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1.
Am J Public Health ; 114(8): 824-832, 2024 Aug.
Article in English | MEDLINE | ID: mdl-38843477

ABSTRACT

Objectives. To identify appropriate interventions to prevent injury, we conducted a qualitative study among commercial shrimp fishermen in the Gulf of Mexico. Methods. Using qualitative and participatory research methods, including interviews, photovoice, and workplace observations in southeast Texas and the Rio Grande Valley in Texas, we examined the social‒structural dimensions that contribute to physical and psychological injury. Results. We found that multiple layers of vulnerability and danger exist among shrimpers with interacting themes: (1) recognizing risk, (2) precarious employment, and (3) psychological distress. Conclusions. Our results add to the growing body of knowledge that emphasizes the negative health impacts of underregulated, high-risk, and physically demanding work performed primarily by im/migrants. Public Health Implications. Our findings highlight the larger social‒structural conditions and context of hardships endemic to migrant labor and suggest implications for practice and policy interventions. (Am J Public Health. 2024;114(8):824-832. https://doi.org/10.2105/AJPH.2024.307696).


Subject(s)
Qualitative Research , Social Determinants of Health , Transients and Migrants , Humans , Gulf of Mexico , Transients and Migrants/psychology , Transients and Migrants/statistics & numerical data , Texas , Male , Adult , Fisheries , Middle Aged , Female
2.
Hisp Health Care Int ; 21(2): 60-67, 2023 06.
Article in English | MEDLINE | ID: mdl-34931564

ABSTRACT

Introduction: The emergency department (ED) is one clinical setting where issues pertaining to health communication uniquely manifest themselves on a daily basis. This pilot study sought to understand satisfaction with care, perceptions of medical staff concern, awareness, and comprehension of medical care among Spanish-speaking patients with limited English-language proficiency (LEP). Methods: A two-phase, mixed-methods approach was employed among Spanish-speaking patients with LEP that presented to an ED in West Central Florida. The prospective phase consisted of semistructured interviews (n = 25). The retrospective phase analyzed existing patient satisfaction data collected at the study site (n = 4,940). Results: Content analysis revealed several linguistic barriers among this patient population including limited individual autonomy, self-blame for being unable to effectively articulate concerns, and lack of clarity in understanding follow-up care plans. Retrospective analysis suggested differences between responses from Spanish-speaking patients when compared with their English-speaking counterparts. Conclusions: Our findings suggest discordance between satisfaction and health literacy in this unique patient population. Although high satisfaction was reported, this appeared to be secondary to comprehension of follow-up care instructions.


Subject(s)
Health Literacy , Humans , Prospective Studies , Pilot Projects , Retrospective Studies , Patient Satisfaction , Language , Emergency Service, Hospital , Communication Barriers
3.
Soc Sci Med ; 307: 115180, 2022 08.
Article in English | MEDLINE | ID: mdl-35792412

ABSTRACT

Social scientists are increasingly interested in the detrimental health impacts of immigration enforcement, including surveillance, arrest, detention, and deportation. In most empirical research-as well as the legal process itself-the family or household serves as the social unit for understanding ripple effects of immigration enforcement beyond the individual. While the mixed-status family analytic framework foregrounds the experiences of millions of individuals and valuably extended immigration scholarship to move beyond its heavy focus on individual behavioral choices, we argue that a continued reliance on the family as an analytic framework reproduces normative conceptualizations of kinship and care, obscures how the process of illegality is mediated by empire, racism, and (hetero)sexism, and risks reproducing narratives about the "deserving" immigrant. We propose the mixed-status community as an analytic framework to better understand the detrimental health impacts of immigration enforcement by accounting for the synergistic influence of 1) a fuller range of social and intimate relationships; 2) spatial arrangements of risk; 3) presumptions of immigration status; and 4) racialization of immigration law and enforcement practices. We draw on a case study of an immigration raid as well as contemporary examples to illustrate the added value of this analytic framework.


Subject(s)
Emigrants and Immigrants , Racism , Data Collection , Emigration and Immigration , Humans , Law Enforcement
4.
BMJ Glob Health ; 6(Suppl 1)2021 04.
Article in English | MEDLINE | ID: mdl-33827795

ABSTRACT

This article brings the social science concept of 'deservingness' to bear on clinical cases of transnational migrant patients. Based on the authors' medical social science research, health delivery practice and clinical work from multiple locations in Africa. Europe and the Americas, the article describes three clinical cases in which assumptions of deservingness have significant implications for the morbidity and mortality of migrant patients. The concept of deservingness allows us to maintain a critical awareness of the often unspoken presumptions of which categories of patients are more or less deserving of access to and quality of care, regardless of their formal legal eligibility. Many transnational migrants with ambiguous legal status who rely on public healthcare experience exclusion from care or poor treatment based on notions of deservingness held by health clinic staff, clinicians and health system planners. The article proposes several implications for clinicians, health professional education, policymaking and advocacy. A critical lens on deservingness can help global health professionals, systems and policymakers confront and change entrenched patterns of unequal access to and differential quality of care for migrant patients. In this way, health professionals can work more effectively for global health equity.


Subject(s)
Transients and Migrants , Africa , Europe , Global Health , Humans , Social Environment
5.
Med Anthropol ; 40(7): 639-652, 2021 10.
Article in English | MEDLINE | ID: mdl-33666527

ABSTRACT

Mental and emotional well-being are intimately entangled with immigration status, personal relationships, and the broader political environment. Drawing on ethnographic fieldwork in South Texas including interviews with mixed-status families, this article illustrates the spillover impacts affecting mental and emotional health of family members with different legal statuses. Building on the notion of "structural vulnerability," we propose the concept of familial vulnerability, a lens which highlights how racialization, legal status, and discrimination affect the family unit. Our analysis of the mental health impacts on family members within mixed-status families may inform necessary changes to programs and policies to improve the needs of this population.


Subject(s)
Emigration and Immigration , Mental Health , Anthropology, Cultural , Anthropology, Medical , Family , Health Status , Humans
6.
Article in English | MEDLINE | ID: mdl-33321718

ABSTRACT

Rural populations in the United States are faced with a variety of health disparities that complicate access to care. Community health workers (CHWs) and their Spanish-speaking counterparts, promotores de salud, are well-equipped to address rural health access issues, provide education, and ultimately assuage these disparities. In this article, we compare community health workers in the states of Indiana and Texas, based on the results of two separate research studies, in order to (1) investigate the unique role of CHWs in rural communities and (2) understand how their advocacy efforts represent a central form of caregiving. Drawing on ethnographic, qualitative data-including interviews, photovoice, and participant observation-we analyze how CHWs connect structurally vulnerable clients in rural areas to resources, health education, and health and social services. Our primary contribution to existing scholarship on CHWs is the elaboration of advocacy as a form of caregiving to improve individual health outcomes as well as provoke structural change in the form of policy development. Finally, we describe how CHWs became especially critical in addressing disparities among rural populations in the wake of COVID-19, using their advocacy-as-caregiving role that was developed and well-established before the pandemic. These frontline workers are more vital than ever to address disparities and are a critical force in overcoming structural vulnerability and inequities in health in the United States.


Subject(s)
Community Health Workers , Health Status Disparities , Patient Advocacy , Rural Health Services , Rural Population , COVID-19 , Humans , Indiana , Texas , United States , Vulnerable Populations
7.
Popul Health Manag ; 23(6): 476-481, 2020 12.
Article in English | MEDLINE | ID: mdl-31928510

ABSTRACT

The Robert Wood Johnson Foundation's Culture of Health Action Framework aims to "make health a shared value" and improve population health equity through widespread culture change. The authors draw upon their expertise as anthropologists to identify 3 challenges that they believe must be addressed in order to effectively achieve the health equity and population health improvement goals of the Culture of Health initiative: clarifying and demystifying the concept of "culture," contextualizing "community" within networks of power and inequality, and confronting the crises of trust and solidarity in the contemporary United States. The authors suggest that those who seek to build a "Culture of Health" refine their understanding of how "culture" is experienced, advocate for policies and practices that break down unhealthy consolidations of power, and innovate solutions to building consensus in a divided nation.


Subject(s)
Health Equity , Population Health , Anthropology, Medical , Humans , United States
8.
Med Anthropol ; 38(8): 733-746, 2019.
Article in English | MEDLINE | ID: mdl-30735062

ABSTRACT

Structural vulnerability illuminates how social positionings shape outcomes for marginalized individuals, like migrant farmworkers, who are often Latino, indigenous, and/or undocumented. Furthering scholarship on negotiating constraints, we explore how school employees (here, Migrant Advocates) broker health care access for migrant farmworker families. Ethnographic research in central Florida showed that Advocates perform similar functions as community health workers while experiencing similar dilemmas. We propose combining medical anthropological insights with the CDC's Whole School, Whole Community, Whole Child model, conceptualizing schools as an important site for families' wellbeing, recognizing brokerage roles of staff, and offering new directions for migrant health scholars.


Subject(s)
Family , Health Services Accessibility , Schools , Social Marginalization , Transients and Migrants , Adult , Agriculture , Anthropology, Medical , Child , Female , Florida , Hispanic or Latino , Humans , Male
9.
Qual Health Res ; 29(4): 498-509, 2019 03.
Article in English | MEDLINE | ID: mdl-29448885

ABSTRACT

The "DACAmented Voices in Healthcare" project examined the intersection of restrictive immigration policies and health care via photovoice, a participatory action research approach, with immigrant youth living in Arizona, who were recipients of the Deferred Action for Childhood Arrivals (DACA) program. These "DACAmented" youth took part in nine photovoice sessions exploring their health care experiences and accessibility to care using documentary photography and narratives. They poignantly illustrated their experiences through images identifying their main health concerns and strengths, facilitating the development of health policy recommendations. This article illustrates the thematic findings and discusses policy recommendations and lessons learned from presentations to policy makers and health care providers. Findings suggest that immigrant youth are knowledgeable of their family's health care needs and hold a unique and important position within mixed-status households. Health care providers can benefit from the proposed recommendations by building bridges to care to address health equity in immigrant communities.


Subject(s)
Health Policy , Health Services Accessibility , Undocumented Immigrants/psychology , Adolescent , Adult , Arizona , Emigrants and Immigrants , Female , Health Behavior , Humans , Male , Photography , Politics , Voice , Young Adult
10.
Annu Rev Public Health ; 36: 375-92, 2015 Mar 18.
Article in English | MEDLINE | ID: mdl-25494053

ABSTRACT

Although immigration and immigrant populations have become increasingly important foci in public health research and practice, a social determinants of health approach has seldom been applied in this area. Global patterns of morbidity and mortality follow inequities rooted in societal, political, and economic conditions produced and reproduced by social structures, policies, and institutions. The lack of dialogue between these two profoundly related phenomena-social determinants of health and immigration-has resulted in missed opportunities for public health research, practice, and policy work. In this article, we discuss primary frameworks used in recent public health literature on the health of immigrant populations, note gaps in this literature, and argue for a broader examination of immigration as both socially determined and a social determinant of health. We discuss priorities for future research and policy to understand more fully and respond appropriately to the health of the populations affected by this global phenomenon.


Subject(s)
Emigration and Immigration , Social Determinants of Health , Culture , Global Health , Health Policy , Humans , Public Health
11.
J Gerontol Soc Work ; 57(8): 825-44, 2014.
Article in English | MEDLINE | ID: mdl-24892232

ABSTRACT

This study examined disaster preparedness and decision-making by caregivers of community-dwelling persons diagnosed with Alzheimer's or a related dementia (ADRD). Interviews were conducted with 20 caregivers in South Florida. Twelve of these interviews include caregiving experiences during the highly active 2004-2005 hurricane seasons. Results indicate that persons in earlier stages of ADRD can, and often do, remain engaged in the disaster preparation and planning process. However, during the early stages, persons may also resist evacuation, even if the caregiver felt it was necessary. During later stages of the disease, caregivers reported less resistance to disaster-related decisions, however, with the tradeoff of less ability to assist with preparation.


Subject(s)
Caregivers/psychology , Cyclonic Storms , Dementia/complications , Disaster Planning/methods , Social Adjustment , Alzheimer Disease/complications , Female , Florida , Humans , Male , Qualitative Research
12.
Am J Alzheimers Dis Other Demen ; 28(7): 682-92, 2013 Nov.
Article in English | MEDLINE | ID: mdl-24005855

ABSTRACT

This article explores how dyads of 186 community-dwelling individuals with a diagnosis of Alzheimer's disease or a related disorder (ADRD) and their caregivers (dyads) plan to respond to hurricane evacuation warnings in South Florida. Predictors of dyad evacuation for a category 1-3 storm include (1) a younger age of the person with an ADRD diagnosis, (2) the caregiver living in a different residence than the person with ADRD, (3) lack of hurricane shutters, and (4) lower income. A dyad is more likely to evacuate in a category 4 or 5 hurricane if there is (1) a younger age person with an ADRD diagnosis, (2) a more recent diagnosis of ADRD, (3) a residence in an evacuation zone, and if (4) they report needing a shelter. Emergency management teams, especially those who assist with special needs shelters or other outreach programs for people with cognitive disabilities, can use these guidelines to estimate service usage and needs.


Subject(s)
Alzheimer Disease , Caregivers , Cyclonic Storms , Disaster Planning , Disasters/prevention & control , Health Services Needs and Demand , Aged , Aged, 80 and over , Female , Florida , Humans , Male , Middle Aged , Residence Characteristics , Safety Management
13.
Am J Med Genet A ; 161A(8): 2095-8, 2013 Aug.
Article in English | MEDLINE | ID: mdl-23824712

ABSTRACT

It is well established that the general public has varying interpretations of the term "risk" and the qualifiers associated with it, such as low, moderate, or high. What is less well known is how definition and application of this term impacts recruitment of individuals, particularly for biomedical and behavioral research designed to improve knowledge of and access to innovations in cancer genetics. This Commentary discusses the nomenclature used in bio-behavioral research and the potential for confusion due to divergent meanings of risk and its associated categorizations. We discuss both our experience with recruitment of familial cancer families for a study on perceptions of biobanking as well as lessons learned from published examples where divergent understanding of risk levels, genetic research processes, and interpretation of results between community members and researchers result in misunderstandings for both parties. Ultimately, a critical challenge remains to ensure that accurate and mutually relevant risk terms are used in recruiting research participants and providing genetic results. Achieving this goal requires that regulations, policy, education, and practice change in step with rapid discoveries in genetic research to reduce misinterpretations resulting from lack of common understanding and specificity in risk terminology.


Subject(s)
Biological Specimen Banks , Genetic Research , Health Communication/ethics , Neoplasms , Risk Assessment , Terminology as Topic , Humans
14.
Soc Sci Med ; 84: 94-101, 2013 May.
Article in English | MEDLINE | ID: mdl-23455375

ABSTRACT

This article discusses health concerns of migrant street-based male sex workers (SMSW) in Germany, a population that remains underexplored by health and social scientists. It is based on five months of ethnographic research in 2011/2012, including 46 semi-structured interviews with physicians, social workers, health department staff, and SMSW from Romania and Bulgaria. This is supplemented with annual reports by organizations providing assistance to this population in eight cities. The article contributes, first, an analysis of the increase in migrant SMSW as a response to economic opportunities (freedom of movement across European Union borders) and constraints (transitional measures restricting access to the labor market). It seeks to move beyond the myopic association between sex work and HIV to contextualize health risks as resultant of macro-level processes associated with migration. Second, the article contributes a summary of primary health concerns for this population. Especially troubling is their lack of access to regular medical services, reflecting a socio-legal position that often resembles that of unauthorized migrants rather than European Union citizens.


Subject(s)
Health Services Accessibility/statistics & numerical data , Health Status , Sex Workers/statistics & numerical data , Transients and Migrants/statistics & numerical data , Vulnerable Populations , Anthropology, Cultural , Bulgaria/ethnology , Germany , Humans , Male , Qualitative Research , Romania/ethnology
15.
J Community Health ; 38(2): 397-407, 2013 Apr.
Article in English | MEDLINE | ID: mdl-23054421

ABSTRACT

Farmworkers in the US are a medically underserved group, who are largely uninsured, foreign-born, and working in a hazardous industry. This review addresses the challenges of providing health services for this priority population to study the numerous health access barriers that face migrant and seasonal farmworkers (MSFW), evaluates the services provided at mobile clinics, summarizes practice models for community-academic partnerships, and synthesizes the literature on effective partnership approaches to deliver these services. Because MSFW are a difficult group to reach and access, mobile farmworker clinics provide an opportunity for unique student training experiences, in addition to small survey and feasibility studies. A literature search was conducted to identify articles for the review. Out of 196 articles identified by the article databases and manual search techniques, 18 articles were finally selected for the review based on predetermined inclusion and exclusion criteria. Half of the articles were classified as case studies or descriptive studies with lessons learned. Only three articles were classified as research studies, and six articles were not classified as research studies, but rather descriptions of the clinics only. Many of the partnership models were structured with the lead agency as either the academic partner or an Area Health Education Center. The academic partner was usually a nursing school, and less frequently a medical school. Other service partners frequently mentioned were federally-qualified Community Health Centers, Migrant Health Centers, and health departments. The review found that service partnerships were characterized by collaboration between academic institutions and community organizations, with a lead agency driving sustainability efforts.


Subject(s)
Agriculture , Community Health Services , Cooperative Behavior , Mobile Health Units , Models, Organizational , Transients and Migrants , Universities , Female , Health Services Accessibility , Humans , Interinstitutional Relations , Male , Medically Uninsured , United States
16.
Support Care Cancer ; 21(5): 1233-9, 2013 May.
Article in English | MEDLINE | ID: mdl-23192672

ABSTRACT

PURPOSE: Limited knowledge exists pertaining to advance care planning (ACP) among Colombian, Mexican, and Puerto Rican women with a cancer diagnosis living in Central Florida, in the USA. The purpose of the study is to identify factors that facilitated the completion of ACP and decisions making patterns among the three groups of Latinas. METHODS: The research method used was an exploratory qualitative in-depth open-ended semi-structured interview with a grounded theoretical approach and thematic analysis. The interviews were conducted in Spanish with a purposeful sample of 45 Latinas (15 in each group) diagnosed with cancer. RESULTS: A total of ten women (22 %) in the study documented at least one form of ACP. Thirty-five women identified obstacles to accessing information regarding ACP, relating this to insurance and financial factors. Among the Colombian women, one completed a living will, health care surrogate, and power of attorney (all forms of ACP), and three just a living will. Two Puerto Rican women completed all, two a living will, and one both a living will and an enduring power of attorney. Only one Mexican woman completed a living will. CONCLUSIONS: This study identifies a knowledge gap regarding ACP among Latina women with cancer diagnosis living in Central Florida, in the USA. Differences between the three groups exist as a result of migration/immigration history, family support, education, English language proficiency, income, knowledge gaps, and information ascertained by medical and health professionals. These differences contribute to their readiness, receptiveness, and willingness to engage in documenting a living will, a health care surrogate, and an enduring power of attorney for health decisions.


Subject(s)
Advance Care Planning/statistics & numerical data , Hispanic or Latino/statistics & numerical data , Neoplasms/therapy , Adolescent , Adult , Colombia/ethnology , Decision Making , Emigrants and Immigrants/statistics & numerical data , Female , Florida , Health Knowledge, Attitudes, Practice , Hispanic or Latino/ethnology , Humans , Interviews as Topic , Living Wills/ethnology , Living Wills/statistics & numerical data , Mexico/ethnology , Middle Aged , Neoplasms/ethnology , Proxy/statistics & numerical data , Puerto Rico/ethnology , Young Adult
17.
Health Educ Behav ; 39(5): 544-54, 2012 Oct.
Article in English | MEDLINE | ID: mdl-21986244

ABSTRACT

Interventions tailored to individual smoker characteristics have increasingly received attention in the tobacco control literature. The majority of tailored interventions are generated by computers and administered with printed materials or web-based programs. The purpose of this study was to examine the tailoring activities of community lay health influencers who were trained to perform face-to-face brief tobacco cessation interventions. Eighty participants of a large-scale, randomized controlled trial completed a 6-week qualitative follow-up interview. A majority of participants (86%) reported that they made adjustments in their intervention behaviors based on individual smoker characteristics, their relationship with the smoker, and/or setting. Situational contexts (i.e., location and timing) primarily played a role after targeted smokers were selected. The findings suggest that lay health influencers benefit from a training curriculum that emphasizes a motivational, person-centered approach to brief cessation interventions. Recommendations for future tobacco cessation intervention trainings are presented.


Subject(s)
Community Health Workers , Health Promotion/organization & administration , Program Development/methods , Smoking Cessation , Adult , Aged , Arizona , Female , Follow-Up Studies , Humans , Male , Middle Aged , Qualitative Research , Young Adult
18.
Health Promot Pract ; 13(5): 617-25, 2012 Sep.
Article in English | MEDLINE | ID: mdl-21881079

ABSTRACT

The purpose of this study was to identify the barriers and benefits to human papillomavirus (HPV) vaccination in a low-income, Latina farmworker population in central Florida. This study reports on formative qualitative research conducted on perceptions of benefits, barriers, costs, place, and promotion related to the HPV vaccine from surveys and interviews with a sample of 46 low-income, Latina farm workers and 19 health care workers serving this population. It was found that Latina farmworkers hold many misperceptions about the HPV vaccine and the potential links between HPV infection and cervical cancer. In addition, it was observed that HPV vaccination intention was inversely related to concerns about adolescent sexual behavior and low perceived risk of infection but might be positively influenced by belief in illness prevention and physician recommendation. These findings add to the growing research on HPV vaccine acceptability among Latina subgroups to inform intervention development, marketing materials, education, and policy.


Subject(s)
Agriculture , Health Promotion/organization & administration , Hispanic or Latino/psychology , Papillomavirus Vaccines/administration & dosage , Uterine Cervical Neoplasms/prevention & control , Adult , Female , Florida , Health Education/organization & administration , Health Services Accessibility , Humans , Middle Aged , Papillomavirus Vaccines/adverse effects , Perception , Qualitative Research , Risk Factors , Sexual Behavior , Socioeconomic Factors , Uterine Cervical Neoplasms/ethnology
19.
Soc Sci Med ; 74(6): 830-8, 2012 Mar.
Article in English | MEDLINE | ID: mdl-21788099

ABSTRACT

Persons of migrant background, a highly heterogeneous group, now comprise one-fifth of the total population in Germany. However, delayed and conflicted responses to social inclusion have resulted in clear deficits in the health care system, with few serious attempts to assess migrants' profiles and needs. This article provides a critical review based on meta-analysis of literature indexed in MEDLINE, a qualitative review of German medical and nursing curricula, and original ethnographic data. It examines discourses and practices embedded within larger national debates on migrant integration and their specific manifestations in the health sector in order to explain the current situation of unauthorized migrants. The historical arc of the last fifty years can be viewed as a progression of key themes based on interrelated concepts of deservingness and selective investment. Relative deservingness is evident in differential social positioning and access to resources, resulting in selective investment and decades of continued social inequality.


Subject(s)
Cultural Competency , Health Status Disparities , Healthcare Disparities/organization & administration , Transients and Migrants/statistics & numerical data , Anthropology, Cultural , Education, Medical/organization & administration , Education, Nursing/organization & administration , Germany , Humans , Language , Socioeconomic Factors , Sociology, Medical
20.
Soc Work Health Care ; 50(10): 828-44, 2011.
Article in English | MEDLINE | ID: mdl-22136348

ABSTRACT

Oral health care is critical for farmworkers' families in Central Florida. There is little research regarding the access to primary oral health care, barriers, and behaviors of Mexican migrant families. Forty semi-structured interviews were conducted with parents who are farmworkers in order to understand the factors that impact dental service utilization. Other factors that were also examined related to parental decisions regarding visits to the dentist with their children. This study highlights the inconsistent and inadequate patterns of dental health care services available for women, men, and children of farmworkers in Central Florida.


Subject(s)
Agriculture , Dentistry , Health Services Accessibility , Oral Health , Primary Health Care , Adolescent , Adult , Child , Child, Preschool , Female , Florida , Healthcare Disparities , Humans , Interviews as Topic , Male , Mexico/ethnology , Transients and Migrants , Young Adult
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