ABSTRACT
PURPOSE: To explore parent experiences with participation in splinting programs for their child with a congenital limb anomaly in the child's first year of life. While parent participation is recognized as integral to successful outcomes of splinting programs for these children, little is known about factors influencing their participation. METHODS: Through purposive sampling, 10 families recruited from outpatient clinics at a pediatric tertiary care facility participated in semi-structured interviews in this qualitative study utilizing interpretive description methodology. Constant comparative and concurrent data collection and analysis were employed. RESULTS: Themes identified: (1) An experience of adjustment; (2) The value of timely and comprehensive information; (3) Appreciation of support networks; and (4) Characteristics unique to splinting programs. Practical suggestions for program enhancements are outlined. CONCLUSIONS: Addressing parents' information, support, and individual needs are keys to promoting active parent participation in their child's splinting program, contributing to positive outcomes for their child.
Subject(s)
Limb Deformities, Congenital/rehabilitation , Parents/psychology , Patient Satisfaction , Splints , Adult , Female , Humans , Infant , Male , Pediatrics/methods , Qualitative ResearchABSTRACT
Impairments in active and passive range of upper extremity supination and shoulder external rotation are common sequelae for children with delayed recovery from birth related brachial plexus injury. Orthotic intervention may complement traditional treatment strategies commonly employed in the newborn period. These authors describe their custom fabricated orthosis designed to balance shoulder growth and muscular function, and improve prognosis of long term functional outcomes for children with birth related brachial plexus injury. - Victoria Priganc, PhD, OTR, CHT, CLT, Practice Forum Editor.