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1.
BMC Nurs ; 23(1): 422, 2024 Jun 21.
Artigo em Inglês | MEDLINE | ID: mdl-38907266

RESUMO

BACKGROUND: The professional self-concept of nursing students significantly influences their attitude and identity within the profession, ultimately impacting their mental health and overall well-being. Recent evidence underscores the importance of assessing students' professional self-concept to prevent adverse outcomes such as burnout and stress. Since there are currently no validated instruments available in Portugal for this purpose, our objective was to translate, adapt, and validate the Nurse Self-Concept Questionnaire (NSCQ) with nursing students in Portugal. METHODS: A two-phase research study with a non-probabilistic sample of 216 undergraduate nursing students, using the QualtricsXM electronic platform for data collection. An exploratory factor analysis was performed to verify the validity of the theoretical construct and its internal consistency. Cronbach's alpha was calculated, and a confirmatory factor analysis was performed to assess the model fit. RESULTS: The final instrument, designated as Questionário de Autoconceito dos/as Enfermeiros/as (Pt - NSCQ), is composed of 24 items distributed across five dimensions: "General self-concept", "Staff relations", "Leadership", "Communication-care" and "Knowledge", which explain 67.71% of the total variance. All dimensions and the global scale revealed good internal consistency values, ranging from 0.775 to 0.927. The resulting factorial structure is coherent with the theoretical framework. CONCLUSION: The Pt - NSCQ proved to be a valid and reliable instrument to assess Portuguese nursing students' professional self-concept. Future studies should be carried out on larger samples and different educational contexts, aligned with the importance to ensure the continuity of the psychometric analysis of the instrument.

2.
Lancet Oncol ; 24(1): 91-106, 2023 01.
Artigo em Inglês | MEDLINE | ID: mdl-36436516

RESUMO

BACKGROUND: Truncating pathogenic or likely pathogenic variants of CDH1 cause hereditary diffuse gastric cancer (HDGC), a tumour risk syndrome that predisposes carrier individuals to diffuse gastric and lobular breast cancer. Rare CDH1 missense variants are often classified as variants of unknown significance. We conducted a genotype-phenotype analysis in families carrying rare CDH1 variants, comparing cancer spectrum in carriers of pathogenic or likely pathogenic variants (PV/LPV; analysed jointly) or missense variants of unknown significance, assessing the frequency of families with lobular breast cancer among PV/LPV carrier families, and testing the performance of lobular breast cancer-expanded criteria for CDH1 testing. METHODS: This genotype-first study used retrospective diagnostic and clinical data from 854 carriers of 398 rare CDH1 variants and 1021 relatives, irrespective of HDGC clinical criteria, from 29 institutions in ten member-countries of the European Reference Network on Tumour Risk Syndromes (ERN GENTURIS). Data were collected from Oct 1, 2018, to Sept 20, 2022. Variants were classified by molecular type and clinical actionability with the American College of Medical Genetics and Association for Molecular Pathology CDH1 guidelines (version 2). Families were categorised by whether they fulfilled the 2015 and 2020 HDGC clinical criteria. Genotype-phenotype associations were analysed by Student's t test, Kruskal-Wallis, χ2, and multivariable logistic regression models. Performance of HDGC clinical criteria sets were assessed with an equivalence test and Youden index, and the areas under the receiver operating characteristic curves were compared by Z test. FINDINGS: From 1971 phenotypes (contributed by 854 probands and 1021 relatives aged 1-93 years), 460 had gastric and breast cancer histology available. CDH1 truncating PV/LPVs occurred in 176 (21%) of 854 families and missense variants of unknown significance in 169 (20%) families. Multivariable logistic regression comparing phenotypes occurring in families carrying PV/LPVs or missense variants of unknown significance showed that lobular breast cancer had the greatest positive association with the presence of PV/LPVs (odds ratio 12·39 [95% CI 2·66-57·74], p=0·0014), followed by diffuse gastric cancer (8·00 [2·18-29·39], p=0·0017) and gastric cancer (7·81 [2·03-29·96], p=0·0027). 136 (77%) of 176 families carrying PV/LPVs fulfilled the 2015 HDGC criteria. Of the remaining 40 (23%) families, who did not fulfil the 2015 criteria, 11 fulfilled the 2020 HDGC criteria, and 18 had lobular breast cancer only or lobular breast cancer and gastric cancer, but did not meet the 2020 criteria. No specific CDH1 variant was found to predispose individuals specifically to lobular breast cancer, although 12 (7%) of 176 PV/LPV carrier families had lobular breast cancer only. Addition of three new lobular breast cancer-centred criteria improved testing sensitivity while retaining high specificity. The probability of finding CDH1 PV/LPVs in patients fulfilling the lobular breast cancer-expanded criteria, compared with the 2020 criteria, increased significantly (AUC 0·92 vs 0·88; Z score 3·54; p=0·0004). INTERPRETATION: CDH1 PV/LPVs were positively associated with HDGC-related phenotypes (lobular breast cancer, diffuse gastric cancer, and gastric cancer), and no evidence for a positive association with these phenotypes was found for CDH1 missense variants of unknown significance. CDH1 PV/LPVs occurred often in families with lobular breast cancer who did not fulfil the 2020 HDGC criteria, supporting the expansion of lobular breast cancer-centred criteria. FUNDING: European Reference Network on Genetic Tumour Risk Syndromes, European Regional Development Fund, Fundação para a Ciência e a Tecnologia (Portugal), Cancer Research UK, and European Union's Horizon 2020 research and innovation programme.


Assuntos
Neoplasias da Mama , Carcinoma Lobular , Neoplasias Gástricas , Feminino , Humanos , Antígenos CD/genética , Neoplasias da Mama/epidemiologia , Neoplasias da Mama/genética , Neoplasias da Mama/patologia , Caderinas/genética , Predisposição Genética para Doença , Genótipo , Células Germinativas/patologia , Mutação em Linhagem Germinativa , Linhagem , Fenótipo , Estudos Retrospectivos , Neoplasias Gástricas/epidemiologia , Neoplasias Gástricas/genética , Mutação de Sentido Incorreto
3.
Clin Gerontol ; : 1-22, 2023 Oct 27.
Artigo em Inglês | MEDLINE | ID: mdl-37888868

RESUMO

OBJECTIVES: The Reminiscence Functions Scale (RFS) is a widely used robust instrument. While reminiscence-based intervention is one of the most effective nonpharmacological interventions for older adults. This systematic review provides a comprehensive synthesis of the literature that used RFS with older adults, summarizes the main outcomes, and highlights implications for practice. METHODS: This systematic review followed Preferred Reporting Items for Systematic Reviews and Meta-Analyses (PRISMA) guidelines. Studies were eligible if they used RFS and included older adults. Studies were searched from 1993, the year RFS was first published. Electronic databases were searched (Scopus, PsycNET, and Web of Science), from which 44 eligible studies were identified. RESULTS: Four themes were identified: i) predictive value of reminiscence functions regarding well-being, ii) increased frequency of teach/inform and death preparation functions in older adults, iii) key roles of reminiscence functions in coping with critical life events, iv) reminiscence-based interventions should promote positive memories. CONCLUSIONS: The RFS outcomes may improve reminiscence-based interventions, since the functions of reminiscence are key players in older adults daily life. CLINICAL IMPLICATIONS: Reminiscence-based interventions should promote positive memories, which are associated with improved well-being. Particularly, it seems a good practice when supporting older adults regarding critical and traumatic events.

4.
Eur J Clin Invest ; 52(1): e13688, 2022 Jan.
Artigo em Inglês | MEDLINE | ID: mdl-34601718

RESUMO

BACKGROUND: Pressure ulcers (PUs) are injuries resulting from ischaemia caused by prolonged compression or shear forces on the skin, adjacent tissues and bones. Advanced stages of PUs are associated with infectious complications and constitute a major clinical challenge, with high social and economic impacts in health care. GOALS: This study aims to identify and describe the relationship between PU risk factors, stages and anatomical locations, and the relevance of microbial cohabitation and biofilm growth. METHODS: The narrative review method to advocating a critical and objective analysis of the current knowledge on the topic was performed. Indexed databases and direct consultation to specialized and high-impact journals on the subject were used to extract relevant information, guided by co-authors. The Medical Subject Headings of pressure ulcer (or injury), biofilms, infection and other analogues terms were used. RESULTS: Development of PUs and consequent infection depends on several direct and indirect risk factors, including cutaneous/PU microbiome, microclimate and behavioural factors. Infected PUs are polymicrobial and characterized by biofilm-associated infection, phenotypic hypervariability of species and inherent resistance to antimicrobials. The different stages and anatomical locations also play an important role in their colonization. The prevention and monitoring of PUs remain crucial for avoiding the emergence of systemic infections and reducing health care-associated costs, improve the quality of life of patients and reduce the mortality-associated infected PUs.


Assuntos
Microbiota , Úlcera por Pressão/microbiologia , Pele/microbiologia , Pessoal de Saúde , Humanos , Fatores de Risco
5.
Age Ageing ; 51(1)2022 01 06.
Artigo em Inglês | MEDLINE | ID: mdl-34673935

RESUMO

BACKGROUND: Longer lives increase the possibility of caring duties, which means that older adults looking after their ageing parents-as well as their own partners-is becoming an increasingly common scenario in developed countries. OBJECTIVE: To explore the caregiving demands of very old caregiving dyads and the experience of maintaining the identity of a child at such an advanced age. DESIGN: Qualitative study. SUBJECTS: 15 participants (four males), all aged 70 or over and caring for their mothers, aged between 95 and 105 years old. METHODS: Semi-structured interviews analysed thematically. RESULTS: Caregivers are willing to care for their mothers 'until death tears them apart', despite the double strains they face, that is more self-limitations and added care receiver need. On a positive side, they feel 'happy, thankful and proud' for still having their mothers alive. They also describe that maintaining the identity of a child at such an advanced age was somewhat unthought of and unexpected but an important source of pride. CONCLUSIONS: These findings suggest that these oldest-old caregiving dyads are characterised by a relationship shaped by strong feelings of extended filial love, constituting a family feature that needs further understanding. Findings also underscore the challenges these carers face in dealing with several agents (secondary caregivers) and entities in the care provision.


Assuntos
Centenários , Mães , Adolescente , Idoso , Idoso de 80 Anos ou mais , Cuidadores , Criança , Emoções , Feminino , Humanos , Masculino , Pesquisa Qualitativa
6.
J Gerontol Soc Work ; 65(7): 782-794, 2022 10.
Artigo em Inglês | MEDLINE | ID: mdl-35239470

RESUMO

The COVID-19 pandemic has placed care facilities for older adults under high pressure. This study aimed to identify the perception of staff in Portuguese Residential Care Facilities for Older Adults about their experience during and right after the first lockdown (March/April 2020) due to the COVID-19 pandemic. It comprises 198 respondents who answered an open question about their experiences during the pandemic on an online questionnaire. The main findings suggested three themes: 1) a cascade of new needs on top of old problems; 2) working on the razor's edge: a difficult balance between protecting against the virus and maintaining one's well-being; and 3) a need for support and appreciation. The pandemic has exposed and accentuated the fragilities of Residential Care Facilities in Portugal, which operate with low budgets, and minimum staff. The measures to protect against infection have to be balanced by actions to maintain psychosocial and rehabilitation activities with the residents, to promote their well-being and functional capacity.


Assuntos
COVID-19 , Pandemias , Idoso , COVID-19/epidemiologia , Controle de Doenças Transmissíveis , Instituição de Longa Permanência para Idosos , Humanos , Portugal/epidemiologia , Instituições Residenciais
7.
J Gerontol Soc Work ; 65(7): 728-734, 2022 10.
Artigo em Inglês | MEDLINE | ID: mdl-34933663

RESUMO

Loneliness is a subjective experience escalating worldwide and affecting older adults. Digital solutions can play a major role in addressing loneliness, although its use has been facing resistance due to scarce involvement of older adults in its design. MOAI LABS is an ongoing European project that adopts a co-design process to develop digital solutions to address loneliness in older adults. This study reports the experience of loneliness shared by a group of eight community-dwelling older Portuguese adults (aged 64 to 86 years old), who are "experts by experience" (who feel alone). Findings were obtained from two co-creation sessions that were audio-recorded, and transcribed. The data analysis was performed involving the research team and the "experts by experience." Three themes emerged: 1) loneliness as a detrimental "state of the soul"; 2) loneliness reinforced by features of the aging process; and 3) loneliness builds more loneliness. MOAI LABS co-design process of digital solutions will embrace these experiences and involve frontline gerontological social workers who have experience with older adults' loneliness.


Assuntos
Vida Independente , Solidão , Idoso , Idoso de 80 Anos ou mais , Emoções , Humanos , Estudos Longitudinais , Isolamento Social
8.
Sensors (Basel) ; 21(6)2021 Mar 11.
Artigo em Inglês | MEDLINE | ID: mdl-33799674

RESUMO

In this work, we demonstrate for the first time the capability to inscribe long-period gratings (LPGs) with UV radiation using simple and low cost amplitude masks fabricated with a consumer grade 3D printer. The spectrum obtained for a grating with 690 µm period and 38 mm length presented good quality, showing sharp resonances (i.e., 3 dB bandwidth < 3 nm), low out-of-band loss (~0.2 dB), and dip losses up to 18 dB. Furthermore, the capability to select the resonance wavelength has been demonstrated using different amplitude mask periods. The customization of the masks makes it possible to fabricate gratings with complex structures. Additionally, the simplicity in 3D printing an amplitude mask solves the problem of the lack of amplitude masks on the market and avoids the use of high resolution motorized stages, as is the case of the point-by-point technique. Finally, the 3D printed masks were also used to induce LPGs using the mechanical pressing method. Due to the better resolution of these masks compared to ones described on the state of the art, we were able to induce gratings with higher quality, such as low out-of-band loss (0.6 dB), reduced spectral ripples, and narrow bandwidths (~3 nm).

9.
Int J Aging Hum Dev ; 93(2): 786-802, 2021 09.
Artigo em Inglês | MEDLINE | ID: mdl-32347102

RESUMO

Behavioral and psychological symptoms of dementia are a major reason for institutionalization, and high demanding for staff in Residential Care Facilities. This article reports the design, implementation, and evaluation of a Validation Therapy pilot-training program (VALIDA) for staff members of a residential care facility in Aveiro, Portugal. This pilot study involved 22 members of the staff, including qualified professionals and nonqualified direct care workers, who were involved in the design. The pilot-training program comprises two components: training sessions in group and individual monitoring between those sessions. The evaluation indicates that the structure of the pilot-program was well accepted, and participants reported positive impacts in professional (better skilled to deal with residents with dementia) and personal (better trained to deal with elderly relatives) lives. This pilot-training program shows potential to be used in residential care facilities and needs to be replicated.


Assuntos
Demência/terapia , Capacitação em Serviço/métodos , Instituições Residenciais , Avaliação Educacional , Feminino , Humanos , Masculino , Pessoa de Meia-Idade , Projetos Piloto , Portugal , Avaliação de Programas e Projetos de Saúde
10.
J Ment Health ; 30(5): 646-659, 2021 Oct.
Artigo em Inglês | MEDLINE | ID: mdl-33150805

RESUMO

BACKGROUND: Animal hoarding has been portrayed as a manifestation of hoarding behaviour that is escalating worldwide. Professionals trying to support or help animal hoarders face several challenges due to the lack of systematized information on intervention strategies. AIMS: To comprehensively review and systematize the information available on intervention practices with this population. METHOD: A scoping study was performed using five databases (B-ON, EBSCO, SCOPUS, Web of SCIENCE, PubMed), searching for papers published until March 2020. Fifteen papers were selected and submitted to thematic analysis. RESULTS: The main findings point to two main themes: (i) what is done-responding to animal hoarding as an emergency; and (ii) what should be done-responding animal hoarding in a long-term, integrated manner. CONCLUSIONS: To have a consistent strategy that assures better results, it seems relevant to prepare community interventions based on collaborative and solution-focused approaches. In addition, there is a strong need to have more research on animal hoarding and on successful intervention strategies.


Assuntos
Colecionismo/psicologia , Saúde Mental , Intervenção Psicossocial , Animais , Humanos
11.
Am J Occup Ther ; 74(1): 7401205070p1-7401205070p8, 2020.
Artigo em Inglês | MEDLINE | ID: mdl-32078518

RESUMO

IMPORTANCE: Finding strategies to enhance imitation skills in people with autism spectrum disorder (ASD) is of major clinical relevance. OBJECTIVE: To evaluate whether contact with dogs may be a useful approach to elicit spontaneous imitation in people with ASD. DESIGN: Participants completed a spontaneous imitation task under three experimental conditions: after a free-play interaction with a live dog, after a free-play interaction with a robotic dog, and after a waiting period that involved no stimuli. PARTICIPANTS: Ten children and 15 adults diagnosed with severe ASD. OUTCOMES AND MEASURES: Imitation ratio, imitation accuracy, and indicators of social motivation. RESULTS: Children appeared more motivated and engaged more frequently in spontaneous imitation in the live dog condition than in the other conditions. No differences between conditions were found for adults for imitation or social motivation. However, correlations suggested a possible trend for adults in time spent engaging with the live dog before testing and in increased imitation frequency. CONCLUSIONS AND RELEVANCE: The results are preliminary and do not indicate the utility of integrating (live) dogs into interventions aimed at promoting social motivation and enhancing imitation skills in people with ASD. However, they suggest that doing so holds promise. Larger scale studies are now needed. WHAT THIS ARTICLE ADDS: This research calls for occupational therapy practitioners' attention to the potential benefits that may derive from using dogs to promote spontaneous imitation, and increase imitation performance, in people with ASD, particularly children.


Assuntos
Transtorno do Espectro Autista , Robótica , Adulto , Animais , Atenção , Criança , Cães , Humanos , Comportamento Imitativo , Robótica/instrumentação
12.
J Gerontol Soc Work ; 63(8): 878-892, 2020.
Artigo em Inglês | MEDLINE | ID: mdl-32967580

RESUMO

Participation is a right and a key pillar of the active aging paradigm. This systematic review aimed to understand how older people's participation is conceptualized and to detail results regarding older people's perspective about their participation in the context of social and health care services. Twenty-one articles published between 1996 and 2015 were analyzed. The main findings suggested that diverse terminology is used to conceptualize older people's participation; however, all shared a vision of respecting a citizen's autonomy. Older people tend to have a paternalistic perspective although most seek more information and discussion on treatment options. Positive relations with providers enabled negotiation to address individual aspirations, though services tended to be pre-formatted suggesting low levels of adjustment to individual needs and aspirations. Thus, older people and those working with them need training in order to enable participation. In addition, services need to be more flexible to allow users to participate.


Assuntos
Serviços de Saúde para Idosos , Participação do Paciente/psicologia , Idoso , Idoso de 80 Anos ou mais , Humanos , Apoio Social , Serviço Social
13.
J Elder Abuse Negl ; 31(1): 66-76, 2019.
Artigo em Inglês | MEDLINE | ID: mdl-30358523

RESUMO

This study explores patterns of resident-to-resident elder mistreatment (R-REM) in Portuguese Residential Structures for Elderly People (ERI: Estruturas Residenciais para Idosos). Results display a serious situation of R-REM, which occurs in different patterns.


Assuntos
Agressão , Abuso de Idosos , Casas de Saúde , Idoso , Bullying , Demência/psicologia , Feminino , Humanos , Relações Interpessoais , Ciúme , Masculino , Portugal
14.
Fam Process ; 57(3): 836-846, 2018 09.
Artigo em Inglês | MEDLINE | ID: mdl-28714147

RESUMO

Genetic information is a family affair. With the expansion of genomic technologies, many new causal genes and variants have been established and the potential for molecular diagnoses increased, with implications not only for patients but also their relatives. The need for genetic counseling and intrafamilial circulation of information on genetic risks grew accordingly. Also, the amount and, particularly, the complexity of the information to convey multiplied. Sharing information about genetic risks with family members, however, has never been an easy matter and often becomes a source of personal and familial conflicts and distress. Ethical requisites generally prevent healthcare professionals from directly contacting their consultands' relatives (affected or still at risk), who often feel unsupported throughout that process. We discuss here the communication of genetic risks to family members. We first consider genomic testing as a basis for family-centered health care, as opposed to a predominant focus on the individual. We reviewed the literature on sharing genetic risk information with family members, and the associated ethical issues for professionals. Some clinical cases are presented and discussed, and key issues for meeting the needs of individuals and families are addressed. We argue that genetic information is inextricably linked to the family and that communicating about genetic risks is a process grounded within the broader milieu of family relationships and functioning. We conclude for the need for a more family-centered approach and interventions that can promote sensitive attitudes to the provision of genetic information to and within the family, as well as its inclusion in educational and training programmes for genetic healthcare professionals.


Assuntos
Comunicação , Aconselhamento Genético/psicologia , Genômica/ética , Relações Profissional-Família/ética , Relações Profissional-Paciente/ética , Família/psicologia , Relações Familiares/psicologia , Aconselhamento Genético/ética , Genômica/métodos , Humanos
15.
Neurol Sci ; 38(12): 2145-2152, 2017 Dec.
Artigo em Inglês | MEDLINE | ID: mdl-28963587

RESUMO

The purpose of this study is to present an fMRI paradigm, based on the Williams inhibition test (WIT), to study attentional and inhibitory control and their neuroanatomical substrates. We present an index of the validity of the proposed paradigm and test whether the experimental task discriminates the behavioral performances of healthy participants from those of individuals with acquired brain injury. Stroop and Simon tests present similarities with WIT, but this latter is more demanding. We analyze the BOLD signal in 10 healthy participants performing the WIT. The dorsolateral prefrontal cortex, the inferior prefrontal cortex, the anterior cingulate cortex, and the posterior cingulate cortex were defined for specified region of interest analysis. We additionally compare behavioral data (hits, errors, reaction times) of the healthy participants with those of eight acquired brain injury patients. Data were analyzed with GLM-based random effects and Mann-Whitney tests. Results show the involvement of the defined regions and indicate that the WIT is sensitive to brain lesions. This WIT-based block design paradigm can be used as a research methodology for behavioral and neuroimaging studies of the attentional and inhibitory components of executive functions.


Assuntos
Atenção/fisiologia , Encéfalo/diagnóstico por imagem , Encéfalo/fisiologia , Inibição Psicológica , Imageamento por Ressonância Magnética , Testes Neuropsicológicos , Adulto , Encéfalo/fisiopatologia , Lesões Encefálicas Traumáticas/diagnóstico por imagem , Lesões Encefálicas Traumáticas/fisiopatologia , Lesões Encefálicas Traumáticas/psicologia , Mapeamento Encefálico , Circulação Cerebrovascular/fisiologia , Função Executiva/fisiologia , Feminino , Humanos , Imageamento por Ressonância Magnética/métodos , Masculino , Oxigênio/sangue , Tempo de Reação , Autocontrole , Acidente Vascular Cerebral/diagnóstico por imagem , Acidente Vascular Cerebral/fisiopatologia , Acidente Vascular Cerebral/psicologia
16.
Scand J Caring Sci ; 31(2): 222-231, 2017 Jun.
Artigo em Inglês | MEDLINE | ID: mdl-27440432

RESUMO

Many intervention studies lack an investigation and description of the factors that are relevant to its success or failure, despite its relevance to inform future interventions. This study aimed to explore the facilitators and barriers to the implementation of a psycho-educational intervention for care assistants caring for people with dementia in aged-care facilities. A process evaluation was carried out alongside a pretest/post-test controlled study conducted in aged-care facilities. Seven focus-group interviews involving 21 care assistants (female; mean age 43.37 ± 10.0) and individual semi-structured interviews with two managers (female; mean age 45.5 ± 10.26) were conducted 2 weeks and 6 months after the intervention, in two aged-care facilities. Interviews were recorded, transcribed and submitted to content analysis by two independent researchers. Results were organised into implementer, participant and organisation level hindered and facilitator factors. Findings enable the interpretation of the experimental results and underscore the importance of collecting the perception of different grades of staff to obtain information relevant to plan effective interventions.


Assuntos
Demência/enfermagem , Educação Continuada/organização & administração , Instituição de Longa Permanência para Idosos/organização & administração , Assistentes de Enfermagem/educação , Adulto , Feminino , Humanos , Masculino , Pessoa de Meia-Idade , Modelos Teóricos , Assistentes de Enfermagem/psicologia
17.
Qual Life Res ; 25(9): 2367-72, 2016 09.
Artigo em Inglês | MEDLINE | ID: mdl-27023368

RESUMO

PURPOSE: The aim of this study was to examine the psychometric properties of the European Portuguese version of the World Health Organization Quality of Life-Older Adults Module (WHOQOL-OLD). The European Portuguese WHOQOL-OLD includes a new identified facet, Family/Family life. METHODS: A convenience sample of older adults was recruited (N = 921). The assessment protocol included demographics, self-perceived health, depressive symptoms (GDS-30), cognitive function (ACE-R), daily life activities (IAFAI), health status (SF-12) and QoL (WHOQOL-Bref, EUROHIS-QOL-8 and WHOQOL-OLD). RESULTS: The internal consistency was excellent for the total 24-item WHOQOL-OLD original version and also for the final 28-item European Portuguese WHOQOL-OLD version. The test-retest reliability for total scores was good. The construct validity of the European Portuguese WHOQOL-OLD was supported in the correlation matrix analysis. The results indicated good convergent/divergent validity. The WHOQOL-OLD scores differentiated groups of older adults who were healthy/unhealthy and without/mild/severe depressive symptoms. The new facet, Family/Family life, presented evidence of good reliability and validity parameters. CONCLUSION: Comparatively to international studies, the European Portuguese WHOQOL-OLD version showed similar and/or better psychometric properties. The new facet, Family/Family life, introduces cross-cultural specificity to the study of QoL of older adults and generally improves the psychometric robustness of the WHOQOL-OLD.


Assuntos
Relações Familiares/psicologia , Psicometria/métodos , Qualidade de Vida/psicologia , Idoso , Idoso de 80 Anos ou mais , Europa (Continente) , Feminino , Humanos , Masculino , Pessoa de Meia-Idade , Portugal , Reprodutibilidade dos Testes , Inquéritos e Questionários , Organização Mundial da Saúde
18.
Health Commun ; 31(4): 453-9, 2016.
Artigo em Inglês | MEDLINE | ID: mdl-26400182

RESUMO

This study assessed the effects of a person-centered care-based psycho-educational intervention on direct care workers' communicative behaviors with people with dementia living in aged-care facilities. An experimental study with a pretest-posttest control-group design was conducted in four aged-care facilities. Two experimental facilities received an 8-week psycho-educational intervention aiming to develop workers' knowledge about dementia, person-centered care competences, and tools for stress management. Control facilities received education only, with no support to deal with stress. In total, 332 morning care sessions, involving 56 direct care workers (female, mean age 44.72 ± 9.02 years), were video-recorded before and 2 weeks after the intervention. The frequency and duration of a list of verbal and nonverbal communicative behaviors were analyzed. Within the experimental group there was a positive change from pre- to posttest on the frequency of all workers' communicative behaviors. Significant treatment effects in favor of the experimental group were obtained for the frequency of inform (p < .01, η(2)partial = 0.09) and laugh (p < .01, η(2)partial = 0.18). Differences between groups emerged mainly in nonverbal communicative behaviors. The findings suggest that a person-centered care-based psycho-educational intervention can positively affect direct care workers' communicative behaviors with residents with dementia. Further research is required to determine the extent of the benefits of this approach.


Assuntos
Comunicação , Demência/enfermagem , Pessoal de Saúde/educação , Instituição de Longa Permanência para Idosos , Adulto , Feminino , Humanos , Pessoa de Meia-Idade
19.
Int Psychogeriatr ; 26(2): 217-28, 2014 Feb.
Artigo em Inglês | MEDLINE | ID: mdl-24229806

RESUMO

BACKGROUND: Mental health professionals are frequently involved in mental capacity determinations. However, there is a lack of specific measures and well-defined procedures for these evaluations. The main purpose of this paper is to provide a review of financial and testamentary capacity evaluation procedures, including not only the traditional neuropsychological and functional assessment but also the more recently developed forensic assessment instruments (FAIs), which have been developed to provide a specialized answer to legal systems regarding civil competencies. METHODS: Here the main guidelines, papers, and other references are reviewed in order to achieve a complete and comprehensive selection of instruments used in the assessment of financial and testamentary capacity. RESULTS: Although some specific measures for financial abilities have been developed recently, the same is not true for testamentary capacity. Here are presented several instruments or methodologies for assessing financial and testamentary capacity, including neuropsychological assessment, functional assessment scales, performance based functional assessment instruments, and specific FAIs. CONCLUSIONS: FAIs are the only specific instruments intended to provide a specific and direct answer to the assessment of financial capacity based on legal systems. Considering the need to move from a diagnostic to a functional approach in financial and testamentary capacity evaluations, it is essential to consider both general functional examination as well as cognitive functioning.


Assuntos
Envelhecimento/psicologia , Função Executiva , Prova Pericial , Competência Mental/legislação & jurisprudência , Testamentos , Idoso , Prova Pericial/legislação & jurisprudência , Prova Pericial/métodos , Psiquiatria Legal/legislação & jurisprudência , Psiquiatria Legal/métodos , Avaliação Geriátrica , Humanos , Transtornos Mentais/psicologia , Testes Neuropsicológicos , Testamentos/legislação & jurisprudência , Testamentos/psicologia
20.
Glob Qual Nurs Res ; 11: 23333936241236292, 2024.
Artigo em Inglês | MEDLINE | ID: mdl-38646613

RESUMO

The process of transitioning involves making changes to align one's life with their authentic gender identity. This study explores the life trajectories of three Portuguese transgender women who transitioned later in life (50+ years old) by identifying key chapters in their life courses. Through inductive thematic analysis, six chapters were identified from the participants' interviews: (1) awareness of "something different in me," (2) locked into suffering, (3) finding comfort in something that is socially recognized, (4) "it is enough": it is time to recognize and embrace the woman I am, (5) living my life as a woman, and (6) building and leaving a legacy. Aging and the process of self-discovery played pivotal roles in participants' process of transitioning. The perception of finitude and the limitations associated with the time of life led them to realize that there was no time to waste and a sense of urgency to live authentically.


O processo de transição envolve mudanças para alinhar a vida com a identidade de género autêntica. Este estudo explora as trajetórias de vida de três mulheres transgénero portuguesas que fizeram a transição mais tardia (depois dos 50 anos), identificando capítulos-chave nos seus percursos de vida. Através da análise temática indutiva, foram identificados seis capítulos a partir das entrevistas dos participantes: (1) consciência de "algo diferente em mim," (2) fechada no sofrimento, (3) encontrar conforto em algo que é socialmente reconhecido, (4) "já chega:" é altura de reconhecer a mulher que sou, (5) viver a minha vida como mulher, e (6) construir e deixar um legado. O envelhecimento e o processo de autodescoberta desempenharam papéis fundamentais no processo de transição das participantes. A perceção da finitude e das limitações associadas ao tempo de vida levou-as a perceber que não havia tempo a perder, dando um sentido de urgência para viver de forma autêntica.

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