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1.
Crit Care Nurse ; 43(3): 19-27, 2023 Jun 01.
Article in English | MEDLINE | ID: mdl-37257878

ABSTRACT

BACKGROUND: Repeated exposure to death and dying increases health care professionals' risk for burnout and secondary traumatic stress. Pediatric critical care providers are at particularly high risk because the death and dying of children are associated with even greater psychological impact. LOCAL PROBLEM: A charge nurse in the pediatric intensive care unit identified a need for additional staff support after critical patient events. METHODS: The aim of this quality improvement project was to design and implement a debriefing process, the Rapid Review of Resuscitation, in a 40-bed, high-acuity pediatric intensive care unit at an urban children's hospital in the midwestern United States. A preintervention-postintervention survey used the Professional Quality of Life Scale, version 5, to evaluate staff members' compassion satisfaction, burnout, and secondary traumatic stress before and 1 year after implementation. The debriefing process was designed and implemented on the basis of interview data and literature review. RESULTS: Preimplementation (104 of 222 staff members [47%]) and postimplementation (72 of 184 staff members [39%]) survey responses were compared. Compassion satisfaction scores (mean [SD] T scores: preimplementation, 54.10 [7.52]; postimplementation, 56.71 [6.62]) were significantly higher (P = .02) 1 year after implementation. Burnout (P = .69) and secondary traumatic stress (P = .06) scores were not significantly different. After implementation, 74% of respondents reported that the debriefing process was "very helpful" or "somewhat helpful" after critical patient events. CONCLUSIONS: Compassion satisfaction improved and burnout and secondary traumatic stress did not change with implementation of the debriefing process after critical patient events.


Subject(s)
Burnout, Professional , Compassion Fatigue , Humans , Child , Compassion Fatigue/prevention & control , Compassion Fatigue/psychology , Empathy , Quality of Life , Cross-Sectional Studies , Burnout, Professional/prevention & control , Burnout, Professional/psychology , Intensive Care Units, Pediatric , Personal Satisfaction , Surveys and Questionnaires , Job Satisfaction
3.
Semin Pediatr Neurol ; 45: 101034, 2023 04.
Article in English | MEDLINE | ID: mdl-37003632

ABSTRACT

Since the concept of death by neurologic criteria (DNC) or "brain death" was articulated by the Harvard Ad Hoc Committee in 1968, efforts to establish and uphold DNC as equivalent to biologic death have been supported through federal and state legislation, professional guidelines, and hospital policies. Despite these endeavors, DNC remains controversial among bioethics scholars and clinicians and is not universally accepted by patient families and the public. In this focused review, we outline the current points of contention surrounding the diagnosis of DNC in pediatric patients. These include physiologic, legal, and philosophical inconsistencies in the definition of DNC, controversy regarding the components of the clinical exam, variability in clinical practice, and ethical concerns regarding justice and role of informed consent. By better understanding these controversies, clinicians may serve families grappling with the diagnosis of DNC more effectively, compassionately, and equitably.


Subject(s)
Brain Death , Humans , Child , Brain Death/diagnosis
7.
Am J Bioeth ; 21(9): 28-30, 2021 Sep.
Article in English | MEDLINE | ID: mdl-34399671
8.
Curr Opin Pediatr ; 32(3): 428-435, 2020 06.
Article in English | MEDLINE | ID: mdl-32374580

ABSTRACT

PURPOSE OF REVIEW: Children with medical or surgical critical illness or injury require skillful attention to physical, emotional, psychological, and spiritual needs, whereas their families need support and guidance in facing life-threatening or life-changing events and gut-wrenching decisions. This article reviews current evidence and best practices for integrating palliative care into the pediatric intensive care unit (PICU), with a focus on surgical patients. RECENT FINDINGS: Palliative care is best integrated in a tiered approach, with primary palliative care provided by the PICU and surgical providers for all patients and families, including basic symptom management, high-quality communication, and end-of-life care. Secondary and tertiary levels of care involve unit or team-based 'champions' with additional expertise, and subspecialty palliative care teams, respectively. PICU and surgical providers should be able to provide primary palliative care, to identify patients and families for whom a palliative care consult would be helpful, and should be comfortable introducing the concept of palliative care to families. SUMMARY: This review provides a framework and tools to enable PICU and surgical providers to integrate palliative care best practices into patient and family care.


Subject(s)
Family/psychology , Intensive Care Units, Pediatric/standards , Palliative Care/psychology , Terminal Care/psychology , Adult , Child , Communication , Critical Care , Female , Humans , Male , Practice Guidelines as Topic
9.
Pediatrics ; 142(Suppl 3): S187-S192, 2018 11.
Article in English | MEDLINE | ID: mdl-30385626

ABSTRACT

Shared decision-making (SDM) depends on high-quality communication between the physician and the decision maker. The shared beliefs, values, behaviors, and traditions that make up an individual's culture affect the way he or she communicates and receives information and impacts complex decision-making. Cultural differences between medical providers and patients or their families may lead to wrong assumptions, disparate priorities, a lack of shared goals, and conflict. When it comes to SDM in cross-cultural encounters, we recommend that clinicians acknowledge their own cultural beliefs and values (including those stemming from the culture of medicine), maintain awareness of potential biases and assumptions, appreciate the complexity of patient and family identities and narratives, practice cultural humility, understand the moral relevance of culture, and respect patient and family preferences for SDM. We present a case that illustrates many of these issues.


Subject(s)
Cross-Cultural Comparison , Decision Making , Physician-Patient Relations , Attitude of Health Personnel , Child, Preschool , Humans , Male , Parents/psychology , Physicians
10.
J Empir Res Hum Res Ethics ; 13(4): 391-401, 2018 10.
Article in English | MEDLINE | ID: mdl-29900801

ABSTRACT

Biorepository research in children raises numerous ethical questions that are heightened in the pediatric intensive care unit (PICU) setting. We conducted a cross-sectional, interview-based study of 20 adolescent/young adult (A/YA) PICU patients and 75 parents of PICU patients to elucidate perspectives on biorepository research. A/YAs had a positive attitude toward biobanking. In young adults, comprehension was higher for knowledge of a choice to withdraw and participate in the research and lower for purpose, procedures, risks, and benefits of participation. All but one A/YA wanted to have a say in whether their samples would be used. Parent views on child assent were mixed; 55% of parents favored child involvement in decisions. Efforts should be made to improve comprehension by A/YAs and involvement of A/YAs in decisions.


Subject(s)
Attitude , Biological Specimen Banks/ethics , Biomedical Research/ethics , Critical Care , Informed Consent , Adolescent , Adult , Child , Comprehension , Cross-Sectional Studies , Decision Making , Ethics, Research , Female , Humans , Informed Consent By Minors , Intensive Care Units , Male , Middle Aged , Parents , Patient Participation , Pediatrics , Surveys and Questionnaires , Young Adult
14.
J Clin Ethics ; 23(3): 224-30, 2012.
Article in English | MEDLINE | ID: mdl-23256402

ABSTRACT

A case of conflict in pediatric end-of-life decision making is presented to compare the complementary roles of clinical ethics consultants and palliative care specialists. The progression of the case illustrates the differing structures, goals, and methods of the majority of such teams. The strengths of each of consultation are emphasized. Particularly in centers where palliative care services are not available, it can be important for careproviders and clinical ethics consultants to focus on alliance-building and a longitudinal relationship with patients and families.


Subject(s)
Decision Making/ethics , Ethics Committees, Clinical , Ethics Consultation , Fathers , Mothers , Palliative Care/ethics , Parental Consent , Patient Care Team/ethics , Choice Behavior/ethics , Ethicists/standards , Ethics, Medical , Foster Home Care , Humans , Medical Futility , Narration , Palliative Care/methods , Parental Consent/ethics
15.
J Clin Ethics ; 23(1): 47-55, 2012.
Article in English | MEDLINE | ID: mdl-22462383

ABSTRACT

This case describes an adolescent in a crisis of a chronic medical condition whose situation is complicated by substance abuse and mental illness. D. Micah Hester provides an analytic approach, teasing apart the multiple layers of medical, developmental, and moral issues at hand and describing possible responses and outcomes. Amy T. Campbell examines existing legal guidelines for adolescent decision making, arguing that greater space exists for clinical discretion in these matters than commonly thought. Cheryl D. Lew discusses the development of agency in adolescent patients, the ideal of autonomous decision making in the context of impairment and chronic illness, and the obligation of healthcare teams to examine an adolescent patient's decisions in relation to her identity.


Subject(s)
Decision Making/ethics , Graft Rejection , Kidney Transplantation , Moral Obligations , Personal Autonomy , Substance-Related Disorders , Third-Party Consent , Adolescent , Adolescent Development , Depression/etiology , Ethics, Medical , Female , Graft Rejection/therapy , Humans , Lost to Follow-Up , Methamphetamine , Social Identification , Substance-Related Disorders/complications , Third-Party Consent/ethics , Third-Party Consent/legislation & jurisprudence
17.
J Clin Ethics ; 22(4): 338-44; author reply 358-62, 2011.
Article in English | MEDLINE | ID: mdl-22324214

ABSTRACT

Identifying ethically allowable options for infants with trisomy 18 has become more challenging as medical standards of practice shift, based on emerging scientific data and changing societal perceptions of disability. Lack of a stable professional standard of practice ought not prevent ethicists from facilitating a consensus; rather, these "unsettled cases" require an individualized, narrative approach that allows the values of the family and the particularities of each case to provide the necessary additional moral grounding.


Subject(s)
Consensus , Decision Making/ethics , Ethics Consultation , Moral Obligations , Organizational Policy , Palliative Care/ethics , Trisomy , Chromosomes, Human, Pair 18 , Female , Humans
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