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An Expanded Approach to the Ascertainment of Children and Youth With Special Health Care Needs.
Black, Lindsey I; Ghandour, Reem M; Brosco, Jeffrey P; Payne, Shirley I; Houtrow, Amy; Kogan, Michael D; Bethell, Christina D.
Afiliação
  • Black LI; Health Resources and Services Administration, Maternal and Child Health Bureau on Detail From the Centers for Disease Control and Prevention, National Center for Health Statistics, Rockville, Maryland.
  • Ghandour RM; Health Resources and Services Administration, Maternal and Child Health Bureau, Rockville, Maryland.
  • Brosco JP; Health Resources and Services Administration, Maternal and Child Health Bureau, Rockville, Maryland.
  • Payne SI; Health Resources and Services Administration, Maternal and Child Health Bureau, Rockville, Maryland.
  • Houtrow A; University of Pittsburgh School of Medicine, Pittsburgh, Pennsylvania.
  • Kogan MD; Health Resources and Services Administration, Maternal and Child Health Bureau, Rockville, Maryland.
  • Bethell CD; Johns Hopkins Bloomberg School of Public Health, Baltimore, Maryland.
Pediatrics ; 153(6)2024 May 07.
Article em En | MEDLINE | ID: mdl-38712452
ABSTRACT

OBJECTIVE:

To describe the prevalence, characteristics, and health-related outcomes of children with diagnosed health conditions and functional difficulties who do not meet criteria for having a special health care need based on the traditional scoring of the Children with Special Health Care Needs (CSHCN) Screener.

METHODS:

Data come from the 2016 to 2021 National Survey of Children's Health (n = 225 443). Child characteristics and health-related outcomes were compared among 4 mutually exclusive groups defined by CSHCN Screener criteria and the presence of both conditions and difficulties.

RESULTS:

Among children who do not qualify as children and youth with special health care needs (CYSHCN) on the CSHCN Screener, 6.8% had ≥1 condition and ≥1 difficulty. These children were more likely than CYSHCN to be younger, female, Hispanic, uninsured, privately insured, living in a household with low educational attainment, have families with more children and a primary household language other than English. After adjustment, non-CYSHCN with ≥1 conditions and ≥1 difficulty were less likely than CYSHCN, but significantly more likely than other non-CYSHCN, to have ≥2 emergency department visits, have unmet health care needs, not meet flourishing criteria, live in families that experienced child health-related employment impacts and frustration accessing services. Including these children in the calculation of CYSHCN prevalence increases the national estimate from 19.1% to 24.6%.

CONCLUSIONS:

Approximately 4 million children have both a diagnosed health condition and functional difficulties but are not identified as CYSHCN. An expanded approach to identify CYSHCN may better align program and policy with population needs.
Assuntos

Texto completo: 1 Coleções: 01-internacional Base de dados: MEDLINE Assunto principal: Crianças com Deficiência Limite: Adolescent / Child / Child, preschool / Female / Humans / Infant / Male País/Região como assunto: America do norte Idioma: En Revista: Pediatrics Ano de publicação: 2024 Tipo de documento: Article

Texto completo: 1 Coleções: 01-internacional Base de dados: MEDLINE Assunto principal: Crianças com Deficiência Limite: Adolescent / Child / Child, preschool / Female / Humans / Infant / Male País/Região como assunto: America do norte Idioma: En Revista: Pediatrics Ano de publicação: 2024 Tipo de documento: Article