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Beyond the disease itself: A cross-cutting educational initiative for patients and families with rare diseases.
Rovira-Moreno, Eulàlia; Abuli, Anna; Codina-Sola, Marta; Valenzuela, Irene; Serra-Juhe, Clara; Cuscó, Ivon; Borregán, Mar; Cueto-González, Anna; Vendrell, Teresa; López-Grondona, Fermina; Brun-Gasca, Carme; Brignani, Eduardo; Martínez-Ribot, Laia; Garci-Espejo, Regla; Cruz, Jordi; García-Arumí, Elena; Tizzano, Eduardo F.
Afiliação
  • Rovira-Moreno E; Department of Clinical and Molecular Genetics, Hospital Vall d'Hebron, Barcelona, Spain.
  • Abuli A; Medicine Genetics Group, Vall d'Hebron Research Institute (VHIR), Barcelona, Spain.
  • Codina-Sola M; Department of Clinical and Molecular Genetics, Hospital Vall d'Hebron, Barcelona, Spain.
  • Valenzuela I; Medicine Genetics Group, Vall d'Hebron Research Institute (VHIR), Barcelona, Spain.
  • Serra-Juhe C; Department of Clinical and Molecular Genetics, Hospital Vall d'Hebron, Barcelona, Spain.
  • Cuscó I; Medicine Genetics Group, Vall d'Hebron Research Institute (VHIR), Barcelona, Spain.
  • Borregán M; Department of Clinical and Molecular Genetics, Hospital Vall d'Hebron, Barcelona, Spain.
  • Cueto-González A; Medicine Genetics Group, Vall d'Hebron Research Institute (VHIR), Barcelona, Spain.
  • Vendrell T; Department of Clinical and Molecular Genetics, Hospital Vall d'Hebron, Barcelona, Spain.
  • López-Grondona F; Medicine Genetics Group, Vall d'Hebron Research Institute (VHIR), Barcelona, Spain.
  • Brun-Gasca C; Department of Clinical and Molecular Genetics, Hospital Vall d'Hebron, Barcelona, Spain.
  • Brignani E; Medicine Genetics Group, Vall d'Hebron Research Institute (VHIR), Barcelona, Spain.
  • Martínez-Ribot L; Department of Clinical and Molecular Genetics, Hospital Vall d'Hebron, Barcelona, Spain.
  • Garci-Espejo R; Department of Clinical and Molecular Genetics, Hospital Vall d'Hebron, Barcelona, Spain.
  • Cruz J; Medicine Genetics Group, Vall d'Hebron Research Institute (VHIR), Barcelona, Spain.
  • García-Arumí E; Department of Clinical and Molecular Genetics, Hospital Vall d'Hebron, Barcelona, Spain.
  • Tizzano EF; Department of Clinical and Molecular Genetics, Hospital Vall d'Hebron, Barcelona, Spain.
J Genet Couns ; 30(3): 693-700, 2021 06.
Article em En | MEDLINE | ID: mdl-33142000
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Texto completo: 1 Coleções: 01-internacional Base de dados: MEDLINE Assunto principal: Doenças Raras Limite: Humans Idioma: En Revista: J Genet Couns Assunto da revista: GENETICA MEDICA Ano de publicação: 2021 Tipo de documento: Article País de afiliação: Espanha
Texto completo
Imprimir
XML
PubMed Links
Buscar no Google

Texto completo: 1 Coleções: 01-internacional Base de dados: MEDLINE Assunto principal: Doenças Raras Limite: Humans Idioma: En Revista: J Genet Couns Assunto da revista: GENETICA MEDICA Ano de publicação: 2021 Tipo de documento: Article País de afiliação: Espanha