'Ethical responsibility' or 'a whole can of worms': differences in opinion on incidental finding review and disclosure in neuroimaging research from focus group discussions with participants, parents, IRB members, investigators, physicians and community members.

Cole, Caitlin; Petree, Linda E; Phillips, John P; Shoemaker, Jody M; Holdsworth, Mark; Helitzer, Deborah L

Cole, Caitlin; Petree, Linda E; Phillips, John P; Shoemaker, Jody M; Holdsworth, Mark; Helitzer, Deborah L.

Affiliation

Cole C; The Mind Research Network, Albuquerque, New Mexico, USA.
Petree LE; The Mind Research Network, Albuquerque, New Mexico, USA.
Phillips JP; The Mind Research Network, Albuquerque, New Mexico, USA Department of Neurology, The University of New Mexico, Albuquerque, New Mexico, USA.
Shoemaker JM; The Mind Research Network, Albuquerque, New Mexico, USA.
Holdsworth M; College of Pharmacy, The University of New Mexico, Albuquerque, New Mexico, USA.
Helitzer DL; Department of Family and Community Medicine, The University of New Mexico Health Sciences Center, Albuquerque, New Mexico, USA.

J Med Ethics ; 41(10): 841-7, 2015 Oct.

Article in En | MEDLINE | ID: mdl-26063579

Subject(s)

Disclosure/ethics; Incidental Findings; Moral Obligations; Neuroimaging; Adult; Ethics Committees, Research; Ethics, Research; Female; Focus Groups; Humans; Male; Middle Aged; Parents; Physicians; Research Personnel; Residence Characteristics; Social Responsibility

Key words

Autonomy; Neuroimaging; Research Ethics

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Full text: 1 Collection: 01-internacional Database: MEDLINE Main subject: Disclosure / Moral Obligations / Incidental Findings / Neuroimaging Type of study: Diagnostic_studies / Prognostic_studies / Qualitative_research Limits: Adult / Female / Humans / Male / Middle aged Language: En Journal: J Med Ethics Year: 2015 Type: Article Affiliation country: United States

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