ABSTRACT
OBJECTIVE: To gather and calculate utilities for a wide range of health states in the pediatric population. STUDY DESIGN: The study subjects, parents or guardians at least 18 years of age with at least 1 child under age 18 years, were recruited through our Pediatric Research Network (PResNet). Recruitment locations included pediatric clinics, the Indiana State Fair, and public and private conventions. Each subject's utilities were assessed on 3 random health states out of 29 chosen for the study. Both the time trade-off and standard gamble methods were used to measure utilities. RESULTS: Utilities were assessed in a total of 4016 participants (a recruitment rate of 88%). Utility values ranged from a high for acute otitis media (0.96 by standard gamble; 0.97 by time trade-off) to a low for severe mental retardation (0.59 by standard gamble; 0.51 by time trade-off). CONCLUSIONS: Our extensive data set of utility assessments for a wide range of disease states can aid future economic evaluations of pediatric health care.
Subject(s)
Decision Support Techniques , Health Status , Outcome Assessment, Health Care , Parents , Quality-Adjusted Life Years , Adult , Asthma/economics , Attention Deficit Disorder with Hyperactivity/economics , Blindness/economics , Cerebral Palsy/economics , Child , Epilepsy/economics , Female , Gastroenteritis/economics , Hearing Loss/economics , Hospitalization , Humans , Hypersensitivity/economics , Intellectual Disability/economics , Male , Otitis Media/economics , Quality of Life , Severity of Illness IndexABSTRACT
The investigators developed a 1-page chart abstraction tool to evaluate compliance with practice guidelines for attention deficit hyperactivity disorder. The tool had strong inter-rater reliability, with kappa of 0.81. Pilot testing for 57 children with attention deficit hyperactivity disorder showed only 12% documented full compliance with assessment guidelines and 44% with treatment guidelines.