Survival of patients with rare diseases: a population-based study in Tuscany (Italy).

Gorini, Francesca; Coi, Alessio; Mezzasalma, Lorena; Baldacci, Silvia; Pierini, Anna; Santoro, Michele

Gorini, Francesca; Coi, Alessio; Mezzasalma, Lorena; Baldacci, Silvia; Pierini, Anna; Santoro, Michele.

Afiliación

Gorini F; Unit of Epidemiology of Rare Diseases and Congenital Anomalies, Institute of Clinical Physiology, National Research Council, via Moruzzi 1, 56124, Pisa, Italy. fgorini@ifc.cnr.it.
Coi A; Unit of Epidemiology of Rare Diseases and Congenital Anomalies, Institute of Clinical Physiology, National Research Council, via Moruzzi 1, 56124, Pisa, Italy.
Mezzasalma L; Unit of Epidemiology of Rare Diseases and Congenital Anomalies, Institute of Clinical Physiology, National Research Council, via Moruzzi 1, 56124, Pisa, Italy.
Baldacci S; Unit of Epidemiology of Rare Diseases and Congenital Anomalies, Institute of Clinical Physiology, National Research Council, via Moruzzi 1, 56124, Pisa, Italy.
Pierini A; Unit of Epidemiology of Rare Diseases and Congenital Anomalies, Institute of Clinical Physiology, National Research Council, via Moruzzi 1, 56124, Pisa, Italy.
Santoro M; Fondazione Toscana "Gabriele Monasterio", Pisa, Italy.

Orphanet J Rare Dis ; 16(1): 275, 2021 06 14.

Article en En | MEDLINE | ID: mdl-34127030

Asunto(s)

Esperanza de Vida; Enfermedades Raras; Femenino; Humanos; Italia; Masculino; Prevalencia; Sistema de Registros

Palabras clave

Disease registry; Mortality risk; Rare disease; Survival

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Texto completo: 1 Colección: 01-internacional Banco de datos: MEDLINE Asunto principal: Esperanza de Vida / Enfermedades Raras Tipo de estudio: Prevalence_studies Límite: Female / Humans / Male País/Región como asunto: Europa Idioma: En Revista: Orphanet J Rare Dis Asunto de la revista: MEDICINA Año: 2021 Tipo del documento: Article País de afiliación: Italia

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