Retrospective review of the code status of individuals with Down syndrome during the COVID-19 era.

Jett, Jennifer; Fossi, Alexander; Blonsky, Heather; Ross, Wendy; Townsend, Sabra; Stephens, Mary M; Chicoine, Brian; Santoro, Stephanie L

Jett, Jennifer; Fossi, Alexander; Blonsky, Heather; Ross, Wendy; Townsend, Sabra; Stephens, Mary M; Chicoine, Brian; Santoro, Stephanie L.

Afiliação

Jett J; Department of Palliative Care, Intermountain Health, Salt Lake City, Utah, USA.
Fossi A; Center for Autism and Neurodiversity, Thomas Jefferson University, Philadelphia, Pennsylvania, USA.
Blonsky H; Vizient, Inc., Chicago, Illinois, USA.
Ross W; Center for Autism and Neurodiversity, Thomas Jefferson University, Philadelphia, Pennsylvania, USA.
Townsend S; Center for Autism and Neurodiversity, Thomas Jefferson University, Philadelphia, Pennsylvania, USA.
Stephens MM; Department of Family and Community Medicine, Thomas Jefferson University, Philadelphia, Pennsylvania, USA.
Chicoine B; Center for Special Healthcare Needs, Christiana Care, Christiana, Delaware, USA.
Santoro SL; Advocate Medical Group Adult Down Syndrome Center, Department of Family Medicine, Advocate Lutheran General Hospital, Park Ridge, Illinois, USA.

Am J Med Genet C Semin Med Genet ; 196(1): e32080, 2024 Mar.

Article em En | MEDLINE | ID: mdl-38087874

Assuntos

COVID-19; Síndrome de Down; Deficiência Intelectual; Humanos; Estudos Retrospectivos; Ordens quanto à Conduta (Ética Médica); Síndrome de Down/complicações; Síndrome de Down/epidemiologia

Palavras-chave

Down syndrome; end-of-life care; intellectual and developmental disabilities; palliative care; trisomy 21

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Texto completo: 1 Coleções: 01-internacional Base de dados: MEDLINE Assunto principal: Síndrome de Down / COVID-19 / Deficiência Intelectual Limite: Humans Idioma: En Revista: Am J Med Genet C Semin Med Genet Assunto da revista: GENETICA MEDICA Ano de publicação: 2024 Tipo de documento: Article País de afiliação: Estados Unidos

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