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Health Commun ; 34(9): 931-941, 2019 08.
Article in English | MEDLINE | ID: mdl-29485293

ABSTRACT

The death of a child creates especially poignant feelings and extreme stress, distress, and devastation for family members and healthcare providers. In addition, serious or long-term illness forces a reconstruction of our experiences with time and space. In this paper, we report on a long-term ethnographic study of a Pediatric Palliative Care Team (PPCT). Using the concepts of spatiality and temporality; Deleuze's concepts of smooth and striated spaces; Innis's concepts of space and time biases; Foucault's concept of heterotopian space-places with multiple layers of meaning; and a related concept of heterokairoi-moments in time with multiple possibilities-we consider how the PPCT constructs and reconstructs meaning in the midst of chaos, ethical dilemmas, and heartbreaking choices.


Subject(s)
Attitude to Death , Palliative Care , Patient Care Team , Pediatrics , Anthropology, Cultural , Child , Communication , Death , Hospitals, Pediatric , Humans , Parents/psychology , Spatial Analysis , Time Factors , Uncertainty
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