RESUMEN
An important and unresolved question in the context of the implementation of coordinated specialty care (CSC) for early psychosis in the United States is the extent to which youth and young adults from marginalized backgrounds are able to equitably access CSC services. In this brief report, we describe pathways between a county hybrid juvenile competency restoration and mental health problem-solving court ('Court'), serving youth with high rates of psychosis and multiple risk factors for poor long-term outcomes, and local CSC services. We found that the Court was overall successful in linking youth with psychosis to care, but in the majority of cases this was not CSC programming more specifically. Drawing on Court and CSC records as well as family interviews, we report on factors contributing to low linkage to CSC, including family-side barriers (lack of transportation, preference for lower intensity / lower demand services) and provider-side barriers, including eligibility criteria such as duration of psychosis, that ultimately exclude otherwise eligible Court-involved youth.
Asunto(s)
Trastornos Psicóticos , Humanos , Trastornos Psicóticos/terapia , Trastornos Psicóticos/psicología , Adolescente , Masculino , Femenino , Servicios de Salud Mental , Competencia Mental/psicología , Accesibilidad a los Servicios de Salud , Adulto Joven , Solución de Problemas , Estados Unidos , Delincuencia Juvenil/rehabilitación , Delincuencia Juvenil/psicologíaRESUMEN
OBJECTIVE: A growing consensus has emerged regarding the importance of stakeholder involvement in mental health services research. To identify barriers to and the extent of stakeholder involvement in participatory research, the authors undertook a mixed-methods study of researchers and community members who reported participation in such research. METHODS: Eight consultative focus groups were conducted with diverse groups of stakeholders in mental health services research (N=51 unique participants, mostly service users), followed by a survey of service users, family members, community providers, and researchers (N=98) with participatory research experience. Focus groups helped identify facilitators and barriers to meaningful research collaboration, which were operationalized in the national survey. Participants were also asked about high-priority next steps. RESULTS: The barrier most strongly endorsed as a large or very large problem in the field was lack of funding for stakeholder-led mental health services research (76%), followed by lack of researcher training in participatory methods (74%) and insufficiently diverse backgrounds among stakeholders (69%). The two most frequently identified high-priority next steps were ensuring training and continuing education for researchers and stakeholders (33%) and authentically centering lived experience and reducing tokenism in research (26%). CONCLUSIONS: These findings suggest a need for increased attention to and investment in the development, implementation, and sustainment of participatory methods that prioritize collaboration with direct stakeholders, particularly service users, in U.S. mental health services research. The findings also underscore the presence and potentially important role of researchers who dually identify as service users and actively contribute a broader orientation from the service user-survivor movement.
Asunto(s)
Servicios de Salud Mental , Humanos , Grupos Focales , Encuestas y Cuestionarios , Derivación y Consulta , Investigación sobre Servicios de SaludRESUMEN
The authors of this column describe and reflect on challenges and successes encountered during implementation of a participatory research collaborative focused on the pathways to mental health care for youths and young adults. The collaborative centered development of stakeholder partner-led, small-scale research projects, supported by the academic research team. The column calls for greater investment in research projects that are selected and designed by community stakeholders.
Asunto(s)
Investigación Participativa Basada en la Comunidad , Adolescente , Humanos , Adulto JovenRESUMEN
Despite recognition of the central role that service accessibility (and availability) should assume within a system of care, the definition proposed in the feature article of this special issue does not identify specific factors that systems of care must take into account in order to serve diverse children with serious emotional disturbance and their families in a culturally competent manner. This paper provides support for inclusion of the concepts of access and availability in the system of care definition and presents important factors that systems of care must take into account in order to increase access in a culturally competent manner, a core system of care value.
Asunto(s)
Servicios de Salud del Adolescente/organización & administración , Servicios de Salud del Niño/organización & administración , Redes Comunitarias/organización & administración , Competencia Cultural , Atención a la Salud/organización & administración , Planificación en Salud/organización & administración , Accesibilidad a los Servicios de Salud , Servicios de Salud Mental/organización & administración , Adolescente , Niño , Necesidades y Demandas de Servicios de Salud , Humanos , Objetivos Organizacionales , Garantía de la Calidad de Atención de Salud , Cambio SocialRESUMEN
This article presents a conceptual model of organizational cultural competence for use in mental health services that resulted from a comprehensive review of the research literature. The model identifies four factors associated with cultural competence in mental health services (community context, cultural characteristics of local populations, organizational infrastructure, and direct service support) and redefines cultural competence as the degree of compatibility among these factors. A strength of this model of organizational cultural competence is that it facilitates future research and practice in psychiatric services settings and links culturally competent practices to service parity.