Critical Time Intervention - Task-Shifting for Individuals with Psychosis in Latin America: A Multi-stakeholder Qualitative Analysis of Implementation Barriers and Facilitators.

This article presents the results of a qualitative study conducted to understand the barriers and facilitators in implementing a pilot trial of Critical Time Intervention-Task-Shifting-a time-limited, community-based, recovery-oriented intervention for individuals with psychosis-in Rio de Janeiro, Brazil, and Santiago, Chile. Data included 40 semi-structured interviews with service users, task-shifting providers, and administrators. Analysis proceeded in three iterative phases and combined inductive and deductive approaches. Coding frameworks for implementation factors, and whether or not they acted as barriers and facilitators, were developed and refined using many domains and constructs from the Consolidated Framework for Implementation Research. Barriers and facilitators were ultimately grouped into five domains: 1-Personal; 2-Interpersonal; 3-Intervention; 4-Mental Health System; and 5-Contextual. A rating system was also developed and applied, which enabled comparisons across stakeholders and study sites. Major facilitators included intervention characteristics such as the roles of the task-shifting providers and community-based care. Top barriers included mental health stigma and community conditions (violence). Nevertheless, the findings suggest that Critical Time Intervention-Task-Shifting is largely acceptable and feasible, and could contribute to efforts to strengthen community mental health systems of care for individuals with psychosis in Latin America, especially in advancing the task-shifting strategy and the recovery-oriented approach.

Prevalence of self-reported depression in Brazil: National Health Survey 2019 and 2013. / Prevalência de depressão autorreferida no Brasil: Pesquisa Nacional de Saúde 2019 e 2013.

OBJECTIVE: To describe the prevalence of self-reported depression among Brazilian adults in the 2019 National Health Survey (PNS) and compare to the 2013 PNS. METHODS: Cross-sectional study of Brazilian adults using data from the 2019 and 2013 PNS. Prevalence and 95% confidence intervals (95%CI) of self-reported depression were estimated by region and demographic characteristics. Bivariate analyses were conducted using chi-squared tests. RESULTS: There were 90,846 participants aged ≥ 18 years in 2019, and 60,202 in 2013. Between 2013 and 2019, prevalence of self-reported depression increased from 7.6% (95%CI 7.2;8.1) to 10.2% (95%CI 9.9;10.6) and of individuals who sought healthcare, from 46.4% (95%CI 43.8;49.1) to 52.8% (95%CI 50.7;55.0). Private clinics were the main source of healthcare. CONCLUSION: Depression is highly prevalent in Brazil. Prevalence of diagnosis of depression and use of health services increased in the studied period. The predominance of care in private clinics suggests inequalities in the improvement of mental healthcare coverage.

A Recovery-Oriented Intervention for People With Psychosis: A Pilot Randomized Controlled Trial.

OBJECTIVE: This pilot randomized controlled trial evaluated the effectiveness of critical time intervention-task shifting (CTI-TS) for people with psychosis in Santiago, Chile, and Rio de Janeiro. CTI-TS is a 9-month intervention involving peer support workers and is designed to maintain treatment effects up to 18 months. METHODS: A total of 110 people with psychosis were recruited when they enrolled in community mental health clinics (Santiago, N=60; Rio de Janeiro, N=50). Participants within each city were randomly assigned to either CTI-TS or usual care for 9 months. Primary outcomes were quality of life, measured with the World Health Organization Quality of Life Assessment-Brief Version (WHOQOL-BREF), and unmet needs, measured with the Camberwell Assessment of Need (CAN), at 18-month follow-up. Results were analyzed according to intention-to-treat guidelines. Generalized estimating equations, with observations clustered within cities, and multiple imputation for missing data were used. RESULTS: At 18 months, both groups showed improved primary outcomes. In both unadjusted and fully adjusted analyses, no significant differences between CTI-TS and usual care (WHOQOL-BREF question on quality of life and CAN mean number of unmet needs) were found. CONCLUSIONS: Three factors might explain the lack of difference between CTI-TS and usual care: first-contact enrollment precluded rapport prior to randomization, a minority of patients were uncomfortable with peers being on the treatment team, and primary outcome measures may not have been sensitive enough to capture the effects of a recovery-oriented intervention. The results have implications for the design of transitional services for people with psychosis, especially in Latin America.

Prevalência de depressão autorreferida no Brasil: Pesquisa Nacional de Saúde 2019 e 2013 / Prevalencia de depresión autoinformada en Brasil: Encuesta Nacional de Salud 2019 y 2013 / Prevalence of self-reported depression in Brazil: National Health Survey 2019 and 2013

Objetivo: Descrever a prevalência de depressão autorreferida na população brasileira adulta a partir da Pesquisa Nacional de Saúde (PNS) 2019, e comparar com a PNS 2013. Métodos: Estudo transversal descritivo no qual se calcularam prevalências de diagnóstico autorreferido de depressão, segundo localidade e variáveis demográficas, e intervalos de confiança de 95% (IC95%). Análises bivariadas foram realizadas com teste qui-quadrado. Resultados: Participaram 90.846 indivíduos com idade ≥ 18 anos, na PNS 2019, e 60.202, na PNS 2013. Entre 2013 e 2019, as prevalências de depressão autorreferida aumentaram de 7,6% (IC95% 7,2;8,1) para 10,2% (IC95% 9,9;10,6), e de busca por atendimento nos últimos 12 meses anteriores à entrevista, de 46,4% (IC95% 43,75;49,1) para 52,8% (IC95% 50,7;55,0). Consultórios privados foram o principal local de assistência. Conclusão: A depressão é um transtorno altamente prevalente. O diagnóstico de depressão e a busca por atendimento aumentaram no período. Entretanto, o predomínio de atendimentos em consultórios privados sugere desigualdades na melhoria da cobertura assistencial.

Objetivo: Describir la prevalencia de depresión autoinformada en la población adulta brasileña en la Encuesta Nacional de Salud (PNS) 2019 y compararla con la PNS 2013. Métodos: Estudio descriptivo donde se calcularon prevalencias del diagnóstico autoinformado de depresión e intervalos de confianza del 95% (IC95%) según localización y variables demográficas. Análisis bivariados se realizaron mediante la prueba chi-cuadrado. Resultados: Participaron 90.846 individuos en edad ≥ 18 años en la PNS 2019, y 60.202 en 2013. Entre 2013 y 2019, la prevalencia de diagnóstico autoinformado de depresión aumentó de 7,6% (IC95% 7,2;8,1) a 10,2% (IC95% 9,9;10,6) y búsqueda de atención del 46,4% (IC95% 43,75;49,1) a 52,8% (IC95% 50,7;55,0). Oficinas privadas fueron el principal lugar de asistencia. Conclusión: La depresión es un trastorno altamente prevalente. La prevalencia de diagnóstico de depresión y búsqueda de atención aumentaron en el período. El predominio de la atención en oficinas privadas sugiere desigualdades en la mejora de la cobertura de atención.

Objective: To describe the prevalence of self-reported depression among Brazilian adults in the 2019 National Health Survey (PNS) and compare to the 2013 PNS. Methods: Cross-sectional study of Brazilian adults using data from the 2019 and 2013 PNS. Prevalence and 95% confidence intervals (95%CI) of self-reported depression were estimated by region and demographic characteristics. Bivariate analyses were conducted using chi-squared tests. Results: There were 90,846 participants aged ≥ 18 years in 2019, and 60,202 in 2013. Between 2013 and 2019, prevalence of self-reported depression increased from 7.6% (95%CI 7.2;8.1) to 10.2% (95%CI 9.9;10.6) and of individuals who sought healthcare, from 46.4% (95%CI 43.8;49.1) to 52.8% (95%CI 50.7;55.0). Private clinics were the main source of healthcare. Conclusion: Depression is highly prevalent in Brazil. Prevalence of diagnosis of depression and use of health services increased in the studied period. The predominance of care in private clinics suggests inequalities in the improvement of mental healthcare coverage.

Implementation of a pilot community-based psychosocial intervention for patients with psychoses in Chile and Brazil: a comparative analysis of users' perspectives.

BACKGROUND: Few studies provide clear rationale for and the reception of adaptations of evidence-based interventions. To address this gap, we describe the context-dependent adaptations in critical time intervention-task shifting (CTI-TS), a manualized recovery program for individuals with psychosis in Rio de Janeiro, Brazil and Santiago, Chile. Implications of the adaptations - incorporating a task-shifting approach and modifying the mode of community-based service delivery - are examined from users' perspectives. METHODS: A secondary analysis of in-depth interviews with CTI-TS users (n = 9 in Brazil; n = 15 in Chile) was conducted. Using the framework method, we thematically compared how participants from each site perceived the main adapted components of CTI-TS. RESULTS: Users of both sites appreciated the task-shifting worker pair to provide personalized, flexible, and relatable support. They wanted CTI-TS to be longer and experienced difficulty maintaining intervention benefits in the long-term. In Chile, stigma and a perceived professional hierarchy toward the task-shifting providers were more profound than in Brazil. Engagement with community-based services delivery in homes and neighborhoods (Chile), and at community mental health centers (Brazil) were influenced by various personal, familial, financial, and social factors. Uniquely, community violence was a significant barrier to engagement in Brazil. CONCLUSION: CTI-TS' major adaptations were informed by the distinct mental health systems and social context of Santiago and Rio. Evaluation of user experiences with these adaptations provides insights into implementing and scaling-up task-shifting and community-oriented interventions in the region through the creation of specialized roles for the worker pair, targeting sustained intervention effects, and addressing socio-cultural barriers.

Implementing the protocol of a pilot randomized controlled trial for the recovery-oriented intervention to people with psychoses in two Latin American cities.

Several Latin American countries have made remarkable strides towards offering community mental health care for people with psychoses. Nonetheless, mental health clinics generally have a very limited outreach in the community, tending to have weaker links to primary health care; rarely engaging patients in providing care; and usually not providing recovery-oriented services. This paper describes a pilot randomized controlled trial (RCT) of Critical Time Intervention-Task Shifting (CTI-TS) aimed at addressing such limitations. The pilot RCT was conducted in Santiago (Chile) and Rio de Janeiro (Brazil). We included 110 people with psychosis in the study, who were recruited at the time of entry into community mental health clinics. Trial participants were randomly divided into CTI-TS intervention and usual care. Those allocated to the intervention group received usual care and, in addition, CTI-TS services over a 9-month period. Primary outcomes include quality of life (WHO Quality of Life Scale - Brief Version) and unmet needs (Camberwell Assessment of Needs) at the 18-month follow-up. Primary outcomes at 18 months will be analyzed by Generalized Estimating Equations (GEE), with observations clustered within sites. We will use three-level multilevel models to examine time trends on the primary outcomes. Similar procedures will be used for analyzing secondary outcomes. Our hope is that this trial provides a foundation for planning a large-scale multi-site RCT to establish the efficacy of recovery-oriented interventions such as CTI-TS in Latin America.

Implementing the protocol of a pilot randomized controlled trial for the recovery-oriented intervention to people with psychoses in two Latin American cities / Implementação de um protocolo para um estudo piloto randomizado e controlado sobre uma intervenção voltada para a recuperação em pessoas com psicoses em duas cidades latino-americanas / Implementando un protocolo para una prueba piloto controlada aleatorizada en una intervención orientada a la recuperación de personas con psicosis en dos ciudades latinoamericanas

Several Latin American countries have made remarkable strides towards offering community mental health care for people with psychoses. Nonetheless, mental health clinics generally have a very limited outreach in the community, tending to have weaker links to primary health care; rarely engaging patients in providing care; and usually not providing recovery-oriented services. This paper describes a pilot randomized controlled trial (RCT) of Critical Time Intervention-Task Shifting (CTI-TS) aimed at addressing such limitations. The pilot RCT was conducted in Santiago (Chile) and Rio de Janeiro (Brazil). We included 110 people with psychosis in the study, who were recruited at the time of entry into community mental health clinics. Trial participants were randomly divided into CTI-TS intervention and usual care. Those allocated to the intervention group received usual care and, in addition, CTI-TS services over a 9-month period. Primary outcomes include quality of life (WHO Quality of Life Scale - Brief Version) and unmet needs (Camberwell Assessment of Needs) at the 18-month follow-up. Primary outcomes at 18 months will be analyzed by Generalized Estimating Equations (GEE), with observations clustered within sites. We will use three-level multilevel models to examine time trends on the primary outcomes. Similar procedures will be used for analyzing secondary outcomes. Our hope is that this trial provides a foundation for planning a large-scale multi-site RCT to establish the efficacy of recovery-oriented interventions such as CTI-TS in Latin America.

Diversos países latino-americanos já alcançaram avanços notáveis na oferta de assistência em saúde mental para pessoas com psicoses. No entanto, as clínicas de saúde mental geralmente realizam atividades de extensão muito limitadas dentro das comunidades, tendem a ter vínculos fracos com a assistência primária, raramente envolvem os próprios pacientes nos cuidados e poucas vezes prestam serviços orientados para a recuperação. O artigo descreve um estudo piloto randomizado e controlado sobre a Critical Time Intervention-Task Shifting (CTI-TS), que teve como objetivo analisar essas limitações. O estudo piloto foi realizado em Santiago (Chile) e no Rio de Janeiro (Brasil). Teve como meta a inclusão de 110 pessoas com psicose, recrutadas no momento da entrada em clínicas comunitárias de saúde mental. Os participantes foram randomizados para o CTI-TS ou para os cuidados usuais. Aqueles alocados ao grupo da intervenção receberam os cuidados usuais e os serviços de CTI-TS ao longo de 9 meses. Os desfechos primários incluíram a qualidade de vida (WHO Quality of Life Scale - Brief Version) e as necessidades não atendidas (Camberwell Assessment of Needs) no acompanhamento aos 18 meses. Os desfechos primários aos 18 meses serão analisados com a técnica de Equações de Estimação Generalizadas (GEE), com as observações agrupadas dentro dos locais do estudo. Serão utilizados modelos em três níveis para examinar as tendências temporais nos desfechos primários. Procedimentos semelhantes serão utilizados para analisar os resultados secundários. Espera-se que o estudo forneça uma base para planejar um estudo randomizado e controlado em grande escala e em múltiplos locais para estabelecer a eficácia da intervenção orientada para a recuperação, a exemplo da CTI-TS, na América Latina.

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Deinstitutionalization of long stay patients in a psychiatric hospital in Rio de Janeiro. / Desinstitucionalização de pacientes de longa permanência de um hospital psiquiátrico no Rio de Janeiro.

Critical Time Intervention (CTI) is a time-limited mental health intervention offered to people with mental disorders during critical/transition periods. This study assesses the impact of CTI-BR on social performance and quality of life within a population in the process of deinstitutionalization, after long-term hospitalization in a psychiatric institution. The study population was split into two groups, one of which received CTI plus the regular care. Results showed no advantage of the intervention compared to the regular programs provided by the institution. When study participants are analyzed as a group, we found positive improvement regarding their social functioning and self-perception of their mental-health. Results show that it is possible for elderly patients discharged from long-term psychiatric care to live in residential facilities in the community, supervised by clinical teams.

Methodological challenges in the use of focus groups with people with severe mental illness.

This study addresses the practical, methodological and ethical challenges that were found in three studies that used focus groups with people with severe mental illness, in the context of community mental health services in Brazil. Focus groups are a powerful tool in health research that need to be better discussed in research with people with severe mental illness, in the context of community mental health facilities. This study is based on the authors' experience of conducting and analyzing focus groups in three different cities - Campinas, Rio de Janeiro and Salvador - between 2006-2010. The implementation of focus groups with people with severe mental illness is discussed in the following categories; planning, group design, sampling, recruitment, group interview guides, and conduction. The importance of connecting mental healthcare providers as part of the research context is emphasized. Ethical issues and challenges are highlighted, as well as the establishment of a sensitive and empathic group atmosphere, wherein mutual respect can facilitate interpersonal relations and enable people diagnosed with severe mental illness to make sense of the experience. We emphasize the relevance of the interaction between clinical and research teams in order to create collaborative work, achieve inquiry aims, and elicit narratives of mental health users and professionals.

Desinstitucionalização de pacientes de longa permanência de um hospital psiquiátrico no Rio de Janeiro / Deinstitutionalization of long stay patients in a psychiatric hospital in Rio de Janeiro

Resumo A Critical Time Intervention (CTI) é uma intervenção de saúde mental limitada no tempo a períodos considerados críticos, geralmente ofertada a pessoas com transtornos mentais em situação de transição. O presente estudo avalia o impacto da utilização da Intervenção para Períodos de Transição (CTI-BR) sobre o desempenho social e a qualidade de vida em uma população de pessoas em processo de desinstitucionalização, que deixaram um hospital psiquiátrico após longa internação. A população estudada foi dividida em dois grupos e um deles recebeu o programa CTI como intervenção adicional. Os resultados apontaram que nas áreas avaliadas a presença da intervenção CTI não apresentou evidência de vantagens em relação ao programa habitual da instituição realizado isoladamente. Quando o grupo de pacientes é analisado em seu conjunto é evidenciada uma evolução positiva em relação ao comportamento social e melhora da sua percepção sobre a própria saúde mental. Os resultados obtidos indicam a possibilidade de pessoas idosas oriundas de longa internação em hospital psiquiátrico viverem em dispositivos residenciais comunitários supervisionados por equipes de acompanhamento clínico.

Abstract Critical Time Intervention (CTI) is a time-limited mental health intervention offered to people with mental disorders during critical/transition periods. This study assesses the impact of CTI-BR on social performance and quality of life within a population in the process of deinstitutionalization, after long-term hospitalization in a psychiatric institution. The study population was split into two groups, one of which received CTI plus the regular care. Results showed no advantage of the intervention compared to the regular programs provided by the institution. When study participants are analyzed as a group, we found positive improvement regarding their social functioning and self-perception of their mental-health. Results show that it is possible for elderly patients discharged from long-term psychiatric care to live in residential facilities in the community, supervised by clinical teams.

[Embodied narratives of overcoming: A pathway towards recovery?] / Narrativas corporizadas de superación: ¿un camino para la recuperación?

Narratives play a fundamental role in the recovery of persons with schizophrenia, mainly from the paradigmatic change engendered by the recovery movement. Rather than a methodological tool or a byproduct of recovery, narratives are integral components of this process. This article aims to analyze overcoming narratives, in the light of the corporeality paradigm, based on an emblematic case of a peer support worker. This is a qualitative study carried out in the context of a randomized clinical trial, and it is based on one in-depth interview and focus groups for the construction of the narrative. Thematic analysis was carried out and the following categories were identifed: sense of self and embodiment; experience of time and space; relationship with others; illness experience and overcoming. The embodied narratives of overcoming constitute in the register of a non-linear temporality, and it is based on a dialectical and dialogic process of construction/reconstruction of the sense of self and of the body itself. We propose that embodied narratives are considered as a methodological principle for narrative analysis on recovery, as well as an intrinsic dimension of the recovery journey; that is, as the center of gravity of the process of construction / reconstruction of the sense of self, embodiment and the sense of belonging to the world.

Methodological challenges in the use of focus groups with people with severe mental illness / Desafios metodológicos para o uso de grupos focais com pessoas com doença mental grave / Desafíos metodológicos para el uso de grupos focales con personas que sufren enfermedades mentales graves

Abstract: This study addresses the practical, methodological and ethical challenges that were found in three studies that used focus groups with people with severe mental illness, in the context of community mental health services in Brazil. Focus groups are a powerful tool in health research that need to be better discussed in research with people with severe mental illness, in the context of community mental health facilities. This study is based on the authors' experience of conducting and analyzing focus groups in three different cities - Campinas, Rio de Janeiro and Salvador - between 2006-2010. The implementation of focus groups with people with severe mental illness is discussed in the following categories; planning, group design, sampling, recruitment, group interview guides, and conduction. The importance of connecting mental healthcare providers as part of the research context is emphasized. Ethical issues and challenges are highlighted, as well as the establishment of a sensitive and empathic group atmosphere, wherein mutual respect can facilitate interpersonal relations and enable people diagnosed with severe mental illness to make sense of the experience. We emphasize the relevance of the interaction between clinical and research teams in order to create collaborative work, achieve inquiry aims, and elicit narratives of mental health users and professionals.

Resumo: O artigo trata dos desafios práticos, metodológicos e éticos identificados em três estudos que utilizaram grupos focais com pessoas com doença mental grave, no contexto dos serviços comunitários de saúde mental no Brasil. Os grupos focais são uma ferramenta poderosa para a pesquisa em saúde que merece uma discussão ampliada nos estudos com portadores de doença mental grave, no contexto dos serviços comunitários de saúde mental. O estudo tem como base as experiências dos autores na realização e análise de grupos focais em três cidades - Campinas, Rio de Janeiro e Salvador - entre 2006 e 2010. Discute-se o uso de grupos focais com pessoas com doença mental grave, de acordo com as seguintes categorias: planejamento, formato do grupo, amostragem, recrutamento, roteiro de entrevista em grupo e condução. O artigo destaca a importância de envolver os profissionais de saúde mental no contexto da pesquisa. Os achados enfatizam as questões e os desafios éticos, além da criação de um ambiente sensível e de empatia dentro do grupo, onde o respeito mútuo facilite as relações interpessoais e permita que as pessoas com diagnóstico de doença mental grave possam construir sentidos para a sua experiência. Os autores destacam a relevância da interação entre as equipes clínicas e de pesquisa para fomentar a colaboração, alcançar as metas da pesquisa e evocar as narrativas dos usuários e profissionais de saúde mental.

Resumen: El artículo trata sobre los desafíos prácticos, metodológicos y éticos, identificados en tres estudios que utilizaron grupos focales con personas con una enfermedad mental grave, en el contexto de los servicios comunitarios de salud mental en Brasil. Los grupos focales son una herramienta poderosa para la investigación en salud, que merece una discusión ampliada en los estudios sobre pacientes con enfermedades mentales graves, en el contexto de los servicios comunitarios de salud mental. El estudio tiene como base las experiencias de los autores en la realización y análisis de grupos focales en tres ciudades -Campinas, Río de Janeiro y Salvador- entre 2006 y 2010. Se discute el uso de grupos focales con personas con una enfermedad mental grave, de acuerdo con las siguientes categorías: planeamiento, formato del grupo, muestra, reclutamiento, guía de entrevista en grupo y ejecución. El artículo destaca la importancia de involucrar a los profesionales de salud mental en el contexto de la investigación. Los hallazgos enfatizan cuestiones y desafíos éticos, además de la creación de un ambiente sensible y de empatía dentro del grupo, donde el respeto mutuo facilite las relaciones interpersonales y permita que las personas con un diagnóstico de enfermedad mental grave puedan dar sentido a la experiencia. Los autores destacan la relevancia de la interacción entre los equipos clínicos y de investigación para fomentar la colaboración, alcanzar las metas de la investigación y evocar las narrativas de los usuarios y profesionales de salud mental.

The McGill Illness Narrative Interview - MINI: translation and cross-cultural adaptation into Portuguese. / McGill Entrevista Narrativa de Adoecimento - MINI: tradução e adaptação transcultural para o português.

This paper presents the process of translation and cultural adaptation into Portuguese of the McGill Illness Narrative Interview - MINI, an interview protocol that is used to research meanings and modes of narrating illness experiences, tested, in the Brazilian context, for psychiatric and cancer-related problems. Two translations and their respective back-translations were developed. In addition, semantic equivalence was evaluated, a synthesis version and a final version were prepared, and two pre-tests were administered to the target populations (people with auditory verbal hallucinations or breast cancer). A high degree of semantic equivalence was found between the original instrument and the translation/back-translation pairs, and also in the perspective of referential and general meanings. The semantic and operational equivalence of the proposed modifications was confirmed in the pre-tests. Therefore, the first adaptation of an interview protocol that elicits the production of narratives about illness experiences has been provided for the Brazilian context.

McGill Entrevista Narrativa de Adoecimento - MINI: tradução e adaptação transcultural para o português / The McGill Illness Narrative Interview - MINI: translation and cross-cultural adaptation into Portuguese

Resumo Este artigo apresenta o processo de tradução e adaptação cultural para o português da McGill Illness Narrative Interview – MINI, um modelo de entrevista para a pesquisa dos sentidos e dos modos de narrar a experiência do adoecimento, testada, no contexto brasileiro, para os problemas psiquiátricos e os relacionados ao câncer. Foram realizadas duas traduções e respectivas retraduções, avaliada a equivalência semântica, elaboradas versões síntese e final e dois pré-testes nas populações-alvo (pessoas com alucinações auditivas verbais ou câncer de mama). Foi observado um grau elevado de equivalência semântica entre o instrumento original e os pares de tradução-retradução e da perspectiva dos significados referencial e geral. A equivalência semântica e operacional das modificações propostas foram confirmadas nos pré-testes. Disponibilizou-se para o contexto brasileiro a primeira adaptação de um modelo de entrevista que possibilita a produção de narrativas sobre a experiência de adoecimento.

Abstract This paper presents the process of translation and cultural adaptation into Portuguese of the McGill Illness Narrative Interview – MINI, an interview protocol that is used to research meanings and modes of narrating illness experiences, tested, in the Brazilian context, for psychiatric and cancer-related problems. Two translations and their respective back-translations were developed. In addition, semantic equivalence was evaluated, a synthesis version and a final version were prepared, and two pre-tests were administered to the target populations (people with auditory verbal hallucinations or breast cancer). A high degree of semantic equivalence was found between the original instrument and the translation/back-translation pairs, and also in the perspective of referential and general meanings. The semantic and operational equivalence of the proposed modifications was confirmed in the pre-tests. Therefore, the first adaptation of an interview protocol that elicits the production of narratives about illness experiences has been provided for the Brazilian context.

Sobrecarga e participação de familiares no cuidado de usuários de Centros de Atenção Psicossocial / Burden and participation of family in the care of Psychosocial Care Centers users

RESUMO 'Sobrecarga familiar' é o impacto que o cuidado dedicado a um paciente pode provocar no ambiente familiar. O objetivo do presente estudo foi investigar a sobrecarga vivida por familiares cuidadores de usuários atendidos em Centros de Atenção Psicossocial. Para tanto, aplicaram-se a Escala de Sobrecarga dos Familiares de Pacientes Psiquiátricos e um questionário sociodemográfico. Os resultados indicam uma relevante presença de sobrecarga nas famílias analisadas e a importância do envolvimento de familiares no cuidado de pessoas com problemas mentais. Foi possível, também, registrar que ainda é incipiente o trabalho parceiro com as famílias realizado pelos serviços de atenção psicossocial.

ABSTRACT 'Family burden' is the impact that may result in the family environment from the care devoted to a patient. The aim of this paper was to investigate the burden experienced by family caregivers of users assisted in Psychosocial Care Centers. For this purpose, we have applied the Family Burden Interview Scale for Relatives of Psychiatric Patients - BR and a socio-demographic questionnaire. The results indicate a relevant presence of burden in the analyzed families and the importance of the involvement of relatives in the care of people with mental disorders. It was also possible to register that cooperation with families in the work conducted by psychosocial care services is still incipient.

Stigma and recovery in the narratives of peer support workers in Rio de Janeiro, Brazil.

Stigma attaching to mental illness has been considered a major challenge to public policies, to the provision of care and to the well-being of people who live with the experience of mental illness worldwide. Here we discuss narratives from peer support workers which we obtained during the assessment of a new psychosocial intervention programme in Rio de Janeiro. We used a range of focus groups, in-depth interviews and clinical supervision notes to derive these narratives, which covered topics such as the peer support workers' perceptions of family and social views, their sense of self and the experience of being stigmatised. We conclude that stigma appears to be a barrier to recovery. Peer support work for people with severe mental illness is a strategy that may help them to overcome stigma and discrimination. Fostering mutuality and hope in the context of peer support helps affected individuals to make sense of their being in the world and can facilitate their recovery.

Incorporando histórias: a recomposição do corpo próprio na perspectiva de usuários de serviços de saúde mental / Incorporating stories: recomposing the body from the perspective of users health service / L'incorporation d'histoires: la recomposition du corps propre dans la perspective des usagers de services de santé mentale / Incorporando historias: la recuperación del cuerpo en la perspectiva de usuarios de servicios de salud mental

O presente estudo acompanha as incidências da experiência de adoecimento na vivência de corpo próprio em pessoas que realizam tratamento em serviços de saúde mental. Por meio de abordagem clínico-qualitativa, interroga-se o papel do cuidado, do ponto de vista dos usuários, em uma possível vivificação da relação com o corpo próprio e sua contribuição na produção de novo modo de existência no cotidiano. Analisam-se as transformações vividas na relação com o corpo e as soluções encontradas para a sua recomposição.

This study is about experiences of physical illness in persons treated at public mental health clinics. Through a qualitative clinical approach the role of care is questioned from the users' point of view in a possible participation in the relationship with their own bodies and its contribution in producing new ways of existence in everyday life. We analyze the changes experienced in relationships with the users' own bodies and solutions found for recomposing it.

Cette étude accompagne l'expérience de la maladie et de ses effets sur le corps de patients qui suivent un traitement dans un service de santé mentale. À l'aide d'une approche clinique qualitative, nous étudions le rôle des soins du point de vue des usagers, dans une possible recomposition du rapport avec le corps, ainsi que sa contribution à la production d'un nouveau mode d'existence dans la vie quotidienne. Nous abordons les transformations qui résultent du rapport avec le corps et les solutions qui visent sa reconstruction.

Este estudio analisa el efecto de la experiencia de enfermarse en la vivencia del propio cuerpo en personas que reciben tratamiento en servicios de salud mental. A través de un enfoque clínico-cualitativo, cuestionamos el papel del cuidado en la visión de los usuarios, en una posible vivificación de la relación con el propio cuerpo y su contribución en la producción de um nuevo modo de existencia en la vida cotidiana. Se analizan las transformaciones vividas en la relación con el cuerpo y las soluciones encontradas para su recomposición.

Experiência, narrativa e conhecimento: a perspectiva do psiquiatra e a do usuário / Experience, narrative and knowledge: the perspective of the psychiatrist and the user

O presente estudo, realizado em parceria entre UFRJ, UNICAMP e UFBA, pretendeu conhecer a experiência das pessoas com o diagnóstico de transtorno do espectro esquizofrênico, em tratamento nos CAPS, e a experiência dos psiquiatras inseridos na rede pública de atenção à saúde mental. Narrativas relacionadas ao processo saúde-doença, no caso de pessoas com diagnóstico de esquizofrenia, e narrativas sobre o processo de formulação do diagnóstico de esquizofrenia, prognóstico e tratamento, no caso dos psiquiatras, foram estudadas. Este é um estudo qualitativo, multicêntrico, informado pelas abordagens teóricas da Análise Interpretativa Fenomenológica e da Antropologia médica, realizado nas cidades de Campinas, Rio de Janeiro e Salvador. A principal ferramenta metodológica empregada para produção das narrativas foram os grupos focais. Técnicas da entrevista de explicitação foram incorporadas. As categorias identificadas no estudo - Experiência de Adoecimento, Diagnóstico de Esquizofrenia, Estigma Social, Experiência de Restabelecimento e Tratamento e o Contexto Dinâmico dos CAPS - e as narrativas que as compuseram foram apresentadas e discutidas com o propósito de dar visibilidade aos elementos que caracterizam as narrativas-experiências dos parcipantes e indicar o modo como se configura sua complexidade...

This study, conducted in a partnership composed by UFRJ, UNICAMP and UFBa, wanted to investigate the experience of people with a diagnosis of schizophrenia spectrum disorder, in treatment in CAPS, and the experience of psychiatrists inserted in the public mental health care services. Narratives related to health and illness, in the case of people with schizophrenia, and narratives about the process of formulation of the schizophrenia diagnosis, prognosis and treatment in the case of psychiatrists, were studied. This is a qualitative, multicenter study, informed by the theoretical approaches of Interpretative Phenomenological Analysis and Medical Anthropology held in Campinas, Rio de Janeiro and Salvador. The main methodological tool used for the production of narratives were focus groups. Procedures of the Explicitation Interview were incorporated. The categories identified in this study were Illness Experience, Diagnosis of Schizophrenia, Social Stigma, Recovery Experience, and Treatment and dynamic context of CAPS. The narratives that composed each category were presented and discussed in order to give visibility to the elements characterizing the narratives-experiences, indicating how it configures its complexity...

Incorporando histórias: a recomposição do corpo próprio na perspectiva de usuários de serviços de saúde mental / Incorporating stories: recomposing the body from the perspective of users health service / L'incorporation d'histoires: la recomposition du corps propre dans la perspective des usagers de services de santé mentale / Incorporando historias: la recuperación del cuerpo en la perspectiva de usuarios de servicios de salud mental

O presente estudo acompanha as incidências da experiência de adoecimento na vivência de corpo próprio em pessoas que realizam tratamento em serviços de saúde mental. Por meio de abordagem clínico-qualitativa, interroga-se o papel do cuidado, do ponto de vista dos usuários, em uma possível vivificação da relação com o corpo próprio e sua contribuição na produção de novo modo de existência no cotidiano. Analisam-se as transformações vividas na relação com o corpo e as soluções encontradas para a sua recomposição.(AU)

This study is about experiences of physical illness in persons treated at public mental health clinics. Through a qualitative clinical approach the role of care is questioned from the users' point of view in a possible participation in the relationship with their own bodies and its contribution in producing new ways of existence in everyday life. We analyze the changes experienced in relationships with the users' own bodies and solutions found for recomposing it.(AU)

Cette étude accompagne l'expérience de la maladie et de ses effets sur le corps de patients qui suivent un traitement dans un service de santé mentale. À l'aide d'une approche clinique qualitative, nous étudions le rôle des soins du point de vue des usagers, dans une possible recomposition du rapport avec le corps, ainsi que sa contribution à la production d'un nouveau mode d'existence dans la vie quotidienne. Nous abordons les transformations qui résultent du rapport avec le corps et les solutions qui visent sa reconstruction.(AU)

Este estudio analisa el efecto de la experiencia de enfermarse en la vivencia del propio cuerpo en personas que reciben tratamiento en servicios de salud mental. A través de un enfoque clínico-cualitativo, cuestionamos el papel del cuidado en la visión de los usuarios, en una posible vivificación de la relación con el propio cuerpo y su contribución en la producción de um nuevo modo de existencia en la vida cotidiana. Se analizan las transformaciones vividas en la relación con el cuerpo y las soluciones encontradas para su recomposición.(AU)

["I am nuts, but networking": the qualification process for peer support work with mental health users in the psychosocial care network of Rio de Janeiro]. / "Soy loco, pero estoy en red": el proceso de capacitación con usuarios de servicios de Salud Mental para el trabajo de ayuda entre pares en la red de atención psicosocial de Río de Janeiro.

Peer support work has been increasingly incorporated by community services network in the context of mental health care paradigm shift; however, it is a relatively new device in Latin America. In this article, we will describe the qualification process of peer support workers for implementing a psychosocial intervention in the city of Rio de Janeiro. We use the following methodological strategies based on a narrative, participative and dialogical perspective: focus groups, knowledge transmission through a short course; visits to mental health services and field reports. We used a narrative analysis, building the following thematic categories: experience of the recovery process; what helps and what hinders in the recovery process; the role of the family; the role of community mental health services; prejudice among society and family members; the role of peer support work; challenges. From the users' perspective, recovery is tied to ups and downs and family can either help or disturb this process. Prejudice constitutes the main barrier for recovery. To have a social role and participating in training activities facilitate recovery. Users pointed out that it is necessary to have professional support for peer support work.