RESUMEN
Nearly $2 trillion is spent annually in the U.S. treating chronic illness--yet accessibility to quality health care services in rural communities for the chronically ill and dying remains problematic. Unique barriers present special challenges to a meaningful discussion of and subsequent strategies for addressing these issues in the context of increasingly scarce resources.
Asunto(s)
Enfermedad Crónica/terapia , Accesibilidad a los Servicios de Salud , Servicios de Salud Rural , Cuidado Terminal , Anciano , Enfermedad Crónica/economía , Costos de la Atención en Salud , Humanos , Servicios de Salud Rural/provisión & distribución , Cuidado Terminal/economía , Estados Unidos , Poblaciones VulnerablesAsunto(s)
Toma de Decisiones/ética , Comités de Ética , Consultoría Ética , Hogares para Grupos , Discapacidad Intelectual , Inutilidad Médica/ética , Trastornos Mentales , Cuidado Terminal/ética , Privación de Tratamiento/ética , Actividades Cotidianas , Planificación Anticipada de Atención , Diagnóstico Dual (Psiquiatría) , Síndrome de Down , Ética Clínica , Ética Médica , Femenino , Hogares para Grupos/organización & administración , Hogares para Grupos/tendencias , Insuficiencia Cardíaca , Humanos , Tutores Legales , Responsabilidad Legal , Masculino , Trastornos del Humor , Neumonía , Respiración Artificial , Insuficiencia Respiratoria , Trastorno de Personalidad Esquizoide , Fumar , Fracturas de la Columna VertebralRESUMEN
The purpose of this article is to describe implications of the Health Information Portability and Accountability Act of 1996 (HIPAA) for nurses engaged in human and health services research. In general, a person's private health information (PHI) may only be disclosed for treatment, payment, and business procedures related to healthcare service delivery. Access and/or use of the same information for research purposes necessitates another layer of review and may require a separate process of authorization. A brief historical overview of regulatory requirements regarding health information privacy and security standards for the electronic transformation of data and protection of electronically kept medical records is discussed and related to the role and responsibilities of researchers and organizations where research is conducted. In addition, a generic document template adaptable for use by an individual or organization is presented that can provide a quick, systematic review of HIPAA compliance when a research proposal is being developed or is received that seeks access to PHI.