (PPI) principles have been proposed to combat the current global youth mental health crisis; however, young people are largely not engaging with available resources. OBJECTIVE: The aim of this study is to explore young people's attitudes toward various PPI principles to find ways of making digital instantiations of them more engaging. METHODS: We conducted an explorative workshop with 30 young people (aged 16-21 years). They rated and reviewed 29 common PPIs. Ratings and recorded discussions were analyzed using thematic analysis. RESULTS: Some interventions were conflicting with young people's values or perceived as too difficult. Participants responded positively to interventions that fit them personally and allowed them to use their strengths. CONCLUSIONS: Values, context, strengths, and other personal factors are entangled with young people's attitudes toward digital instantiations of PPI principles.

3.
CoDesign ; 16(1): 45-65, 2020.
Article in English | MEDLINE | ID: mdl-32406393

ABSTRACT

Engaging marginalised children, such as disabled children, in Participatory Design (PD) entails particular challenges. The processes can effect social changes by decidedly attending to their lived experience as expertise. However, involving marginalised children in research also requires maintaining a delicate balance between ensuring their right to participation as well as their protection from harm. The resulting tensions are politically charged, affected by myriads of power differences and create moral dilemmas. We present seven case studies, drawing from two participatory design research projects. They illustrate the in-situ judgements taken to address specific dilemmas and provide nuanced insights into the trade-offs required by child-led participatory design processes. Subsequently, we identify three challenges: positioning our work to the children's carers' values, protecting ourselves, and enabling the (relative) risk-taking associated with participation for children. We call for this micro-ethical approach to be used when reporting research ethics in practice, and as a guidance for the training of researchers and practitioners.

4.
Health Informatics J ; 25(2): 330-349, 2019 06.
Article in English | MEDLINE | ID: mdl-28653552

ABSTRACT

People living with Parkinson's disease engage in self-care for most of the time but, two or three times a year, they meet with doctors to re-evaluate the condition and adjust treatment. Patients and (informal) carers participate actively in these encounters, but their engagement might change as new patient-centred technologies are integrated into healthcare infrastructures. Drawing on a qualitative study that used observations and interviews to investigate consultations, and digital ethnography to understand interactions in an online community, we describe how patients and carers living with Parkinson's participate in the diagnosis and treatment decisions, engage in discussions to learn about certain topics, and address inappropriate medication. We contrast their engagement with a review of self-care technologies that support interactions with doctors, to investigate how these artefacts may influence the agency of patients and carers. Finally, we discuss design ideas for improving the participation of patients and carers in technology-mediated scenarios.


Subject(s)
Caregivers/psychology , Health Services Accessibility/standards , Patients/psychology , Physician-Patient Relations , Aged , Cost of Illness , Female , Humans , Interviews as Topic/methods , Male , Middle Aged , Parkinson Disease/complications , Parkinson Disease/psychology , Qualitative Research , Treatment Adherence and Compliance/psychology
6.
Int J Hum Comput Stud ; 74: 93-106, 2015 Feb.
Article in English | MEDLINE | ID: mdl-26109833

ABSTRACT

The field of Participatory Design (PD) has greatly diversified and we see a broad spectrum of approaches and methodologies emerging. However, to foster its role in designing future interactive technologies, a discussion about accountability and rigour across this spectrum is needed. Rejecting the traditional, positivistic framework, we take inspiration from related fields such as Design Research and Action Research to develop interpretations of these concepts that are rooted in PD׳s own belief system. We argue that unlike in other fields, accountability and rigour are nuanced concepts that are delivered through debate, critique and reflection. A key prerequisite for having such debates is the availability of a language that allows designers, researchers and practitioners to construct solid arguments about the appropriateness of their stances, choices and judgements. To this end, we propose a "tool-to-think-with" that provides such a language by guiding designers, researchers and practitioners through a process of systematic reflection and critical analysis. The tool proposes four lenses to critically reflect on the nature of a PD effort: epistemology, values, stakeholders and outcomes. In a subsequent step, the coherence between the revealed features is analysed and shows whether they pull the project in the same direction or work against each other. Regardless of the flavour of PD, we argue that this coherence of features indicates the level of internal rigour of PD work and that the process of reflection and analysis provides the language to argue for it. We envision our tool to be useful at all stages of PD work: in the planning phase, as part of a reflective practice during the work, and as a means to construct knowledge and advance the field after the fact. We ground our theoretical discussions in a specific PD experience, the ECHOES project, to motivate the tool and to illustrate its workings.

7.
Int J Med Inform ; 84(2): 87-100, 2015 Feb.
Article in English | MEDLINE | ID: mdl-25453274

ABSTRACT

AIM: This review aimed to provide a comprehensive overview of the current state of evidence for the use of clinical and quality dashboards in health care environments. METHODS: A literature search was performed for the dates 1996-2012 on CINAHL, Medline, Embase, Cochrane Library, PsychInfo, Science Direct and ACM Digital Library. A citation search and a hand search of relevant papers were also conducted. RESULTS: One hundred and twenty two full text papers were retrieved of which 11 were included in the review. There was considerable heterogeneity in implementation setting, dashboard users and indicators used. There was evidence that in contexts where dashboards were easily accessible to clinicians (such as in the form of a screen saver) their use was associated with improved care processes and patient outcomes. CONCLUSION: There is some evidence that implementing clinical and/or quality dashboards that provide immediate access to information for clinicians can improve adherence to quality guidelines and may help improve patient outcomes. However, further high quality detailed research studies need to be conducted to obtain evidence of their efficacy and establish guidelines for their design.


Subject(s)
Benchmarking/standards , Management Information Systems , Patient Care/standards , Process Assessment, Health Care/standards , Quality Assurance, Health Care/standards , Benchmarking/trends , Humans
8.
Stud Health Technol Inform ; 192: 372-6, 2013.
Article in English | MEDLINE | ID: mdl-23920579

ABSTRACT

The Nursing Informatics International Research Network (NIIRN) is a group of experts who are collaborating on the development of internationally relevant research programs for nursing informatics. In this paper we outline key findings of a survey exploring international research priorities for nursing informatics. The survey was available online during May-August 2012. Respondents were asked to rate each of 20 listed research topics in terms of respondent's views of its priority for nursing informatics research. 468 completed surveys were received representing respondents from six World Health Organization regions. The two most highly ranked areas of importance for research were development of systems to provide real time feedback to nurses and assessment of the impact of HIT on nursing care and patient outcomes. The lowest ranked research topics were theory development and integrating genomic data into clinical information systems. The identification of these priorities provides a basis for future international collaborative research in the field of nursing informatics.


Subject(s)
Health Care Surveys , Health Priorities/statistics & numerical data , Nurses/statistics & numerical data , Nursing Care/statistics & numerical data , Nursing Informatics/statistics & numerical data , Nursing Research/statistics & numerical data , Internationality
9.
Int J Med Inform ; 80(8): e96-111, 2011 Aug.
Article in English | MEDLINE | ID: mdl-21334969

ABSTRACT

PURPOSE: Hospital medicine necessitates that practitioners from many disciplines collaborate to care for patients with complex illnesses. Much emphasis is placed on multi-disciplinary interaction during the ward round to achieve collaboration, but it can still be difficult to attain. This paper looks at how electronic medical records affect multi-disciplinary collaboration during ward rounds. METHODS: We take an embodied approach, with a specific focus on the spatial and postural patterning of bodies in space. Using F-formation system theory as an analytical starting point, we compare the non-verbal interaction systems that support multi-disciplinary interaction during usage of a paper medical record and an electronic medical record at two points after deployment. RESULTS: We show that the paper medical record supports a nuanced non-verbal interaction system which is used to negotiate the ward round interaction and facilitate multi-disciplinary communication. We also illustrated how the electronic medical record initially fails to support a similar non-verbal interaction system, but with some adjustments over time, the ward round team re-establishes a functioning non-verbal interaction system and with it, multi-disciplinary communication. CONCLUSIONS: We conclude with a discussion on the effects of electronic medical records on multi-disciplinary interaction and suggest a number of implications for their design: including, considering the social ergonomics of the device, the inclusion of paper in electronic medical records, addressing data fixation, and facilitating practitioners to make social changes to the interaction through the ability to make technical changes to the system.


Subject(s)
Cooperative Behavior , Medical Records Systems, Computerized/statistics & numerical data , Humans , Negotiating
10.
J Org Chem ; 70(10): 4096-106, 2005 May 13.
Article in English | MEDLINE | ID: mdl-15876102

ABSTRACT

[structures: see text] The synthesis of anilides derived from glucuronic acid is described. Secondary anilides had a Z configuration in the solid state and showed intramolecular and intermolecular hydrogen bonding. However, on the basis of NMR and IR studies, there was generally no evidence for the same hydrogen bonding in solution. Tertiary anilides showed a strong preference for the E configuration on the basis of NOE studies and molecular mechanics calculations. The alkylation of the secondary anilides induces a configurational switch that alters the orientation of the aromatic group with respect to the pyranose, which has relevance for presentation or orientation of pharmacophoric groups on carbohydrate scaffolds.


Subject(s)
Anilides/chemical synthesis , Carbohydrates/chemistry , Glucuronic Acid/chemistry , Anilides/chemistry , Anilides/metabolism , Glucuronic Acid/chemical synthesis , Glucuronic Acid/metabolism , Hydrogen Bonding , Models, Chemical , Solutions/chemistry
11.
J Org Chem ; 68(14): 5692-704, 2003 Jul 11.
Article in English | MEDLINE | ID: mdl-12839465

ABSTRACT

The solution structure of glycosyl amides has been studied by using NMR. A strong preference is displayed by tertiary aromatic glycosyl amides for E-anti structures in contrast with secondary aromatic glycosyl amides where Z-anti structures predominate. The structural diversity displayed by these classes of molecules would seem to be important as the directional properties of the aromatic ring, or groups attached to the aromatic ring, would be determined by choosing to have either a secondary or tertiary amide at the anomeric center and could be considered when designing bioactive molecules with carbohydrate scaffolds. The structural analysis was also carried out for related divalent secondary and tertiary glycosyl amides and these compounds display preferences similar to that of the monovalent compounds. The constrained divalent compounds have potential for promoting formation of clusters that will have restricted structure and thus have potential for novel studies of mechanisms of action of multivalent ligands. Possible applications of such compounds would be as scaffolds for the design and synthesis of ligands that will facilitate protein-protein or other receptor-receptor interactions. The affinity of restricted divalent (or higher order) ligands, designed to bind to proteins that recognize carbohydrates which would facilitate clustering and concomitantly promote protein-protein interactions, may be significantly higher than monovalent counterparts or multivalent ligands without these properties. This may be useful as a new approach in the development of therapeutics based on carbohydrates.


Subject(s)
Amino Sugars/chemical synthesis , Carbohydrates/chemistry , Drug Design , Amides/chemical synthesis , Amides/pharmacology , Amino Sugars/pharmacology , Dimerization , Ligands , Magnetic Resonance Spectroscopy , Molecular Structure , Protein Binding/drug effects
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