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1.
Diabet Med ; 38(6): e14419, 2021 06.
Artículo en Inglés | MEDLINE | ID: mdl-33035378

RESUMEN

AIM: To explore nurses' and physicians' experiences with diabetes consultations in general and the use of dialogue tools in the Diabetes Patient-Related Outcome Measures (DiaPROM) pilot trial. METHODS: We used a qualitative explorative design by conducting semi-structured in-depth interviews with five nurses and nine physicians engaged in the DiaPROM pilot trial. The pilot trial aimed to test an intervention utilizing the patient-reported Problem Areas In Diabetes (PAID) scale and person-centred communication skills as dialogue tools in clinical consultations with adults with type 1 diabetes. We used thematic analysis to analyse the data. RESULTS: We generated three themes (each including two subthemes) from the analysis of participants' experiences: (1) 'Conflicting demands and priorities' (subthemes: 'Balancing guideline recommendations with patients' main concerns' and 'Experiencing that patients need more support to disclose their emotional concerns'); (2) 'Insights about using dialogue tools' (subthemes: 'The benefits and challenges of using the PAID as a dialogue tool' and 'Communication techniques are helpful'); and (3) 'Facilitating new interventions is challenging' (subthemes: 'Unclear roles and responsibilities in the multidisciplinary teamwork' and 'The capacity sets the limit, not the willingness'). CONCLUSIONS: Our findings indicate that the physicians and nurses experienced substantial challenges related to time and resources in the use of dialogue tools to support people's emotional concerns in clinical diabetes consultations. Thus, there is a need for healthcare organizations to adjust priorities to focus on the emotional burden of diabetes if the multidisciplinary diabetes teams are to successfully integrate psychosocial support into routine diabetes care.


Asunto(s)
Actitud del Personal de Salud , Diabetes Mellitus Tipo 1/terapia , Enfermeras y Enfermeros/normas , Médicos/normas , Investigación Cualitativa , Derivación y Consulta/normas , Adulto , Femenino , Estudios de Seguimiento , Humanos , Masculino , Persona de Mediana Edad , Evaluación de Resultado en la Atención de Salud , Proyectos Piloto , Estudios Retrospectivos
2.
Qual Life Res ; 28(10): 2641-2650, 2019 Oct.
Artículo en Inglés | MEDLINE | ID: mdl-31187410

RESUMEN

PURPOSE: Quality of life (QOL) is an important concept in the field of health and medicine. QOL is a complex concept that is interpreted and defined differently within and between disciplines, including the fields of health and medicine. The aims of this study were to systematically review the literature on QOL in medicine and health research and to describe the country of origin, target groups, instruments, design, and conceptual issues. METHODS: A systematic review was conducted to identify research studies on QOL and health-related quality of life (HRQOL). The databases Scopus, which includes Embase and MEDLINE, CINAHL, and PsycINFO were searched for articles published during one random week in November 2016. The ten predefined criteria of Gill and Feinstein were used to evaluate the conceptual and methodological rigor. RESULTS: QOL research is international and involves a variety of target groups, research designs, and QOL measures. According to the criteria of Gill and Feinstein, the results show that only 13% provided a definition of QOL, 6% distinguished QOL from HRQOL. The most frequently fulfilled criteria were: (i) stating the domains of QOL to be measured; (ii) giving a reason for choosing the instruments used; and (iii) aggregating the results from multiple items. CONCLUSION: QOL is an important endpoint in medical and health research, and QOL research involves a variety of patient groups and different research designs. Based on the current evaluation of the methodological and conceptual clarity of QOL research, we conclude that the majority QOL studies in health and medicine have conceptual and methodological challenges.


Asunto(s)
Salud Ambiental/normas , Medicina/normas , Calidad de Vida/psicología , Humanos
3.
Diabet Med ; 27(1): 72-8, 2010 Jan.
Artículo en Inglés | MEDLINE | ID: mdl-20121892

RESUMEN

AIMS: To analyse, in a population-based study, the association between parental fear of hypoglycaemia and (i) the prevalence of hypoglycaemia and diabetes treatment factors in children with Type 1 diabetes and (ii) emotional distress in mothers and fathers. METHODS: Mothers (n = 103) and fathers (n = 97) of 115 children with Type 1 diabetes (1-15 years old) participated in the study. In addition to demographic and disease-specific data, the participants completed the Hypoglycaemia Fear Survey-Parent version (HFS-P) (worry and behaviour subscales) and the Hopkins Symptom Checklist-25 items (HSCL-25) to measure emotional distress. RESULTS: A higher HFS-P worry score was associated with higher glycated haemoglobin (HbA(1c)), a higher frequency (>or= 7) of what parents experienced as problematic hypoglycaemic events during the past year and co-morbid disease in the child. A higher HFS-P behaviour score was associated with children receiving insulin injections compared with using an insulin pump and a higher frequency (>or= 7 per day) of blood glucose measurements. The mothers had higher scores than the fathers in both the worry and behaviour subscales. The mothers' and the fathers' HFS-P worry scores correlated significantly with their HSCL-25 scores. CONCLUSIONS: The association between a higher level of hypoglycaemic-related fear and parental emotional distress and poorer glycaemic control in the child emphasizes the need for programmes to support and guide parents. The results suggest that future interventions should target both the parents' fear and appropriate ways to prevent hypoglycaemia in children with Type 1 diabetes.


Asunto(s)
Diabetes Mellitus Tipo 1/psicología , Miedo/psicología , Hipoglucemia/psicología , Insulina/uso terapéutico , Padres/psicología , Adolescente , Actitud Frente a la Salud , Lista de Verificación , Niño , Preescolar , Estudios Transversales , Diabetes Mellitus Tipo 1/complicaciones , Diabetes Mellitus Tipo 1/epidemiología , Femenino , Humanos , Hipoglucemia/epidemiología , Hipoglucemia/etiología , Lactante , Recién Nacido , Sistemas de Infusión de Insulina , Masculino
4.
Tidsskr Nor Laegeforen ; 118(7): 1038-40, 1998 Mar 10.
Artículo en Noruego | MEDLINE | ID: mdl-9531824

RESUMEN

The Department of Dermatology at Ullevål Hospital wanted to reveal any diagnostical problems with skin biopsies taken from patients in the Out-patient Clinic. 200 non-tumour skin biopsies from 200 patients were studied retrospectively (100 biopsies from 1986 and 100 from 1995/96). The tentative diagnosis coincided with the pathological anatomical diagnosis in 57.5%(n = 115) of the cases. Of the 200 patients, 22%(n = 44) had still not been given a specific diagnosis after biopsy. This study indicates that skin biopsy is of diagnostical help, but that closer cooperation between the pathologist and the clinician is probably necessary in order to increase the proportion of specific dermatological diagnoses.


Asunto(s)
Biopsia , Enfermedades de la Piel/patología , Anciano , Biopsia/estadística & datos numéricos , Estudios de Evaluación como Asunto , Femenino , Humanos , Masculino , Persona de Mediana Edad , Derivación y Consulta , Enfermedades de la Piel/diagnóstico
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