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Development and feasibility of a web-based question prompt sheet to support information provision of health-related quality of life topics after oesophageal cancer surgery.
Jacobs, M; Henselmans, I; Arts, D L; Ten Koppel, M; Gisbertz, S S; Lagarde, S M; van Berge Henegouwen, M I; Sprangers, M A G; de Haes, H C J M; Smets, E M A.
Afiliação
  • Jacobs M; Department of Medical Psychology, Academic Medical Center/University of Amsterdam, Amsterdam, The Netherlands.
  • Henselmans I; Department of Medical Psychology, Academic Medical Center/University of Amsterdam, Amsterdam, The Netherlands.
  • Arts DL; Department of Clinical Informatics, Academic Medical Center/University of Amsterdam, Amsterdam, The Netherlands.
  • Ten Koppel M; Department of Medical Psychology, Academic Medical Center/University of Amsterdam, Amsterdam, The Netherlands.
  • Gisbertz SS; Department of Surgery, Academic Medical Center/University of Amsterdam, Amsterdam, The Netherlands.
  • Lagarde SM; Department of Surgery, Academic Medical Center/University of Amsterdam, Amsterdam, The Netherlands.
  • van Berge Henegouwen MI; Department of Surgery, Academic Medical Center/University of Amsterdam, Amsterdam, The Netherlands.
  • Sprangers MAG; Department of Medical Psychology, Academic Medical Center/University of Amsterdam, Amsterdam, The Netherlands.
  • de Haes HCJM; Department of Medical Psychology, Academic Medical Center/University of Amsterdam, Amsterdam, The Netherlands.
  • Smets EMA; Department of Medical Psychology, Academic Medical Center/University of Amsterdam, Amsterdam, The Netherlands.
Article em En | MEDLINE | ID: mdl-27734559
We developed a web-based question prompt sheet (QPS) to support information provision of health-related quality of life (HRQL) topics after oesophageal cancer surgery. The QPS was evaluated and updated in three consecutive studies. In Study 1, eight patients were guided in using the QPS. Feasibility was assessed by cognitive walkthrough, questionnaire and interview. We obtained 430 notes (217 negative, 213 positive) of patients' actions and or remarks, and 91 suggestions. With minor support, most patients were able to use the QPS. In Study 2, forty patients independently used and appraised a modified version of the QPS by questionnaire. All patients deemed the QPS to be usable and useful. In Study 3, 21 patients and three surgeons used the QPS in clinical practice. Clinical feasibility was assessed by the number of QPS sent to the researcher/surgeon. Patients and surgeons were surveyed and the follow-up consultation was audio-recorded. Surgeons were additionally interviewed. Twenty/fourteen patients sent their QPS to the researcher/surgeon. Five QPSs were read by the consultation surgeon. Patients considered the QPS usable and useful. Surgeons considered the QPS of added value and helpful in informing patients, but currently not clinically feasible due to increased consultation time.
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Texto completo: 1 Coleções: 01-internacional Base de dados: MEDLINE Assunto principal: Participação do Paciente / Qualidade de Vida / Encaminhamento e Consulta / Neoplasias Esofágicas / Inquéritos e Questionários Tipo de estudo: Qualitative_research Limite: Aged / Aged80 / Female / Humans / Male / Middle aged Idioma: En Revista: Eur J Cancer Care (Engl) Assunto da revista: ENFERMAGEM / NEOPLASIAS Ano de publicação: 2018 Tipo de documento: Article País de afiliação: Holanda

Texto completo: 1 Coleções: 01-internacional Base de dados: MEDLINE Assunto principal: Participação do Paciente / Qualidade de Vida / Encaminhamento e Consulta / Neoplasias Esofágicas / Inquéritos e Questionários Tipo de estudo: Qualitative_research Limite: Aged / Aged80 / Female / Humans / Male / Middle aged Idioma: En Revista: Eur J Cancer Care (Engl) Assunto da revista: ENFERMAGEM / NEOPLASIAS Ano de publicação: 2018 Tipo de documento: Article País de afiliação: Holanda