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1.
J Pediatr ; 152(3): 400-4, 2008 Mar.
Artículo en Inglés | MEDLINE | ID: mdl-18280849

RESUMEN

OBJECTIVE: To explore adolescents' behaviors and opinions about exposure to loud music from MP3 players. STUDY DESIGN: We conducted a qualitative analysis of focus-group discussions with adolescents aged 12 to 18 years from 2 large secondary schools (1 urban and 1 rural) for pre-vocational and pre-university education. The semi-structured question route was theoretically framed within the protection motivation theory. RESULTS: Most adolescents-especially male students and students from pre-vocational schools-indicated that they often played their MP3 players at maximum volume. Although they appeared to be generally aware of the risks of exposure to loud music, they expressed low personal vulnerability to music-induced hearing loss. Most adolescents said that they would not accept any interference with their music-exposure habits. CONCLUSIONS: Interventions should target students from pre-vocational schools and should focus on increasing adolescents' knowledge of the risks of loud music and how to protect themselves. Besides hearing education for adolescents and technical modifications of MP3 players, volume-level regulations for MP3 players may be warranted.


Asunto(s)
Pérdida Auditiva Provocada por Ruido/epidemiología , Música , Grabación en Cinta/instrumentación , Adolescente , Distribución por Edad , Fatiga Auditiva , Umbral Auditivo , Niño , Estudios de Cohortes , Dispositivos de Protección de los Oídos , Femenino , Grupos Focales , Pérdida Auditiva Provocada por Ruido/diagnóstico , Humanos , Incidencia , Masculino , Países Bajos/epidemiología , Medición de Riesgo , Población Rural , Distribución por Sexo , Población Urbana
2.
Community Genet ; 11(1): 11-7, 2008.
Artículo en Inglés | MEDLINE | ID: mdl-18196913

RESUMEN

BACKGROUND: Advances in genomics will open up opportunities in the fields of genetic testing, early diagnosis and disease treatment. While neonatal screening is the field of application par excellencefor these developments, the debate on its potential benefits and drawbacks is mainly theoretically driven and based on the opinions of professionals. METHODS: We conducted a qualitative study of the perceptions, preferences and needs of parents (and parents to be) with respect to expansion of the neonatal screening programme. Seven focus group discussions were conducted. Using disease scenarios, 4 examples of conditions amenable to neonatal screening were discussed in depth. All focus group discussions were audio taped and content analysed. RESULTS: Participants thought that the medical benefits of screening were very important for the child. Assuming the availability of effective early medical treatment, almost 100% would be willing to participate in a screening programme. If such treatment were absent, their potential willingness would be much lower. CONCLUSIONS: The divergence in attitudes and preferences we found in this study reflected the complexity inherent in any consideration of screening for additional conditions. To implement such options successfully and to direct applied research in genomics, it is important to develop a better understanding of the thinking of target groups, namely parents.


Asunto(s)
Tamizaje Neonatal/métodos , Adulto , Actitud , Actitud Frente a la Salud , Familia , Femenino , Grupos Focales , Enfermedades Genéticas Congénitas/diagnóstico , Enfermedades Genéticas Congénitas/genética , Pruebas Genéticas , Humanos , Recién Nacido , Masculino , Países Bajos , Padres , Opinión Pública
3.
Birth ; 34(3): 238-44, 2007 Sep.
Artículo en Inglés | MEDLINE | ID: mdl-17718874

RESUMEN

BACKGROUND: The current neonatal screening program ("the heel prick") involves taking a few drops of blood from almost every newborn in the Netherlands to determine whether the child is suffering from one of three congenital disorders: phenylketonuria, congenital hypothyroid, or adrenogenital syndrome. This study investigated the preferences and views of parents and future parents with respect to information about, and consent to, neonatal screening and the possible expansion of the program. METHODS: Seven focus group discussions took place with future parents, parents with a healthy child, and parents with children affected by disorders for which screening is possible, now or in the future (total of 36 participants). The discussions were audiotaped, transcribed, and analyzed for content. RESULTS: Parents were not well informed about what the heel prick involves at present. Nevertheless, they see it as a routine procedure and do not think about the possibility of refusing it. If the heel-prick program were to be expanded, parents would like to be informed earlier, preferably during pregnancy. In addition, most parents preferred an opt-out consent approach. CONCLUSIONS: If the neonatal screening program is to be expanded, parents would prefer for information about the program be given during pregnancy. In addition, they preferred an opt-out consent approach, on condition that screening was for the purpose of preventing irreversible harm. Parental opinion was divided on this issue if the aim of screening were to be widened.


Asunto(s)
Consentimiento Informado , Tamizaje Neonatal , Padres/psicología , Adulto , Femenino , Grupos Focales , Educación en Salud , Conocimientos, Actitudes y Práctica en Salud , Humanos , Recién Nacido , Enfermedades del Recién Nacido/diagnóstico , Masculino , Países Bajos
4.
Expert Rev Pharmacoecon Outcomes Res ; 7(4): 393-401, 2007 Aug.
Artículo en Inglés | MEDLINE | ID: mdl-20528422

RESUMEN

The Child Health Questionnaire (CHQ)-87-item child and adolescent self-report (CF87) is an increasingly used health-related quality-of-life instrument for measuring the self-perceived physical and psychosocial well-being of children aged 10 years and older. The aims of this study were to evaluate structure, reliability and validity of the Dutch version of the CHQ-CF87 among adolescents in the general Dutch population. Thus, the study extends the data on the psychometric properties of the instrument and reports on the underlying structure and the applicability of the summary score measures, both of which were not reported in previously published studies. Questionnaires were sent to a random sample of 1696 adolescents aged 12-15 years, the response rate was 78%. The mean age of the resulting sample was 14 years and approximately half were boys. A large majority (95.2%) of the subjects were born in The Netherlands, 21% reported a chronic health condition. Results demonstrated good internal consistency of items and scales, and discriminant and concurrent validity. Factor analysis at scale level supported the measurement model of the CHQ for the secondary factors of physical health and psychosocial health. Factor analysis at item level yielded somewhat less univocal results. It is concluded that further evaluation of the CHQ-CF is recommended. Meanwhile, the results, together with the results of earlier studies, suggest that the instrument can be used in pediatric outcome studies, provided practitioners and researchers are aware of the reported limitations.

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