Your browser doesn't support javascript.
loading
Mostrar: 20 | 50 | 100
Resultados 1 - 20 de 68
Filtrar
Mais filtros

Base de dados
País/Região como assunto
Tipo de documento
Intervalo de ano de publicação
1.
Support Care Cancer ; 31(7): 415, 2023 Jun 24.
Artigo em Inglês | MEDLINE | ID: mdl-37354228

RESUMO

PURPOSE: Acute lymphoblastic leukemia (ALL) is the most common cancer diagnosed among individuals <14 years of age. The disease and its treatments are associated with negative side effects, including pain, which is both prevalent and distressing. Little is known about pain experiences in this population, which has slowed efforts to identify strategies to mitigate and cope with this adverse effect. This study sought to explore youth's and their caregiver's experiences with, and perspectives of, pain in the context of pediatric cancer treatment. METHODS: Youth and one of their caregivers were recruited through (omitted for peer review). Following completion of a demographic survey, youth and one of their caregivers were interviewed separately using a semi-structured, one-on-one interview guide. Demographic information was analyzed with descriptive statistics, and interviews were transcribed verbatim and analyzed using reflexive thematic analysis. RESULTS: Youth (n = 19; Mage = 15.3 years) and caregiver (n = 19; Mage = 45.4 years) perspectives informed 4 themes: (1) my pain experience is nuanced, multidimensional, and is changing over time; (2) the cancer experience has changed the way I experience and respond to pain; (3) I used strategies to manage pain, and not all of them worked; and (4) my pain experience was influenced by people around me. CONCLUSIONS: Findings extend prior work, suggesting that pain is common, distressing, multidimensional, and influenced by social context. Results highlight the number of ways in which youth and their caregivers attempt to manage their pain and factors influencing pain experiences. Greater efforts are needed to address pain during cancer treatment and survivorship.


Assuntos
Cuidadores , Leucemia-Linfoma Linfoblástico de Células Precursoras , Humanos , Criança , Adolescente , Pessoa de Meia-Idade , Dor/etiologia , Meio Social , Leucemia-Linfoma Linfoblástico de Células Precursoras/terapia , Pesquisa Qualitativa
2.
Support Care Cancer ; 31(10): 569, 2023 Sep 11.
Artigo em Inglês | MEDLINE | ID: mdl-37695526

RESUMO

PURPOSE: This scoping review describes the assessment methodologies for physical activity (PA) and physical fitness assessments used in studies focusing on adolescents and young adults (AYAs) diagnosed with cancer. METHODS: A search of the literature was conducted in PubMed, CINAHL, Web of Science, and Cochrane Library following the PRISMA-ScR statement. A total of 34 studies were included in this review. RESULTS: PA was primarily assessed via self-reported questionnaires (30/34) either completed in-person (n = 17) or online (n = 13) at different time points and different stages along the cancer trajectory (i.e., from diagnosis onward). A total of 9 studies conducted a physical fitness assessment. CONCLUSIONS: PA and physical fitness measurements are key when trying to describe outcomes, assess for associations, track changes, measure intervention adherence, and test intervention efficacy and effectiveness. Considerable heterogeneity across studies was reported limiting the generation of formal recommendations or guidance for researchers, healthcare providers, and policy makers.


Assuntos
Neoplasias , Adolescente , Adulto Jovem , Humanos , Neoplasias/terapia , Exercício Físico , Aptidão Física , Pessoal Administrativo , Pessoal de Saúde
3.
J Psychosoc Oncol ; 41(6): 752-760, 2023.
Artigo em Inglês | MEDLINE | ID: mdl-37114930

RESUMO

Understanding if (and how) adults with cancer perceived their physical activity (PA) levels have changed (or not) since the COVID-19 pandemic and why this may have occurred is important. Given current gaps in knowledge, the purpose of this study was to explore PA experiences among adults with cancer amidst the COVID-19 pandemic. Individuals were eligible if they were currently ≥19 years of age, had been diagnosed with cancer ≥18 years of age, and were living in Canada. 113 adults affected by cancer (Mage = 61.9 ± 12.7 years; 68% female) completed the survey which asked closed- and open-ended questions about PA levels and PA engagement experiences. Most participants (n = 76, 67.3%) were not meeting PA guidelines, and reported engaging in, on average, 89.2 ± 138.2 minutes per week of moderate-to-vigorous PA. Participants indicated their PA declined (n = 55, 38.7%), did not change (n = 40, 35.4%), or increased (n = 18, 15.9%) since the start of the pandemic. Participants described their changed PA as due to public health restrictions, lowered motivation during the pandemic, or cancer- and treatment-related effects. For those engaging in similar or greater PA, online home-based and outdoor PA were shared as main forms of PA. Findings suggest PA behavior change support and ongoing access to online, home-based and outdoor PA options will be required as pandemic restrictions ease in this population.

4.
Qual Life Res ; 31(12): 3339-3354, 2022 Dec.
Artigo em Inglês | MEDLINE | ID: mdl-35816258

RESUMO

PURPOSE: Long COVID, an illness affecting a subset of individuals after COVID-19, is distressing, poorly understood, and reduces quality of life. The objective of this sub-study was to better understand and explore individuals' experiences with long COVID and commonly reported symptoms, using qualitative data collected from open-ended survey responses. METHODS: Data were collected from adults living with long COVID who participated in a larger observational online survey. Participants had the option of answering seven open-ended items. Data from the open-ended items were analyzed following guidelines for reflective thematic analysis. RESULTS: From 213 participants who were included in the online survey, 169 participants who primarily self-identified as women (88.2%), aged 40-49 (33.1%), who had been experiencing long COVID symptoms for ≥ 6 months (74%) provided open-ended responses. Four overlapping and interconnected themes were identified: (1) Long COVID symptoms are numerous and wearing, (2) The effects of long COVID are pervasive, (3) Physical activity is difficult and, in some cases, not possible, and (4) Asking for help when few are listening, and little is working. CONCLUSION: Findings reaffirm prior research, highlighting the complex nature of long COVID. Further, results show the ways individuals affected by the illness are negatively impacted and have had to alter their daily activities. Participants recounted the challenges faced when advocating for themselves, adapting to new limitations, and navigating healthcare systems. The varied relapsing-remitting symptoms, unknown prognosis, and deep sense of loss over one's prior identity suggest interventions are needed to support this population.


Assuntos
COVID-19 , Adulto , Feminino , Humanos , Qualidade de Vida/psicologia , Emoções , Síndrome de COVID-19 Pós-Aguda
5.
Can Oncol Nurs J ; 32(4): 586-588, 2022.
Artigo em Inglês | MEDLINE | ID: mdl-38919782

RESUMO

Walking is one form of physical activity (PA) individuals affected by cancer have indicated strong preference for and interest in, regardless of disease or treatment status. We developed a community-based, outdoor, peer-led walking program for adults affected by cancer called Walk it Out (WIO). Over the span of six months, we were unable to meet targets for peer-leaders (to lead the walking groups; n = 5 self-identified) or participants (n = 0 self-identified; n = 3 recruited via peer-leaders). This inability to recruit meant that we were not able to offer the WIO program. In this paper, we reflect upon the lack of coherence between what has been shown in the literature regarding preferences for walking and the lack of interest in the present program. We describe challenges at both the interpersonal and individual level. Adults affected by cancer can benefit immensely from PA, and desire outdoor walking programs, but the question remains: how do we best launch and promote this type of physical activity program?

6.
BMC Neurol ; 21(1): 300, 2021 Aug 04.
Artigo em Inglês | MEDLINE | ID: mdl-34344355

RESUMO

BACKGROUND: Executive functioning (EF) deficits are troubling for adolescents and young adults (AYAs) after cancer treatment. Physical activity (PA) may enhance neural activity underlying EF among older adults affected by cancer. Establishing whether PA enhances neural activity among AYAs is warranted. As part of a two-arm, mixed-methods pilot randomized controlled trial (RCT), this proof-of-concept sub-study sought to answer the following questions: (1) is it feasible to use neuroimaging with EF tasks to assess neural activity changes following a 12-week PA intervention? And (2) is there preliminary evidence that a 12-week PA intervention enhances neural activity among AYAs after cancer treatment? METHODS: AYAs in the pilot RCT were approached for enrollment into this sub-study. Those who were eligible and enrolled, completed functional magnetic resonance imaging (fMRI) with EF tasks (letter n-back, Go/No Go) pre- and post-PA intervention. Sub-study enrollment, adherence to scheduled fMRI scans, outliers, missing data, and EF task performance data were collected. Data were analyzed with descriptive statistics, blood oxygen level dependent (BOLD) analyses, and paired sample t-tests. RESULTS: Nine eligible participants enrolled into this sub-study; six attended scheduled fMRI scans. One outlier was identified and was subsequently removed from the analytical sample. Participants showed no differences in EF task performance from pre- to post-PA intervention. Increases in neural activity in brain regions responsible for motor control, information encoding and processing, and decision-making were observed post-PA intervention (p < 0.05; n = 5). CONCLUSIONS: Findings  show that fMRI scans during EF tasks detected neural activity changes (as assessed by the BOLD signal) from pre- to post-PA intervention. Results thus suggest future trials confirming that PA enhances neural activity underlying EF are needed, though feasibility issues require careful consideration to ensure trial success. TRIAL REGISTRATION: clinicaltrials.gov, NCT03016728. Registered January 11, 2017, clinicaltrials.gov/ct2/show/NCT03016728.


Assuntos
Exercício Físico , Neoplasias , Adolescente , Função Executiva , Estudos de Viabilidade , Humanos , Neoplasias/terapia , Adulto Jovem
7.
Support Care Cancer ; 29(8): 4439-4450, 2021 Aug.
Artigo em Inglês | MEDLINE | ID: mdl-33449169

RESUMO

PURPOSE: The self-perceptions of adolescents and young adults (AYAs) after cancer treatment are not well understood. As part of a two-arm, mixed-methods pilot randomized controlled trial (RCT), this qualitative sub-study explored AYAs' self-perceptions after cancer treatment and investigated how physical activity (PA) may contribute to their self-perceptions. METHODS: Data were collected from 16 AYAs who completed cancer treatment and who participated in a two-arm, mixed-methods pilot RCT. Recruited AYAs were randomized to a 12-week PA intervention or a wait-list control group, and semi-structured interviews were conducted at baseline (pre-randomization) and 12 weeks later (post-intervention or post-waiting period) to elicit discussions on self-perceptions and PA. Data were analyzed thematically using inductive and deductive approaches. The exercise and self-esteem model (EXSEM) was the theoretical lens for the deductive analysis. RESULTS: Data were organized into four unified main themes: (1) I came out on top and am (re)discovering myself, (2) Comparison to my past self and others induces negative feelings, (3) My changed body brings me down, but it does not rule my life, and (4) My previous experience with PA informs my expectations for my future PA, and two themes contingent on group allocation: (5) Participating in a PA program made me feel better about myself, and (6) I did not notice any changes while waiting for the PA program, but I am anticipating support. CONCLUSION: AYAs' self-perceptions are amenable to change, positively and negatively valenced, and influenced by PA. Although the EXSEM captured intrapersonal factors related to AYAs' self-perceptions after cancer treatment, interpersonal and contextual factors beyond the EXSEM also shaped their self-perceptions. TRIAL REGISTRATION: Clinicaltrials.gov , NCT03016728. Registered January 11, 2017.


Assuntos
Exercício Físico/fisiologia , Neoplasias/terapia , Adolescente , Adulto , Feminino , Humanos , Masculino , Projetos Piloto , Pesquisa Qualitativa , Autoimagem , Adulto Jovem
8.
Support Care Cancer ; 29(1): 477-484, 2021 Jan.
Artigo em Inglês | MEDLINE | ID: mdl-32399724

RESUMO

PURPOSE: Moderate-to-vigorous-intensity physical activity (PA) can alleviate many adverse side effects and symptoms caused by cancer treatments; yet, most cancer survivors are insufficiently active. Evidence shows that theory-based PA behavior change interventions are more effective than non-theory-based interventions; thus, it is necessary to ascertain modifiable theoretical factors associated with moderate-to-vigorous-intensity PA among cancer survivors. Drawing on the health belief model (HBM), the associations between moderate-to-vigorous-intensity PA and (1) perceived susceptibility to cancer recurrence and health problems, (2) perceived severity of cancer recurrence and health problems, (3) perceived benefits of PA for reducing risk of cancer recurrence and health problems, (4) perceived barriers to PA, and (5) PA barrier self-efficacy among cancer survivors were examined. METHODS: A total of 123 adult cancer survivors (Mage = 50.1 ± 15.5 years; 82.9% female) completed an online self-report survey assessing sociodemographic and medical characteristics, moderate-to-vigorous-intensity PA, and the HBM constructs. Data were analyzed descriptively and using hierarchical linear regression analysis. RESULTS: After adjusting for age, sex, body mass index, time since cancer diagnosis, and treatments received, the HBM constructs collectively explained 29% of the variance in moderate-to-vigorous-intensity PA. Perceived benefits of PA (ß = .20, 95% CI [1.81, 11.67], p = .007) and PA barrier self-efficacy (ß = .42, 95% CI [0.26, 0.53], p < .001) were significantly associated with moderate-to-vigorous-intensity PA. CONCLUSION: Raising awareness of the benefits of PA for reducing risk of cancer recurrence and health problems and strengthening self-efficacy to overcome PA barriers may help to promote cancer survivors' attainment of moderate-to-vigorous-intensity PA guidelines.


Assuntos
Sobreviventes de Câncer/psicologia , Atividade Motora/fisiologia , Neoplasias/terapia , Sobreviventes de Câncer/estatística & dados numéricos , Estudos Transversais , Feminino , Humanos , Masculino , Pessoa de Meia-Idade , Neoplasias/psicologia , Inquéritos e Questionários
9.
Women Health ; 61(10): 976-985, 2021.
Artigo em Inglês | MEDLINE | ID: mdl-34839804

RESUMO

Research examining the link between media attention and breast cancer concern has been frequently conducted with middle/old-age women, even though young women (<40 years old) have been overrepresented media stories about breast cancer. Accordingly, little is known about young women's emotional reactions to breast cancer media messages and the psychological factors modulating such reactions. This study examined the impact of breast cancer media messages and cognitive fusion on negative affect, fear of breast cancer (FBC), and perceived susceptibility to breast cancer. 207 young women were randomly assigned to watch a low- or high-threat video about breast cancer. A MANCOVA revealed that participants who viewed the high-threat video reported greater negative affect and perceived susceptibility, but not FBC; however, participants in both conditions showed moderate/high FBC. Correlational analyses and a MANOVA showed that participants reporting higher cognitive fusion reported higher negative affect across conditions, as well as higher FBC in the high-threat condition. Taken together, these results suggest that young women may show habituation to alarmist media messages, but may nonetheless construe breast cancer as a significant threat. Moreover, young women showing medium/high cognitive fusion seem more likely to show heightened concern upon exposure to alarmist media messages about breast cancer.


Assuntos
Neoplasias da Mama , Adulto , Atenção , Cognição , Feminino , Humanos
10.
Eur J Cancer Care (Engl) ; 29(1): e13179, 2020 Jan.
Artigo em Inglês | MEDLINE | ID: mdl-31647149

RESUMO

OBJECTIVES: (a) Describe levels of physical and global self-esteem and (b) explore the relationships between these types of self-esteem and physical activity (PA) behaviour, self-efficacy for PA and physical self-perceptions among adolescent and young adult (AYA) cancer survivors. METHODS: A total of 87 AYA cancer survivors (Mage  = 32.90 ± 4.38 years), who were on average 2.08 ± 1.37 years post-treatment, participated in this cross-sectional observational study. Descriptive statistics, correlations and hierarchical multivariate linear regression analyses were used to analyse the data. RESULTS: Moderate levels of physical and global self-esteem were reported. Both types of self-esteem were significantly related to physical self-perceptions, but not to PA behaviour nor self-efficacy for PA. Self-efficacy for PA moderated the relationship between physical self-perceptions and physical self-esteem, such that the association between physical self-perceptions and physical self-esteem was of stronger magnitude at higher levels of self-efficacy for PA than at lower levels of self-efficacy for PA. CONCLUSION: This study provides a starting point for describing self-esteem and identifying the circumstances under which self-esteem may be optimised among AYA cancer survivors. Fostering feelings of confidence, competence and control over PA may help to promote psychological well-being among AYA cancer survivors.


Assuntos
Sobreviventes de Câncer , Exercício Físico , Aparência Física , Resistência Física , Autoimagem , Autoeficácia , Adulto , Feminino , Humanos , Masculino , Adulto Jovem
11.
J Psychosoc Oncol ; 38(2): 228-234, 2020.
Artigo em Inglês | MEDLINE | ID: mdl-31599205

RESUMO

Objectives: The objectives of this study were to describe posttraumatic growth (PTG) levels among survivors of adolescent and young adult cancer (AYAs), and estimate relationships between PTG and medical (cancer type, age at diagnosis, time since treatment), behavioral (physical activity), and psychological (appearance evaluations, body satisfaction) variables.Methods: Eighty-eight AYAs (Mage=33 ± 4.4 years) completed a survey online that included the PTG-Inventory (PTG-I). Data were analyzed using descriptive statistics and bivariate correlations.Findings: Total and subdimension PTG-I scores indicated moderate-to-high PTG levels, with the highest and lowest scores reported for appreciation of life and spiritual change, respectively. Appearance evaluations was moderately and positively correlated with the spiritual change subdimension (r = .31, p < .001). Relationships between PTG and other variables were of weak magnitude and not statistically significant (rs = 0-.21, ps > .05).Conclusions: More research exploring variables related to PTG among AYAs is needed to better understand antecedents and outcomes of PTG.


Assuntos
Adultos Sobreviventes de Eventos Adversos na Infância/psicologia , Sobreviventes de Câncer/psicologia , Crescimento Psicológico Pós-Traumático , Adulto , Adultos Sobreviventes de Eventos Adversos na Infância/estatística & dados numéricos , Imagem Corporal/psicologia , Sobreviventes de Câncer/estatística & dados numéricos , Feminino , Humanos , Masculino , Satisfação Pessoal , Espiritualidade , Inquéritos e Questionários
12.
Support Care Cancer ; 27(4): 1153-1162, 2019 Apr.
Artigo em Inglês | MEDLINE | ID: mdl-30726517

RESUMO

BACKGROUND: Physical activity programs for children diagnosed with cancer may enhance health and quality of life. However, it is unknown where and in what capacity such programs are being offered internationally. PURPOSE: To identify physical activity programs for children diagnosed with cancer and summarize program characteristics. METHODS: Five data sources were searched to identify physical activity programs offered to children diagnosed with cancer. Following confirmation of eligibility, correspondents were sent a series of open-ended questions via email. Data were extracted from responses and summarized descriptively and narratively. RESULTS: Of the 140 unique correspondents contacted, 46 programs, in 10 countries, met eligibility criteria. Responses to open-ended follow-up questions were obtained from 36 programs and were subsequently included in the content analysis. Internationally, the majority of programs are being offered to children in Europe, with mixed cancer types, at different stages of the cancer trajectory. There is relatively equal distribution with regard to the setting in which programs are offered (i.e., community, hospital, combination). All correspondents reported that their program is professionally supervised, and most require that children obtain medical clearance prior to participating. There is considerable variability in terms of other key program (e.g., funding) and physical activity characteristics (e.g., frequency). CONCLUSIONS: Findings from this environmental scan highlight where and in what capacity physical activity programs are being offered, providing guidance for those seeking to develop/implement physical activity programs themselves. Moreover, results highlight the current state of practice, underscoring the necessity of international networks, multi-site collaborations, and public relations to ensure all children diagnosed with cancer have access to physical activity programs.


Assuntos
Terapia por Exercício/métodos , Exercício Físico/fisiologia , Neoplasias/reabilitação , Adolescente , Idade de Início , Criança , Pré-Escolar , Europa (Continente)/epidemiologia , Acessibilidade aos Serviços de Saúde/estatística & dados numéricos , Humanos , Lactente , Recém-Nascido , Internacionalidade , Neoplasias/epidemiologia , Neoplasias/fisiopatologia , Qualidade de Vida , Adulto Jovem
13.
Psychooncology ; 27(8): 1875-1888, 2018 08.
Artigo em Inglês | MEDLINE | ID: mdl-29719077

RESUMO

OBJECTIVE: Physical activity can improve health, functional capacity, and quality of life among children and adults diagnosed with cancer. Physical activity may also offer important benefits to adolescents and young adults diagnosed with cancer (AYAs). We conducted a scoping review to: determine the extent, range, and nature of published studies on physical activity among AYAs; identify knowledge gaps; and provide directions for future research. METHODS: We searched 4 electronic databases for published studies. Two authors independently scanned the titles, abstracts, and full-texts against inclusion criteria: original research with humans, published in an English-language peer-reviewed journal, ≥50% of participants were diagnosed with cancer between the ages of 15 and 39 years, and included at least 1 measure of physical activity behavior. Data were extracted from studies meeting these criteria and subsequently summarized narratively. RESULTS: Our search yielded 4729 articles; 32 met inclusion criteria. These included 18 cross-sectional and 4 longitudinal studies that explored descriptive (ie, sociodemographic or medical), physical, personal/psychological, social, other health behaviors, and/or other factors as antecedents or correlates of physical activity. The remaining 10 were intervention studies that focused on changing physical activity behavior or on testing the effects of physical activity. CONCLUSIONS: We can conclude that physical activity is not well researched among AYAs. More high-quality research adopting longitudinal or intervention study designs that incorporate a range of descriptive, physical, personal/psychological, social, and environmental measures are warranted to better inform the development of behavior change interventions as well as to establish the benefits of physical activity for AYAs.


Assuntos
Exercício Físico , Neoplasias , Adolescente , Adulto , Exercício Físico/psicologia , Humanos , Neoplasias/psicologia , Neoplasias/reabilitação , Adulto Jovem
14.
J Psychosoc Oncol ; 36(3): 274-286, 2018.
Artigo em Inglês | MEDLINE | ID: mdl-29452053

RESUMO

PURPOSE: The aim of the study was to explore the relationship between repressive adaptive style and self-reports of social adjustment in survivors of pediatric cancer compared to their siblings. We hypothesized that there would be a greater proportion of repressors among survivors of pediatric cancer compared to siblings, and that repressive adaptive style would be significantly associated with more positive self-reports of social adjustment. METHODS: We utilized a cross-sectional approach. Seventy-seven families participated. Survivors of pediatric cancer (n = 77, 48% male; 8-18 years of age) and one sibling (n = 50, 48% male; 8-18 years of age) completed measures assessing repressive adaptive style and social adjustment. As well, one parent from each family completed a socio-demographic questionnaire. Questionnaire packages were mailed to eligible families who agreed to participate, and were mailed back to investigators in a pre-addressed, pre-stamped envelope. RESULTS: Chi-square analyses revealed there was no significant difference in the proportion of repressors among survivors and siblings. Social adjustment scores were subjected to a two (group: survivor, sibling) by two (repressor, nonrepressor) ANCOVA with gender and age as covariates. There was a significant main effect of repressive adaptive style (F = 5.69, p < .05, η2 = 0.05) with a modest effect. Survivors and siblings with a repressive style reported significantly higher social adjustment scores (M = 106.91, SD = 11.69) compared to nonrepressors (M = 99.57, SD = 13.45). CONCLUSIONS: Repressive adaptive style explains some of the variance in survivors and siblings' self-reports of social adjustment. Future research should aim to better understand the role of the repressive adaptive style in survivors and siblings of children with cancer.


Assuntos
Adaptação Psicológica , Sobreviventes de Câncer/psicologia , Ajustamento Social , Adolescente , Sobreviventes de Câncer/estatística & dados numéricos , Criança , Estudos Transversais , Feminino , Humanos , Masculino , Autorrelato , Irmãos/psicologia
15.
Adapt Phys Activ Q ; 34(4): 345-361, 2017 10 01.
Artigo em Inglês | MEDLINE | ID: mdl-28942675

RESUMO

The benefits of informal physical activity during recovery from childhood cancer have rarely been investigated. This study adopted a multiple case study approach to explore the impact of recreational cycling on childhood cancer survivors' experiences of well- and ill-being. Three semistructured interviews were conducted over a 3-month period with four survivors to explore their experiences of physical, psychological, and social well- and ill-being. Within-case analysis followed by cross-case analysis identified three themes that captured their well- and ill-being experiences with recreational cycling and cancer: (a) cultivating feelings and emotions, (b) experiencing physical changes, and (c) encountering positive and negative social interactions. The results from this study show that recreational cycling may be a useful adjunct to conventional treatments for the self-management of multiple domains of well- and ill-being during recovery from childhood cancer.


Assuntos
Neoplasias , Satisfação Pessoal , Sobreviventes , Adolescente , Criança , Humanos , Entrevistas como Assunto , Masculino , Pesquisa Qualitativa
16.
Pediatr Blood Cancer ; 63(4): 677-83, 2016 Apr.
Artigo em Inglês | MEDLINE | ID: mdl-26739262

RESUMO

OBJECTIVES: To examine the discrepancy between survivor-parent and sibling-parent reports of health-related quality of life (HRQL) and the level of agreement (i.e., correlation) between child reports (i.e., survivor and sibling) and parent-proxy reports of HRQL. METHODS: Fifty-one families participated. Pediatric cancer survivors (49% male; 6-18 years of age) and one sibling (47% male; 9-18 years of age) completed a measure of their HRQL. As well, one parent (14% male; 27-65 years of age) from each family completed a proxy report of their children's (i.e., survivor and sibling) HRQL. Consensus was determined through discrepancy and agreement scores, between parent-proxy and children's (i.e., survivors and siblings) self-reports of total HRQL, and physical, emotional, social, and school functioning subscales. RESULTS: Repeated-measures analysis of variance (ANOVA) revealed significant group differences for total HRQL (F = 6.79, P ≤ 0.01). Repeated-measure ANOVAs of subscale discrepancy scores revealed significant group differences for physical functioning scores (F = 6.39, P < 0.01). A significant interaction was also found for social functioning when age at diagnosis was considered as a covariate (F = 10.30, P < 0.01). Zero-order and intraclass correlation coefficients revealed different levels of agreement between parent and child reports. Specifically, there was poorer agreement between parent-proxy and sibling's self-reports, particularly on social and emotional subscales. CONCLUSIONS: Discrepancy and agreement are both important indices to consider when examining consensus between parent-proxy and child self-reports. The findings from this study have important implications for future research and suggest that the impact of cancer on siblings should be further investigated.


Assuntos
Neoplasias/psicologia , Pais , Qualidade de Vida , Autorrelato , Sobreviventes/psicologia , Adolescente , Adulto , Idoso , Criança , Consenso , Feminino , Humanos , Masculino , Pessoa de Meia-Idade , Procurador , Irmãos/psicologia , Inquéritos e Questionários
17.
Support Care Cancer ; 23(8): 2407-16, 2015 Aug.
Artigo em Inglês | MEDLINE | ID: mdl-25605568

RESUMO

PURPOSE: The purpose of this qualitative study was to explore the barriers and motives experienced by women attending an 8-week group-based physical activity program offered in the community following treatment for breast cancer. METHODS: Seven women were interviewed during the first and last week of the program. Data were analyzed using thematic analysis. RESULTS: Factors that hindered women's continued participation could be subdivided into situational barriers, which encompassed community (i.e., distance of center and traffic) and institutional factors (i.e., competing roles and responsibilities), and internal barriers, which consisted of cancer-specific limitations. Motives for initial and continued participation were situational (i.e., gaining social support, networking, and being around similar others) and internal (i.e., feeling a sense of personal fulfillment, acquiring health benefits, and recovering from cancer). CONCLUSIONS: The findings contribute to a deeper understanding of women's motives to engage in a group-based physical activity program after treatment for breast cancer. Further, they underscore the necessity of considering situational and internal barriers when developing group-based physical activity programs to increase regular participation, optimize adherence, and reduce drop-out.


Assuntos
Neoplasias da Mama/reabilitação , Neoplasias da Mama/mortalidade , Feminino , Humanos , Motivação , Atividade Motora , Pesquisa Qualitativa , Apoio Social , Inquéritos e Questionários , Sobreviventes
18.
Pediatr Blood Cancer ; 61(10): 1828-34, 2014 Oct.
Artigo em Inglês | MEDLINE | ID: mdl-24938424

RESUMO

BACKGROUND: Increasing rates of survival present a new set of psychosocial and physical challenges for children undergoing treatment for cancer. Physical activity (PA) has been shown to be a safe and effective strategy to mitigate the significant burden of cancer and its treatments, with yoga increasingly gaining recognition as a gentle alternative. The purpose of this study was to determine the feasibility and benefits of a 12-week community-based yoga intervention on health-related quality of life (HRQL), select physical fitness outcomes and PA levels (PAL). PROCEDURE: Eight pediatric cancer out-patients (4 male; 4 female; Mage = 11.88, SD = 4.26) participated in the 12-week intervention consisting of supervised yoga sessions 2 times/week. Participants (patients and parent proxies) completed measures assessing HRQL, physical fitness and PAL at baseline and post-intervention. RESULTS: Rates of recruitment, retention, attendance and adverse events indicated the program was feasible. Wilcoxon Signed Rank tests indicated significant improvements for patient (P = 0.02) and parent reported HRQL (P = 0.03), functional mobility (P = 0.01), hamstring flexibility (left, P = 0.01 and right P = 0.02), and total PAL (P = 0.02) pre to post intervention. CONCLUSION: This 12-week community-based yoga intervention was feasible and provides preliminary evidence for the benefits of yoga on HRQL, physical fitness and PAL in pediatric cancer out-patients. In a population where sedentary behavior and the associated co-morbidities are a growing concern, these results promote the continued exploration of yoga programming.


Assuntos
Neoplasias/reabilitação , Qualidade de Vida , Yoga , Adolescente , Assistência Ambulatorial/métodos , Criança , Pré-Escolar , Estudos de Viabilidade , Feminino , Humanos , Masculino , Neoplasias/psicologia , Pacientes Ambulatoriais/psicologia , Pediatria/métodos , Aptidão Física
19.
Conscious Cogn ; 27: 129-46, 2014 Jul.
Artigo em Inglês | MEDLINE | ID: mdl-24879038

RESUMO

Yoga practice is reported to lead to improvements in quality of life, psychological functioning, and symptom indices in cancer survivors. Importantly, meditative states experienced within yoga practice are correlated to neurophysiological systems that moderate both focus of attention and affective valence. The current study used a mixed methods approach based in neurophenomenology to investigate associations between attention, affect, and cardiac activity during a single yoga session for female cancer survivors. Yoga practice was associated with a linear increase in associative attention and positive affective valence, while shifts in cardiac activity were related to the intensity of each yoga sequence. Changes in attention and affect were predicted by concurrently assessed cardiac activity. Awareness of breathing, physical movement, and increased relaxation were reported by participants as potential mechanisms for yoga's salutary effects. While yoga practice shares commonalities with exercise and relaxation training, yoga may serve primarily as a promising meditative attention-affect regulation training methodology.


Assuntos
Afeto/fisiologia , Atenção/fisiologia , Neoplasias da Mama/reabilitação , Frequência Cardíaca/fisiologia , Yoga/psicologia , Adulto , Associação , Feminino , Humanos , Pessoa de Meia-Idade , Modelos Psicológicos , Teoria Psicológica , Sobreviventes/psicologia , Resultado do Tratamento
20.
Nurs Womens Health ; 2024 May 20.
Artigo em Inglês | MEDLINE | ID: mdl-38782044

RESUMO

OBJECTIVE: To explore the feasibility, acceptability, and potential benefits associated with a mind-body intervention and varied delivery styles among women during the postpartum period. DESIGN: Mixed-methods feasibility study. SETTING: Fraser Valley, British Columbia, Canada. PARTICIPANTS: Forty-three women (93% White), with an average age of 32.1 (SD = 2.9) years, who had given birth within the last 6 months. METHODS: Participants were randomized to three physical activity groups. Validated questionnaires were administered before and after the 12-week intervention. Attendance and feasibility metrics and qualitative semistructured interviews were conducted to assess the intervention. RESULTS: The intervention and trial were partially feasible, and retention to the intervention was high; however, adherence as assessed by attendance was lower than expected. There was high acceptability among those in the group-based, in-person intervention. There was moderate acceptability among those in the individual, home-based asynchronous program. CONCLUSION: Findings highlight the necessity of better understanding what is desired by this population or simply providing more options to participants so that we can tailor physical activity to their needs and provide the necessary support.

SELEÇÃO DE REFERÊNCIAS
DETALHE DA PESQUISA