The Experiences of Children with Primary Immunodeficiency Who Receive Immunoglobulin Subcutaneously Instead of Intravenously.

BACKGROUND: Children with primary immunodeficiency disorder have begun receiving subcutaneous immunoglobulin (SCIg) instead of intravenous immunoglobulin (IVIg). So, we aim to explore the experiences of primary immunodeficiency children with regard to receiving SCIg instead of IVIg. METHOD: We adopted a phenomenological approach in 2022 in Turkey using semi-structured interviews. We recruited 15 participants using the purposive sampling method. RESULTS: The main theme was the sweetness and bitterness of living with SCIg. The first subtheme was sweetness (sense of freedom, having a normal life, saving time, ease of use, and feeling better). The second subtheme was bitterness (worries about taking responsibility for injection, impaired body image due to abdominal edema, and minimal tolerable complications). DISCUSSION: The results show these children had more sweet experiences than bitter ones. Being flexible in choosing a method, teaching patients to apply it correctly, and providing enough time to cope are as reasons for this.

The effect of disability empathy activity on the attitude of nursing students towards disabled people: a pilot study.

BACKGROUND: Nurses care for disabled people in society. OBJECTIVES: The aim of this experimental study was to investigate the effect of disability empathy activities on strengthening the positive attitudes of nursing students towards disabled people. DESIGN: An experimental study. Pretest-Posttest control group arrangement was used. METHODS: This research has been conducted with 116 nursing students (53 experimental and 63 control). The data were collected with "Attitudes Towards Disabled Persons Scale" (ATDP). RESULTS: Before the experiment, there was no significant difference between ATDP scores of experimental and control groups (p > 0.05). After the experiment, second ATDP scores of experimental group (66.81 ± 14.27) were found to be significantly higher than the scores of control group (59.02 ± 11.71) (p = 0.002). After six months, third ATDP scores of experimental group (63.58 ± 13.46) were also found to be higher than the scores of control group (58.43 ± 11.03) (p = 0.025). CONCLUSIONS: Empathy activities applied to understand disabled people affected the attitudes of student nurses towards disabled people positively.