ABSTRACT
Migration research poses several unique challenges and opportunities. Conducting ethical global health practice, especially when studying migrant mental health, is of particular concern. This article explores seven challenges and lessons learned in our mixed-methods study conducted to assess the impact of the migration experience on Haitian migrants' mental health in Santiago, Chile. The primary challenges were recruiting in a highly mobile population, building trust and community participation, overcoming language barriers, safety considerations during the Covid-19 pandemic, mitigating potential negative impacts of research on the community, providing psychological support, and finding meaningful ways to benefit the community. We propose moving toward a better and more ethical migrant research practice by ensuring language accessibility, hiring community members for the study team, working with local institutions and nongovernmental organizations, and maintaining sustainable connections.
Subject(s)
Mental Health , Transients and Migrants , Humans , Chile , Haiti , PandemicsABSTRACT
BACKGROUND: There are concerns about the representation of vulnerable and underrepresented racial-ethnic minorities in biomedical and public health research, particularly when the research requires the collection of biospecimens. The current paper reports on the acceptability, feasibility, and ethics of saliva collection in a study examining the relationship between chronic stressors among mostly mixed-status, Latinx families (N = 30) during high immigration enforcement. METHODS: Data for this study included anthropometric measures and salivary biospecimens from each family member (N = 110) and a household survey. Data for this analysis are from ethnographic field notes, which were analyzed using a bricolage of critical ethnography and case study analysis techniques. RESULTS: We discuss the feasibility, aversions, acceptability, and ethical implications of integrating salivary biomarkers with Mexican-origin mixed-status families living in an area with restrictive immigration enforcement policies. We present the recruitment and data collection strategies used by the research team to gain participants' trust, retain families, and maintain confidentiality. CONCLUSION: We recommend that researchers who obtain biospecimens from Latinx, Mexican-origin, and/or immigrant populations answer the participants' questions honestly and without fear that they will not understand the science to obtain voluntary assent and consent. We recommend that researchers be knowledgeable of the sociopolitical context that the Latinx, immigrant, and in particular, mixed-status families inhabit so that they are prepared to provide informational resources. Finally, we think it is imperative that the study team in the field be bilingual, multicultural Latinx persons who identify with the community.
Subject(s)
Emigrants and Immigrants , Emigration and Immigration , Fear , Feasibility Studies , Humans , SalivaABSTRACT
BACKGROUND: Although low levels of physical activity have slightly decreased globally, the need to reverse the physical inactivity remains urgent. One approach has been the installation of outdoor gyms (OGs). METHOD: A natural experiment arose from the installation of OGs in different neighborhoods of the city of Temuco, Chile. Baseline measurements were collected between 2006 and 2017 in a cohort of adults participating in the Prospective Urban & Rural Epidemiology study. Physical activity was assessed with the short version of the International Physical Activity Questionnaire, and time-varying covariates was assessed every 3 years. The multistage hierarchical, nested sampling process and the follow-up assessments led to data correlated at different levels, thus the authors analyzed the data using a logistic multilevel model. RESULT: 2463 urban adults from 16 neighborhoods, with an average age of 51.7 (9.8) years (67% female), were included. Having an adequate number of OGs improved the odds of complying with the World Health Organization's recommendations (adjusted odds ratio = 4.64, 3.95-5.45). In addition, being male (odds ratio = 1.53, 1.32-1.77) and under the age of 60 years (odds ratio = 0.83, 0.71-0.97) were associated with being physically active. CONCLUSION: The presence of more OGs can have a positive impact on physical activity recommendations.
Subject(s)
Exercise , Residence Characteristics , Adult , Chile , Cities , Female , Humans , Male , Middle Aged , Prospective StudiesABSTRACT
Traditional youth baseball academies in the Dominican Republic, along with the potential of a major league baseball contract, are viewed by many parents as the best option to pull a child and family out of poverty. These academies advance the child's athletic abilities yet fail to provide formal education. Unfortunately, 97% of athletes leave the academy without a contract and are left with little education, job skills, or stable job prospects which ultimately returns them to the life of poverty they had hoped to escape through baseball. A faith-based organisation in Santiago, Dominican Republic, offers a high-level baseball academy inclusive of supportive academics. The purpose of this research project was to describe the perspectives of stakeholders involved with the faith-based missional organisation to discern the components and effectiveness of the efforts to support student growth in and beyond athletic abilities. Utilising a community-based research approach with a social determinants of health theoretical framework, researchers held in-country focus group discussions (Spring, 2019) with the organisation's stakeholders (coaches, parents, community leaders, N = 33). Researchers collaboratively coded data, triangulating within and across sources, to identify themes. Qualitative data suggest stakeholders within this organisation perceive the academy as instrumental in keeping kids off the streets, encouraging self-discipline in sports, church and school. The stakeholders perceived the inclusion of academic expectations into the sports academies improved long-term educational and economic success for the athletes. Inclusion of academic requirements within sports academies may improve long-term outcomes of youth in the Dominican Republic.
Subject(s)
Baseball , Education , Social Determinants of Health , Adolescent , Child , Community-Based Participatory Research , Dominican Republic , Faith-Based Organizations , Female , Focus Groups , Humans , Male , Stakeholder ParticipationABSTRACT
Water, sanitation, and hygiene issues present barriers to health in rural Dominican Republic. Limited access to adequate water, sanitation, and hygiene accompanies a prevalence of water, sanitation, and hygiene-related diseases. To address these issues, an education and behavior change program using community health clubs has been adapted for areas at greatest risk of water, sanitation, and hygiene disease transmission. To support this initiative, a protocol was created to evaluate 147 images from a community health clubs toolkit for Dominican agricultural communities, or bateyes, to determine image comprehension and cultural appropriateness, as well as the demographic variables associated with visual literacy. A total of 112 interviews were completed across seven bateyes located near the city of La Romana; 60 images were determined to require additional adaptation. Further analyses demonstrated that age and education were significantly associated with greater visual literacy. These results reinforce that educational visual aids require testing for cultural appropriateness and that future work should be conducted to investigate factors that contribute to visual literacy.
Subject(s)
Sanitation , Water , Curriculum , Dominican Republic , Humans , Hygiene , Water SupplyABSTRACT
Childhood obesity is a global public health concern in developed and developing countries. Approximately 3 in 10 Panamanian children suffer from obesity, and overweight/obesity is responsible for the highest number of premature or avoidable deaths in this country. A formative community assessment and exploration of the built food environment was conducted. Analysis suggests that almost one-third of the children measured were overweight or obese, and the availability of foods recommended for optimal health is limited in this community. Actionable recommendations for intervention and future collaboration were provided, and stakeholders from all groups will continue to explore opportunities.
Subject(s)
Pediatric Obesity/epidemiology , Body Mass Index , Child , Child, Preschool , Diet , Female , Humans , Male , Panama/epidemiologyABSTRACT
Background: In 2011, the Colombian government started a nationwide program, Hábitos y Estilos de Vida Saludable (HEVS; Healthy Life Habits), providing free, community-based physical activity classes for individuals across Colombia. This study describes the HEVS program, participant characteristics, and changes in anthropomorphic and health measures following the program. Methods: In this observational study, demographic information, current health status, lifestyle habits, and anthropomorphic measures were collected from adult HEVS participants at baseline and after program completion 11 months later. Changes in anthropomorphic and health measurements after the HEVS program were compared in the same participants using a paired t test and McNemar test, respectively. Results: A total of 56,472 adult participants (86.5% female) enrolled in the HEVS program. The greatest proportion of participants was between the ages of 18 and 34 years. Prior to participating in HEVS, mean body mass index and waist circumference were 26.3 kg/m2 and 85.7 cm, respectively. Postprogram data from 17,145 individuals showed statistically significant decreases in body mass index, waist circumference, and the proportion of patients with self-reported hypertension. Conclusions: The HEVS program successfully engaged a large number of Colombians in physical activity and resulted in significant improvements in their health, demonstrating the effectiveness of a government-supported, community-based physical activity program.
Subject(s)
Exercise/physiology , Health Promotion/methods , Health Status , Adolescent , Adult , Body Mass Index , Colombia , Female , Humans , Life Style , Male , Middle Aged , Self Report , Waist Circumference/physiology , Young AdultABSTRACT
Background: Socioeconomic characteristics of locations where physical activity equipment is installed may affect the activity level of users. The purpose of this study was to verify patterns of use and physical activity levels in fitness zones installed in low- and high-income neighborhoods in the city of Curitiba, Brazil. Methods: Over 1200 observations were conducted in 20 fitness zones in the city of Curitiba, Brazil. Data were collected during the months of November and December 2012, in 4 periods of the day (8 AM, 11 AM, 2 PM, and 5 PM), on 2 weekdays and 2 weekend days. Results: A total of 2232 people were observed in the fitness zones. Age group, level of physical activity in the area, use of fitness zones during weekend days, and occupation of spaces were significantly associated with neighborhood income. Moreover, users of fitness zones located in high-income neighborhoods showed higher odds ratio (OR = 1.74; 95% confidence interval, 1.46-2.07) of moderate to vigorous physical activity than light or sedentary activities, regardless of gender or day of the week. Conclusions: The sole presence of equipment does not seem to favor the use of fitness zones in low-income neighborhoods. Future studies should investigate intrinsic factors for the use of fitness zones for physical activity.
Subject(s)
Exercise/physiology , Parks, Recreational/statistics & numerical data , Poverty/statistics & numerical data , Socioeconomic Factors , Adult , Brazil , Female , Humans , Income/statistics & numerical data , Male , Middle Aged , Residence Characteristics/statistics & numerical dataABSTRACT
This study aimed to evaluate the effectiveness of the VAMOS strategy (Health-Improving Active Life) in improving physical activity (PA), dietary habits, and anthropometric variables of primary health care (PHC) users in Brazil. A randomized controlled community trial was conducted at two units of the Health Academy Program (HAP; a service provided by PHC), which were randomly assigned either to control group (CG) or intervention group (IG). Participants in both groups (CG = 156 and IG = 135) took part in physical activity classes provided by HAP facilities with those in IG also participating in the VAMOS strategy for 12 weeks. This strategy is based on social cognitive theory. The main behavioral constructs addressed were self-efficacy, goal setting, self-monitoring, identification of social support and barriers, and solutions for the identified barriers. Physical activity was measured with accelerometers, and nutritional status was assessed using dietary habits questionnaires and anthropometric measurements. Intention-to-treat analysis revealed that participants in IG increased the daily time of moderate-vigorous PA and the frequency of raw vegetable intake, while the intake of ultra-processed foods was reduced. Weight loss among participants who were classified as overweight/obese at baseline was observed in the intervention group compared to control. These results suggest that the VAMOS strategy was effective in increasing PA, healthy dietary habits, and decreasing weight among PHC users. Therefore, VAMOS could be used as a strategy to strengthen individuals' autonomy regarding healthy choices and improve their overall health.
Subject(s)
Diet, Healthy , Exercise , Health Promotion/methods , Primary Health Care , Accelerometry , Aged , Anthropometry , Brazil , Community-Based Participatory Research , Female , Goals , Humans , Intention to Treat Analysis , Male , Middle Aged , Program Evaluation , Self Efficacy , Social Support , Weight LossABSTRACT
There has been considerable progress in the reduction of diarrheal disease among children under five through health and nutrition interventions. However, diarrheal disease is still the second leading cause of child death worldwide. There is growing recognition that comprehensive hygiene behavior improvements should be integral to prevention efforts, but the effectiveness of different approaches for hygiene promotion is still being established. Hygiene risk practices vary across settings, suggesting that prevention strategies should be adapted to local contexts using community-based approaches. We planned, implemented, and evaluated a hygiene promotion intervention using the hygiene cluster framework. The two-year, multi-level intervention was implemented by local health promoters who were involved in identifying and addressing disease transmission risks at the household, school, and community levels. The intervention was evaluated using a quasi-experimental pretest-posttest design with repeated follow-up assessments to determine changes in hygiene knowledge and behavior. A household survey instrument was administered at three time points in the intervention ( n = 480) and comparison ( n = 271) communities to assess two hygiene knowledge and eleven hygiene behavior outcome variables. We used one-way analysis of variance with post hoc analysis using Tukey's HSD for multiple comparisons to examine change and differences over time. We also fit a linear regression model to identify statistically significant differences. Study results demonstrated improvements in the areas of: knowledge of disease transmission and key times for handwashing, water container hygiene, sanitation practices, personal hygiene and food hygiene. The hygiene cluster framework is useful for hygiene promotion intervention planning and evaluation, and we recommended continued testing of this framework across contexts. We also recommend local community participatory approaches, as well as in-depth formative behavioral assessments by hygiene cluster that also consider environmental barriers to behavior change.
Subject(s)
Health Promotion/methods , Hygiene/education , Sanitation/methods , Adolescent , Child , Child, Preschool , Community-Based Participatory Research , El Salvador , Female , Health Behavior , Health Knowledge, Attitudes, Practice , Humans , Infant , Infant, Newborn , Male , Program Evaluation , Research Design , Rural Population , Surveys and QuestionnairesABSTRACT
OBJECTIVE: The objective of this study is to conduct a systematic review of the literature of how portable electronic technologies with offline functionality are perceived and used to provide health education in resource-limited settings. METHODS: Three reviewers evaluated articles and performed a bibliography search to identify studies describing health education delivered by portable electronic device with offline functionality in low- or middle-income countries. Data extracted included: study population; study design and type of analysis; type of technology used; method of use; setting of technology use; impact on caregivers, patients, or overall health outcomes; and reported limitations. RESULTS: Searches yielded 5514 unique titles. Out of 75 critically reviewed full-text articles, 10 met inclusion criteria. Study locations included Botswana, Peru, Kenya, Thailand, Nigeria, India, Ghana, and Tanzania. Topics addressed included: development of healthcare worker training modules, clinical decision support tools, patient education tools, perceptions and usability of portable electronic technology, and comparisons of technologies and/or mobile applications. Studies primarily looked at the assessment of developed educational modules on trainee health knowledge, perceptions and usability of technology, and comparisons of technologies. Overall, studies reported positive results for portable electronic device-based health education, frequently reporting increased provider/patient knowledge, improved patient outcomes in both quality of care and management, increased provider comfort level with technology, and an environment characterized by increased levels of technology-based, informal learning situations. Negative assessments included high investment costs, lack of technical support, and fear of device theft. CONCLUSIONS: While the research is limited, portable electronic educational resources present promising avenues to increase access to effective health education in resource-limited settings, contingent on the development of culturally adapted and functional materials to be used on such devices.
Subject(s)
Health Education/methods , Health Personnel/education , Health Resources , Mobile Applications , Botswana/epidemiology , Clinical Competence/statistics & numerical data , Ghana/epidemiology , Health Education/economics , Health Education/organization & administration , Health Personnel/standards , Health Personnel/statistics & numerical data , Health Resources/economics , Health Resources/supply & distribution , Humans , India/epidemiology , Kenya/epidemiology , Mobile Applications/economics , Mobile Applications/statistics & numerical data , Nigeria/epidemiology , Peru/epidemiology , Poverty Areas , Tanzania/epidemiology , Thailand/epidemiologyABSTRACT
BACKGROUND: The association between acculturation and physical activity (PA) among Mexican American (MA) adults is not understood. This study assessed potential mediating factors that may explain these associations among 75 healthy MA adults [age: 37.5 (9.3) y; 65.3% female]. METHODS: Secondary data analysis using hierarchical logistic regression examined whether perceived environmental barriers, social support, and intention to exercise potentially mediated relationships between acculturation level, and total and leisure-time moderate to vigorous PA (MVPA). Data were collected via questionnaire. RESULTS: Most participants (67%) reported lower average household monthly incomes ($0-$3000), completed some college or obtained a college degree (64.4%), and were first generation immigrants (59%). Acculturation was associated with greater odds of engaging in total MVPA [odds ratio (OR) = 1.7; 95% confidence interval (CI), 1.2-2.4] and leisure-time MVPA (OR = 1.6; 95% CI, 1.1-1.2). Perceived environmental barriers were associated with greater odds of engaging in both total and leisure-time MVPA (OR = 4.3; 95% CI, 2.1-5.8 and OR = 5.5; 95% CI, 2.0-7.0, respectively), and social support was associated with greater odds for total MVPA (OR = 3.7; 95% CI, 1.1-6.4). CONCLUSIONS: Results provide preliminary evidence for mediating factors that may explain the relationship between acculturation level and PA among MA adults. Contradicting prior evidence, results suggest that PA engagement, despite perceived environmental barriers, is possible among MA adults having stronger social support.
Subject(s)
Acculturation , Exercise/psychology , Leisure Activities/psychology , Mexican Americans/statistics & numerical data , Social Support , Adult , Community-Based Participatory Research , Female , Humans , Logistic Models , Male , Odds Ratio , Perception , Surveys and Questionnaires , Young AdultABSTRACT
Indigenous populations around the world experience a disproportionate burden in terms of oral diseases and conditions. These inequalities are likely due to a complex web of social determinants that includes poverty, historical consequences of colonialism, social exclusion, government policies of assimilation, cultural annihilation, and racism in all its forms (societal, institutional). Despite documented oral health disparities, prevention interventions have been scarce in Indigenous communities. This review describes oral health interventions and their outcomes conducted for Indigenous populations of the United States, Canada, Brazil, Australia, and New Zealand. The review includes research published since 2006 that are available in English in electronic databases, including MEDLINE. A total of 13 studies were included from the United States, Canada, Brazil, and Australia. The studies reviewed provide a wide range of initiatives, including interventions for prevention and treatment of dental disease, as well as interventions that improve oral health knowledge, behaviors, and other psychosocial factors. Overall, 6 studies resulted in improved oral health in the study participants, including improvements in periodontal health, caries reduction, and oral health literacy. Preferred intervention methodologies included community-based research approaches, culturally tailored strategies, and use of community workers to deliver the initiative. Although these studies were conducted with discrete Indigenous populations, investigators reported similar challenges in research implementation. Recommendations for future work in reducing oral health disparities include addressing social determinants of health in various Indigenous populations, training future generations of dental providers in cultural competency, and making Indigenous communities true partners in research.
Subject(s)
Dental Care/organization & administration , Health Services, Indigenous/organization & administration , Health Status Disparities , Mouth Diseases/ethnology , Mouth Diseases/prevention & control , Oral Health/ethnology , Australia , Brazil , Canada , Health Services Accessibility , Humans , Indians, North American , Indians, South American , Native Hawaiian or Other Pacific Islander , New Zealand , United StatesABSTRACT
This research examined rural and urban women's experiences of gender-based violence in Chimaltenango, Guatemala. Photovoice methodology was used to describe and analyze local realities and vulnerabilities, and ethnographic techniques added cultural and contextual factors. While the initial focus was on intimate partner violence, results showed that violence for women exists from childhood to senior years. Participants noted gaps in services and participated in a public strategy workshop to address these. Challenges and opportunities are presented around the enduring and complex global crisis of gendered violence. Photovoice is a powerful method for organizations to better understand and respond to local issues.
Subject(s)
Photography/standards , Sex Offenses/psychology , Adult , Community-Based Participatory Research , Female , Guatemala , Humans , Photography/methods , Qualitative Research , Research Design/trendsABSTRACT
BACKGROUND: Despite evidence for the use of community-wide campaigns to promote physical activity, few evaluations of community-wide campaigns in Hispanic communities exist. This study assessed the associations of exposure to a community-wide campaign with physical activity and sedentary behavior among Hispanic adults living on the Texas-Mexico border. METHODS: The intervention, Tu Salud ¡Si Cuenta! (Your Health Matters!; TSSC), included a newsletter, community health worker discussion, TV and radio segments, which were conducted from 2005 to 2010. We matched an intervention (N = 399) and a control community (N = 400) on demographics and used a cross-sectional assessment in 2010 with randomly sampled adults from both communities. We collected exposure to the campaign, as well as physical activity and sedentary behavior with the International Physical Activity Questionnaire. We conducted bivariate analyses and multivariable logistic regression models to assess the association of TSSC exposure and its components with meeting moderate-to-vigorous intensity physical activity (MVPA) guidelines and exhibiting excessive sedentary behavior, controlling for covariates. RESULTS: As compared to the control community, the intervention community has 3 times the odds of meeting MVPA guidelines (Adjusted OR [AOR] = 3.01, 95% CI = 1.85-4.88, p < .05) and 2 times lower odds of excessive sedentary behavior ((AOR = 0.46, 95% CI = 0.30-0.70, p < .05). Exposure in the intervention group to any component was associated with five times the odds of meeting MVPA guidelines (AOR = 5.10, 95% CI 2.88-9.03, p < .001) and 3 times lower odds of excessive sedentary behavior (AOR = 0.32, 95% CI 0.17-0.60, p < .001), compared with those unexposed in the control community. Exposure to newsletters, CHW discussions and TV segments were associated with significantly lower odds of excessive sedentary behavior and higher odds of meeting MVPA guidelines. Exposure to radio segments was only associated with a significantly higher odds of meeting MVPA guidelines (AOR = 4.21, 95% CI = 1.17-15.09). CONCLUSIONS: This study provides some evidence of the association of community-wide campaigns and its components in Hispanic communities with higher levels of MVPA and lower levels of excessive sedentary behavior. TRIAL REGISTRATION NUMBER: NCT00788879 Date: November 11, 2008.
Subject(s)
Exercise , Health Promotion/statistics & numerical data , Hispanic or Latino/psychology , Sedentary Behavior/ethnology , Adult , Cross-Sectional Studies , Female , Hispanic or Latino/statistics & numerical data , Humans , Logistic Models , Male , Mexico , Middle Aged , Program Evaluation , TexasABSTRACT
Using a mixed-method analysis, we propose and test a framework for predicting the international development of community psychology (CP) and community development (CD) as two examples of applied community-based research (CBR) disciplines aiming to link local knowledge generation with social change. Multiple regressions on an international sample of 91 countries were used to determine the relative influences of preexisting grassroots activism, population size, social and economic development, and civil liberties on estimates of the current strength of CP and CD based on Internet search and review of training courses and programs, published articles and journals, and professional organizations and conferences in these countries. Our results provide support for the proposed model and suggest that grassroots activism positively accounts for the development of CP and CD, above and beyond the influences of the other predictors. Brief qualitative case-study analyses of Chile (high CP, low CD) and Ghana (high CD, low CP) explore the limitations of our quantitative model and the importance of considering other historical, sociopolitical, cultural, and geographic factors for explaining the development of CP, CD, and other applied community studies.
Subject(s)
Developing Countries , Psychology, Social , Social Planning , Chile , Ghana , Humans , Qualitative Research , Regression AnalysisABSTRACT
Understanding social conditions prior to intervention design can enhance tobacco control interventions. This paper describes formative research conducted in 2010 about tobacco use in eight economically disadvantaged Dominican Republic communities, four of which participated in a previous intervention study (2003-2008). A combined US-Dominican team used a rapid assessment process to collect qualitative social and cultural data on tobacco use, knowledge and attitudes; plus observations about social and policy factors, such as exposure to secondhand smoke (SHS), tobacco regulations, pregnancy, health care provider (HCP) practices and sustainability of the 2003-2008 intervention. This assessment found that tobacco use varied by age. While all ages typically used cigarettes, older adults used relatively more unprocessed tobacco, which is seen as less harmful and less addictive. Middle-aged smokers typically used commercial cigarettes, which are viewed as dangerous, addictive, expensive and offensive. Young adults reported avoiding smoking, but using relatively more smokeless tobacco. Smoking during pregnancy has reportedly decreased. SHS was viewed as harmful, although smoke-free homes were uncommon. HCPs discussed tobacco issues mostly for patients with tobacco-related conditions. Sustainability of the 2003-2008 intervention appeared to be linked to active Community Technology Centers with strong leadership, and community social capital. This information could be used to design better targeted interventions in these communities.
Subject(s)
Tobacco Use/epidemiology , Vulnerable Populations , Adult , Age Distribution , Aged , Aged, 80 and over , Dominican Republic/epidemiology , Female , Health Knowledge, Attitudes, Practice , Humans , Male , Middle Aged , Pregnancy , Qualitative Research , Socioeconomic Factors , Tobacco Smoke Pollution , Tobacco, Smokeless/statistics & numerical data , Young AdultABSTRACT
The sexuality of people living with HIV (PLHIV) is a key issue in the fight against HIV, as it influences both the dynamic of the epidemic and the quality of life of PLHIV. The present study examined the factors associated with cessation of sexual relations after HIV diagnosis among men and women in five countries: Mali, Morocco, Democratic Republic of the Congo, Romania and Ecuador. A community-based cross-sectional study was implemented by a mixed consortium [researchers/community-based organizations (CBO)]. Trained CBO members interviewed 1500 PLHIV in contact with CBOs using a 125-item questionnaire. A weighted multivariate logistic regression and a separate gender analysis were performed. Among the 1413 participants, 471 (33%) declared that they stopped having sexual relations after their HIV diagnosis, including 318 women (42%) and 153 men (23%) (p < .001). Concerning women, variables associated with the cessation of sexual relations in the final multivariate model were mainly related with relational factors and the possibility of getting social support (e.g., needing help to disclose HIV serostatus, feeling lonely every day, not finding support in CBOs, not being in a couple). Men's sexual activity was more associated with their representations and their perception of the infection (e.g., thinking they will have their HIV infection for the rest of their life, perceiving the HIV infection as a mystery, perceiving the infection as serious). Furthermore, the following variables were associated with both men and women sexual behaviours: being older, having suffered from serious social consequences after serostatus disclosure and not being able to regularly discuss about HIV with their steady partner. Results suggested clear differences between men and women regarding cessation of sexual relations and highlighted the importance of implementing gender-based tailored interventions that promote safe and satisfying sexuality, as it is known to have a positive impact on the overall well-being of PLHIV.
Subject(s)
HIV Seropositivity/psychology , Quality of Life/psychology , Sexual Behavior/statistics & numerical data , Sexuality , Social Support , Adult , Aged , Community-Based Participatory Research , Cross-Sectional Studies , Democratic Republic of the Congo , Ecuador , Emotions , Female , Humans , Logistic Models , Male , Mali , Morocco , Multivariate Analysis , Romania , Sex Factors , Sexual Behavior/psychology , Sexual Partners , Surveys and QuestionnairesABSTRACT
RATIONALE: HIV serostatus disclosure is a complex challenge for persons living with HIV (PLHIV). Despite its beneficial effects, it can also lead to stigmatization and rejection. The current lack of multi-dimensional measurement tools impede an in-depth understanding of the dynamic of disclosure. OBJECTIVE: To develop and validate complex measures of serostatus disclosure. METHODS: This international community based research study was performed by joint research teams (researchers/community based organizations (CBO)) in five countries (Democratic Republic of the Congo, Ecuador, Mali, Morocco and Romania). A convenience sample of 1500 people living with HIV (PLHIV) in contact with local CBO were recruited in 2011 (300 in each country). Face-to-face interviews were performed using a 125-item questionnaire covering HIV status disclosure to 23 potential disclosure targets and related issues (including personal history with HIV, people's reaction to disclosure, sexuality). A principal component analysis and a hierarchical cluster analysis were performed, in order to identify the main components of HIV disclosure, create measures and classify participants into profiles. RESULTS: Patterns of disclosure were summarized using two main measures: direct and indirect disclosure. Disclosure to sexual partners, whether steady or not, was different from patterns of disclosure to other targets. Among the participants, three profiles emerged - labelled Restricted disclosure, Mainly indirect disclosure and Mainly direct disclosure, respectively representing 61%, 13% and 26% of the total sample. The profiles were associated with different aspects of PLHIV's lives, including self-efficacy, functional limitations and social exclusion. Patterns varied across the five studied countries. CONCLUSION: Results suggest that multi-dimensional constructs should be used to measure disclosure in order to improve understanding of the disclosure process.
Subject(s)
HIV Seropositivity , Self Disclosure , Sexual Partners , Adult , Africa , Community-Based Participatory Research , Cross-Cultural Comparison , Cross-Sectional Studies , Ecuador , Female , HIV Seropositivity/ethnology , HIV Seropositivity/psychology , Humans , Interpersonal Relations , Male , Middle Aged , Romania , Self Efficacy , Sexual Partners/psychology , Social Isolation , Surveys and QuestionnairesABSTRACT
PURPOSE: The community of El Codito, located in the mountainside on the perimeter of Bogota, Colombia, is considered one of the most vulnerable and resource-limited communities in the region. This community-based research (CBR) project used short message service (SMS) messaging as a tool for information access and social interaction with caregivers of people with disabilities (PWD). METHOD: Using a focused ethnographic method, this research evaluated the experience of caregivers participating in the project. In addition to primarily qualitative methods, supplementary quantitative message data was also collected. This project utilized free and open source software for SMS message distribution. RESULTS: Caregivers experienced the project as a window to possibility; the possibility of a social support network, the possibility of community participation and the possibility of change. During the three-month implementation, a total of 56 information messages were sent to caregivers, 20 question messages were received from caregivers and 30 social interaction messages were sent by caregivers to the group. CONCLUSIONS: The proliferation of mobile phones in this resource-limited setting provided a feasible method for reducing the exclusion of PWD and caregivers. SMS was a useful tool for sharing information and reducing the isolation experienced by this socially excluded population. Implications for Rehabilitation Mobile phones are a prevalent technology in many resource-limited settings; short message service (SMS) is a feasible tool for sharing information and reducing isolation experienced by people with disabilities (PWD) and their families. When developing technology-based projects in resource-limited settings, the field of rehabilitation could apply principles from the field of Information and Communication Technology for Development (ICT4D). Projects in resource-limited settings could consider using a community-based research (CBR) approach. This collaborative approach can enhance the contextual relevance of the project. Caregivers of PWD found the project to be both useful and meaningful, and as a result of the project became more involved in their community.