Detalhe da pesquisa
1.
Children with genetic conditions in the United States: Prevalence estimates from the 2016-2017 National Survey of Children's Health.
Genet Med
; 24(1): 170-178, 2022 01.
Artigo
em Inglês
| MEDLINE | ID: mdl-34906507
2.
What works in genomics education: outcomes of an evidenced-based instructional model for community-based physicians.
Genet Med
; 18(7): 737-45, 2016 07.
Artigo
em Inglês
| MEDLINE | ID: mdl-26583682
3.
Implementation of an electronic genomic and family health history tool in primary prenatal care.
Am J Med Genet C Semin Med Genet
; 166C(1): 34-44, 2014 Mar.
Artigo
em Inglês
| MEDLINE | ID: mdl-24616345
4.
Evaluation of a novel electronic genetic screening and clinical decision support tool in prenatal clinical settings.
Matern Child Health J
; 18(5): 1233-45, 2014 Jul.
Artigo
em Inglês
| MEDLINE | ID: mdl-24101435
5.
New models for large prospective studies: is there a better way?
Am J Epidemiol
; 175(9): 859-66, 2012 May 01.
Artigo
em Inglês
| MEDLINE | ID: mdl-22411865
6.
Public opinion about the importance of privacy in biobank research.
Am J Hum Genet
; 85(5): 643-54, 2009 Nov.
Artigo
em Inglês
| MEDLINE | ID: mdl-19878915
7.
Public preferences regarding the return of individual genetic research results: findings from a qualitative focus group study.
Genet Med
; 14(4): 451-7, 2012 Apr.
Artigo
em Inglês
| MEDLINE | ID: mdl-22402755
8.
Preferences for opt-in and opt-out enrollment and consent models in biobank research: a national survey of Veterans Administration patients.
Genet Med
; 14(9): 787-94, 2012 Sep.
Artigo
em Inglês
| MEDLINE | ID: mdl-22538255
9.
Can Factor V Leiden and prothrombin G20210A testing in women with recurrent pregnancy loss result in improved pregnancy outcomes?: Results from a targeted evidence-based review.
Genet Med
; 14(1): 39-50, 2012 Jan.
Artigo
em Inglês
| MEDLINE | ID: mdl-22237430
10.
Managing incidental findings and research results in genomic research involving biobanks and archived data sets.
Genet Med
; 14(4): 361-84, 2012 Apr.
Artigo
em Inglês
| MEDLINE | ID: mdl-22436882
11.
Risky business: risk perception and the use of medical services among customers of DTC personal genetic testing.
J Genet Couns
; 21(3): 413-22, 2012 Jun.
Artigo
em Inglês
| MEDLINE | ID: mdl-22278220
12.
A Blueprint for Change: Guiding Principles for a System of Services for Children and Youth With Special Health Care Needs and Their Families.
Pediatrics
; 149(Suppl 7)2022 06 01.
Artigo
em Inglês
| MEDLINE | ID: mdl-35642876
13.
Noninvasive fetal sex determination using cell-free fetal DNA: a systematic review and meta-analysis.
JAMA
; 306(6): 627-36, 2011 Aug 10.
Artigo
em Inglês
| MEDLINE | ID: mdl-21828326
14.
Newborn screening timeliness quality improvement initiative: Impact of national recommendations and data repository.
PLoS One
; 15(4): e0231050, 2020.
Artigo
em Inglês
| MEDLINE | ID: mdl-32240266
15.
Veterans' attitudes regarding a database for genomic research.
Genet Med
; 11(5): 329-37, 2009 May.
Artigo
em Inglês
| MEDLINE | ID: mdl-19346960
16.
Public perspectives on informed consent for biobanking.
Am J Public Health
; 99(12): 2128-34, 2009 Dec.
Artigo
em Inglês
| MEDLINE | ID: mdl-19833988
17.
Ethical implications of including children in a large biobank for genetic-epidemiologic research: a qualitative study of public opinion.
Am J Med Genet C Semin Med Genet
; 148C(1): 31-9, 2008 Feb 15.
Artigo
em Inglês
| MEDLINE | ID: mdl-18189289
18.
Subjects matter: a survey of public opinions about a large genetic cohort study.
Genet Med
; 10(11): 831-9, 2008 Nov.
Artigo
em Inglês
| MEDLINE | ID: mdl-19011407
19.
Public expectations for return of results from large-cohort genetic research.
Am J Bioeth
; 8(11): 36-43, 2008 Nov.
Artigo
em Inglês
| MEDLINE | ID: mdl-19061108
20.
Introducing the Blueprint for Change: A National Framework for a System of Services for Children and Youth with Special Health Care Needs.
Pediatrics
; 149(Suppl 7)2022 06 01.
Artigo
em Inglês
| MEDLINE | ID: mdl-35642870