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1.
J Clin Nurs ; 2024 Jul 01.
Artículo en Inglés | MEDLINE | ID: mdl-38951123

RESUMEN

AIM: To explore how patients with hospital experience construct patient safety, from the identification of a patient safety risk to the decision to file a complaint. BACKGROUND: Patients play an important role in the prevention of adverse events in hospitals, but the ability of patients to act and influence their own safety is still challenged by multiple factors. Understanding how patients perceive risk and act to prevent harm may shed light on how to enhance patients' opportunities to participate in patient safety. DESIGN: The research design of this study is qualitative and exploratory. METHODS: Twelve participants who had experienced Swedish hospital care were interviewed between June 2022 and July 2023. The method of analysis was constructivist grounded theory, focusing on social processes. The COREQ checklist for qualitative research was followed. RESULTS: Four categories were constructed: (1) defining the boundary between one's own capacity and that of the hospital, (2) acting to minimize the impact on one's safety, (3) finding oneself in the hands of healthcare professionals and (4) exploring the boundaries between normality and abnormality of the situation. This process was captured in the core category of navigating the path of least suffering. This illustrated how the participants constructed meaning about patient safety risks and showed that they prevented multiple adverse events. CONCLUSIONS: Provided that participants were able to act independently, they avoided a multitude of adverse events. When they were dependent on healthcare professionals, their safety became more vulnerable. Failure to respond to the participants' concerns could lead to long-term suffering. RELEVANCE TO CLINICAL PRACTICE: By responding immediately to patients' concerns about their safety, healthcare professionals can help prevent avoidable suffering and exhaustive searching for someone in the healthcare system who will take their needs seriously. PATIENT CONTRIBUTION: A member check was performed with the help of one of the participants who read the findings to confirm familiarity.

2.
J Adv Nurs ; 79(10): 3748-3759, 2023 Oct.
Artículo en Inglés | MEDLINE | ID: mdl-37128937

RESUMEN

AIM: This study aimed to describe circumstances concerning access for patients and relatives to take part in patient health and safety in a hospital setting. DESIGN: This study used a qualitative descriptive design and was conducted at a Swedish university hospital. METHOD: The 79 complaints reported by patients and relatives included in this study were registered between January 2017 and June 2019. These complaints were classified as concerning access to healthcare services. Data were analysed using qualitative content analysis. RESULTS: The overarching theme, struggling for access as a human being in the healthcare system, encompassed three themes describing patients' and relatives' needs. The three themes were (1) navigating through the healthcare organization, (2) making sense of self and what is going on and (3) being acknowledged as having needs. CONCLUSION: Patients and relatives continuously participate in various ways in healthcare to promote health and prevent patient harm. Our findings contribute important knowledge about the meaning of access from a broad healthcare system perspective. Access was restricted in terms of appropriateness in how patients' needs were met. This restriction of access risked the deterioration of patient health and safety. IMPACT: Patients and relatives play an active part in patient health and safety, although their attempts are sometimes hindered. Restrictions in the appropriateness of access prevented patients and relatives from taking part in patient health and safety, which appeared to mean that they had to adapt and expend effort to the point that it negatively affected their health and everyday life. These findings concern all patients, relatives and healthcare professionals in hospital-associated settings. PATIENT OR PUBLIC CONTRIBUTION: No patient or public contribution.


Asunto(s)
Personal de Salud , Promoción de la Salud , Humanos , Pacientes , Hospitales , Atención a la Salud , Investigación Cualitativa
3.
Scand J Caring Sci ; 37(3): 797-804, 2023 Sep.
Artículo en Inglés | MEDLINE | ID: mdl-36932728

RESUMEN

AIM: The study aim was to describe the content of person-centred health plans, formulated via telephone conversations between registered nurses and patients with chronic obstructive pulmonary disease and/or chronic heart failure. METHOD: Patients who had been hospitalised due to worsening chronic obstructive pulmonary disease and/or chronic heart failure were enrolled. After hospital discharge, the patients received a person-centred telephone support where a health plan was co-created with registered nurses who had received training in the theory and practice of person-centred care. A retrospective descriptive review of 95 health plans using content analysis was conducted. RESULTS: The health plan content revealed personal resources such as optimism and motivation in patients with chronic obstructive pulmonary disease and/or chronic heart failure. Although patients reported severe dyspnoea symptoms, the most common goals were to engage in physical activity and to be able to manage social life and leisure activities. Additionally, the health plans illustrated that patients were capable of using their own interventions to reach their goals rather than accessing municipal and health care support. CONCLUSION: The focus on listening, that person-centred telephone care affords, promotes the patient's own goals, interventions, and resources, which can be used to tailor support and engage the patient as an active partner in their care. The flipped focus from patient to person highlights the person's own resources, which in turn may contribute to a reduced need for hospital care.


Asunto(s)
Insuficiencia Cardíaca , Enfermedad Pulmonar Obstructiva Crónica , Humanos , Estudios Retrospectivos , Atención Dirigida al Paciente , Enfermedad Crónica , Teléfono , Insuficiencia Cardíaca/terapia
4.
Nurs Inq ; 29(3): e12461, 2022 07.
Artículo en Inglés | MEDLINE | ID: mdl-34553446

RESUMEN

Healthcare professionals have a major responsibility to protect patients from harm. Despite vast efforts to decrease the number of adverse events, the progression of patient safety has internationally been acknowledged as slow. From a social construction perspective, it has been argued that the understanding of patient safety is contextual based on historical and structural rules, and that this meaning construction points out different directions of possible patient safety actions. By focusing on fact construction and its productive and limiting effect on how something can be understood, we explored the discourses about healthcare professionals in 29 written reports of adverse events as reported by patients, relatives, and healthcare professionals. Through the analysis, a discourse about the healthcare professionals as experts was found. The expert role most dominantly included an understanding that adverse events were identified through physical signs and that patient safety could be prevented by more strictly following routines and work procedures. We drew upon the conclusion that these regimes of truth brought power to the expert discourse, to the point that it became difficult for patients and relatives to engage in patient safety actions on their terms.


Asunto(s)
Personal de Salud , Seguridad del Paciente , Atención a la Salud , Humanos
5.
Int J Nurs Stud ; 105: 103444, 2020 May.
Artículo en Inglés | MEDLINE | ID: mdl-32200099

RESUMEN

BACKGROUND: Shift-to-shift bedside handover is advocated as a patient-centred approach, yet its enactment is challenging. OBJECTIVES: To describe and compare the preferences of both patients and nurses in the implementation of bedside handover in a Swedish University Hospital. DESIGN: A discrete choice experiment (DCE) survey. SETTINGS: University setting, four medical wards in two hospitals. PARTICIPANTS: Adult medical patients (n = 218) and registered nurses (n = 101) METHODS: The survey was administered by an electronic tablet-assisted face-to-face survey. Respondents made repeated choices between two hypothetical bedside handover alternatives and a third alternative of 'handover away from the bedside'. Handover alternatives were described according to six attributes: invitation to participate, number of nurses present at the handover, family member, carer or trusted friend (of the patient) allowed to be present, level of (patient) involvement, what information related to your (patient) care is discussed. Choice data were analyzed using a mixed logit model. RESULTS: A total of 1308 (patients) and 909 (nurses) choice observations were included in the preference models. Patients showed a strong preference for handover at the bedside compared to nurses. Nurses generally preferred handover away from the bedside. Patients perceived their level of involvement in handover as highly important, being able to speak, hear what was said being the most important characteristic, closely followed by being invited to participate and asked questions as well as being heard. Nurses considered patients being invited to participate most important, followed by level of involvement. Different options for handing over sensitive information were not perceived of importance by patients or nurses. There was substantial variation at the individual level across both patients and nurses for where and how handover is delivered. CONCLUSIONS: In this study, patients strongly preferred handover at the bedside, while the nurses considered patients to be invited to participate to be the most important preference but generally preferred handover to take place away from the bedside, all else equal. When implementing bedside handover in a Swedish context this must be considered, although participation is a prerequisite for bedside handover. Differences between patients and nurses' preferences could jeopardize future introduction of bedside handover in Swedish health care, and might explain why bedside handover is still not very common in hospital wards.


Asunto(s)
Actitud del Personal de Salud , Personal de Enfermería en Hospital , Pase de Guardia , Participación del Paciente , Adulto , Anciano , Femenino , Hospitales Universitarios , Humanos , Masculino , Persona de Mediana Edad , Encuestas y Cuestionarios , Suecia
6.
Patient Educ Couns ; 103(7): 1382-1389, 2020 07.
Artículo en Inglés | MEDLINE | ID: mdl-32122674

RESUMEN

OBJECTIVE: To explore the educational expectations and experiences of patients with heart failure in relation to device implantation. METHODS: In this longitudinal study, patients at six Swedish and Icelandic hospitals answered instruments about their knowledge expectations, before the device implantation, and about the knowledge they had received at two weeks, six months and 12 months after the procedure. Predictors for fulfillment of knowledge expectations were assessed with linear mixed model analysis. RESULTS: Patients (N = 133, mean age 69.8 (±9.7) years, 80 % men) had high knowledge expectations, which for 83 % of them were unfulfilled. Predictors for fulfillment of knowledge expectations were access to knowledge from healthcare professionals (ß 0.74, 95 % CI: 0.42-1.10), educational level (ß -0.30, 95 % CI: -0.52 to -0.07) and knowledge expectations (ß -1.03, 95 % CI: -1.30 to -0.80). Healthcare professionals were the main information source (89 %), 74 % of patients received written information, and 19 % had used the Internet. CONCLUSIONS: Patients receive less knowledge than they expect, and individual factors and communication with healthcare professionals are related to their experience. Face-to-face is the most common method of delivering education. PRACTICE IMPLICATIONS: Healthcare professionals should assess patients' expectations for information and consider implementing more diversity in their educational practices.


Asunto(s)
Personal de Salud , Insuficiencia Cardíaca , Anciano , Femenino , Insuficiencia Cardíaca/terapia , Humanos , Aprendizaje , Estudios Longitudinales , Masculino , Suecia
7.
Nurs Inq ; 26(4): e12298, 2019 10.
Artículo en Inglés | MEDLINE | ID: mdl-31134720

RESUMEN

Adverse health care events are a global public health issue despite major efforts, and they have been acknowledged as a complex concern. The aim of this study was to explore the construction of unsafe care using accounts of adverse events concerning the patient, as reported by patients, relatives, and health care professionals. Twenty-nine adverse events reported in an acute care setting in a Swedish university hospital were analyzed through discourse analysis, where the construction of what was considered to be real and true in the descriptions of unsafe care was analyzed. In the written reports about unsafe events, the patient was spoken of in three different ways: (a) the patient as a presentation of physical signs, (b) the patient as suffering and vulnerable, and (c) the patient as unpredictable. When the patient's voice was subordinate to physical signs, this was described as being something that conflicted with patient safety. The conclusion was that the patient's voice might be the only sign available in the early stages of adverse events. Therefore, it is crucial for health care professionals to give importance to the patient's voice to prevent patients from harm and not unilaterally act only upon abnormal physical signs.


Asunto(s)
Errores Médicos/prevención & control , Seguridad del Paciente/normas , Gestión de Riesgos/normas , Femenino , Humanos , Pacientes Internos/psicología , Masculino , Monitoreo Fisiológico/normas , Grupo de Atención al Paciente/normas , Suecia
8.
BMJ Open ; 9(2): e027814, 2019 03 01.
Artículo en Inglés | MEDLINE | ID: mdl-30826802

RESUMEN

OBJECTIVE: Little is known about the economic impact of takotsubo syndrome (TS) for patients and the health system after initial discharge from hospital. Therefore, the aim of this study was to describe the healthcare resource use and calculate direct healthcare costs for TS, from hospitalisation to 6 months after discharge, and explore the distribution of costs between TS and other diagnoses among patients with TS. METHOD, PARTICIPANTS AND SETTING: Cohort study investigating direct healthcare costs from hospitalisation, open specialised outpatient and primary care. Healthcare resource use during 6 months after diagnosis with TS was collected for 58 consecutive patients from the Regional Patient Register. Incidence-based direct healthcare costs, in 2015 values, were calculated using diagnosis-related group weights and unit costs from national statistics on healthcare costs. RESULTS: The mean length of hospital stay was 10.2 days, index 6.4 and re-admissions 3.8 days. The mean number of follow-up encounters per patient was 15.6, of which two-thirds was specialised outpatient and one-third was primary care. This resulted in an average cost of €10 360. Of this, costs of €8026 (77.5%) occurred during encounters for which at least one of the registered conditions was cardiovascular. Costs differed little according to background characteristics. CONCLUSION: This study shows that patients utilise hospital, specialised outpatient and primary care after discharge for TS. Most direct healthcare costs relate to cardiac diagnoses. Patients with TS would probably benefit from a supportive follow-up programme after discharge from hospital.


Asunto(s)
Costos de la Atención en Salud , Hospitalización/economía , Cardiomiopatía de Takotsubo/economía , Cardiomiopatía de Takotsubo/terapia , Adulto , Anciano , Anciano de 80 o más Años , Estudios de Cohortes , Femenino , Humanos , Masculino , Persona de Mediana Edad , Alta del Paciente , Atención Primaria de Salud/economía , Suecia , Factores de Tiempo
9.
Scand J Caring Sci ; 32(2): 612-621, 2018 Jun.
Artículo en Inglés | MEDLINE | ID: mdl-28675925

RESUMEN

BACKGROUND: Promoting patient participation in care is an international priority identified by the World Health Organization and various national bodies around the world and an important aspect of person-centred care. AIM: The aim of this study was to describe Registered Nurses' experiences with patient participation in nursing care including their barriers and facilitators for participation. METHOD: The study setting was a University Hospital in Sweden. Interviews were conducted with twenty Registered Nurses working at medical wards in 2013. Thematic data analysis was used to analyse the transcribed interview data. RESULTS: Twenty nurses from four wards in two hospitals were included. Five themes emerged from the analysis including listening to the patient, engaging the patient, relinquishing some responsibility, sharing power and partnering with patients. The core theme 'partnering with patients' was enacted when nurses listened to and engaged patients and when they relinquished responsibility and shared power with patients. In addition, hindering and facilitating factors to participation were identified, such as patients wanted to take on a passive role, lack of teamwork which participants understood would enhance interprofessional understanding and improve patient safety. Patient participation was hindered by medical jargon during the ward round, there was a risk of staff talking over patients' heads but sometimes inevitable having conversations at the patient's bedside. However, nurses preferred important decisions to be made away from bedside. CONCLUSIONS: It all came down to partnering with the patient and participants described how they made an effort to respect the patients' view and accept patient as a part of the care team. Identified hindering factors for participation were lack of teamwork, patients' taking on passive roles and communication during ward rounds having conversations at the patient's bedside. Nurses wished for a change but lacked strategies on how. Nurses preferred important decisions to be made away from bedside.


Asunto(s)
Enfermeras y Enfermeros/psicología , Enfermeras y Enfermeros/estadística & datos numéricos , Personal de Enfermería en Hospital/psicología , Personal de Enfermería en Hospital/estadística & datos numéricos , Participación del Paciente/psicología , Participación del Paciente/estadística & datos numéricos , Atención Dirigida al Paciente/métodos , Adulto , Actitud del Personal de Salud , Toma de Decisiones , Femenino , Humanos , Masculino , Persona de Mediana Edad , Relaciones Enfermero-Paciente , Suecia , Adulto Joven
10.
Eur J Cardiovasc Nurs ; 17(2): 114-122, 2018 02.
Artículo en Inglés | MEDLINE | ID: mdl-28657364

RESUMEN

BACKGROUND: Personalised care planning is argued for but there is a need to know more about what the plans actually contain. AIM: To describe the content of person-centred health, plans documented at three healthcare levels for patients with acute coronary syndrome. DESIGN: Patients with acute coronary syndrome aged under 75 years and admitted to two coronary care units at a university hospital were enrolled in the study. This retrospective descriptive study documented 89 person-centred health plans at three healthcare levels: hospital, outpatient and primary care. In total, 267 health plans were reviewed and a quantitative content analysis conducted. The health plans included commonly formulated goals, patients' own resources and support needed. RESULTS: The health plan goals were divided into three categories: lifestyle changes, illness management and relational activities. The most frequently reported goal for better health was increased physical activity, followed by social life/leisure activities and return to paid professional work. In order to reach the goals, patients identified three ways: own resources, family and social support and healthcare system, in total three categories. The most frequently reported own capability was self-motivation. Spouses and children were important sources of family and social support. The most frequently reported healthcare support was cardiac rehabilitation. CONCLUSION: In traditional care and treatment plans devised by health professionals, patient goals often comprise behavioural changes. When patients identify their own goals and resources with the help of professionals, they include maintaining social relations and being able to return to important activities such as work.


Asunto(s)
Síndrome Coronario Agudo/terapia , Documentación , Planificación de Atención al Paciente , Atención Dirigida al Paciente , Síndrome Coronario Agudo/complicaciones , Síndrome Coronario Agudo/psicología , Adulto , Anciano , Femenino , Hospitalización , Humanos , Estilo de Vida , Masculino , Persona de Mediana Edad , Motivación , Atención Primaria de Salud , Estudios Retrospectivos
11.
BMC Nurs ; 16: 69, 2017.
Artículo en Inglés | MEDLINE | ID: mdl-29200965

RESUMEN

BACKGROUND: Active patient participation is a patient safety priority for health care. Yet, patients and their preferences are less understood. The aim of the study was to explore hospitalised patients' preferences on participation in their care and safety activities in Sweden. METHODS: Exploratory qualitative study. Data were collected over a four-month period in 2013 and 2014. Semi-structured interviews were conducted with 20 patients who were admitted to one of four medical wards at a university hospital in Sweden. Data were analysed using thematic analysis. RESULTS: Nine men and eleven women, whose median age was 72 years (range 22-89), were included in the study. Five themes emerged with the thematic analysis: endorsing participation; understanding enables participation; enacting patient safety by participation; impediments to participation; and the significance of participation. This study demonstrated that patients wanted to be active participants in their care and safety activities by having a voice and being a part of the decision-making process, sharing information and possessing knowledge about their conditions. These factors were all enablers for patient participation. However, a number of barriers hampered participation, such as power imbalances, lack of patient acuity and patient uncertainty. Patients' participation in care and patient safety activities seemed to determine whether patients were feeling safe or ignored. CONCLUSION: This study contributes to the existing literature with fundamental evidence of patients' willingness to participate in care and safety activities. Promoting patient participation begins by understanding the patients' unique preferences and needs for care, establishing a good relationship and paying attention to each patient's ability to participate despite their illness.

12.
Int J Cardiol ; 249: 42-47, 2017 Dec 15.
Artículo en Inglés | MEDLINE | ID: mdl-28893432

RESUMEN

AIM: To assess the long-term effect of person-centred care (PCC) in patients with acute coronary syndrome (ACS). METHOD: Patients with ACS were randomly assigned to treatment as usual (control group) or an added PCC intervention for six months. The primary endpoint was a composite score of changes in general self-efficacy≥five units, return to work or to a prior activity level and re-hospitalisation or death. RESULTS: The composite score improved in the PCC intervention group (n=94) at a two-year follow-up compared with the control group (n=105) (18.1%, n=17 vs. 10.5%, n=11; P=0.127). In the per-protocol analysis (n=183) the improvement was significant in favour of the PCC intervention (n=78) compared with usual care (n=105) (21.8%, n=17 vs. 10.5%, n=11; P=0.039). This effect was driven by the finding that more patients in the PCC group improved their general self-efficacy score≥5units (32.2%, n=19 vs. 17.3%, n=14; P=0.046). The composite score improvement was significantly higher in the PCC intervention group without post-secondary education (n=33) in comparison with corresponding patients in the control group (n=50) (30.3%, n=10 vs. 10.0%, n=5; P=0.024). CONCLUSION: Implementation of PCC results in sustained improvements in health outcome in patients with ACS. PCC can be incorporated into conventional cardiac prevention programmes to improve equity in uptake and patient health outcomes. TRIAL REGISTRATION: Swedish registry, Researchweb.org, ID NR 65791.


Asunto(s)
Síndrome Coronario Agudo/diagnóstico , Síndrome Coronario Agudo/terapia , Atención Dirigida al Paciente/métodos , Síndrome Coronario Agudo/fisiopatología , Anciano , Femenino , Estudios de Seguimiento , Humanos , Masculino , Persona de Mediana Edad , Resultado del Tratamiento
13.
14.
BMJ Open ; 6(10): e011820, 2016 10 05.
Artículo en Inglés | MEDLINE | ID: mdl-27707826

RESUMEN

OBJECTIVE: The aim of the study was to investigate the meaning of narrated symptoms in connection to takotsubo syndrome. DESIGN, METHOD, PARTICIPANTS AND SETTING: Qualitative study consisting of 25 interviews, 23 women and 2 men aged 39-84 and living in Region Västra Götaland, Sweden. The transcribed text was analysed with phenomenological hermeneutics. RESULTS: The interviewees reported a large number of symptoms before, during and after the acute onset of takotsubo syndrome, including pain, affected breathing, lassitude, malaise and nausea. Several of these have not been reported previously. Symptoms before the acute onset were, even if they had been prominent, ignored by the interviewees for various reasons. During the acute phase, the symptoms could no longer be ignored and the interviewees sought healthcare. The remaining residual symptom after discharge from hospital caused a great deal of worry because the interviewees feared that they would be permanent and they felt they could not live this way. On the whole, becoming ill and having a large number of symptoms greatly impacted the lives of the interviewees and made them re-evaluate how they had been living. Furthermore, they reported feeling alone and lost regarding their symptom burden, especially in relation to their residual symptoms, which affected their health and ability to return to daily life. CONCLUSIONS: Acute symptoms, and symptoms before and after the acute ones, are a major part of the illness experience for patients with takotsubo syndrome and affect their health and well-being. Assessment of symptoms should be an integrated part of care to promote health. One way of achieving this is through the patients' own narratives of their experiences, which are an important component in person-centred care.


Asunto(s)
Evaluación de Síntomas , Cardiomiopatía de Takotsubo/diagnóstico , Cardiomiopatía de Takotsubo/psicología , Actividades Cotidianas , Enfermedad Aguda/psicología , Adaptación Psicológica , Adulto , Anciano , Anciano de 80 o más Años , Femenino , Estado de Salud , Humanos , Masculino , Persona de Mediana Edad , Dolor , Investigación Cualitativa , Calidad de Vida , Suecia
15.
Int J Cardiol ; 224: 348-352, 2016 Dec 01.
Artículo en Inglés | MEDLINE | ID: mdl-27668709

RESUMEN

BACKGROUND: Takotsubo syndrome is a form of acute, reversible heart failure that has gained increasing attention. It affects mostly postmenopausal women, and its acute onset and symptoms mimic acute myocardial infarction. The distinct feature of takotsubo syndrome is the ballooning of a ventricle, but the complete pathophysiological mechanisms are not fully understood. Both short-term and long-term survival are affected, but little is known about the illness experience and self-reported residual symptoms after discharge from hospital. AIM: To measure and compare self-reported residual symptoms between patients with takotsubo syndrome and those with acute myocardial infarction. METHOD: Questionnaire data measuring self-reported symptoms were collected from 48 patients with takotsubo syndrome and 79 patients with acute myocardial infarction 8weeks after discharge. A multivariate adjusted complete case regression model was used to compare the frequency and severity of symptoms. RESULTS: Self-reported symptoms 8weeks after discharge differed little between patients with takotsubo syndrome and those with acute myocardial infarction. Both groups reported symptoms, including pain, fatigue, breathlessness, and sleep disturbance. At onset there were significant differences between the groups concerning previous diabetes mellitus, cardiac troponin T, ejection fraction and Killip class. There were no significant between-group differences in frequency or severity of symptoms after adjusting for these differences. CONCLUSION: Patients with takotsubo syndrome experience residual symptoms after discharge. Symptoms in several cardiovascular diseases predict quality of life, re-admission, and mortality. Symptom management should be integrated into follow-up care for patients with takotsubo syndrome. One way of achieving this is through person-centered care.


Asunto(s)
Autoevaluación Diagnóstica , Infarto del Miocardio , Alta del Paciente , Calidad de Vida , Evaluación de Síntomas , Cardiomiopatía de Takotsubo , Adulto , Anciano , Angiografía Coronaria/métodos , Electrocardiografía/métodos , Femenino , Humanos , Masculino , Persona de Mediana Edad , Infarto del Miocardio/diagnóstico , Infarto del Miocardio/fisiopatología , Infarto del Miocardio/psicología , Infarto del Miocardio/terapia , Autoinforme , Encuestas y Cuestionarios , Suecia/epidemiología , Evaluación de Síntomas/métodos , Evaluación de Síntomas/psicología , Cardiomiopatía de Takotsubo/diagnóstico , Cardiomiopatía de Takotsubo/fisiopatología , Cardiomiopatía de Takotsubo/psicología , Cardiomiopatía de Takotsubo/terapia , Factores de Tiempo
16.
J Med Internet Res ; 18(2): e40, 2016 Feb 23.
Artículo en Inglés | MEDLINE | ID: mdl-26907584

RESUMEN

BACKGROUND: Patients with cardiovascular diseases managed by a person-centered care (PCC) approach have been observed to have better treatment outcomes and satisfaction than with traditional care. eHealth may facilitate the often slow transition to more person-centered health care by increasing patients' beliefs in their own capacities (self-efficacy) to manage their care trajectory. eHealth is being increasingly used, but most studies continue to focus on health care professionals' logic of care. Knowledge is lacking regarding the effects of an eHealth tool on self-efficacy when combined with PCC for patients with chronic heart diseases. OBJECTIVE: The objective of our study was to investigate the effect of an eHealth diary and symptom-tracking tool in combination with PCC for patients with acute coronary syndrome (ACS). METHODS: This was a substudy of a randomized controlled trial investigating the effects of PCC in patients hospitalized with ACS. In total, 199 patients with ACS aged <75 years were randomly assigned to a PCC intervention (n=94) or standard treatment (control group, n=105) and were followed up for 6 months. Patients in the intervention arm could choose to use a Web-based or mobile-based eHealth tool, or both, for at least 2 months after hospital discharge. The primary end point was a composite score of changes in general self-efficacy, return to work or prior activity level, and rehospitalization or death 6 months after discharge. RESULTS: Of the 94 patients in the intervention arm, 37 (39%) used the eHealth tool at least once after the index hospitalization. Most of these (24/37, 65%) used the mobile app and not the Web-based app as the primary source of daily self-rating input. Patients used the eHealth tool a mean of 38 times during the first 8 weeks (range 1-118, SD 33) and 64 times over a 6-month period (range 1-597, SD 104). Patients who used the eHealth tool in combination with the PCC intervention had a 4-fold improvement in the primary end point compared with the control group (odds ratio 4.0, 95% CI 1.5-10.5; P=.005). This improvement was driven by a significant increase in general self-efficacy compared with the control group (P=.011). Patients in the PCC group who did not use the eHealth tool (n=57) showed a nonsignificant composite score improvement compared with those in the control group (n=105) (odds ratio 2.0, 95% CI 0.8-5.2; P=.14). CONCLUSIONS: We found a significant effect on improved general self-efficacy and the composite score for patients using an eHealth diary and symptom-tracking tool in combination with PCC compared with traditional care. TRIAL REGISTRATION: Swedish registry, Researchweb.org, ID NR 65 791.


Asunto(s)
Síndrome Coronario Agudo/diagnóstico , Telemedicina/estadística & datos numéricos , Enfermedad Aguda , Anciano , Manejo de la Enfermedad , Femenino , Humanos , Masculino , Persona de Mediana Edad , Autocuidado , Autoeficacia , Resultado del Tratamiento
17.
Eur J Cardiovasc Nurs ; 15(7): 522-528, 2016 12.
Artículo en Inglés | MEDLINE | ID: mdl-26572162

RESUMEN

BACKGROUND: The connection between stress and disease has been part of folk wisdom for a long time and has even made its way into our language with phrases such as 'scared to death' and 'a broken heart'. Takotsubo syndrome is a form of acute, reversible heart failure characterized by ballooning of the left ventricle. Post-menopausal women are primarily affected, but cases have been described in both sexes and at all ages. The complete pathophysiology is unknown, but the disease has been connected to psychological or physical stress and a surge in catecholamines. Despite the strong connection with stress, knowledge about the life of patients before the onset of Takotsubo syndrome is lacking. AIM: The aim of this study was to describe and interpret patients' narratives about long-term stress experienced before the onset of Takotsubo syndrome. METHOD: Nineteen people diagnosed with Takotsubo syndrome were interviewed. The narrative interviews were recorded and transcribed verbatim. The resulting texts were analysed using phenomenological hermeneutics. RESULTS: The analysis revealed that the interviewees lived under stressful circumstances, characterized by feeling burdened by responsibilities, injustice and uncertainty, long before the onset of Takotsubo syndrome. This long-term stress wore down the defences of the interviewees to the degree that their capacity was exhausted and the smallest stressor could 'tip them over the edge'. The findings indicated that the social structure of gender possibly contributed to the interviewees' condition. CONCLUSIONS: These findings indicated that long-term stressful circumstances may cause vulnerability to acute psychological or physical stressors and, subsequently, to the onset of Takotsubo syndrome.


Asunto(s)
Estrés Psicológico , Cardiomiopatía de Takotsubo/psicología , Emociones , Femenino , Humanos , Masculino
18.
Eur J Cardiovasc Nurs ; 15(3): e19-26, 2016 04.
Artículo en Inglés | MEDLINE | ID: mdl-25648848

RESUMEN

BACKGROUND: Discharge planning is important to bridge the gap between hospital and home. Many patients with chronic heart failure are often fragile elderly with co-morbidities and functional decline due to increased symptom burden. A structured Gothenburg person-centred care (gPCC) approach may promote better discharge-planning. AIMS: To evaluate whether proactive care-planning based on the gPCC model leads to improved efficiency in discharge procedures compared with usual care in patients hospitalized for worsening chronic heart failure. METHODS: In a controlled before-and-after design, patients hospitalized for worsening chronic heart failure were assigned to either a usual care group or a gPCC intervention group. The patients' social situation, their discharge destination and the number of days until the discharge were recorded. The time interval (in days) between notification and start of coordination of care was recorded. RESULTS: In total, 248 patients were included, 123 in the usual care group and 125 in the gPCC intervention. During hospitalization, notifications to the community home help service and/or round-the-clock home nursing care services were more frequent in the gPCC-group (33.8%) compared with patients in the usual care group (12.1%). A confirmed discharge planning conference started within the first five days in the gPCC group whereas the usual care group ranged from one to 28 days. Compared with the usual care group, the gPCC group had fewer days in hospital (11 versus 35) ready for discharge. CONCLUSION: gPCC improves discharge processes because patients are viewed as competent to be involved in planning their subsequent care.


Asunto(s)
Enfermedad Crónica/terapia , Insuficiencia Cardíaca/enfermería , Planificación de Atención al Paciente/organización & administración , Alta del Paciente/normas , Atención Dirigida al Paciente/métodos , Adulto , Anciano , Anciano de 80 o más Años , Femenino , Humanos , Masculino , Persona de Mediana Edad , Participación del Paciente
19.
J Nurs Manag ; 24(2): 228-34, 2016 Mar.
Artículo en Inglés | MEDLINE | ID: mdl-25879275

RESUMEN

AIM: The aim of the current study was to investigate the impact of servant leadership dimensions on leader-member exchange (LMX) among health-care professionals. BACKGROUND: Leadership support and the quality of the dyadic relationship between the leader and the employee are essential regarding the work environment and turnover intentions in health care. METHOD: A questionnaire-based cross-sectional study was undertaken at four hospital units in Sweden. The study sample included 240 employees. RESULTS: Significant bivariate correlations were found between all servant leadership dimensions and LMX. The strongest correlations were found between 'humility' and LMX (r = 0.69, P < 0.001), and 'empowerment' and LMX (r = 0.67, P < 0.001). The hierarchical regression analyses indicated that 'empowerment', 'humility' and 'stewardship' explained about 55% of the variance in LMX. CONCLUSION: In our study servant leadership dimensions were strongly related to LMX. IMPLICATIONS FOR NURSING MANAGEMENT: The results identify specific servant leadership dimensions that are likely to be useful for developing a stronger exchange relationship between the leader (e.g. nursing manager) and individual subordinates in health care.


Asunto(s)
Relaciones Interprofesionales , Satisfacción en el Trabajo , Liderazgo , Cuerpo Médico de Hospitales/organización & administración , Personal de Enfermería en Hospital/organización & administración , Reorganización del Personal , Adulto , Estudios Transversales , Femenino , Humanos , Masculino , Cuerpo Médico de Hospitales/psicología , Persona de Mediana Edad , Personal de Enfermería en Hospital/psicología , Supervisión de Enfermería/organización & administración , Suecia
20.
Eur J Cardiovasc Nurs ; 15(2): 186-94, 2016 Apr.
Artículo en Inglés | MEDLINE | ID: mdl-26701344

RESUMEN

BACKGROUND: Person-centred care (PCC) aims to engage patients as active partners in their care and treatment to improve the management of their illness. Self-efficacy is an important concept and outcome in PCC as it refers to a patient's belief in their capability to manage the events that affect their lives. Recovery after acute coronary syndrome (ACS) is demanding and a PCC approach may promote self-efficacy and thereby facilitate recovery. AIM: The purpose of this study was to evaluate whether a PCC intervention was able to improve self-efficacy after hospitalization for ACS. METHODS: In a randomized controlled trial, patients <75 years of age and hospitalized for ACS were assigned to either a usual care group or a PCC intervention group. Self-efficacy was assessed at baseline and up to six months after discharge using the Swedish Cardiac Self-Efficacy Scale (S-CSES), which consists of three dimensions: control symptoms, control illness and maintain functioning. RESULTS: In total, 177 patients were included in the study: 93 in the usual care group and 84 in the PCC group. At the one-month follow-up the PCC group had improved significantly more (p=0.049) on the control symptoms dimension (mean change 0.81; SD 3.5 versus mean change -0.20; SD 3.0). No difference between groups was seen at the six-month follow-up in any of the S-CSES dimensions. CONCLUSIONS: Our results indicate that PCC added to usual care promotes and hastens the development of patients' confidence in their ability to manage symptoms during recovery after ACS. This underlines the importance of initiating and establishing partnerships between patients and health care professionals as early as possible after ACS.


Asunto(s)
Síndrome Coronario Agudo/psicología , Síndrome Coronario Agudo/terapia , Atención Dirigida al Paciente , Autoeficacia , Anciano , Femenino , Hospitalización , Humanos , Masculino , Persona de Mediana Edad , Recuperación de la Función , Suecia , Resultado del Tratamiento
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