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Experience With Direct-to-Patient Recruitment for Enrollment Into a Clinical Trial in a Rare Disease: A Web-Based Study.
Krischer, Jeffrey; Cronholm, Peter F; Burroughs, Cristina; McAlear, Carol A; Borchin, Renee; Easley, Ebony; Davis, Trocon; Kullman, Joyce; Carette, Simon; Khalidi, Nader; Koening, Curry; Langford, Carol A; Monach, Paul; Moreland, Larry; Pagnoux, Christian; Specks, Ulrich; Sreih, Antoine G; Ytterberg, Steven; Merkel, Peter A.
Affiliation
  • Krischer J; Rare Diseases Clinical Research Network Data Coordinating Center, Health Informatics Institute, University of South Florida, Tampa, FL, United States.
  • Cronholm PF; University of Pennsylvania, Philadelphia, PA, United States.
  • Burroughs C; Rare Diseases Clinical Research Network Data Coordinating Center, Health Informatics Institute, University of South Florida, Tampa, FL, United States.
  • McAlear CA; University of Pennsylvania, Philadelphia, PA, United States.
  • Borchin R; Rare Diseases Clinical Research Network Data Coordinating Center, Health Informatics Institute, University of South Florida, Tampa, FL, United States.
  • Easley E; University of Pennsylvania, Philadelphia, PA, United States.
  • Davis T; University of Pennsylvania, Philadelphia, PA, United States.
  • Kullman J; Vasculitis Foundation, Kansas City, MO, United States.
  • Carette S; Mount Sinai Hospital, Toronto, ON, Canada.
  • Khalidi N; St. Joseph's Healthcare Hamilton, Hamilton, ON, Canada.
  • Koening C; University of Utah, Salt Lake City, UT, United States.
  • Langford CA; Cleveland Clinic Foundation, Cleveland, OH, United States.
  • Monach P; Boston University School of Medicine, Boston, MA, United States.
  • Moreland L; University of Pittsburgh, Pittsburgh, PA, United States.
  • Pagnoux C; Mount Sinai Hospital, Toronto, ON, Canada.
  • Specks U; Mayo Clinic, Rochester, MN, United States.
  • Sreih AG; University of Pennsylvania, Philadelphia, PA, United States.
  • Ytterberg S; Mayo Clinic, Rochester, MN, United States.
  • Merkel PA; University of Pennsylvania, Philadelphia, PA, United States.
J Med Internet Res ; 19(2): e50, 2017 02 28.
Article in En | MEDLINE | ID: mdl-28246067
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Full text: 1 Collection: 01-internacional Database: MEDLINE Main subject: Randomized Controlled Trials as Topic / Patient Selection / Internet / Rare Diseases Type of study: Clinical_trials / Diagnostic_studies / Prognostic_studies Limits: Adult / Aged / Female / Humans / Male / Middle aged Language: En Journal: J Med Internet Res Journal subject: INFORMATICA MEDICA Year: 2017 Type: Article Affiliation country: United States
Fulltext
Print
XML
PubMed Links
Search on Google

Full text: 1 Collection: 01-internacional Database: MEDLINE Main subject: Randomized Controlled Trials as Topic / Patient Selection / Internet / Rare Diseases Type of study: Clinical_trials / Diagnostic_studies / Prognostic_studies Limits: Adult / Aged / Female / Humans / Male / Middle aged Language: En Journal: J Med Internet Res Journal subject: INFORMATICA MEDICA Year: 2017 Type: Article Affiliation country: United States