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Why Patients Decline Genomic Sequencing Studies: Experiences from the CSER Consortium.
Amendola, Laura M; Robinson, Jill O; Hart, Ragan; Biswas, Sawona; Lee, Kaitlyn; Bernhardt, Barbara A; East, Kelly; Gilmore, Marian J; Kauffman, Tia L; Lewis, Katie L; Roche, Myra; Scollon, Sarah; Wynn, Julia; Blout, Carrie.
Affiliation
  • Amendola LM; Division of Medical Genetics, Department of Medicine, University of Washington, Seattle, WA, USA. Lauraa7@uw.edu.
  • Robinson JO; Center for Medical Ethics and Health Policy, Baylor College of Medicine, Houston, TX, 77030, USA.
  • Hart R; Division of Medical Genetics, Department of Medicine, University of Washington, Seattle, WA, USA.
  • Biswas S; Department of Pediatrics, The Children's Hospital of Philadelphia, Philadelphia, PA, 19104, USA.
  • Lee K; Division of Translational Medicine and Human Genetics, Department of Medicine, Perelman School of Medicine at The University of Pennsylvania, Philadelphia, PA, 19104, USA.
  • Bernhardt BA; Center for Medical Ethics and Health Policy, Baylor College of Medicine, Houston, TX, 77030, USA.
  • East K; Division of Translational Medicine and Human Genetics, Department of Medicine, Perelman School of Medicine at The University of Pennsylvania, Philadelphia, PA, 19104, USA.
  • Gilmore MJ; HudsonAlpha Institute for Biotechnology, Huntsville, AL, 35806, USA.
  • Kauffman TL; Department of Medical Genetics, Kaiser Permanente Northwest, Portland, OR, 97227, USA.
  • Lewis KL; Center for Health Research, Kaiser Permanente Northwest, Portland, OR, 97227, USA.
  • Roche M; Medical Genomics and Metabolic Genetics Branch, National Human Genome Research Institute, Bethesda, MD, 20892, USA.
  • Scollon S; Departments of Pediatrics and Genetics, University of North Carolina-Chapel Hill, Chapel Hill, NC, 27599, USA.
  • Wynn J; Department of Pediatrics, Baylor College of Medicine, Houston, TX, 77030, USA.
  • Blout C; Department of Pediatrics, Columbia University, New York, NY, 10032, USA.
J Genet Couns ; 27(5): 1220-1227, 2018 09.
Article in En | MEDLINE | ID: mdl-29497922
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Full text: 1 Collection: 01-internacional Database: MEDLINE Main subject: Patient Acceptance of Health Care / Genetic Testing Type of study: Guideline / Prognostic_studies Limits: Adult / Female / Humans / Male Language: En Journal: J Genet Couns Journal subject: GENETICA MEDICA Year: 2018 Type: Article Affiliation country: United States
Fulltext
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PubMed Links
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Full text: 1 Collection: 01-internacional Database: MEDLINE Main subject: Patient Acceptance of Health Care / Genetic Testing Type of study: Guideline / Prognostic_studies Limits: Adult / Female / Humans / Male Language: En Journal: J Genet Couns Journal subject: GENETICA MEDICA Year: 2018 Type: Article Affiliation country: United States