ABSTRACT
BACKGROUND: Narrative data about the patient experience of surgery can help healthcare professionals and administrators better understand the needs of patients and their families as well as provide a foundation for improvement of procedures, processes and services. However, units often lack a methodological framework to analyse these data empirically and derive key areas for improvement. The American College of Surgeons National Surgical Quality Improvement Program (ACS NSQIP) is aimed at improving the quality of surgical care by collecting patient data and reporting risk-adjusted surgical outcomes for each participant hospital in the programme. Though qualitative data about patient experience are captured as part of the NSQIP database, to date no framework or methodology has been proposed, or reported on, to analyse these data for the purposes of quality improvement. The goal of this study was to demonstrate the feasibility of using content analysis to empirically derive key areas for quality improvement from a sample of 3601 narrative comments about paediatric surgery from patients and families at British Columbia Children's Hospital. STUDY DESIGN: Thematic content analysis conducted on a total of 3601 patient and family narratives received between 2011 and 2018. RESULTS: Overall satisfaction with care was high and experiences with healthcare providers at the hospital were positive. Areas for improvement were identified in the themes of health outcomes, communication and surgery timelines. Results informed follow-up interprofessional quality improvement initiatives. CONCLUSIONS: Recording and analysing patient experience data as part of validated quality improvement programmes such as ACS NSQIP can provide valuable and actionable information to improve quality of care.
Subject(s)
Patient Satisfaction , Quality of Health Care/standards , Surgical Procedures, Operative/standards , Adolescent , British Columbia , Child , Child, Preschool , Female , Humans , Male , Outcome Assessment, Health Care/statistics & numerical data , Pediatrics/methods , Pediatrics/standards , Pediatrics/statistics & numerical data , Qualitative Research , Quality Improvement/statistics & numerical data , Quality of Health Care/statistics & numerical data , Surgical Procedures, Operative/statistics & numerical dataABSTRACT
We describe a woman who presented with cataracts, optic atrophy, lipodystrophy/lipoatrophy, and peripheral neuropathy. Exome sequencing identified a c.235C > G p.(Leu79Val) variant in the optic atrophy 3 (OPA3) gene that was confirmed to be de novo. This report expands the severity of the phenotypic spectrum of autosomal dominant OPA3 mutations.