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1.
J Aging Soc Policy ; : 1-22, 2024 Apr 29.
Article in English | MEDLINE | ID: mdl-38683960

ABSTRACT

In the protests against the proposed judicial reform that began in early 2023 in Israel, the lack of participa• Policymakers should make efforts to reduce the socioeconomic gaps between older people from minority and majority groups.tion of Israeli Arabs, especially the absence of older Israeli Arabs, was noticeable. The purpose of the present study was to investigate the attitudes of older Israeli Arabs regarding the proposed judicial reform in Israel and to explore the reasons for their absence from the protests. Semi-structured interviews were conducted with 23 older Israeli Arabs. Thematic analysis revealed two main themes. The first pertained to the attitudes of this cohort in relation to the judicial reform. Participants unanimously opposed the judicial reform and believed it could seriously harm Israeli Arabs by increasing discrimination against them in employment, housing, and the receipt of social and health services. The second theme pertained to the reasons for Israeli Arabs' nonparticipation in the protests, which included: 1) perceiving the protests as an internal Jewish conflict; 2) being accustomed to discrimination; 3) a perceived lack of political efficacy 3) having concerns about openly expressing political positions; 4) being in poor health; and 5) being a woman. Our findings provide important insights regarding the barriers to participation in politics and decision-making processes among older people in minority groups.

2.
Int J Soc Psychiatry ; 70(4): 720-729, 2024 Jun.
Article in English | MEDLINE | ID: mdl-38312061

ABSTRACT

BACKGROUND: Mental health challenges are widespread among adolescents undergoing significant physical, emotional, social, and academic changes. However, rates of formal help-seeking remain low, particularly among those from ethnic minorities. AIMS: This study investigated the determinants of intentions to seek formal mental health help among Palestinian adolescents in Israel, focusing on mental health literacy (MHL) and trust in formal sources of information. METHODS: A total of 178 adolescents (Mage = 16.24 ± 1.24 years, 61.8% female) completed measures assessing intention for formal help-seeking, psychological distress, MHL, trust in formal sources of information, sociodemographic, and clinical characteristics. RESULTS: Findings revealed low levels of intention to seek formal help and psychological distress, alongside average or above-average levels on all MHL dimensions and trust in formal sources for information. Our analysis identified socioeconomic status (ß = .17, p < .05), psychological distress (ß = .18, p < .05), trust in formal sources of information (ß = .28, p < .001), and two MHL dimensions: knowledge of where to seek information (ß = .25, p < .01) and attitudes that promote recognition or appropriate help-seeking behavior (ß = .16, p < .05) - as the main determinants of intention for formal help-seeking. CONCLUSIONS: This study underscores the critical role of trust in formal sources of information and MHL in seeking formal help among adolescents from ethnic minorities. Interventions aiming to improve access to mental health-related information, address and enhance attitudes, and foster trust in formal professionals and institutions may contribute to an increased tendency for formal mental health help-seeking among this population and others.


Subject(s)
Arabs , Intention , Mental Health Services , Patient Acceptance of Health Care , Humans , Adolescent , Female , Male , Israel , Arabs/psychology , Patient Acceptance of Health Care/psychology , Mental Health , Trust , Health Literacy , Surveys and Questionnaires , Help-Seeking Behavior , Health Knowledge, Attitudes, Practice
3.
BMC Med Ethics ; 25(1): 15, 2024 02 07.
Article in English | MEDLINE | ID: mdl-38326778

ABSTRACT

BACKGROUND: Despite the great benefits of intelligent assistive technology (IAT) for dementia care - for example, the enhanced safety and increased independence of people with dementia and their caregivers - its practical adoption is still limited. The social and ethical issues pertaining to IAT in dementia care, shaped by factors such as culture, may explain these limitations. However, most studies have focused on understanding these issues within one cultural setting only. Therefore, the aim of this study was to explore and compare the attitudes of Israeli and German dementia experts toward IAT in dementia care, to contribute to a more cultural-comparative perspective. METHODS: Semi-structured interviews were conducted with 35 experts (15 Israelis and 20 Germans) in key roles in health and community services for people with dementia as well as in the fields of dementia and IAT (e.g., computer science, electrical/biomedical engineering, ethics, nursing, and gerontology). Thematic content analysis was used to analyze the data. FINDINGS: Israeli and German experts identified the same social accelerators in the development and implementation of IAT in dementia care (i.e., changes in family structure and social digitization) and benefits of adopting IAT (e.g., enhancing the safety of people with dementia and increasing their independence). However, there were differences in inhibitor/risk assessments between the two groups. Namely, economic considerations and the cognitive capacity of people with dementia were identified by both groups as inhibitors, while Israeli experts additionally reported stigma and ageism. Whereas both groups agreed that IAT might reduce human connection, and that the technology is not yet reliable enough, German experts highlighted concerns regarding privacy; in contrast, Israeli experts prioritized safety over privacy. CONCLUSIONS: Our research findings allow for the identification of relevant similarities but also important differences between German and Israeli experts' perspectives. As such, an important basis has been provided for a more in-depth discussion regarding where, why, and how culturally-sensitive technology development is needed.


Subject(s)
Dementia , European People , Self-Help Devices , Humans , Israel , Cross-Cultural Comparison , Dementia/therapy , Caregivers/psychology
4.
J Appl Gerontol ; 43(5): 527-535, 2024 May.
Article in English | MEDLINE | ID: mdl-38085273

ABSTRACT

Solastalgia is the pain caused by the loss of solace and isolation from one's environment. Solastalgia is contrasted with nostalgia, which is defined as melancholy characterized by homesickness or the distance from one's home. The present study examines the two concepts of solastalgia and nostalgia in the context of climate change among diverse populations of older Israelis. In total, 50 older persons from four different population groups (e.g., veteran Israeli Jews, Israeli Arabs, immigrants from the former Soviet Union, and Ethiopian immigrants) were interviewed. All interviews were transcribed and analyzed thematically. Members of all four groups expressed emotional distress and grief associated with the changing climate, increased environmental pollution, and the disappearance of nature. Perceptions around the undesirability of these changes were quite unanimous, thus leading us to conclude that the outcomes associated with solastalgia and nostalgia are quite similar despite different etiological explanations.


Subject(s)
Climate Change , Seasons , Aged , Aged, 80 and over , Humans , Israel
5.
J Cross Cult Gerontol ; 39(1): 73-88, 2024 Mar.
Article in English | MEDLINE | ID: mdl-38112907

ABSTRACT

The body of knowledge regarding dementia worry - people's sense of threat about developing dementia - is still limited. Additional studies are essential to better understand levels of dementia worry and its correlates, especially in cross-cultural contexts. To reach this goal, it is critical to use structured and valid measures to assess dementia worry and to verify these measures in different languages. Therefore, the aim of the current study was to evaluate the psychometric properties of the Hebrew version of the Modified Dementia Worry Scale (the H-MDWS). A cross-sectional study using an online survey was conducted with 368 Israeli laypeople who were 18 years of age or older (53% women, 76% Jewish, mean age = 40, average years of education = 14). In addition to the H-MDWS, participants were asked to report their fear of Alzheimer's disease (using a dichotomous single item), stigma, health anxiety, and demographic characteristics. Reliability analyses showed that the Cronbach's alpha for the H-MDWS was excellent (α = 0.95). The results of the factor analysis demonstrated that the scale has a unidimensional structure, explaining over 66% of the variance. In addition, we found significant correlations between fear of developing Alzheimer's disease, stigma, and health anxiety, on the one hand, and the H-MDWS on the other. The H-MDWS is a reliable and valid tool for assessing dementia worry. The validation of the tool not only allows expanding the body of knowledge related to dementia worry, but will also allow professionals and caregivers to identify people who are at risk of reporting dementia worry and develop interventions accordingly.


Subject(s)
Alzheimer Disease , Humans , Female , Adolescent , Adult , Male , Cross-Sectional Studies , Reproducibility of Results , Anxiety/diagnosis , Surveys and Questionnaires , Psychometrics
6.
Gerontologist ; 63(9): 1526-1535, 2023 10 17.
Article in English | MEDLINE | ID: mdl-35932468

ABSTRACT

BACKGROUND AND OBJECTIVES: Printed and social media, as well as professional and scholarly platforms, have extensively discussed the proliferation of ageism during the coronavirus disease 2019 (COVID-19) pandemic. However, no study has systematically examined the body of knowledge on the topic. Framed around the characteristics of ageism in general, the aim of this review was to identify and characterize the conceptual and methodological underpinnings of the global, peer-reviewed, and empirical literature on ageism during COVID-19. RESEARCH DESIGN AND METHODS: We conducted a scoping review in accordance with the Preferred Reporting Items for Systematic Reviews and Meta-Analyses (PRISMA) guidelines, using PubMed, CINAHL, AgeLine, and PsycINFO. Quantitative and/or qualitative, English-language, and peer-reviewed articles were included. Data were tabulated and synthesized. RESULTS: Thirty six articles examining ageism during the COVID-19 pandemic met inclusion criteria. Most were quantitative (64%) and cross-sectional (81%). The level, correlates, and consequences of ageism during the pandemic were similar to the ones reported before it. Studies about ageism during COVID-19 had similar conceptualization and measurement problems to those before the pandemic. DISCUSSION AND IMPLICATIONS: Empirical studies did not find ageism during COVID-19 to be a unique phenomenon, as suggested by the media. More theoretically sound and methodologically rigorous studies, using longitudinal designs and validated unique measures are needed to examine this unique phenomenon.


Subject(s)
Ageism , COVID-19 , Humans , COVID-19/epidemiology , Pandemics , Cross-Sectional Studies , Empirical Research
7.
Front Psychiatry ; 13: 864271, 2022.
Article in English | MEDLINE | ID: mdl-35360133

ABSTRACT

Background: Completing advance directives has been declared an essential instrument for preserving and respecting the autonomy and preferences for end-of-life care of people living with dementia. However, research deciphering the reasoning behind the decision to complete or not advance directives in the case of dementia remains limited, especially among people pertaining to different majority/minority groups. Objectives: To explore the motivations of people without dementia in Israel to complete or not to complete advance directives and to compare these motivations among the majority veteran Jewish group, the minority Jewish Former Soviet Union immigrant group, and the minority Arab group. Methods: This qualitative study used purposive sampling and focus groups with discussions elicited by a vignette. A total of 42 Israeli people without dementia participated in 6 focus groups: two with veteran Jews (n = 14), two with Jewish immigrants from the Former Soviet Union (n = 14), and two with Arabs (n = 14). The analysis followed recommended steps for thematic content analysis. Results: Four overarching themes were identified: (1) the meaning of dementia-related advance directives, (2) motivations for willingness to complete advance directives, (3) motivations for not being willing to complete advance directives, and (4) ethical dilemmas. Some of the themes were common to all groups, while others were informed by the groups' unique characteristics. Participants displayed a lack of knowledge and misunderstanding about advance directives, and central concepts such as autonomy and competence. Furthermore, stigmatic images of dementia and of the person with the diagnosis were associated to participants' motivations to complete advance directives. Conclusions: There is need to expand comparative research among culturally and socially similar and dissimilar groups within a country as well as between countries in order to better guide public health efforts to increase the rates of advance directives completion. Special attention should be paid to decreasing stigmatic beliefs and understanding unique cultural values and motivations.

8.
Arch Gerontol Geriatr ; 101: 104699, 2022.
Article in English | MEDLINE | ID: mdl-35413610

ABSTRACT

OBJECTIVES: Over the past decade, the idea has been promoted that intelligent assistive technology (IAT) can empower people with dementia. As a new area of inquiry, however, the concept of empowerment and the impact of IAT in this context are still unclear. Therefore, we conducted a scoping review to examine the conceptualizing and measuring of empowerment, as well as to understand the impact of IAT on empowering people with dementia in the existing studies. DESIGN: A scoping review was performed in accordance with the Preferred Reporting Items for Systematic Reviews and Meta-Analyses (PRISMA) guidelines, using the following databases: Pubmed, Cochrane Library, Web of Science, and Science Direct. In addition, a manual search was also conducted in Google Scholar to identify further articles. RESULTS: A total of 28 articles examining the empowerment of people with dementia via IAT met the inclusion criteria. Most had a cross-sectional (43%) or interventional/experimental design (39%). A little more than half (54%) were qualitative studies. We observed inconsistencies in the conceptualization and measurement of the concept of empowerment in the included studies; as such, the exact role of IAT in this context remains somewhat unclear. However, most of the studies suggest that IAT can empower people with mild/moderate dementia by enhancing their capacity to live more independently with privacy for a longer period of time. CONCLUSIONS: Future research should focus on developing a clear definition of the concept of empowerment, as well as developing a reliable and valid tool for measuring it.


Subject(s)
Dementia , Self-Help Devices , Cross-Sectional Studies , Humans , Power, Psychological , Qualitative Research
9.
Maturitas ; 157: 1-6, 2022 03.
Article in English | MEDLINE | ID: mdl-35120667

ABSTRACT

OBJECTIVES: The COVID-19 pandemic has provided a rich environment for ageist attitudes towards both older and younger people. However, publications on ageism during the outbreak have been mostly non-empirical and have concentrated on ageist beliefs directed towards older people. To overcome these limitations, we examined empirically the prevalence and the determinants of ageism towards older and younger people in the wake of COVID-19. STUDY DESIGN: A cross-sectional study using an online survey was conducted with 503 Israeli adults (51.9% male, 79.5% Jews, mean age 47 years). MAIN MEASURES: We used a structured questionnaire that measured the following: COVID-19 ageism towards older people, COVID-19 ageism towards younger people, stereotyping, the experience of discrimination, perceived fears about contracting COVID-19, subjective knowledge about COVID-19, and sociodemographic characteristics. RESULTS: Overall, participants reported a relatively low level of COVID-19 ageism towards older people but a significantly higher level of COVID-19 ageism towards younger people. Hierarchical regressions revealed that negative age stereotypes were the most important determinants of both types of ageism. Sociodemographic variables (including age and majority/minority) were significant determinants only for COVID-19 ageism towards older people. That is, older and Jewish participants reported lower levels of this type of ageism. CONCLUSIONS: Our findings demonstrate that negative age-related stereotypes have played a central role in ageist beliefs towards both older and younger people during the COVID-19 crisis. It is recommended that the public and scientific media start disseminating messages aimed at reducing rather than increasing negative stereotypes directed towards younger and older people.


Subject(s)
Ageism , COVID-19 , Aged , Aging , Cross-Sectional Studies , Female , Humans , Male , Pandemics , SARS-CoV-2
11.
Dementia (London) ; 21(3): 751-764, 2022 Apr.
Article in English | MEDLINE | ID: mdl-35094588

ABSTRACT

OBJECTIVES: Providing care for family members of individuals with dementia can be accompanied by a myriad of emotions, usually involving negative as well as positive feelings, or "ambivalent feelings." Recent studies conducted among family caregivers of people with dementia have shown ambivalent feelings to be associated with serious psychological consequences, such as increased depression. However, little is known about the path leading from ambivalent feelings to depression. Thus, the aim of this study was to examine the interplay of ambivalent feelings and depression with family caregivers' psychosocial resources-that is, their coping strategies and social support. METHODS: A cross-sectional study using face-to-face interviews (via structured questionnaire) was conducted with 175 Israeli Arab family caregivers (adult children and spouses) of elderly people with Alzheimer's disease (87.4% female; 72% adult children; mean age = 54.28). RESULTS: Overall, the participants reported a mild level of depression (mean = 7.93; SD = 4.30; range 0-15) and a moderate level of ambivalent feelings (mean = 1.63; SD = 1.04; range 0-3). Additionally, as expected, ambivalent feelings made a unique-although modest-contribution, adding an additional 6% (p < 0.001) to the explanation of depression (R2 = 0.56, p<0.001). Whereas, neither problem-focused coping nor emotion-focused coping played a significant role in mediating the relationship between ambivalent feelings and depression, social support did mediate the relationship between these variables. CONCLUSIONS: Our findings show that strengthening and expanding social networks among Israeli caregivers of people with Alzheimer's disease can minimize the impact of experiences of emotional feelings on depression.


Subject(s)
Alzheimer Disease , Dementia , Adult , Aged , Female , Humans , Male , Middle Aged , Adaptation, Psychological , Alzheimer Disease/psychology , Arabs , Caregivers/psychology , Cross-Sectional Studies , Dementia/psychology , Depression , Emotions , Israel , Adult Children
12.
Aging Ment Health ; 26(8): 1597-1603, 2022 08.
Article in English | MEDLINE | ID: mdl-33904814

ABSTRACT

OBJECTIVES: Many studies have attempted to identify the factors that are associated with caregiver burden among family caregivers of people with Alzheimer's disease (AD), because of its plethora of negative consequences. One unique factor that has been investigated recently is family stigma. However, the path leading from family stigma to caregiver burden has not been thoroughly studied. Hence, this study had two main objectives. The first was to examine whether family stigma was a predictor of caregiver burden among Israeli Arab family caregivers of a person with AD. The second was to examine the interplay of family stigma and caregiver burden with coping strategies and social support. METHODS: Structured face-to-face interviews were conducted with 175 Israeli Arab family caregivers (adult children and spouses) of elderly people with AD (87.4% female; 71.4% adult children; mean age = 54.28). RESULTS: Overall, the participants reported moderate levels of caregiver burden and family stigma. Additionally, as expected, family stigma made a unique - although modest - contribution to the explanation of caregiver burden. Whereas neither problem-focused coping nor emotion-focused coping played a significant role in mediating the relation between family stigma and caregiving burden, social support did mediate the relation between these variables. CONCLUSIONS: Our findings reveal how social support is important as a specific way to reduce the impact of family stigma on caregiver burden.


Subject(s)
Alzheimer Disease , Caregivers , Adaptation, Psychological , Aged , Arabs , Caregiver Burden , Female , Humans , Israel , Male , Social Support
13.
J Aging Stud ; 59: 100982, 2021 Dec.
Article in English | MEDLINE | ID: mdl-34794709

ABSTRACT

Background There is no doubt that people with dementia can greatly benefit from the COVID-19 vaccine, especially as they are at an increased risk of developing severe complications, including long hospitalizations and high mortality rates, as a result of being infected by the virus. However, they might need the encouragement of health professionals to become vaccinated. Professionals' preferences regarding vaccination for this group are, therefore, extremely important to increase the use of this preventive measure. Aims 1. To examine hospital staff members' preferences for COVID-19 vaccination to people with or without Alzheimer's disease (AD) while differentiating between a young and an old person with the disease. 2. To examine the factors associated with these preferences. Methods A cross-sectional survey using a structured and anonymous self-report questionnaire was conducted among a sample of 278 Israeli medical staff (nurses, physicians, and paraprofessionals) working at a general hospital. The data were collected in August 2021. Results Overall, the majority (68.4%) of participants chose the 80-year-old patient with a diagnosis of AD to be the last to receive the vaccine. The percentage of participants who preferred to give the vaccine first to the 55-year-old patient with AD was almost equal to the percentage of those who preferred giving the vaccine first to the 80-year-old patient who was cognitively intact. Religion and beliefs about susceptibility to contracting COVID-19 were significantly associated with participants' preferences. Conclusion Our results suggest that hospital staff members find it difficult to decide whether age or cognitive status should be the main factor in deciding which patient should receive the vaccine first. Therefore, there is a need to implement several policy and practical steps in hospitals to assist the medical staff in such decision-making processes.


Subject(s)
Alzheimer Disease , COVID-19 , Vaccines , Aged, 80 and over , COVID-19 Vaccines , Cross-Sectional Studies , Humans , Personnel, Hospital , SARS-CoV-2
14.
Geriatr Nurs ; 42(4): 787-791, 2021.
Article in English | MEDLINE | ID: mdl-34090221

ABSTRACT

The COVID 19 pandemic has led to an increase in the number of patients in need of ventilation. Limitations in the number of respirators may cause an ethical problem for the medical and nursing staff in deciding who should be connected to the available respirators.  We conducted a cross-sectional survey among a convenience sample of 278 healthcare professionals at one medical center. They were asked to rank their preference in respirator allocation to three COVID-19 patients, one 80 years old with no cognitive illness, one 50 years old with Alzheimer's disease (AD), and one 80 years old with AD. Most respondents (75%) chose the 80-year-old AD patient as last preference, but were evenly divided on how to rank the other two patients. Medical staff have difficulty deciding whether age or cognitive status should be the deciding factor ventilator allocation. Determination of a set policy would help professionals with these decisions.


Subject(s)
Alzheimer Disease/complications , COVID-19/therapy , Health Care Rationing/methods , Personnel, Hospital/psychology , Ventilators, Mechanical , Aged, 80 and over , COVID-19/epidemiology , Choice Behavior , Cross-Sectional Studies , Humans , Pandemics , SARS-CoV-2
15.
Article in English | MEDLINE | ID: mdl-33916152

ABSTRACT

The present study aimed to assess dementia caregivers' reports of the prevalence and correlates of forgone care regarding visits to a general practitioner (GP) and to a specialist during the COVID-19 lockdown in Israel, using Andersen's Behavioral Model of Healthcare Utilization. A cross-sectional study using an online survey was conducted with 73 Israeli family caregivers of persons with dementia residing in the community (81% Jews, 86% female, mean age = 54). Overall, one out of two participants reported having to delay seeking needed help from a GP or a specialist for themselves, as well as for their relatives with dementia, during the COVID-19 lockdown period. Among the predisposing factor, education was associated with caregivers' reports regarding forgone care for themselves as well as for their loved ones. Living with the care-receiver and income level were the enabling factors associated with forgone care for caregivers. Finally, feelings of burden were associated with caregivers' forgone care and feelings of loneliness and perceptions of the care-receiver's cognitive functioning were associated with care-receivers' forgone care. Our findings show that it is essential that this population receive appropriate practical and emotional support at times of distress and crisis to enable them to continue with their caregiving role.


Subject(s)
COVID-19 , Dementia , General Practitioners , Caregivers , Communicable Disease Control , Cross-Sectional Studies , Family , Female , Humans , Israel , Male , Middle Aged , SARS-CoV-2 , Specialization
16.
J Aging Stud ; 56: 100910, 2021 Mar.
Article in English | MEDLINE | ID: mdl-33712095

ABSTRACT

Providing care to people with Parkinson's disease (PD) poses challenges for family carers, including experiencing stigmatic beliefs -i.e., family stigma. However, to the best of our knowledge, there is no empirical study examining the stigmatic experiences of family members of people with PD. This was the aim of the present study. Three focus groups with 22 Israeli spouses of people with PD were conducted. Data were analyzed using theory-led thematic analysis. Overall, the spouses in our study shared mainly experiences of the stigma attached to the illness and/or to their loved ones, and not to themselves as carers. Three major themes emerged: the stereotypes that typify PD, stigmatizing behaviors towards the person with the disease, and structural stigma. Our findings highlight the profound stigma confronting carers of persons with PD, particularly when it comes to structural stigma.


Subject(s)
Caregivers , Parkinson Disease , Family , Humans , Perception , Spouses
17.
Aging Ment Health ; 25(4): 749-755, 2021 04.
Article in English | MEDLINE | ID: mdl-31957480

ABSTRACT

Objectives: Providing care for family members with Alzheimer's disease (AD) might awaken ambivalent feelings in caregivers. This topic, however, has received little research attention. Having reliable and valid scales is a first step in expanding our knowledge in this area, particularly among different cultural groups, as ambivalent emotions have been found to be dependent on culture. Thus, the aims of this study were (1) to test the reliability and validity of the Caregiving Ambivalence Scale (CAS) among Israeli Jewish and Arab caregivers of individuals with AD and (2) to examine the contribution of caregivers' ethnocultural affiliation (Jewish/Arab) to the experience of ambivalent feelings.Methods: Structured face-to-face interviews were conducted with 370 family caregivers (adult children and spouses) of elderly people with AD. Approximately half of the participants (55.3%) were Israeli Jews (79.5% female; 61.3% adult children; mean age = 65.52), and the rest (44.7%) were Israeli Arabs (87.4% female; 72% adult children; mean age = 54.28).Results: Our findings indicated that the CAS has good-to-excellent internal reliability and validity both in Hebrew and Arabic. Additionally, as expected, ethnocultural affiliation (Jewish/Arab) made a unique - although modest - contribution to the explanation of ambivalence as reflected in the CAS score, with Arab caregivers reporting significantly higher levels of ambivalent feelings than did Jewish caregivers.Conclusions: The CAS is a reliable and valid structured measure to assess ambivalent feelings among Arab and Jewish caregivers of individuals with AD in Israel. Cultural context is a unique factor in understanding their mixed emotions.


Subject(s)
Alzheimer Disease , Caregivers , Aged , Arabs , Female , Humans , Israel , Jews , Male , Reproducibility of Results
18.
Int Psychogeriatr ; 33(10): 1019-1034, 2021 10.
Article in English | MEDLINE | ID: mdl-33046144

ABSTRACT

OBJECTIVES: Alzheimer's disease (AD), the most common type of dementia, is one of the most feared diseases, obstructing help-seeking, and leading to discrimination. While research interest in fear of developing AD is increasing, little is known about its characterization, triggers, and consequences, especially among different cultures. In this study, we aimed at exploring and characterizing AD fear as experienced by laypersons (LP), persons with Mild Neurocognitive Disorder (MND), and their relatives, in Israel and Germany. DESIGN: A qualitative study using focus groups (FGs) and semi-structured interviews was used. Thematic content analysis was conducted to extract key themes. SETTING: Israeli and German not yet diagnosed people. PARTICIPANTS: The study included a total of 130 participants (63 Israeli and 67 German participants) representing 3 groups: LP (n = 82), persons with MND (n = 28), and relatives of persons with MND (n = 20). RESULTS: Two overarching themes were identified across groups and countries: fear of developing AD and fear of stigmatization. Other types of fear, such as fear of a person with AD, fear about the impact of a diagnosis of AD on family members, fear of becoming a caregiver, and fear of losing one's self-determination because of developing AD, were specific to a group type or country. Different types of fear were awakened by different triggers, and were dealt with different coping strategies.


Subject(s)
Alzheimer Disease , Cognitive Dysfunction , Alzheimer Disease/diagnosis , Caregivers , Fear , Humans , Qualitative Research
19.
Arch Gerontol Geriatr ; 92: 104246, 2021.
Article in English | MEDLINE | ID: mdl-32980573

ABSTRACT

PURPOSE: The combination of a growing population of older adults and increasing prevalence and awareness of dementia diagnoses suggests that dementia worry may also intensify. As a relatively new area of investigation, the dementia worry literature is growing, but variability in definitions and measurement continue. A scoping review was conducted to gather and examine existing research, as well as assist in guiding future studies in this area. The review focused on characterizing the conceptualization, measurement, and correlates of dementia worry. METHODS: Using PubMed, CINAHL, AgeLine, and PsycINFO, a search of literature concerning dementia worry was completed. RESULTS: A total of 45 articles examining dementia worry fulfilled the inclusion criteria. Most studies were cross-sectional (n = 39), quantitative (n = 38), and conducted in the United States (n = 22). Inconsistencies in the conceptualization, measurement, and correlates examined make it difficult to determine the meaning and true levels of dementia worry. CONCLUSIONS: Recent attention to dementia worry has increased awareness of the basic concept and its correlates. However, the lack of unity in the definition and measurement of dementia worry impedes advancement in this research area, as well as in establishing its clinical significance.


Subject(s)
Concept Formation , Dementia , Aged , Cross-Sectional Studies , Dementia/diagnosis , Dementia/epidemiology , Humans
20.
J Nurs Manag ; 29(3): 584-590, 2021 Apr.
Article in English | MEDLINE | ID: mdl-33051924

ABSTRACT

AIM: To validate the Hebrew version of the Person-Centered Care of Older People with Cognitive Impairment in the Acute Care scale. BACKGROUND: The Person-Centered Care of Older People with Cognitive Impairment in Acute Care scale is a reliable and valid measure to assess the extent to which person-centred care among people with dementia is adopted in the acute care setting. METHODS: A cross-sectional study using a self-reporting structured questionnaire was conducted with 678 professionals (69% nurses, 26% physicians, 5% other health care professionals) in five hospitals across Israel. RESULTS: Similar to other languages, best results were obtained using 14 of the 15 items included in the original scale. Confirmatory factor analysis indicated the appropriateness of a three-factor structure for the Hebrew version of the scale. Cronbach's alpha scores for these factors were moderate to good. CONCLUSIONS: The Hebrew version of the scale is a reliable and valid tool for assessing hospital professionals' perceptions of person-centred care. IMPLICATIONS FOR NURSING MANAGEMENT: A new language validated version of the scale will allow nurse managers to learn from multiple countries' experience while conducting international comparisons. Such developments will improve and expand the implementation of the person-centred care among people with dementia in hospital settings.


Subject(s)
Cognitive Dysfunction , Language , Aged , Cross-Sectional Studies , Humans , Israel , Patient-Centered Care , Psychometrics , Surveys and Questionnaires
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