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1.
J Autism Dev Disord ; 2024 Jun 01.
Article En | MEDLINE | ID: mdl-38822899

Autistic students are educated in Australia across a variety of contexts and almost all educators use individualized goal-setting as a way of ensuring appropriate accommodations and curriculum modifications. Educators experience similar challenges when developing individualized goals for students, including lack of a standardized process for goal setting, inconsistent support networks, and challenges with data-driven goal-setting. The purpose of our research was to adapt and trial the Collaborative Model for Competence and Success (COMPASS), a research-based intervention aimed at improving the individualized goal-setting process for autistic students. Our primary hypothesis was that autistic students who participate in COMPASS would demonstrate more growth on their individualized outcomes relative to autistic students who receive services as usual (SAU). To answer our primary research question, we applied a single-blind cluster randomized trial. Participants were randomized into one of two groups: (a) a COMPASS intervention group and (b) a SAU group. Results indicate that students whose teachers received the intervention made more progress on their final individualized goals than those who received SAU, replicating previous findings regarding COMPASS in the US. Also, the adaptation of COMPASS for an Australian context showed high rates of satisfaction and fidelity. The success of this intervention in improving the progress that students make on their individualized goals demonstrates the benefits of a standardized intervention that supports teachers and families in this critical practice.

2.
Autism ; 28(6): 1419-1430, 2024 Jun.
Article En | MEDLINE | ID: mdl-38383994

LAY ABSTRACT: Autistic people often struggle to find the right support for their mental health. We wanted to change that by trying a new approach to help autistic adults with their emotions and well-being. We focused on something called "self-compassion," which is a way of being kind and understanding toward ourselves. This approach has worked well for many people, but we didn't know if it would work for autistic individuals. We invited 39 autistic adults to join an online program that taught them about self-compassion. The program lasted 5 weeks and included educational materials, meditation exercises, and self-reflection activities. We asked the participants for feedback each week and at the end of the program. From their responses, we discovered four important things. First, self-compassion had a big positive impact on the well-being of autistic adults. Second, they faced some challenges during the program. Third, they saw self-compassion as a journey that takes time and practice. Finally, they described how they valued changes to help autistic people engage with the program. Our findings show that self-compassion can really help autistic adults. We learned about the benefits they experienced and the difficulties they faced. Most importantly, we found that personalized support is crucial for autistic individuals. By creating programs that consider their specific needs, we can improve their mental health and make their lives better.


Autistic Disorder , Empathy , Self Concept , Humans , Male , Female , Adult , Autistic Disorder/psychology , Middle Aged , Young Adult , Qualitative Research , Meditation/psychology
3.
J Autism Dev Disord ; 54(4): 1425-1437, 2024 Apr.
Article En | MEDLINE | ID: mdl-36637593

Autistic people's perceptions of their interactions with criminal justice professionals are predominantly negative; however, little is known about the state of interactions on a global scale. To further understanding, a comprehensive stakeholder questionnaire was created. Aspects of reliability and validity including evidence for test content and internal structure were gathered using expert reviews, cognitive interviewing, pilot data collection, and a larger data collection effort (N = 1618). Data was gathered from the autism community through perspectives of parents/caregivers as well as from self-reported autistic adults. Criminal justice professionals included law enforcement officers, corrections professionals, probation and parole officers, forensic psychologists and legal professionals. The scale development process was detailed in order to sufficiently document the initial psychometric evidence and share the steps taken to gain diverse stakeholder input. This study is a critical first step in generating further information to facilitate policy and program development with wide applicability.


Autism Spectrum Disorder , Autistic Disorder , Adult , Humans , Criminal Law , Reproducibility of Results , Autism Spectrum Disorder/psychology , Surveys and Questionnaires , Police/psychology
4.
Autism Adulthood ; 5(4): 450-456, 2023 Dec 01.
Article En | MEDLINE | ID: mdl-38116054

Background: A strong autistic identity can help to support mental well-being, reduce anxiety and depression, increase self-esteem, and strengthen a shared community for autistic people. Autistic people are regularly faced with a decision to disclose their autistic identity to others and report a range of experiences after disclosure. The purpose of this brief report was to examine the association between identity and disclosure decisions in a sample of autistic adults to gather preliminary evidence justifying future research. Specifically, we were interested in learning more about how autistic identity is associated with one's approach to disclosure, while also exploring associations with other identities such as ethnic, gender, sexual, and religious identity. Methods: Participants (N = 111) completed an online questionnaire about their intersecting identities and their approach to disclosure. The research team that conducted this study was composed of both autistic and nonautistic researchers. Results: Results demonstrated that participants who felt their autistic identity and sexual identity were highly important also reported frequent disclosure of being autistic. Religious, gender, and ethnic identity were not associated with one's disclosure decisions or their disclosure outcomes. Conclusion: Overall, the results of this study emphasize the link between autistic and sexual identities and autism disclosure, but more research in this space is needed to better support the wider autism community.


Why is this an important issue?: Autistic identity is when a person feels a connection to others who are autistic, or to the larger autistic community. Disclosure, or sharing being autistic, is a complex decision that can have a significant impact on an autistic person's life. Both disclosure and autistic identity can be linked to the quality of life for many autistic adults. What was the purpose of this study?: We wanted to know whether autistic identity and disclosure were connected. We wondered whether people who felt a stronger sense of autistic identity would be more likely to share that they were autistic with other people. We also studied other identities such as religious identity, sexual identity, and gender identity­to see whether they were also connected to a person's autism disclosure decisions. What did the researchers do?: We used an online survey to ask 111 autistic adults about their identity and their autism disclosure decisions. The research team that conducted this study included both autistic and nonautistic researchers. What were the results of the study?: Autistic participants in our study who felt their autistic identity and sexual identity were highly important also told us they disclosed their autistic identity often to others in their life. Other identities, such as religious identity and ethnic identity, did not seem to relate to a person's autism disclosure in our study. What do these findings add to what was already known?: This research is the start of what we know about the connection between the identities of an autistic person and their disclosure decisions. Preliminary research like this study helps to show a reason for more research on this topic to increase knowledge and acceptance. What are potential weaknesses in the study?: This study does not cover the experiences of all autistic people, only those who could use technology to complete an online survey. Also, the design of the study only allows us to conclude that disclosure and identity are related, but we cannot yet say whether one influences the other. How will these findings help autistic adults now or in the future?: This research can help to justify additional investigations into this topic and demonstrate the importance of listening to autistic voices to understand their experiences with disclosure and how they may be influenced by their identities. For practitioners such as educators or therapists who work with autistic adults, this research can lead to knowledge that supports mental well-being.

5.
Autism Adulthood ; 5(4): 389-400, 2023 Dec 01.
Article En | MEDLINE | ID: mdl-38116059

Background: Despite a recent surge in literature contributing to our understanding of autistic individuals' disclosure experiences, the findings remain mixed. Research based on autistic people's perspective often indicates negative outcomes, while research that focuses on nonautistic perspectives is more positive. In addition, no disclosure study has used ecologically valid research methods, which help to reduce the risk of memory biases and are more representative of real-world experiences. The aim of this research was to capture outcomes from real-world disclosure opportunities as reported by a diverse range of autistic adults. Methods: Thirty-six autistic adults reported their disclosure opportunities through experience sampling methodology (58% female, 28% male, and 14% nonbinary), multiple times per day or week for 2 months. Importantly, we embedded coproduction from conception to dissemination, ensuring that the outputs are relevant and beneficial for the autistic community. Results: In total, participants recorded 231 disclosure opportunities (M = 6.42, SD = 4.83). Two-thirds of opportunities (n = 153) were categorized as disclosure, where the participants decided to share they were autistic, and 33.8% (n = 78) were labeled nondisclosure, where the participants decided not to share that they were autistic. Qualitative thematic analysis of open responses resulted in five themes that illustrated the thought processes during disclosure opportunities, the reactions of others, and reflections following disclosure for autistic adults in our study. Conclusion: These findings show that disclosure decisions and outcomes are complex and are influenced by both internal and external factors. Both support for autistic adults navigating this process and knowledge for nonautistic individuals on the experiences of their autistic friends, family, and community members will help to alleviate negative experiences and improve the mental well-being of autistic adults who face these decisions daily.


Why is this an important issue?: Disclosure is choosing to tell someone that you are autistic. Nondisclosure is choosing not to tell someone you are autistic. This can be difficult for many people and can have a significant impact on their life. What was the purpose of this study?: We wanted to explore disclosure opportunities for autistic people. We wanted to know what these experiences looked like over 2 months and on a daily basis. What did the researchers do?: The research team asked autistic adults to complete a survey through a smartphone application every time they considered sharing that they were autistic over 2 months. The questions asked participants about their thoughts, feelings, and behaviors right after the experience. What were the results of the study?: Our participants shared 231 disclosure opportunities with us over 2 months. Some people shared no experiences, while others shared up to 19 experiences. On average, people shared six experiences. People told us how these opportunities went, and we found five common threads ("themes") across their experiences. First, when deciding whether to disclose or not, autistic people considered how safe they felt in their environment and with the people around them. Autistic people often thought about what they were hoping to gain by disclosing, and if there was nothing to gain, they decided against it. We learned that disclosure takes a lot of energy. We also learned that other people responded to disclosure in positive, neutral, and negative ways across all contexts. Finally, we found that our participants tried to learn from their experiences before the next time they thought about disclosure. What do these findings add to what was already known?: Our findings were similar to previous research that explored how complex autistic disclosure is. However, by gathering information in real time (instead of relying on recall), we learned that a decision to disclose is not only weighing up personal advantages and disadvantages, but also takes into consideration how safe the person feels in a particular environment and how much energy they feel they have at the time. We also learned that sometimes people do not disclose because they are worried about how someone might respond, but other times they simply feel there is no benefit to disclosure. What are the potential weaknesses in the study?: We understand that the experiences of our participants may not apply to all autistic people. Also, because participants had to use a computer or smartphone to be in the study, the findings may be different for individuals who were not able to participate. How will these findings help autistic adults now or in the future?: The findings help us to listen to autistic voices and learn about their experiences. We have used the results to make resource guides. This includes a guide for autistic people (including an easy English version) and a guide for nonautistic people. These resource guides can be found within the Supplementary Data, on our research website, or by getting in touch with the authorship team.Link to "a guide for autistic people" https://www.autismspectrum.org.au/uploads/documents/Research/Disclosure-opportunities-resource-guide-for-Autistic-people-Easy-English.pdf Link to "easy English version" https://www.autismspectrum.org.au/uploads/documents/Research/Disclosure-opportunities-resource-guide-for-Autistic-people_2022-12-12-005526_vgvt.pdf Link to "non-autistic people" https://www.autismspectrum.org.au/Supporting-Autistic-people-who-may-want-to-disclose.

6.
Autism ; : 13623613231192133, 2023 Aug 22.
Article En | MEDLINE | ID: mdl-37606257

LAY ABSTRACT: Autism disclosure - that is sharing their autism diagnosis or identity with a person or people - is a difficult decision for many autistic people. While telling people they are autistic can be positive and helpful, it can also create a lot of problems. What we have learnt is that disclosure is really complicated. Rather than asking research participants questions about what might happen, we looked at what people were saying on public social media posts (Reddit and Twitter) about what did happen. We used three years of posts that were related to autism disclosure from a wide range of adults (autistic and non-autistic). Four main ideas were created from our data, with the key finding being that society does not understand autism. This lack of understanding creates problems for autistic people in work, dating, healthcare and mental health. The remaining ideas were that autistic people should have privacy and be treated with respect, that autistic representation can help society and that non-autistic people need to do more to help autistic people. Our findings support that society needs to do more through autism advocacy, better media representation and more public role models. Increasing the accuracy of understanding of autism across society will mean that autistic people can feel safer to disclose if they want to.

7.
Assessment ; 29(7): 1422-1440, 2022 10.
Article En | MEDLINE | ID: mdl-34044605

To investigate the effect of using negatively oriented items, we wrote semantic reversals of the items in the Rosenberg Self Esteem Scale, UCLA Loneliness Scale, and the General Belongingness Scale and used them to create four experimental conditions. Participants (N = 2,019) were recruited through Amazon's Mechanical Turk. Data were assessed for dimensionality, item functioning, instrument properties, and associations with other variables. Regarding dimensionality, although a two-factor model (positively vs. negatively oriented factors) exhibits better fit than a unidimensional model across all conditions, bifactor indices were used to argue that a unidimensional interpretation of the data can be employed. With respect to item functioning, factor loadings were found to be nearly invariant across conditions, but thresholds were not. Concerning instrument properties, inclusion of negatively oriented items results in lower mean scores and higher score variances. Instruments with both positively and negatively oriented items demonstrated lower reliability estimates than those with only one orientation. For associations with other variables, path coefficients in a model where loneliness mediates the effects of belongingness on life satisfaction and self-esteem were found to vary across conditions. Findings suggest that negatively oriented items have minor impact on instrument quality, but influence measurement model and path coefficients.


Self Concept , Factor Analysis, Statistical , Humans , Psychometrics , Reproducibility of Results , Surveys and Questionnaires
8.
J Autism Dev Disord ; 51(4): 1331-1345, 2021 Apr.
Article En | MEDLINE | ID: mdl-32681203

Autism spectrum disorder (ASD) is currently one of the most researched of all childhood developmental disorders and is receiving attention in many domains. The purpose of this study was to design and provide psychometric evidence for a scale that measures police officer self-efficacy for working with individuals with ASD. Psychometric properties of a scale designed to measure knowledge of ASD were also explored. Data from 620 police officers were collected and a 13-item scale was created and evaluated. Results indicated that the scale represented a unidimensional construct. Knowing more about officers' knowledge and beliefs in their own capabilities to work with individuals with ASD can help inform future police education and training efforts.


Autism Spectrum Disorder/psychology , Police/education , Police/psychology , Psychometrics/methods , Self Efficacy , Adult , Autism Spectrum Disorder/therapy , Child , Female , Humans , Male , Middle Aged
9.
Article En | MEDLINE | ID: mdl-32863861

BACKGROUND: Evidence-based educational instruction includes teaching elements common across different approaches as well as specific elements of the chosen evidence-based practice. We were interested in evaluating the use and impact of common elements of teaching. Specifically, we adopted a model of elements of high quality teaching sequences and developed and tested an instructional quality index to capture evidence-based features within teaching sequences (Grisham-Brown & Ruble, 2014). METHOD: The current investigation examined 29 special education teachers who received a consultation intervention called the Collaborative Model for Promoting Competence and Success (COMPASS; Ruble, Dalrymple & McGrew, 2012) that results in personalized teaching plans for young students with ASD and embeds elements of evidence-based teacher coaching of self-reflection and performance-based feedback. We analyzed the teaching plans to understand which of the common elements were present, and if teachers demonstrated improved performance after coaching. RESULTS: Analysis of the use of common elements during the first and fourth coaching session demonstrated that all teachers showed improvement. Most importantly, the use of common elements correlated with student goal attainment outcomes. CONCLUSIONS: These results suggest that common elements of teaching sequences which we view as core features of teaching quality, can be improved as a result of coaching, and most importantly, are associated with students' educational outcomes.

10.
J Autism Dev Disord ; 50(1): 101-117, 2020 Jan.
Article En | MEDLINE | ID: mdl-31535340

Semi-structured interviews were employed to (a) characterize LEOs' knowledge of ASD, (b) understand interactions between LEOs and individuals with ASD, and (c) identify training needs to prepare LEOs for interactions with the ASD community. Researchers utilized a constructivist grounded theory approach to analyze data from 17 participants: (a) six LEOs, (b) six adults with ASD, and (c) five caregivers. Common themes included the (a) potential for misinterpretations of behavior of individuals with ASD; (b) helpfulness of an identification system/symbol for ASD; (c) need for interactive, mandatory training unique to LEOs' needs; and, (d) importance of building community connections between LEOs and individuals with ASD. Findings are discussed within the context of previous research related to law enforcement and ASD.


Autism Spectrum Disorder/psychology , Police/education , Adult , Caregivers , Female , Humans , Male
11.
Res Dev Disabil ; 89: 41-50, 2019 Jun.
Article En | MEDLINE | ID: mdl-30913505

Currently, 1 in 68 children in the U.S. is diagnosed with Autism Spectrum Disorder (ASD; Centers for Disease Control & Prevention, 2015) and this growing population of learners has been noted as one of the most challenging groups to teach. Teacher self-efficacy, the belief teachers hold about their instructional capabilities, has been shown to differ according to contextual factors, such as the type of students teachers face. The purpose of this investigation was to develop an instrument that can used to measure teachers' self-efficacy for effectively working with students with ASD. Study 1 involved the development and evaluation of a new instrument, the Teacher Self-Efficacy for Students with Autism Scale (TSEAS) with a sample of general and special education teachers in the U.S. (N = 120). Study 2 involved a cross-validation of the measure with teachers in Australia (N = 85). Results indicated that the scale represented a unidimensional construct in both studies. Self-efficacy for teaching students with ASD was distinct from, though positively related to, general teaching self-efficacy, job satisfaction, and self-regulation. Using a student-specific teaching self-efficacy measure might provide more useful information for supporting teachers' beliefs for teaching students with ASD.


Autism Spectrum Disorder/psychology , Education, Special , Professional Autonomy , School Teachers , Self Efficacy , Adult , Australia , Child , Education, Special/methods , Education, Special/standards , Female , Humans , Interview, Psychological , Male , Reproducibility of Results , School Teachers/psychology , School Teachers/standards , Teacher Training , Teaching/psychology , Teaching/standards , Weights and Measures/standards
12.
Educ Psychol Meas ; 79(1): 108-128, 2019 Feb.
Article En | MEDLINE | ID: mdl-30636784

One of the most cited methodological issues is with the response format, which is traditionally a single-response Likert response format. Therefore, our study aims to elucidate and illustrate an alternative response format and analytic technique, Thurstonian item response theory (IRT), for analyzing data from surveys using an alternate response format, the forced-choice format. Specifically, we strove to give a thorough introduction of Thurstonian IRT at a more elementary level than previous publications in order to widen the possible audience. This article presents analyses and comparison of two versions of a self-report scale, one version using a single-response format and the other using a forced-choice format. Drawing from lessons learned from our study and literature, we present a number of recommendations for conducting research using the forced-choice format and Thurstonian IRT, as well as suggested avenues for future research.

13.
J Adolesc ; 67: 31-34, 2018 08.
Article En | MEDLINE | ID: mdl-29890346

This study investigates whether the length and pattern of early adolescents' (N = 261) responses to open-ended self-reflective questions varied according to data collection method: paper and pencil versus online survey. Adolescent students' (Npaper = 157; Ncomputer = 104) responses from a suburban, United States sample of fifth grade students were significantly longer on computerized surveys than on paper surveys. Students provided higher quality responses (i.e., lexically richer) on the computerized survey. Findings were consistent when responses were relevant to two subject areas: mathematics and reading. Results suggest that the use of computerized survey methods in psychological research with early adolescent samples is both appropriate and valuable.


Data Collection/methods , Psychology, Adolescent/methods , Surveys and Questionnaires/standards , Adolescent , Child , Female , Handwriting , Humans , Internet , Male , Students , United States
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