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J Relig Health ; 58(6): 2219-2240, 2019 Dec.
Article in English | MEDLINE | ID: mdl-31446605

ABSTRACT

Spiritual well-being is a major issue in health care, but instruments for measuring this construct in adolescents are lacking. This study adapted the 12-item Functional Assessment of Chronic Illness Therapy-Spiritual Well-being Scale (FACIT-Sp-12) for use with Brazilian adolescents with chronic diseases and developed a parental observer-rated version, using an expert panel, back-translation, and cognitive interviews with 72 participants. The psychometric properties of both versions were verified with two- and three-factor models by testing with 212 participants. The self- and parental-reported versions showed face validity, content validity, and acceptable levels of internal consistency for the overall scale and the two-factor model. The convergent validity was satisfactory for most items in both two- and three-factor models, but there was a lack of discrimination in the three-factor model using multitrait-multimethod analysis. This study presents the first instrument to assess the spiritual well-being of adolescents from their point of view and to allow their parents to serve as evaluators. However, we recommend further psychometric testing of the self- and parental-report scales to assess spiritual well-being in adolescents with chronic diseases in Brazil.


Subject(s)
Chronic Disease/psychology , Psychometrics/statistics & numerical data , Quality of Life/psychology , Religion and Medicine , Spirituality , Surveys and Questionnaires/standards , Adolescent , Brazil , Child , Chronic Disease/ethnology , Female , Health Status , Humans , Male , Parents , Proxy , Reproducibility of Results , Self Report , Translating
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