Lack of assent to dental examination in children with intellectual disabilities: Dentists' practices in Europe and ethical issues.

AIM: (1) To determine the repartition of criteria which can be considered as marks of lack of assent by the child with intellectual disabilities from the dentist's point of view and whether that influences the decision to examine the patient or not. (2) To explain the decision of practitioners and determine the ethical implications of these practices. METHODS: An anonymous and structured questionnaire was distributed online using the scenario of a 9-year-old child with moderate cognitive impairment with eight different oppositional behaviours. The practitioners were asked about their perception of the patient's lack of assent and about their decision to perform the dental examination or not. RESULTS: The proportion of them who performed a dental examination despite the patient's refusal represented between 13% and 28.8% of the population of respondents. CONCLUSION: There was an ambivalence among the practitioners who carried out a dental consultation when children were uncooperative. They adopted a teleological point of view. It calls for us to reflect on the ethical principles of autonomy and beneficence.

A customized table-top aging simulation exercise to augment gerodontology teaching.

While aging simulation suits have been used in healthcare education to promote empathy for older adults, little has been published on learning outcomes specific to geriatric dental patients. We designed a seminar utilising a customised ageing simulation suit to help dental students empathise with several disabilties their older adult patients may face.

A Mixed-Methods Study on Topical Fluoride Beliefs and Refusal Behaviors for Caregivers of Children with Special Health Care Needs.

OBJECTIVE: To understand topical fluoride-related beliefs and refusal behaviors for caregivers of children with special health care needs (CSHCN). METHODS: This was an explanatory sequential mixed methods study. For the quantitative analyses, we surveyed 520 caregivers to (a) compare fluoride-related beliefs between caregivers of CSHCN and caregivers of healthy children and (b) evaluate the association between special health care need (SHCN) status and topical fluoride refusal. We used logistic regression models to generate unadjusted odds ratios, confounder-adjusted odds ratios (AOR), and 95% confidence intervals (CI). For the qualitative analyses, we interviewed 56 caregivers who refused or were hesitant about topical fluoride. Data were coded deductively and compared by SHCN status to an existing conceptual model of topical fluoride refusal. RESULTS: In the quantitative analysis, 41.3% of caregivers refused or thought about refusing topical fluoride. There were no significant differences in fluoride beliefs by SHCN status (p-values > 0.05) nor was there a significant association between SHCN status and topical fluoride refusal (AOR: 0.65, 95% CI 0.37-1.14; p = 0.13). In the qualitative analysis, the relative importance of each domain of the conceptual model was similar between the caregiver groups. Two differences were that all caregivers of CSHCN thought fluoride was unnecessary and wanted to keep chemicals out of their child's body. CONCLUSIONS FOR PRACTICE: While caregivers of CSHCN were not more likely to refuse topical fluoride than caregivers of healthy children, there may be important differences in the underlying reasons for refusing topical fluoride.

Treatment under general anesthesia after dental trauma in a patient with autism spectrum disorder: a case report / Tratamento odontológico em paciente com transtorno do espectro autista, sob anestesia geral, após traumatismo dentário: relato de caso

ABSTRACT The objective of this study was to present a clinical case of a pediatric patient with ASD who had experienced dental trauma and underwent dental treatment in a hospital environment under general anesthesia. A 10-year-old male patient who was Brazilian and had leukoderma was diagnosed with ASD at three years of age, he experienced trauma to the upper teeth, with avulsion of tooth 12 and extrusive displacement of tooth 11, after being run over by a car in February 2017. He was immediately taken to the emergency room, where he was seen by a dentist and he was immediately transferred to Hospital. In the out-patient clinic of this hospital, with the aid of protective stabilization and infiltrative anesthesia, tooth 12 was reimplanted 40 minutes after trauma and restrained with composite resin. He continued treatment in another city and Endodontic and paraendodontic treatment of teeth 11 and 12 was performed under general anesthesia. Follow-ups with the patient are continuing, with the last control periapical radiograph taken in January 2020. In this case, the proposed dental treatment was successful and did not lead to any complications.

RESUMO O objetivo deste trabalho foi apresentar um caso clínico de um paciente pediátrico com TEA que sofreu traumatismo dentário e foi submetido a tratamento odontológico em ambiente hospitalar, sob anestesia geral. Paciente do sexo masculino, 10 anos, brasileiro, leucoderma, foi diagnosticado com TEA aos três anos de idade, apresentou trauma nos dentes superiores, com avulsão do dente 12 e deslocamento extrusivo do dente 11, após ser atropelado por um carro em fevereiro de 2017. Ele foi imediatamente levado para o pronto socorro, onde foi atendido por um dentista e imediatamente transferido para o Hospital. No ambulatório deste hospital, com auxílio de estabilização protetora e anestesia infiltrativa, o dente 12 foi reimplantado 40 minutos após o trauma e contido com resina composta. Ele continuou o tratamento em outra cidade, o tratamento endodôntico e paraendodôntico dos dentes 11 e 12 foi realizado sob anestesia geral. Os acompanhamentos com o paciente continuam, com a última radiografia periapical de controle realizada em janeiro de 2020. Neste caso, o tratamento odontológico proposto foi bem-sucedido e não levou a nenhuma complicação.

Mandibular condyle morphology among patients with mucopolysaccharidosis: An observational study of panoramic radiographs.

BACKGROUND: Mucopolysaccharidoses (MPS) are a group of rare metabolic diseases characterized by a wide spectrum of symptoms including progressive condylar resorption. AIM: The aim of this study was to quantify the severity of condylar involvement in MPS I individuals in comparison with a group of non-MPS individuals and to describe how condylar changes may vary among the different types of MPS. DESIGN: Fifty panoramic radiographs of MPS patients (13.4 ± 6.2 years) with MPS I (n = 14), MPS II (n = 2), MPS IV (n = 8) and MPS VI (n = 2) were compared with forty panoramic radiographs of non-MPS individuals. The severity of condylar resorption was evaluated using a qualitative score (grades 0-3) and using the ratio of condylar height to ramus height (CH: RH). RESULTS: All MPS I and VI individuals showed pronounced bilateral degenerative condylar resorption. In contrast, individuals with MPS II and IV exhibited heterogeneous findings. The quantification of condylar height to ramus height revealed that CH: RH was significantly decreased in MPS I as compared to that of non-MPS individuals (P < .001). In contrast, the CH: RH ratios of MPS II and IV showed great variability. CONCLUSION: Mucopolysaccharidoses subtypes differ with regard to the severity of condylar resorption.

Access to oral health care services for individuals with rare genetic diseases affecting skeletal development.

OBJECTIVE: To identify factors associated with oral health care services for individuals with and without rare genetic diseases. MATERIALS AND METHOD: A cross-sectional study was undertaken, with 140 individuals paired by sex and age (70 with rare genetic diseases and 70 without), aged between 3 and 27 years, and their parents. The sample was selected from two reference hospitals for patients with rare genetic diseases in southeastern Brazil. The parents completed a questionnaire on individual aspects and their child's medical/dental history. Participants who did and did not suffer from rare genetic diseases were examined for dental caries, malocclusion, dental anomalies, and oral hygiene. The theoretical model Directed Acyclic Graphs (DAG) was used to identify possible confounding variables in the association between rare diseases and access to dental care. Descriptive analyses and non-matched and matched logistic regression models (p < 0.05) were carried out. RESULTS: The chance of individuals without rare genetic disease having access to oral health care service was 5.32 times higher (95% CI 2.35-12.01) than those with such conditions. Individuals who had not suffered upper respiratory tract infections had a 3.16 times greater chance of being in the group with access to oral health care service (95% CI 1.45-6.90). CONCLUSION: Individuals with no rare genetic diseases and no history of upper respiratory tract infections had a greater chance of belonging to the group of individuals with access to a dental service. Individuals with rare genetic diseases have less access to oral health care.

Dental Care for a Child with Congenital Hydrocephalus: A Case Report with 12-Month Follow-Up.

Hydrocephalus affects the central nervous system as a result of progressive ventricular dilatation from the accumulation of cerebrospinal fluid in the brain's lateral ventricles. This paper reports on the oral characteristics of a child with congenital hydrocephalus, discusses her complex dental care needs, and presents dental management of this case. Despite the complex and challenging dental needs, this child received dental treatment in a chairside approach without general anesthesia. A thorough knowledge of the patient's medical condition, together with expert clinical skills, was indispensable for managing the child and improving the quality and length of her life.

Mother's sense of coherence and dental characteristics in children and adolescents with osteogenesis imperfecta: A paired study.

BACKGROUND: The relevance of sense of coherence (SOC) is important to the wellbeing of parents, especially mothers of children and adolescents with osteogenesis imperfecta (OI). OBJECTIVE: Determine whether the oral health status of children/adolescents with OI is associated with mother's SOC. MATERIALS AND METHOD: A paired cross-sectional study was conducted with 37 children/adolescents with OI, 37 without OI, and their respective mothers. The children/adolescents were between two and 19 years of age, mean age 7.2 years, being 47 male and 27 female. The mothers completed Antonovsky's SOC questionnaire (SOC-13), and the oral status of the children/adolescents was investigated. The following clinical conditions were evaluated: dentinogenesis imperfecta, malocclusion, gingivitis, and dental caries experience. RESULTS: The genetic condition of the children was significantly associated with mother's SOC (P < .001). Mothers of children with OI had lower SOC scores (mean: 35.6 [± 4.9]) than mothers of children without OI (mean: 38.5 [± 4.3]). In the group with OI, a low socioeconomic status was associated with lower mother's SOC scores (P = .004). In both groups, dental caries experience was associated with lower mother's SOC scores (P = .007). Most individuals with OI presented malocclusion (78.3%) and experience of dental caries (59.4%). CONCLUSION: Having a child with OI influenced the sense of coherence of the mothers. Socioeconomic status and dental caries experience in children and adolescents with OI were associated with mother's SOC.

Dental and maxillomandibular incidental findings in panoramic radiography among individuals with mucopolysaccharidosis: a cross-sectional study

Abstract Mucopolysaccharidosis (MPS) is a group of rare and inherited metabolic disorders caused by the accumulation of macromolecule glycosaminoglycans inside lysosomes. Affected individuals may have dental and craniofacial tissue alterations, facilitating the development of several oral diseases. Objectives To assess, with panoramic radiographic images, the frequency of dental and maxillomandibular incidental findings among MPS individuals and compare them with non-MPS individuals. Methodology A cross-sectional study evaluating a sample of 14 MPS individuals and 28 non-MPS individuals aged from 5 to 26 years was carried out. They were matched for sex and age on a 2:1 proportion. Panoramic radiographs were assessed for the presence/absence of the following dental and maxillomandibular alterations: dental anomalies of number (hypodontia/dental agenesis, supernumerary teeth); anomalies of form (microdontia, macrodontia, conoid teeth, taurodontism, and root dilaceration); anomalies of position (impacted tooth, inverted tooth, tooth migration, partially bony teeth, complete bony teeth); periapical alterations (furcation lesion, circumscribed bone rarefaction); other alterations (radiolucent bone lesions, radiopaque bone lesions, radiopacity in the maxillary sinus, condylar hypoplasia). Differences between groups were tested by the Fisher's exact test and chi-square test (p<0.05). Results For intrarater agreement, Kappa values were 0.76 to 0.85. The presence of supernumerary teeth (p=0.003); conoid teeth (p=0.009); taurodontism (p<0.001); impacted teeth (p<0.001); partial bony teeth (p=0.040); complete bony teeth (p=0.013); and root dilaceration (p=0.047) were statistically more frequent in MPS individuals compared to non-MPS individuals. Bone rarefaction/furcation lesions (p=0.032), condylar hypoplasia (p<0.001), radiolucent bone lesions (p=0.001), and dentigerous cysts (p=0.002) were also more frequent in MPS individuals. Conclusion The presence of specific oral manifestations is more common in MPS individuals than non-MPS individuals.

Ethical issues and dentists' practices with children with intellectual disability: A qualitative inquiry into a local French health network.

BACKGROUND: The provision of dental care for children with intellectual disability raises many ethical questions. OBJECTIVE: The aim of this qualitative study was to explore approaches to dental treatment in an anxious child with intellectual disability and the ethical dilemmas that ensue. METHODS: Semi-structured interviews were conducted between February and May 2012. A clinical scenario was used to establish a starting point for a discussion of the clinical approach and lead to an ethical reflection. Four topics were discussed: first contact with the patient, information, attitude towards the patient and outcome from the practitioner's viewpoint. The coding procedure used thematic content analysis. RESULTS: Most practitioners fetched the patient from the waiting room personally, greeted them, gave them special attention, and either began the consultation at once, or used distraction to relax the patient. Verbal language and tell-show-do were most often used to provide information. Anxiety and pain were evaluated using parental assessment and standardized scales. A reassuring attitude was adopted. An ethical dilemma arose if the patient refused care or had to be restrained. Practitioners reported sacrificing ethical values (patient autonomy, beneficence and non-maleficence) when making a clinical decision. CONCLUSIONS: There is a wide range of practices but no consensus. This study shed some light on the different perspectives of dentists, most of whom adopted a utilitarianist viewpoint. In this context, ethical reflection is necessary to avoid a detached attitude or, worse, abuse. Further study would enrich this reflection.

Why do edentulous adults with intellectual disabilities not wear dentures? Wave 2 of the IDS TILDA cohort study.

PURPOSE: Older adults with intellectual disabilities (ID) are often edentulous. When total tooth loss occurs, they are very unlikely to wear complete removable dentures (CRDs) to restore oral function in Ireland. The reasons for this are unclear, though opinion holds that this is because dentists do not offer prosthodontic treatment to this group. In this study we ask edentulous older adults with ID why they do not wear dentures. METHODS: Cross-sectional survey data from Wave 2 of the Intellectual Disability Supplement to The Irish Longitudinal Study on Ageing (IDS-TILDA) was examined to study reported denture wear among edentulous older adults with ID. RESULTS: Out of 692 participants, 186 were edentulous (26.9%), of whom 57 (30.6%) wore CRDs and 129 (69.3%) did not. Twelve of this 129 had dentures but did not wear them. Of the 117 respondents who reported that they did not have dentures, 99 (valid %=92.5%) did not want dentures, while only 8 did. No respondents in this study reported that they were denied denture therapy. Rather, they simply did not want dentures. Clinicians should understand that extra steps may be needed to ensure that consent is truly informed when patients opt for, or decline, complete denture therapy. CONCLUSION: While there is a high normative need for prosthodontic rehabilitation, expressed need is low. Extra steps may be necessary to ensure optimal outcomes for people with ID.

Perfil dos pacientes com deficiências de desenvolvimento sob atendimento odontológico em um projeto de extensão intersetorial / Profile of patients with developmental disabilities under dental care in an intersectoral extension project

Objetivo: Descrever o perfil dos pacientes atendidos em uma instituição filantrópica onde funciona o projeto de extensão "Atendimento Odontológico a Pacientes com Necessidades Especiais". Métodos: A amostra foi composta por 581 prontuários de pacientes com necessidades especiais de 0 a 33 anos de idade. Foram coletadas informações sobre as prevalências de cárie nas dentições decídua e permanente, gengivite, xerostomia, bruxismo, refluxo gastroesofágico, sexo, uso de medicação de ação central, uso de chupeta, sucção digital, alimentação e higiene bucal. Os dados foram analisados por meio da estatística descritiva e teste do qui-quadrado para verificação de associação entre diagnóstico e sexo. Resultados: 51,93% dos pacientes eram meninos, 71,42% possuíam paralisia cerebral, 12,36% tinham refluxo gastroesofágico, 49,30% usavam medicação anticonvulsivante. O diagnóstico de paralisia cerebral quadriespástica esteve associado ao sexo masculino. Dentre as alterações bucais, 4,86% dos casos apresentaram xerostomia. O uso da chupeta foi encontrado em 26,93% dos indivíduos e 18,05% chupavam o dedo. Alterações gengivais foram detectadas em 15,61% das fichas. Em relação à alimentação, 56,97% dos indivíduos consumiam açúcar acima do aceitável, e com relação à higiene bucal, 14,48% foram classificados como ruim e 17,57% moderada. Em 20,57% dos prontuários havia registro de dentes decíduos cariados e em 4,29% de dentes obturados. Do total de pacientes que possuíam dentes permanentes, 13,17% tinha dentes cariados e 7,75% possuía dentes obturados. A prevalência de cárie dentária é moderada com pequena proporção de dentes restaurados. A alimentação é rica em sacarose para quase 60% destes pacientes. Conclusão: os hábitos parafuncionais apresentam um percentual preocupante de prevalência. Por isso, estes pacientes possuem um perfil de doenças bucais com gravidade moderada e que devem ter um acompanhamento odontológico sistemático para que a prevalência de doenças bucais não aumente com o passar dos anos.(AU)

Aim: The present study aimed to describe the profile of the patients who received dental care at a philanthropic institution, within the project "Dental Care for Patients with Special Needs". Methods: This study was carried out by evaluating 581 records of patients with special needs from 0 to 33 years of age. Data were collected on the prevalence of caries in deciduous and permanent dentitions, gingivitis, xerostomia, bruxism, gastroesophageal reflux, sex, use of central action medication, pacifier use, digital suction, feeding, and oral hygiene. Data were analyzed using descriptive statistics and the chi-square test to verify an association between diagnosis and sex. Results: The results showed that 51.93% were boys, 71.42% had cerebral palsy, 12.36% had gastroesophageal reflux, and 49.30% used anticonvulsant medication. The diagnosis of quadrispastic cerebral palsy was associated with males. Xerostomia was observed in 4.86% of the cases. The use of pacifiers was present in 26.93% of the individuals, while 18.05% of the patients used to suck their finger. Gingival changes were detected in 15.61% of the records. In relation to food, 56.97% of the individuals consumed sugar above the acceptable amount, and when oral hygiene was considered, 14.48% were classified as poor and 17.57% as moderate. This study also identified 20.57% of decayed and 4.29% of filled deciduos teeth. Among the patients who had permanent teeth, 13.17% had decayed teeth, while 7.75% had filled teeth. It could therefore be concluded that the prevalence of dental caries is moderate with a small proportion of treated teeth. Diet is rich in sucrose for almost 60% of these patients. Conclusion: The parafunctional habits present a worrisome percentage of prevalence. Therefore, these patients have a profile of oral diseases with moderate severity and should undergo systematic dental follow-up so that the prevalence of oral diseases does not increase over the years.(AU)

Utilização dos serviços de atendimento odontológico hospitalar sob sedação e/ou anestesia geral por pessoas com necessidades especiais no SUS-MG, Brasil / Availability of hospital dental care services under sedation or general anesthesia for individuals with special needs in the Unified Health System for the State of Minas Gerais (SUS-MG), Brazil

O presente estudo identificou as características demográficas dos indivíduos e assistenciais do tratamento odontológico sob sedação e/ou anestesia geral em ambiente hospitalar no SUS-MG. Foram avaliadas todas as Autorizações de Internações Hospitalares (AIH) para o procedimento Tratamento Odontológico para Pacientes com Necessidades Especiais, de julho de 2011 a junho de 2012. Foram mensuradas variáveis demográficas e assistenciais dos atendimentos. Foram calculadas as taxas de internações por 10.000 habitantes e a cobertura assistencial realizada no estado de Minas Gerais e em cada uma das Regiões Ampliadas de Saúde. A análise descritiva das variáveis foi feita por meio de cálculo da frequência e medidas de tendência central e variabilidade. Foram avaliadas todas as 1.063 AIH pagas no período estudado, que representaram uma taxa de 0,54 internações por 10.000 habitantes. A maioria dos indivíduos era adulta, do sexo masculino, com diagnóstico de transtornos mentais ou comportamentais e residente em 27,7% dos municípios de Minas Gerais. Os procedimentos foram realizados em 39 municípios e a cobertura assistencial foi igual a 1,58%. O estudo revelou um perfil clássico do paciente atendido. Dificuldades em se estabelecer uma rede de atenção à saúde bucal foram identificadas.

This study identified the demographic characteristics of individuals and dental treatment care under sedation/general anesthesia in a hospital environment in the Unified Health System in the State of Minas Gerais (SUS-MG). All Hospitalization Authorizations (AIHs) for Dental Treatment for Patients with Special Needs procedures were evaluated between July 2011 and June 2012. Demographic and health care variables for treatment were also assessed. Hospitalization rates per 10,000 inhabitants, and health care coverage provided in the state of Minas Gerais and in each of the Broader Health Regions were calculated. Descriptive analysis of data was carried out by calculating the central trend and variability frequency and measurements. All 1,063 AIHs paid during the study period were evaluated, which is equivalent to a rate of 0.54 hospitalizations per 10,000 individuals. The majority of the patients were adult, male, diagnosed with mental or behavioral disorders and resident in 27.7% of the municipalities in Minas Gerais. The procedures were performed in 39 municipalities and the care coverage was equal to 1.58%. The study reveals a classic demographic and clinical profile of patient attendance. Difficulties in establishing a network of dental care were identified.

Full mouth rehabilitation of a patient with Sturge-Weber syndrome using a mixture of general and sedative anesthesia.

Issues related to the control of seizures and bleeding, as well as behavioral management due to mental retardation, render dental treatment less accessible or impossible for patients with Sturge-Weber syndrome (SWS). A 41-year-old man with SWS visited a dental clinic for rehabilitation of missing dentition. A bilateral port-wine facial nevus and intraoral hemangiomatous swollen lesion of the left maxillary and mandibular gingivae, mucosa, and lips were noted. The patient exhibited extreme anxiety immediately after injection of a local anesthetic and required various dental treatments to be performed over multiple visits. Therefore, full-mouth rehabilitation over two visits with general anesthesia and two visits with target-controlled intravenous infusion of a sedative anesthesia were planned. Despite concerns regarding seizure control, bleeding control, and airway management, no specific complications occurred during the treatments, and the patient was satisfied with the results.

Full mouth rehabilitation of a patient with Sturge-Weber syndrome using a mixture of general and sedative anesthesia

Issues related to the control of seizures and bleeding, as well as behavioral management due to mental retardation, render dental treatment less accessible or impossible for patients with Sturge-Weber syndrome (SWS). A 41-year-old man with SWS visited a dental clinic for rehabilitation of missing dentition. A bilateral port-wine facial nevus and intraoral hemangiomatous swollen lesion of the left maxillary and mandibular gingivae, mucosa, and lips were noted. The patient exhibited extreme anxiety immediately after injection of a local anesthetic and required various dental treatments to be performed over multiple visits. Therefore, full-mouth rehabilitation over two visits with general anesthesia and two visits with target-controlled intravenous infusion of a sedative anesthesia were planned. Despite concerns regarding seizure control, bleeding control, and airway management, no specific complications occurred during the treatments, and the patient was satisfied with the results.

Full mouth rehabilitation of a patient with Sturge-Weber syndrome using a mixture of general and sedative anesthesia

Issues related to the control of seizures and bleeding, as well as behavioral management due to mental retardation, render dental treatment less accessible or impossible for patients with Sturge-Weber syndrome (SWS). A 41-year-old man with SWS visited a dental clinic for rehabilitation of missing dentition. A bilateral port-wine facial nevus and intraoral hemangiomatous swollen lesion of the left maxillary and mandibular gingivae, mucosa, and lips were noted. The patient exhibited extreme anxiety immediately after injection of a local anesthetic and required various dental treatments to be performed over multiple visits. Therefore, full-mouth rehabilitation over two visits with general anesthesia and two visits with target-controlled intravenous infusion of a sedative anesthesia were planned. Despite concerns regarding seizure control, bleeding control, and airway management, no specific complications occurred during the treatments, and the patient was satisfied with the results.