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No abstract available.
Subject(s)
COVID-19 , Truth Disclosure , Humans , COVID-19/epidemiology , COVID-19/psychology , SARS-CoV-2ABSTRACT
OBJECTIVES: The study aimed to examine the relationship between attitudes toward death, rumination, and psychological resilience of oncology nurses. METHODS: The study design was cross-sectional. Data were collected from 118 oncology nurses using the Demographic Data Form, Work-Related Rumination Scale, Connor-Davidson Resilience Scale Short Form, and Death Attitude Profile-Revised Scale. For data analysis, correlation and regression analyses were performed. RESULTS: The study findings showed that oncology nurses` work related rumination score was moderate, while psychological resilience score was severely high. More than two-thirds of the work-related ruminations of oncology nurses were explained by psychological resilience and attitudes toward death. Even though there is a negative correlation between negative attitudes toward death and psychological resilience, the acceptance of death scores showed positive relations with psychological resilience. CONCLUSION: Nurses with positive attitudes toward death can also develop psychological resilience and experience fewer work-related ruminations. This result reveals the necessity of determining oncology nurses' attitudes toward death in order to protect their psychological resilience and reduce work-related ruminations. It is also evident that the results are valuable in presenting how nurses' work-related ruminations relate to psychological resilience and attitudes toward death. IMPLICATIONS FOR NURSING PRACTICE: Nurses are the main care providers in oncology settings, and they are witnessing the suffering process of their patients and experiencing the loss of their patients. These challenges bring work-related ruminations that lower the psychological resilience of nurses and affect attitudes toward death. Therefore, nurses can build an awareness of their ruminations and develop coping skills with intrusive ruminations.
Subject(s)
Attitude of Health Personnel , Attitude to Death , Oncology Nursing , Resilience, Psychological , Humans , Female , Adult , Male , Cross-Sectional Studies , Surveys and Questionnaires , Middle Aged , Nursing Staff, Hospital/psychology , Adaptation, Psychological , Young AdultABSTRACT
AIM: To offer an overall picture of the research published regarding the different aspects of death and dying during the COVID-19 pandemic in journals covering the field of nursing in the Scopus database. DESIGN: bibliometric analysis. METHODS: The metadata obtained were exported from Scopus for subsequent analysis through Bibliometrix. Using the VOSviewer co-word analysis function, the conceptual and thematic structure of the publications was identified. RESULTS: A total of 119 papers were retrieved, with the participation of 527 authors. The publications were found in 71 journals covering the nursing area. The main lines of research revolved around the keywords "palliative care" and "end-of-life care" in regard to the ethical, psychological, and organizational challenges faced by the health professionals who cared for these patients. CONCLUSION: The results obtained offer a range of data and images that characterize the scientific production published on this topic, coming to the conclusion that, due to the multifaceted and multidisciplinary approach to the experience of death, care, and accompaniment in the dying process, bibliometric maps improve the comprehensive understanding of the semantic and conceptual structure of this field of research. This study was retrospectively registered with the OSF Registries on the 14 March 2024.
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BACKGROUND: The COVID-19 Pandemic had profound effects on healthcare systems around the world. In South Africa, field hospitals, such as the Mitchell's Plain Field Hospital, managed many COVID patients and deaths, largely without family presence. Communicating with families, preparing them for death and breaking bad news was a challenge for all staff. AIM: This study explores the experiences of healthcare professionals working in a COVID-19 field hospital, specifically around having to break the news of death remotely. SETTING: A150-bed Mitchells Plain Field Hospital (MPFH) in Cape Town. METHODS: A qualitative exploratory design was utilised using a semi-structured interview guide. RESULTS: Four themes were identified: teamwork, breaking the news of death, communication and lessons learnt. The thread linking the themes was the importance of teamwork, the unpredictability of disease progression in breaking bad news and barriers to effective communication. Key lessons learnt included effective management and leadership. Many families had no access to digital technology and linguo-cultural barriers existed. CONCLUSION: We found that in the Mitchell's Plain Field Hospital, communication challenges were exacerbated by the unpredictability of the illness and the impact of restrictions on families visiting in preparing them for bad news. We identified a need for training using different modalities, the importance of a multidisciplinary team approach and for palliative care guidelines to inform practice.Contribution: Breaking the news of death to the family is never easy for healthcare workers. This article unpacks some of the experiences in dealing with an extraordinary number of deaths by a newly formed team in the COVID era.
Subject(s)
COVID-19 , Mobile Health Units , Humans , Pandemics , South Africa , Palliative Care , Communication , Physician-Patient RelationsABSTRACT
This article presents the evaluation of the therapeutic intervention course in situations of traumatic loss and grief, offered online by the Universidade do Estado do Amazonas, between April and August 2021, for volunteer professionals. A semi-structured questionnaire with open and closed questions was administered. The analysis of the 55 responses from volunteer professionals and 14 responses from individuals who received the intervention was based on the Kirkpatrick evaluation model. The results demonstrate the theoretical and practical success of the course, with a positive assessment at the reaction, learning, behavior, and results levels, emphasizing collective work and the motivation of the course speakers. The main acquired knowledge pertained to topics related to death and grief care. The behaviors resulting from the course fall within the affective-social and technical-professional domains. Regarding impact, there was a predominance of satisfaction among the individuals who received the intervention, as well as identification of changes brought about by the training.
Este artículo presenta la evaluación del curso de intervención terapéutica en situaciones de pérdida traumática y duelo, ofrecido en línea por la Universidade do Estado do Amazonas, entre abril y agosto de 2021, para profesionales voluntarios. Se aplicó un cuestionario semiestructurado con preguntas abiertas y cerradas. El análisis de las 55 respuestas de profesionales voluntarios y 14 respuestas de personas atendidas se basó en el modelo de evaluación Kirkpatrick. Los resultados muestran el acierto teórico y práctico del curso, con una evaluación positiva en los niveles de reacción, aprendizaje, comportamiento y resultados, en la que se destacó el trabajo colectivo y la motivación de los disertantes del curso. Los principales contenidos aprehendidos fueron temas relacionados con el cuidado de la muerte y el duelo. Las conductas derivadas del curso se encuadran en los campos afectivo-social y técnico-profesional. En cuanto al impacto, hubo un predominio de la satisfacción de las personas atendidas, así como identificación de cambios provocados por la formación.
Subject(s)
COVID-19 , Humans , Brazil , Pandemics , Grief , KnowledgeABSTRACT
AIM: To identify and synthesize the experiences and attitudes of nursing staff regarding the deaths of COVID-19 patients. REVIEW METHODS: A qualitative evidence synthesis was carried out, using Noblit and Hare's meta-ethnographic approach. The review protocol was listed in PROSPERO (CRD42022330928). Studies published from January 2020 to January 2022 that met the criteria were searched in PubMed, Web of Science, Scopus, CINAHL, CUIDEN and PsycInfo. A total of 12 articles were included. RESULTS: Thirty-three metaphors emerged, which were grouped into three main themes: Determining factors of care, Feelings about death and Strategies for coping with death. Nurses reported the high emotional toll, the absence of family and the lack of staff, protocol and training as determining factors. Furthermore, staff had doubts about the quality of care that COVID-19 patients received. As coping strategies, nurses developed avoidance behaviours towards COVID-19 patients, selective memories, resilience, and/or leaving the profession. CONCLUSIONS: The difficulty in providing adequate nursing care and the high number of deaths has increased anxiety and stress among nurses. These factors, alongside their lived experiences of seeing patients suffering, many dying alone without family members, have had psychological repercussions on nursing staff. IMPLICATIONS FOR THE PROFESSION AND/OR PATIENT CARE: The results demonstrate a high emotional toll and doubts surrounding their caregiving role caused by the lack of professional training needed to face a pandemic. This research shows what has been learned for future pandemics and highlights basic components that could provide a foundation for coping interventions for healthcare professionals. IMPACT: WHAT PROBLEM DID THE STUDY ADDRESS?: The challenges posed by COVID-19 patient deaths for nursing staff around the world and also by the pandemic circumstances in which those deaths occurred. WHAT WERE THE MAIN FINDINGS?: The high number of deceased patients who were isolated from family members, communication with family members and doubts surrounding care given during the pandemic have created feelings of fear, stress and anxiety, as well as obsessive thoughts that have changed nursing staff's perception of death due to COVID-19. WHERE AND ON WHOM WILL THE RESEARCH HAVE AN IMPACT?: Results will be useful for preparing for future pandemics, and for policymakers and health staff in supporting healthcare professionals by creating programmes to help them cope with the emotional toll they have felt after dealing with death in such unprecedented circumstances. REPORTING METHOD: The authors have adhered to the PRISMA guidelines and the eMERGe Reporting Guidance. PATIENT OR PUBLIC CONTRIBUTION: No patient or public contribution.
Subject(s)
COVID-19 , Nursing Staff , Humans , Health Personnel , Attitude , Family , Qualitative ResearchABSTRACT
Resumen El valor espiritual atribuido a la muerte, para los guardianes del corazón del mundo en la Sierra Nevada de Santa Marta, Colombia, como en otras culturas indígenas, integra una preparación social, física, ética, ecológica y emocional para hacer un acompañamiento saludable a la vida después de la muerte. Su importancia va mucho más allá de una visión relacionada con hechos espectaculares o la desmitificación de su cosmovisión como "pobre o vulnerable". A través de una reflexión situada de los procesos de salud, enfermedad y cuidado en el contexto indígena del final de la vida, proponemos considerar el sentido de las ocupaciones en la tríada vida - muerte - renacimiento, para garantizar el derecho a una muerte segura y culturalmente adecuada. La dimensión ocupacional, como agente de construcción e interpretación de los significados colectivos de las comunidades indígenas a través de la espiritugogía precedida por su ancestralidad, puede ofrecer otras perspectivas interculturales de cuidados paliativos milenarios y un seguimiento diferenciado y respetuoso por parte de los sistemas de salud.
Resumo O valor espiritual atribuído à morte, pelos guardiões do coração do mundo na Serra Nevada de Santa Marta, Colômbia, como em outras culturas indígenas, integra uma preparação social, física, ética, ecológica e emocional para fazer um acompanhamento saudável para a vida após a morte. Sua importância vai muito além de uma visão relacionada a eventos espetaculares ou a desmistificação de sua visão de mundo como "pobres ou vulneráveis". Por meio de uma reflexão situada dos processos de saúde, doença e cuidado no contexto indígena do final da vida, propomos considerar o significado das ocupações na tríade vida - morte - renascimento, para garantir o direito a uma morte segura e culturalmente apropriada. A dimensão ocupacional, como agente de criação e interpretação dos significados coletivos das comunidades indígenas por meio da espiritugogía precedida por sua ancestralidade, pode oferecer outras perspectivas interculturais de cuidados paliativos milenares e um acompanhamento diferenciado e respeitoso pelos sistemas de saúde.
Abstract The spiritual value attributed to death, by the guardians of the heart of the world in Sierra Nevada de Santa Marta, Colombia, as in other indigenous cultures, integrates a social, physical, ethical, ecological, and emotional preparation to make a healthy accompaniment to life after death. Its importance goes far beyond a vision related to spectacular events or the demystification of the indigenous worldview as being considered "poor or vulnerable". Through a situated reflection of the health, illness and care processes within an indigenous context at the end of life, we propose to consider the meaning of occupations in the triad of life - death - rebirth, to ensure a compliance with the right of one that alludes to the meaning of a safe and culturally appropriate death. The occupational dimension, as an agent for creating and interpreting the collective meanings of indigenous communities through the espiritugogía preceded by their ancestry, can offer other intercultural perspectives of ancient palliative care and differentiated and respectful support by health systems.
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RESUMEN Este artículo presenta la evaluación del curso de intervención terapéutica en situaciones de pérdida traumática y duelo, ofrecido en línea por la Universidade do Estado do Amazonas, entre abril y agosto de 2021, para profesionales voluntarios. Se aplicó un cuestionario semiestructurado con preguntas abiertas y cerradas. El análisis de las 55 respuestas de profesionales voluntarios y 14 respuestas de personas atendidas se basó en el modelo de evaluación Kirkpatrick. Los resultados muestran el acierto teórico y práctico del curso, con una evaluación positiva en los niveles de reacción, aprendizaje, comportamiento y resultados, en la que se destacó el trabajo colectivo y la motivación de los disertantes del curso. Los principales contenidos aprehendidos fueron temas relacionados con el cuidado de la muerte y el duelo. Las conductas derivadas del curso se encuadran en los campos afectivo-social y técnico-profesional. En cuanto al impacto, hubo un predominio de la satisfacción de las personas atendidas, así como identificación de cambios provocados por la formación.
ABSTRACT This article presents the evaluation of the therapeutic intervention course in situations of traumatic loss and grief, offered online by the Universidade do Estado do Amazonas, between April and August 2021, for volunteer professionals. A semi-structured questionnaire with open and closed questions was administered. The analysis of the 55 responses from volunteer professionals and 14 responses from individuals who received the intervention was based on the Kirkpatrick evaluation model. The results demonstrate the theoretical and practical success of the course, with a positive assessment at the reaction, learning, behavior, and results levels, emphasizing collective work and the motivation of the course speakers. The main acquired knowledge pertained to topics related to death and grief care. The behaviors resulting from the course fall within the affective-social and technical-professional domains. Regarding impact, there was a predominance of satisfaction among the individuals who received the intervention, as well as identification of changes brought about by the training.
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BACKGROUND: There is a lack of tools that can evaluate quality of dying in nursing homes from the perspective of deceased patients' caregivers. The aim of this study was to adapt and validate the caregivers' versions of the Quality of Dying in Long-Term Care (QoD-LTC) and Quality of Dying in Long-Term Care Complete (QoD-LTC-C) scales in the Spanish context. METHODS: This was a cultural adaptation and validation study. The scales were translated from English to Spanish and vice versa, and 13 experts in end-of-life care participated in a two-round Delphi panel. Caregivers of 69 deceased residents from seven nursing homes in southern Spain completed both scales. Reliability, feasibility, and concurrent validity with global quality of dying perception and symptom burden (Edmonton Symptom Assessment Scale), were evaluated. RESULTS: Spanish caregivers' version of the QoD-LTC scale showed good internal consistency for the total scale (α = 0.74) and each of its three factors, and good inter-rater reliability (ICC = 0.50) and test-retest reliability (ICC = 0.81). The Spanish QoD-LTC-C scale for caregivers showed good internal consistency for the total scale (α = 0.81) and for its component factors, and good test-retest reliability (ICC = 0.89) and inter-rater reliability (ICC = 0.66). Both scales correlated with family caregivers' global perception of deceased residents' quality of dying (r = 0.39; r = 0.32), but not with the ESAS score. CONCLUSIONS: Both scales presented an adequate factorial structure, internal consistency, and reliability to assess caregivers' perception of the quality of dying in Spanish nursing homes.
Subject(s)
Caregivers , Long-Term Care , Humans , Reproducibility of Results , Surveys and Questionnaires , Psychometrics , Nursing HomesABSTRACT
Purpose: This study aimed to identify attitudes toward advance directives (ADs) among female cancer patients and factors related to ADs. Methods: The study was conducted at a university hospital in Seoul from September 19, 2020, to January 20, 2021. The participants were 153 patients diagnosed with gynecological cancer or breast cancer. Data were collected using questionnaires and included general characteristics, disease- and AD-related characteristics, knowledge and attitudes about ADs, and attitudes about dignified death. Data were analyzed using the t-test, analysis of variance, and multiple regression analysis. Results: Only 2% of the participants completed ADs. The mean score for attitudes toward ADs was 3.30, indicating a positive knowledge and attitude toward dignified death. The factors related to attitudes toward ADs were attitudes toward dignified death (ß=0.25, P=0.001), experience discussing life-sustaining treatment (ß=0.17, P=0.037), preferred time to have a consultation about ADs (ß=0.19, P=0.046), intention to write ADs (ß= 0.15, P=0.038), and Eastern Cooperative Oncology Group Performance Status (ß=-0.37, P<0.001). The explanatory power of these variables for attitudes toward ADs was 38.5%. Conclusion: Overall, patients preferred to have a consultation about ADs when they were still active, mentally healthy, and able to make decisions. Education about ADs should be provided to patients on the first day of hospitalization for chemotherapy or while awaiting treatment in an outpatient setting so patients can write ADs and discuss them with family and friends.
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OBJECTIVES: Death literacy is a recent conceptualization representing both individual and community competence, for example, a set of knowledge and skills for engaging in end-of-life-related situations. Little is yet known about which factors are associated with death literacy. A cross-sectional survey using the Swedish version of the Death Literacy Index, the DLI-S, was therefore conducted to explore associations between death literacy and sociodemographic, health, and experience variables. METHODS: A quota sample of 503 adults (mean age 49.95 ± 17.92), recruited from an online Swedish survey panel, completed a survey comprising the DLI-S and background questions. RESULTS: A hierarchical regression model with 3 blocks explained 40.5% of the variance in death literacy, F(22, 477) = 14.75. The sociodemographic factors age, gender, education, widowhood, and religious/spiritual belief accounted for 13.7% of the variance. Adding professional care factors contributed to an additional 15.8% of variance, with working in health care being significantly associated with death literacy. Including experiential factors explained another 11.0% of the variance, of which experiences of caring for and supporting dying and grieving people, both in a work, volunteer, or personal context, were positively associated with death literacy. SIGNIFICANCE OF RESULTS: This study contributes a tentative explanatory model of the influence of different factors on death literacy, outlining both direct and indirect associations. Our findings also support the hypothesized experiential basis for death literacy development in the Swedish context. The moderate degree of overall variance explained suggests there may be additional factors to consider to better understand the death literacy construct and how its development may be supported.
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OBJECTIVES: To describe the levels of anxiety in the face of death in professionals from hospital emergency services in Aragon. To analyse its association with sociodemographic, perception and work-related variables. METHODOLOGY: Observational, descriptive and cross-sectional study. The population and context of the study were health professionals in the hospital emergency services of Aragon. A non-probabilistic sampling selection was applied (nâ¯=â¯230 participants). The "Collet-Lester-Fear-of-Death-Scale" instrument was introduced to measure anxiety about death. The data was collected with a self-applied telematic questionnaire. Descriptive and inferential statistics were performed to analyse the association between the study variables. RESULTS: Mean values obtained for anxiety in the face of death were 94.58⯱â¯21.66 with a CI of 95%: (91.76-97.39) (range of scale: 28-140 points). A significant association was identified with the professional category variables (physicians, medical residents, nurses, and auxiliary nurses) (p: 0,006), gender (p: 0.001), level of training in emotional self-management (p: 0.03), self-perceived level of mental health (p: 0.07) and perception of lack of support from palliative care/mental health professionals (p: 0.006). This association was not obtained with the variables age (Sig: 0.558), total professional experience (p: 0.762) and in emergencies (p: 0.191). CONCLUSION: The levels of anxiety in the face of death in the emergency hospital services are lower than those presented in other hospital units. Variables such as professional category, degree of training in emotional self-management and self-perceived level of mental health are related to levels of anxiety in the face of death and their study requires further work.
Subject(s)
Anxiety , Emergency Service, Hospital , Humans , Cross-Sectional Studies , FearABSTRACT
Historically, death has been socially accepted, but for the last decades it has been hidden in hospitals, transforming physicians into "death specialists". Thus, medical graduates should feel prepared to assume this responsibility accompanying the patient and their family through the process. With this in consideration, the present work explores students' and graduates' perceptions of preparation to face a patient's death (SPEM) in a Chilean Medical school and identifies SPEM-associated characteristics. An observational study was performed using a digital form sent by email to interns and 2018 and 2019 graduates of the Facultad de Medicina CAS-UDD, in which they were asked about their SPEM and possible SPEM-related variables. The results showed that 63% and 31% of interns and graduates reported feeling inadequately prepared or unprepared to address a patient's death, respectively. During the first two years of their profession, 71% of graduates faced a patient's death. There was a significant correlation between the SPEM and death-facing training. Considering these results and the previous evidence of the positive impact that classes and courses have on SPEM, it is suggested that an obligatory course should be added to improve SPEM in medical students.
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OBJECTIVE: The authors compared rates of in-home, natural death among individuals receiving treatment for mental illnesses with those in the general population. METHODS: Two data sets were used to determine the prevalence of in-home, natural deaths in the general population and among those receiving treatment for mental illnesses in New York State, outside New York City, for the period 2016-2018. RESULTS: Overall, 37% of natural deaths among individuals receiving mental health treatment occurred in the home, compared with 26% in the general population. Earlier death was also apparent; for example, 26.4% of in-home deaths among those receiving mental health treatment were among those ages 45-54 years, compared with 5.5% in the general population. In-home, natural deaths were also higher among non-Hispanic Black and Hispanic subpopulations. CONCLUSIONS: These findings suggest a need for programmatic and policy advances to reduce disparities in general health care for those living with mental illnesses. Additional analyses are warranted.
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Hispanic or Latino , Mental Disorders , Humans , Health Services Accessibility , Healthcare Disparities , Mental Disorders/epidemiology , Mental Disorders/therapy , New York City/epidemiology , Black or African AmericanABSTRACT
INTRODUÇÃO: Ainda hoje, a morte é um tema tabu, fortemente associado ao envelhecimento. Contudo, é preocupante o número de jovens que se envolvem em situações inesperadas, como os acidentes de trânsito e as tentativas de homicídio, levando-os a se depararem com sua finitude. OBJETIVO: compreender e analisar a experiência de jovens sobreviventes de acidentes de trânsito e tentativas de homicídios. MÉTODO: Foram realizadas entrevistas narrativas com oito jovens, com idade entre 19 e 29 anos, que residem no estado de Mato Grosso do Sul e que se sobreviveram a acidentes de trânsito ou tentativas de homicídio. As entrevistas foram orientadas por um roteiro semiestruturado e foram analisadas na perspectiva da Análise de Conteúdo. RESULTADOS: O discurso dos jovens entrevistados aponta para as implicações existenciais das mudanças impostas pelas intercorrências, sobretudo a partir dos impactos que elas causaram, alterando tanto suas rotinas como também a forma como pensavam e viviam. Além disso, essa experiência também trouxe implicações na percepção da imagem corporal, além de mudanças em outros âmbitos da vida dos entrevistados, como o trabalho, os estudos, bem como as relações familiares e de amizade, que também foram afetadas. CONCLUSÃO: Faz-se necessária uma maior compreensão dessas experiências, com o intuito de contribuir com elaboração de estratégias em saúde para ajudar esses jovens a lidarem com as consequências das ocorrências que, muitas vezes, são graves e permanentes.
INTRODUCTION: Even today, death is a taboo topic, strongly associated with aging. However, the number of young people who become involved in unexpected situations, such as traffic accidents and attempted murders, is worrying, leading them to face their finitude. OBJECTIVE: To understand and analyze the experience of young survivors of traffic accidents and attempted homicides. METHOD: Open interviews were carried out with eight young people, aged between 19 and 29 years old, who live in the state of Mato Grosso do Sul and who survived traffic accidents or attempted homicides. The interviews were guided by a semi-structured script and were analyzed from the perspective of Content Analysis. RESULTS: The speech of the young people interviewed points to the existential implications of the changes imposed by the intercurrences, especially from the impacts they caused, changing both their routines and the way they thought and lived. In addition, this experience also had implications for the perception of body image, in addition to changes in other areas of the interviewees' lives, such as work, studies, as well as family and friendship relationships that were also affected. CONCLUSION: A better understanding of these experiences is needed, in order to contribute to the development of health strategies that help these young people to deal with the consequences of events that are often serious and permanent.
INTRODUCCIÓN: Hoy en día, la muerte es un tema tabú, fuertemente asociado al envejecimiento. Sin embargo, es preocupante la cantidad de jóvenes que se ven involucrados en situaciones inesperadas, como accidentes de tránsito e intentos de homicidio, que los llevan a enfrentar su finitud. OBJETIVO: Comprender y analizar la experiencia de jóvenes sobrevivientes de accidentes de tránsito y tentativas de homicidio. MÉTODO: Se realizaron entrevistas abiertas con ocho jóvenes, con edades entre 19 y 29 años, que viven en el estado de Mato Grosso do Sul y que han sobrevivido a accidentes de tráfico o intentos de homicidio. Las entrevistas fueron guiadas por un guión semiestructurado y fueron analizadas desde la perspectiva del Análisis de Contenido. RESULTADOS: El discurso de los jóvenes entrevistados apunta a las implicaciones existenciales de los cambios impuestos por las intercurrencias, especialmente a partir de los impactos que provocaron, modificando tanto sus rutinas como su forma de pensar y vivir. Además, esta experiencia también tuvo implicaciones en la percepción de la imagen corporal, además de cambios en otras áreas de la vida de los entrevistados, como el trabajo, los estudios, así como las relaciones familiares y de amistad que también se vieron afectadas. CONCLUSION: Se necesita una mejor comprensión de estas experiencias, para contribuir al desarrollo de estrategias de salud que ayuden a estos jóvenes a enfrentar las consecuencias de eventos que muchas veces son graves y permanentes.
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Attitude to Death , Accidents, Traffic , AdolescentABSTRACT
OBJECTIVE: To examine the associations between the dimensions of the HexCom care complexity model and the place of death. METHOD: Multicenter longitudinal observational study in patients with advanced illness cared for by home care support teams in Catalonia. Age, gender, type of illness, main caregiver, external support, place of death and the sub-areas of care complexity provided by HexCom were registered. A multivariate Cox regression analysis was performed. RESULTS: Participation of 1527 patients (72% oncology), cared for a median of 35 days. 45% died at home. The probability of dying at home was greater when a greater functional impairment was detected in the initial assessment (hazard ratio [HR]: 7.67; 95% confidence interval [95%CI]: 4.93-11.92), when the patient was male (HR: 1.19; 95%CI: 1.02-1.39), was over 80 years old (HR: 1.41; 95%CI: 1.20-1.66) and when care complexity was detected in relation to being in a situation of last days (HR: 2.24; 95%CI: 1.69-2.97). It was more likely not to die at home in the case of cancer (HR: 0.76; 95%CI: 0.64-0.89), or if poor external support to the family group was detected in the first evaluation (HR: 0.79; 95%CI: 0.67-0.93), or that the patient did not feel at peace with others (HR: 0.56; 95%CI: 0.40-0.79), or lack of agreement on the planning of the place of death (HR: 0.57; 95%CI: 0.48-0.68). CONCLUSIONS: The assessment of the complexity of care through the HexCom-Clin model can help to improve advance planning of decisions by incorporating among its dimensions the feeling of peace with others, the external support to the family nucleus and the degree of agreement on the place of death.
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Home Care Services , Neoplasms , Humans , Male , Aged, 80 and over , Palliative Care , Caregivers , Neoplasms/therapy , ProbabilityABSTRACT
The study aimed to describe views on Voluntary Assisted Dying (VAD), gleaned through qualitative analysis of participant responses to a set activity, run during the 2018 'Dying2Learn' Massive Open Online Course (MOOC). Data from 508 participants, most of whom identified as health professionals, were analysed using thematic content analysis, and themes generated. A large proportion of participants discussed their personal views related to VAD, specifically around choice, control, dignity, palliative care and dying at home, medical intervention, societal factors, the impact on those left behind, laws and regulations, dying 'naturally', advance care directives, and being in pain. In this study, participants had many different views on the act itself, often divisive, but also with common concepts such as respecting the choices and decisions of others.
Subject(s)
Suicide, Assisted , Humans , Attitude to Death , Palliative Care , Advance Directives , Health PersonnelABSTRACT
This study was conducted to examine the effect of attitude to death on self-management in patients with Type 2 Diabetes Mellitus during the COVID-19 pandemic. This study was carried out in a descriptive and correlational type with the participation of n = 103 type 2 diabetes mellitus patients registered in the Internal Medicine Unit at a University Hospital. Personal Information Form, Death Attitude Profile-Revised (DAP-R), Diabetes Self-Management Questionnaire and Fear of COVID-19 Scale were used in data collection. According to the results of the study, it was determined that diabetes patients' fear of COVID-19 increased their fear of death and self-management. Similarly, neuropathy and nephropathy developed in these patients. In addition, it was determined that the diabetic patients who worked 6-7 days a week outside the home had higher levels of fear. It was found that those with high fear were more attentive to social distancing, wearing masks and hand sanitizer use. Staying at home is also not always possible for patients with chronic diseases, and people struggle with COVID-19 by working in crowded workspaces. It is necessary to recognize the struggle of patients with chronic diseases and provide social, economic and psychological support.