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2.
Am J Hosp Palliat Care ; : 10499091231206562, 2023 Oct 11.
Article in English | MEDLINE | ID: mdl-37822065

ABSTRACT

Objective: We implemented and studied a novel curriculum that combined role play, didactic education, and the use of a procedure card for asynchronous learning to improve second-year pediatric residents' skills in delivering serious news. Design: Phase 1 established baseline performance with a self-efficacy survey and observed simulation delivering serious news. Phase 2 included directed education of participants with a validated communication skills training framework. During Phase 3, participants were instructed to review the communication procedure card as a just-in-time reference prior to delivering serious news to patients and their families over 6 months. Following this period, participants completed a second self-efficacy survey and engaged in another observed simulation session delivering serious news. Pre and post intervention performance and self-efficacy were compared. Results: A total of 21 out of 26 (81%) participants completed all phases of this study. Participants had a statistically significant increase (p < .001) in self-efficacy scores post-intervention compared to pre-intervention for each of the skills to effectively deliver serious news: assess understanding, communicate news clearly, allow for silence, respond to emotion, and equip for next steps. Additionally, investigator assessments of participants showed an overall statistically significant improvement (p < .001) in all five communication skills post intervention compared to pre intervention. Conclusions: This curriculum resulted in significantly improved self-efficacy and observed ratings of communication skills in second-year pediatric residents over a 6-month period.

3.
BMJ Case Rep ; 15(8)2022 Aug 29.
Article in English | MEDLINE | ID: mdl-36038153

ABSTRACT

In this report, we describe the case of an adolescent male with an unusual case of fusion-negative, paratesticular alveolar rhabdomyosarcoma who presented with spontaneous tumour lysis syndrome and diffuse bony metastases throughout the axial and appendicular skeleton with additional significant bone marrow involvement. Both spontaneous tumour lysis syndrome and diffuse bony metastases are extremely unusual for rhabdomyosarcoma. On the backbone of standard vincristine, dactinomycin and cyclophosphamide (VAC) chemotherapy, the only local control was orchiectomy at 15 weeks, with no radiation administered due to the initially diffuse nature of the disease and rapid response to chemotherapy. Following 43 weeks of VAC, a year-long maintenance phase with pazopanib was given which was well tolerated. The patient remains in remission now 4 years after completion of therapy.


Subject(s)
Bone Marrow Diseases , Bone Neoplasms , Genital Neoplasms, Male , Rhabdomyosarcoma, Embryonal , Rhabdomyosarcoma , Tumor Lysis Syndrome , Adolescent , Antineoplastic Combined Chemotherapy Protocols , Bone Marrow Diseases/chemically induced , Bone Neoplasms/drug therapy , Bone Neoplasms/secondary , Cyclophosphamide , Dactinomycin/therapeutic use , Genital Neoplasms, Male/drug therapy , Humans , Male , Rhabdomyosarcoma/drug therapy , Rhabdomyosarcoma/pathology , Rhabdomyosarcoma, Embryonal/drug therapy , Tumor Lysis Syndrome/etiology , Vincristine
4.
Pediatrics ; 148(3)2021 09.
Article in English | MEDLINE | ID: mdl-34446537

ABSTRACT

Families and physicians alike benefit from the advances and ease of the Internet. Similarly, both can be unaware of harmful misinformation circulating the Web. In this article, we describe the presentation of 2 unrelated infants, within 1 week of each other, with vitamin D deficiency rickets and severe extraskeletal manifestations of hypocalcemia, including seizures and cardiac arrest, from homemade, vegan formula found through Pinterest (San Francisco, CA). Despite good parental intentions this formula did not meet macronutrient and micronutrient standards, particularly regarding vitamin D, phosphorus, and calcium content, and led to rare, life-threatening complications in both cases. Before presentation, both patients followed appropriately with their pediatrician and discussed feeding in detail, although neither family disclosed the use of homemade formula. Pediatricians must be aware of these dangerous homemade alternative formulas, consider the manner and depth of their feeding history questioning, and continue to counsel against homemade formula to prevent further harm to children.


Subject(s)
Food, Formulated , Vitamin D Deficiency , Calcium , Child , Disasters , Heart Arrest , Humans , Hypocalcemia , Infant , Male , Rickets , San Francisco , Seizures , Vitamin D
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