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1.
Am Ann Deaf ; 169(1): 57-76, 2024.
Article in English | MEDLINE | ID: mdl-38973463

ABSTRACT

Accessible and inclusive participation in sport can provide significant physical, psychological, and social benefits to Deaf or hard of hearing (D/HH) athletes. To understand how to facilitate these benefits, the researchers explored the lived physical education and sport experiences of D/HH collegiate athletes. Six athletes representing six sports were recruited and interviewed. Utilizing an interpretative phenomenological analysis approach to guide data collection, analysis, and interpretation, the researchers found five major themes: Self-Advocating for Awareness, Finding Meaningful Conversations, Overcoming Challenges, Seeking Community Connection, and Escaping Through Physical Activity. These themes illustrate the influence of accessibility and inclusion on the participants' sport experiences as well as the impact of the disability awareness of their coaches and peers. D/HH athletes and their coaches and teammates should work to overcome barriers to accessibility and inclusion to ensure the maximum benefit of being on a college sports team.


Subject(s)
Persons With Hearing Impairments , Sports for Persons with Disabilities , Humans , Male , Persons With Hearing Impairments/psychology , Female , Young Adult , Sports for Persons with Disabilities/psychology , Athletes/psychology , Universities , Deafness/psychology , Deafness/rehabilitation , Awareness , Adolescent , Students/psychology , Social Inclusion , Physical Education and Training , Sports/psychology , Qualitative Research
2.
Am Ann Deaf ; 169(1): 12-39, 2024.
Article in English | MEDLINE | ID: mdl-38973461

ABSTRACT

Studies on the reading acquisition of deaf children investigate the similarities and differences in the reading process between these readers and typical hearing readers. There is no consensus on the nature of the reading process among deaf readers, whether they use the same reading processing strategies as typical readers or depend on other strategies to close the gap. The present study aimed to test the types of strategies used to process written words by deaf Arabic readers with prelingual deafness, compared to their hearing peers, and to test the effectiveness of deaf readers' use of these strategies. Three experimental paradigms were tested. The findings indicated that deaf Arabic readers rely on essentially similar processing strategies to those used by hearing readers. However, deaf Arabic readers employ these strategies with significantly less effectiveness. The results are discussed in light of international data.


Subject(s)
Arabs , Deafness , Reading , Humans , Israel , Deafness/psychology , Child , Male , Female , Arabs/psychology , Education of Hearing Disabled/methods , Language , Persons With Hearing Impairments/psychology
3.
Am Ann Deaf ; 169(1): 40-56, 2024.
Article in English | MEDLINE | ID: mdl-38973462

ABSTRACT

The researchers examined the associations between thinking styles and grit. A cross-sectional design was adopted, with two weeks of data collection. The Thinking Styles Inventory-Revised II and the Grit Scale were administered to 365 signing deaf or hard-of-hearing (DHH) Arts and Design students and 443 hearing university students in mainland China. CFA, MANOVA, hierarchical multiple regression analyses, and a multi-group analysis were executed for data analysis. DHH and hearing students with Type I styles (i.e., more creativity-generating, less structured, and cognitively more complex) had higher grit levels, with large effect sizes for the identified relationships. There were no differences in the relations for either group. The associations between thinking styles and grit may protect against psychological pressure and rehabilitation problems and enable university/school administrators, counselors, social workers, teachers, parents, and students to enhance the grit of students who are deaf or hard of hearing.


Subject(s)
Deafness , Persons With Hearing Impairments , Students , Thinking , Humans , Male , Female , Cross-Sectional Studies , Young Adult , Students/psychology , Persons With Hearing Impairments/psychology , China , Deafness/psychology , Deafness/rehabilitation , Adolescent , Creativity , Adult , Education of Hearing Disabled/methods
4.
Am Ann Deaf ; 169(1): 77-90, 2024.
Article in English | MEDLINE | ID: mdl-38973464

ABSTRACT

The authors investigated parent mental health during the COVID-19 pandemic and its association with parenting behaviors of parents of children who are deaf or hard of hearing. An electronic survey was distributed to parents (N = 103). The results showed that they were experiencing elevated anxiety, depression, and symptoms of post-traumatic stress disorder. A combined model demonstrated that parental distress was significantly associated with depression and with parental reports of symptoms indicating significantly higher distress. Parental distress was also significantly associated with parenting strategies: Parents who endorsed positive strategies reported significantly lower levels of distress, while parents who endorsed negative strategies reporting significantly higher levels. It was found that screening protocols to identify parents in need of support are crucial, particularly among the parent population considered in the present study. Additionally, access to mental health services and evidence-based positive parenting programs is essential.


Subject(s)
COVID-19 , Deafness , Parenting , Parents , Persons With Hearing Impairments , Stress, Psychological , Humans , COVID-19/epidemiology , COVID-19/psychology , Parenting/psychology , Female , Male , Adult , Parents/psychology , Child , Persons With Hearing Impairments/psychology , Deafness/psychology , Stress, Psychological/psychology , Stress, Psychological/epidemiology , Depression/psychology , Depression/epidemiology , Mental Health , Anxiety/psychology , Anxiety/epidemiology , Stress Disorders, Post-Traumatic/psychology , Stress Disorders, Post-Traumatic/epidemiology , SARS-CoV-2 , Middle Aged , Pandemics , Surveys and Questionnaires
6.
Otol Neurotol ; 45(6): e472-e477, 2024 Jul 01.
Article in English | MEDLINE | ID: mdl-38865724

ABSTRACT

OBJECTIVES: To investigate the quality of life (QOL) of adult Mandarin-speaking Chinese Americans after cochlear implantation (CI) using the cross-culturally adapted Chinese Cochlear Implant Quality of Life-10 (CIQOL-10) Global. STUDY DESIGN: Cross-sectional. SETTING: Tertiary care neurotology practice in New York City. PATIENTS: Thirty adult Mandarin-speaking Chinese Americans (22.8-89.4 yr, mean 48.9 yr) with prelingual (12) or postlingual (18) deafness who underwent CI between 1995 and 2020. All patients were at least 1 year from CI activation. INTERVENTION: CI. MAIN OUTCOMES MEASURES: Chinese CIQOL-10 Global score. RESULTS: There were no detectable differences in mean Chinese CIQOL-10 Global scores between the prelingual (mean 51.9, SD 11.0) and postlingual (mean 44.0, SD 16.4) cohorts (p = 0.1; 95% CI, -2.3 to 18.1; Hedges' g = 0.5). Comparison of the overall cohort (mean 47.1, SD 14.8) with previously published CIQOL-10 Global scores of English-speaking American CI users (mean 51.5, SD 10.4) demonstrated a significant difference (p = 0.02; 95% CI, 0.4-8.4; Hedges' g = 0.4). For the overall cohort, multivariable analysis demonstrated that combined household income (p = 0.007, ß = 7.4; 95% CI, 0.7-14.0) was positively associated with Chinese CIQOL-10 Global scores. CONCLUSIONS: This study is the first to evaluate QOL after CI in Mandarin-speaking Chinese American adults. The CIQOL-10 Global scores of Mandarin-speaking Chinese Americans CI users are significantly worse than those of English-speaking American CI users. Combined household income may be positively associated with QOL in the Mandarin-speaking Chinese American CI population. More resources are needed to assess outcomes and support rehabilitation in this population.


Subject(s)
Asian , Cochlear Implantation , Quality of Life , Humans , Male , Asian/psychology , Female , Middle Aged , Adult , Aged , Cross-Sectional Studies , Aged, 80 and over , Young Adult , Deafness/surgery , Deafness/psychology , Cochlear Implants
7.
Otol Neurotol ; 45(6): e483-e489, 2024 Jul 01.
Article in English | MEDLINE | ID: mdl-38865725

ABSTRACT

OBJECTIVE: To evaluate the effects of related factors on long-term speech perception and quality-of-life (QoL) outcomes in postlingual deaf Mandarin-speaking adult cochlear implant (CI) recipients and to assess any differences between tone language and other intonation language CI adult users. STUDY DESIGN: Retrospective cases review. SETTING: Tertiary referral center. PATIENTS: Forty-five adult CI recipients (48 implanted ears). MAIN OUTCOME MEASURES: Post-CI outcomes were evaluated after follow-ups of more than 24 months using speech perception tests and QoL questionnaires. We analyzed the related factors affecting CI outcomes. RESULTS: A shorter duration of profound deafness was predictive factors for better post-CI speech perception. Earlier implantation and better performance of vowel scores were predictive of better subjective improvements in social and emotional life. Post-CI vowel scores of over 56% indicated promising improvements in QoL. CONCLUSION: Shorter duration of deafness could have better post-CI speech perception. Post-CI vowel scores instead of monosyllable words have the more potential to predict the QoL in Mandarin-speaking adult CI recipients.


Subject(s)
Cochlear Implantation , Cochlear Implants , Deafness , Language , Quality of Life , Speech Perception , Humans , Speech Perception/physiology , Male , Female , Adult , Middle Aged , Deafness/surgery , Deafness/psychology , Retrospective Studies , Aged , Treatment Outcome , Young Adult , Surveys and Questionnaires
8.
J Deaf Stud Deaf Educ ; 29(3): 424-432, 2024 Jun 24.
Article in English | MEDLINE | ID: mdl-38767465

ABSTRACT

Real-time captions appear to be an effective tool in assisting deaf and hard of hearing (DHH) college students' access information and communication in certain classroom settings. However, there is limited knowledge of DHH students' direct experiences with real-time captioning services. In this study, we gathered narratives from 15 DHH college students across the United States about their experiences with real-time captioning services in college. We analyzed the stories using thematic narrative analysis and uncovered 4 types that students told about their experiences. The story types were (a) stories of overcoming obstacles, (b) stories of resignation, (c) pragmatic stories, and (d) stories of personal connection. These story types reveal that although many students eventually experience effective communication access through real-time captioning services, they can initially struggle to overcome barriers to using the services successfully. Making time and space to listen to DHH students' narratives can teach educators and professionals how to support these students and resolve barriers before they arise.


Subject(s)
Persons With Hearing Impairments , Students , Humans , Female , Persons With Hearing Impairments/psychology , Students/psychology , Male , Deafness/psychology , Education of Hearing Disabled/methods , Universities , Young Adult , United States , Narration , Adult , Communication
9.
Am Ann Deaf ; 168(5): 311-326, 2024.
Article in English | MEDLINE | ID: mdl-38766941

ABSTRACT

In this article, we visualize a framework of the intersectionality of literacy, spatial justice, and multimodality in teaching literacy to Filipino Deaf students. We propose a metaphor-based framework and discuss how it can be used in teaching literacy to Filipino Deaf students through classroom examples as well as suggestions and recommendations for teachers. We do this mainly through redefining the term literacy, allowing students access to different modalities, and restructuring learning spaces. We also explore the relationship between spatial justice and the concept of Deaf Space and how this applies in the "new normal" of online learning due to the pandemic. We also address the issue of how classroom and education structure may inadvertently produce spatial injustice, especially for Deaf students. Implications and additional questions in teaching Filipino Deaf students are also discussed.


Subject(s)
Deafness , Education of Hearing Disabled , Literacy , Humans , Philippines , Education of Hearing Disabled/methods , Deafness/psychology , Persons With Hearing Impairments/psychology , Education, Distance , Teaching , Social Justice , Curriculum , Child , Students/psychology
10.
Am Ann Deaf ; 168(5): 327-346, 2024.
Article in English | MEDLINE | ID: mdl-38766942

ABSTRACT

This single case study concerns an 11-year-old girl, Agata, who recently moved to a rural community in the United States from the Philippines. Agata is profoundly deaf, has had no access to amplification, and has had very limited access to language and formal school. The journey through the next year, including the COVID-19 pandemic, saw Agata's language and literacy skills blossom at an unexpected rate. The study examines the how and why of Agata's progress by using multiple sources of both quantitative and qualitative data. A conceptual framework of both direct instruction theory (Engelmann & Carnine, 1982) and resilience theory (Garmezy, 1993) was used to systematically analyze the factors that contributed to Agata's growth and offer a more thorough understanding of the complex challenges and potential successes in supporting students from Asian communities who are d/Deaf or hard of hearing (d/DHH).


Subject(s)
COVID-19 , Education of Hearing Disabled , Persons With Hearing Impairments , Humans , Child , Female , COVID-19/epidemiology , Persons With Hearing Impairments/psychology , Deafness/rehabilitation , Deafness/psychology , Philippines/ethnology , Learning , SARS-CoV-2 , United States , Resilience, Psychological
13.
Am Ann Deaf ; 168(5): 258-273, 2024.
Article in English | MEDLINE | ID: mdl-38766938

ABSTRACT

Little information is available on d/Deaf and hard of hearing (d/DHH) learners' L2 development. Their limited auditory access may discourage them from taking standardized tests, highlighting the need for alternative ways of assessing their L2 development and proficiency. Therefore, this study suggests adopting processability theory, which demonstrates a universal order of L2 development. Interviews with d/DHH learners and their teachers were conducted to explore their current difficulties in regard to understanding their L2 development. Also, we conducted brief speaking tasks to suggest alternatives to testing the L2 development of learners who are d/DHH in comparison to typical literacy learners. The result showed d/DHH students' L2 developmental patterns are similar to those of typical hearing peers, suggesting that d/DHH students and hearing learners share difficulties in similar areas when learning English. Teachers highlighted the lack of appropriate English tests to determine the d/DHH students' L2 development.


Subject(s)
Education of Hearing Disabled , Multilingualism , Humans , Education of Hearing Disabled/methods , Female , Male , Adolescent , Persons With Hearing Impairments/psychology , Students/psychology , Child , Language Tests , Deafness/psychology , Language Development , Comprehension
14.
Am Ann Deaf ; 168(5): 274-295, 2024.
Article in English | MEDLINE | ID: mdl-38766939

ABSTRACT

Extant research on learners who are d/Deaf or hard of hearing with disabilities who come from Asian immigrant families is extremely sparse. The authors conducted an intrinsic case study of a deaf student with autism who comes from a Korean immigrant family. To acquire a comprehensive understanding of language and communication characteristics, they analyzed (a) interview data of three administrators who worked with the student and family and (b) school documents/reports issued to the parents. Themes are reported across the three components of the tri-focus framework (Siegel-Causey & Bashinski, 1997): the learner, partner, and environment. Implications for practitioners who work with these learners and their families are discussed, including (a) compiling an individualized language and communication profile that encompasses the framework; (b) utilizing culturally and linguistically responsive practices with the family; (c) practicing interprofessional collaboration; and (d) modifying physical and social environments to increase accessibility.


Subject(s)
Autism Spectrum Disorder , Deafness , Emigrants and Immigrants , Humans , Autism Spectrum Disorder/psychology , Autism Spectrum Disorder/ethnology , Emigrants and Immigrants/psychology , Deafness/psychology , Deafness/rehabilitation , Deafness/ethnology , Male , Communication , Persons With Hearing Impairments/psychology , Education of Hearing Disabled , Child , Republic of Korea , Female , Communication Barriers , Sign Language , Social Environment , Language
15.
Am Ann Deaf ; 168(5): 296-310, 2024.
Article in English | MEDLINE | ID: mdl-38766940

ABSTRACT

This article describes the current landscape of teaching literacy to Filipino Deaf students in a multilingual, multi-cultural classroom amid the pandemic. The article highlights the uniqueness of Filipino Deaf students as multilingual learners in a multi-cultural classroom and the lack of literature and research on Deaf multilingualism both locally and globally. Moreover, the article focuses on the role of Deaf teachers in teaching Filipino Deaf students, especially in their literacy development. The steps being done to ensure that the curriculum is inclusive of Deaf learners who use Filipino Sign Language (FSL), teacher preparation and materials development, and the challenges in the shift to distance learning amid the COVID-19 pandemic are also discussed. Future directions and recommendations include review of curriculum and adaptation, enhancement of teacher preparation, promotion of collaborative teaching and research efforts, and the production of more appropriate and accessible instructional materials for Deaf students.


Subject(s)
COVID-19 , Curriculum , Education of Hearing Disabled , Literacy , Multilingualism , Persons With Hearing Impairments , Sign Language , Humans , COVID-19/epidemiology , Philippines/ethnology , Education of Hearing Disabled/methods , Persons With Hearing Impairments/psychology , Deafness/psychology , SARS-CoV-2 , Child , Education, Distance , Pandemics , Students/psychology
16.
Hear Res ; 447: 109023, 2024 Jun.
Article in English | MEDLINE | ID: mdl-38733710

ABSTRACT

Limited auditory input, whether caused by hearing loss or by electrical stimulation through a cochlear implant (CI), can be compensated by the remaining senses. Specifically for CI users, previous studies reported not only improved visual skills, but also altered cortical processing of unisensory visual and auditory stimuli. However, in multisensory scenarios, it is still unclear how auditory deprivation (before implantation) and electrical hearing experience (after implantation) affect cortical audiovisual speech processing. Here, we present a prospective longitudinal electroencephalography (EEG) study which systematically examined the deprivation- and CI-induced alterations of cortical processing of audiovisual words by comparing event-related potentials (ERPs) in postlingually deafened CI users before and after implantation (five weeks and six months of CI use). A group of matched normal-hearing (NH) listeners served as controls. The participants performed a word-identification task with congruent and incongruent audiovisual words, focusing their attention on either the visual (lip movement) or the auditory speech signal. This allowed us to study the (top-down) attention effect on the (bottom-up) sensory cortical processing of audiovisual speech. When compared to the NH listeners, the CI candidates (before implantation) and the CI users (after implantation) exhibited enhanced lipreading abilities and an altered cortical response at the N1 latency range (90-150 ms) that was characterized by a decreased theta oscillation power (4-8 Hz) and a smaller amplitude in the auditory cortex. After implantation, however, the auditory-cortex response gradually increased and developed a stronger intra-modal connectivity. Nevertheless, task efficiency and activation in the visual cortex was significantly modulated in both groups by focusing attention on the visual as compared to the auditory speech signal, with the NH listeners additionally showing an attention-dependent decrease in beta oscillation power (13-30 Hz). In sum, these results suggest remarkable deprivation effects on audiovisual speech processing in the auditory cortex, which partially reverse after implantation. Although even experienced CI users still show distinct audiovisual speech processing compared to NH listeners, pronounced effects of (top-down) direction of attention on (bottom-up) audiovisual processing can be observed in both groups. However, NH listeners but not CI users appear to show enhanced allocation of cognitive resources in visually as compared to auditory attended audiovisual speech conditions, which supports our behavioural observations of poorer lipreading abilities and reduced visual influence on audition in NH listeners as compared to CI users.


Subject(s)
Acoustic Stimulation , Attention , Cochlear Implantation , Cochlear Implants , Deafness , Electroencephalography , Persons With Hearing Impairments , Photic Stimulation , Speech Perception , Humans , Male , Female , Middle Aged , Cochlear Implantation/instrumentation , Adult , Prospective Studies , Longitudinal Studies , Persons With Hearing Impairments/psychology , Persons With Hearing Impairments/rehabilitation , Deafness/physiopathology , Deafness/rehabilitation , Deafness/psychology , Case-Control Studies , Aged , Visual Perception , Lipreading , Time Factors , Hearing , Evoked Potentials, Auditory , Auditory Cortex/physiopathology , Evoked Potentials
17.
Disabil Health J ; 17(3): 101622, 2024 Jul.
Article in English | MEDLINE | ID: mdl-38580501

ABSTRACT

BACKGROUND: Approximately 80% of Deaf individuals live in low- and middle-income countries, where health systems often overlook their specific needs. This communication gap can result in misdiagnosis and inappropriate treatment, impacting their overall satisfaction with healthcare services. OBJECTIVES: This study aims to uncover barriers to healthcare access and preferences among the Deaf population in Ecuador, and the role of communication barriers in shaping satisfaction levels with healthcare services. METHODS: The study gathered data from 386 participants through online surveys, focusing on demographic characteristics, healthcare experiences, communication methods, and levels of satisfaction. Descriptive statistics and association analyses were employed to analyze the data. RESULTS: The study reveals that nearly all participants possessed an officially recognized disability (95.9%) and 53.9% reported hereditary deafness. Ecuadorian sign language was predominant (60.9%). Communication barriers were evident, with 65.0% having trouble understanding medical instructions, and 66.6% identifying a deficiency of tools for Deaf individuals in healthcare settings. Satisfaction levels were associated with the presence of interpreters during medical care, with 46.6% expressing a preference for interpreters over other communication methods. Additionally, private healthcare facilities were perceived as providing better services, despite being less frequently accessed (38.9%). Dissatisfaction was evident, particularly in aspects of communication and physician courtesy. CONCLUSIONS: This study underscores the importance of tailoring healthcare services to address the unique needs of the Deaf population. Communication barriers emerged as a central obstacle, necessitating the inclusion of sign language interpreters and improvement of resources. The study's implications extend to healthcare equity in developing nations, emphasizing the significance of patient-centered care and inclusive healthcare practices.


Subject(s)
Communication Barriers , Deafness , Health Services Accessibility , Patient Satisfaction , Persons With Hearing Impairments , Sign Language , Humans , Ecuador , Male , Female , Adult , Health Services Accessibility/statistics & numerical data , Persons With Hearing Impairments/statistics & numerical data , Persons With Hearing Impairments/psychology , Middle Aged , Deafness/psychology , Young Adult , Surveys and Questionnaires , Adolescent , Disabled Persons/statistics & numerical data , Disabled Persons/psychology , Aged , Communication
18.
Am J Otolaryngol ; 45(4): 104331, 2024.
Article in English | MEDLINE | ID: mdl-38677147

ABSTRACT

OBJECTIVE: To compare changes in music appreciation after cochlear implant (CI) surgery for patients with bilateral and single-sided deafness (SSD). METHODS: A retrospective cohort study was performed on all adult CI unilateral or bilateral recipients from November 2019 to March 2023. Musical questionnaire subset data from the Cochlear Implant Quality of Life (CIQOL) - 35 Profile Instrument Score (maximum raw score of 15) was collected. Functional CI assessment was measured with CI-alone speech-in-quiet (SIQ) scores (AzBio and CNC). RESULTS: 22 adults underwent CI surgery for SSD and 21 adults for bilateral deafness (8 sequentially implanted). Every patient group had clinically significant improvements (p < 0.001) in mean SIQ scores in the most recently implanted ear (Azbio (% correct) SSD: 14.23 to 68.48, bilateral: 24.54 to 82.23, sequential: 6.25 to 82.57). SSD adults on average had higher music QOL scores at baseline (SSD: 11.05; bilateral: 7.86, p < 0.001). No group had significant increases in raw score at the first post-operative visit (SSD: 11.45, p = 0.86; bilateral: 8.15, p = 0.15). By the most recent post-implantation evaluation (median 12.8 months for SSD, 12.3 months for bilateral), SSD adults had a significant increase in raw score from baseline (11.05 to 12.45, p = 0.03), whereas bilaterally deafened (7.86 to 9.38, p = 0.12) adults had nonsignificant increases. CONCLUSIONS: SSD patients demonstrate higher baseline music appreciation than bilaterally deafened individuals regardless of unilateral or bilateral implantation and are more likely to demonstrate continued improvement in subjective music appreciation at last follow-up even when speech perception outcomes are similar.


Subject(s)
Cochlear Implantation , Cochlear Implants , Music , Quality of Life , Humans , Music/psychology , Male , Female , Retrospective Studies , Middle Aged , Cochlear Implantation/methods , Aged , Adult , Surveys and Questionnaires , Deafness/surgery , Deafness/psychology , Deafness/rehabilitation , Hearing Loss, Bilateral/surgery , Hearing Loss, Bilateral/rehabilitation , Hearing Loss, Bilateral/psychology , Treatment Outcome
19.
PLoS One ; 19(4): e0301722, 2024.
Article in English | MEDLINE | ID: mdl-38683866

ABSTRACT

INTRODUCTION: Most deaf babies are born to hearing families who do not yet have the skills to communicate effectively with their child. Adaptations to communication are important because the quality of parent-child interaction (PCI) predicts how a deaf child develops language. Teachers of Deaf children and Speech and Language Therapists support families with communication in the home. Currently, there are no assessments that appraise how a parent interacts with their deaf baby. Previous research has identified which parent behaviours and approaches are used in PCI assessments in research and practice. The current paper forms consensus on the core content and best practices of a new PCI tool for deaf children aged 0-3 years. METHODS: An international sample of expert academics and practitioners (n = 83) were recruited to take part in a two-round modified electronic Delphi study. Participants were presented with 69 statements focusing on (i) which parent behaviours were important in assessment (ii) the methods to be used in PCI assessment. Participants rated the extent to which they agreed or disagreed with each statement on a five-point Likert scale and gave comments to support their response. Consensus was defined as >80% of participants rating the statement as a (4) 'highly important' or a (5) 'essential'. If consensus was not reached, participant comments were used to generate new statements which were rated in the second round. This project involved a patient and public involvement (PPI) group of hearing and deaf parents and professionals to design and guide the study. RESULTS: Consensus was achieved on 52 statements and ranged from 80-99%. A further six statements were additionally included. Within the 58 statements included, 36 were parent behaviours which centred on the parent's observation of, and response to, their child's behaviour and/or language. The remaining 22 statements focused on methods used in the assessment such as parents having their PCI filmed, parents having the opportunity to review the video and assess themselves alongside a professional, and parents being involved in subsequent goal setting. CONCLUSIONS: This e-Delphi presented the parent behaviours and methods of assessment to be included in a new PCI tool for deaf children. Future co-production work and acceptability and feasibility testing are discussed.


Subject(s)
Deafness , Delphi Technique , Parent-Child Relations , Humans , Infant , Child, Preschool , Deafness/psychology , Female , Male , Infant, Newborn , Persons With Hearing Impairments/psychology , Parents/psychology , Adult
20.
Health Expect ; 27(3): e14060, 2024 Jun.
Article in English | MEDLINE | ID: mdl-38685588

ABSTRACT

INTRODUCTION: The disclosure of deafness is complex, given the historic and on-going stigma associated with being deaf. The aim of this study was to explore how identity, stigma, and quality of life may be impacted when using cochlear implants (CIs) and totally implantable cochlear implants (TICIs). The physical difference between these two assistive listening devices is significant, given many CI users opt to hide their sound processor behind hair or headwear, in contrast to TICIs (an emerging technology) whereby all components are implanted internally and thus invisible. METHODS: This qualitative study involved semistructured interviews and demographic questionnaires with 12 adult participants with more than 1 year of experience using their CI. Participants were recruited Australia-wide through community organisations that support deaf and hard-of-hearing individuals. Interview transcripts were analysed thematically, with the themes generated through an inductive process, with consensus generated through group working with three members from the research team. RESULTS: Four major themes were identified: (1) CI challenges; (2) The importance of social and support networks; (3) Identity and disclosure and (4) Concerns about TICIs. The underlying finding was centred around the construction of deaf identity. Participant attitudes were generally categorised as 'Loud and proud', with the recognition that displaying the CI was an extension of self, something to be proud of, and a means to normalise deafness; or 'Out of sight and out of mind', which sought to minimise the visibility of deafness. While both identities differed in how deafness is disclosed, they are fundamentally related to the same ideas of self-agency and empowerment. CONCLUSION: TICIs present a novel opportunity-the ability for CI users to control the visibility of their deafness and thus control disclosure. This study explored the impact of stigma and categorised two core identities that CI users construct. Future directions include investigating potential CI candidates, to explore if TICIs may be a facilitator to CI uptake. PATIENT OR PUBLIC CONTRIBUTION: The semistructured interview guide was developed in consultation with adults with CIs. Feedback led to adjustments and improvement to the interview guide. In addition, F. R. has a lived experience with hearing loss, and C. Y. L. is an executive committee member for a nonprofit charity organisation that supports families that are D/deaf and hard-of-hearing.


Subject(s)
Cochlear Implants , Deafness , Qualitative Research , Quality of Life , Social Stigma , Humans , Male , Female , Cochlear Implants/psychology , Middle Aged , Deafness/psychology , Adult , Australia , Aged , Interviews as Topic , Surveys and Questionnaires
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