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Assessment of the Information Sources and Interest in Research Collaboration Among Individuals with Vascular Ehlers-Danlos Syndrome.
Shalhub, Sherene; Sage, Liz; Demasi, John; Wallace, Stephanie E; Fulton, Daphne S; Bloom, Lara; Driessnack, Martha; Byers, Peter H.
Affiliation
  • Shalhub S; Division of Vascular Surgery, Department of Surgery, University of Washington School of Medicine, Seattle, WA; Department of Surgery, Surgical Outcomes Research Center (SORCE), University of Washington, Seattle, WA. Electronic address: Shalhub@uw.edu.
  • Sage L; Department of Surgery, Surgical Outcomes Research Center (SORCE), University of Washington, Seattle, WA.
  • Demasi J; Department of Radiation Oncology, University of Kentucky, Lexington, KY.
  • Wallace SE; Color Genomics, Burlingame, CA.
  • Fulton DS; Department of Population Health, College of Health Sciences, Sam Houston State University, Huntsville, TX.
  • Bloom L; The Ehlers-Danlos Society, London, UK.
  • Driessnack M; School of Nursing, Oregon Health & Science University, Portland, OR.
  • Byers PH; Division of Medical Genetics, Department of Medicine and Department of Pathology, University of Washington, Seattle, WA.
Ann Vasc Surg ; 62: 326-334, 2020 Jan.
Article in En | MEDLINE | ID: mdl-31449940

Full text: 1 Collection: 01-internacional Database: MEDLINE Main subject: Patient Participation / Health Knowledge, Attitudes, Practice / Cooperative Behavior / Access to Information / Biomedical Research / Ehlers-Danlos Syndrome Type of study: Diagnostic_studies / Qualitative_research Limits: Humans Language: En Journal: Ann Vasc Surg Journal subject: ANGIOLOGIA Year: 2020 Type: Article

Full text: 1 Collection: 01-internacional Database: MEDLINE Main subject: Patient Participation / Health Knowledge, Attitudes, Practice / Cooperative Behavior / Access to Information / Biomedical Research / Ehlers-Danlos Syndrome Type of study: Diagnostic_studies / Qualitative_research Limits: Humans Language: En Journal: Ann Vasc Surg Journal subject: ANGIOLOGIA Year: 2020 Type: Article