Your browser doesn't support javascript.
loading
Show: 20 | 50 | 100
Results 1 - 20 de 48
Filter
1.
J Pain ; 24(3): 387-402, 2023 03.
Article in English | MEDLINE | ID: mdl-36243317

ABSTRACT

Needle procedures are among the most common causes of pain and distress for individuals seeking health care. While needle pain is especially problematic for children needle pain and associated fear also has significant impact on adults and can lead to avoidance of appropriate medical care. Currently there is not a standard definition of needle pain. A taxonomy, or classification system, for acute needle pain would aid research efforts and enhance clinical care. To meet this need, the Analgesic, Anesthetic, and Addiction Clinical Trial Translations, Innovations, Opportunities, and Networks public-private partnership with the U.S. Food and Drug Administration, the American Pain Society, and the American Academy of Pain Medicine formed the Analgesic, Anesthetic, and Addiction Clinical Trial Translations, Innovations, Opportunities, and Networks-American Pain Society-American Academy of Pain Medicine Pain Taxonomy initiative. One of the goals of this initiative was to develop taxonomies for acute pain disorders, including needle pain. To accomplish this, a working group of experts in needle pain was convened. Based on available literature and expert opinion, the working group used a 5-dimenional structure (diagnostic criteria, common features, modulating factors, impact and/or functional consequences, and putative mechanisms) to develop an acute pain taxonomy that is specific needle pain. As part of this, a set of 4 diagnostic criteria, with 2 modifiers to account for the influence of needle associated fear, are proposed to define the types of acute needle pain. PERSPECTIVE: This article presents a taxonomy for acute needle pain. This taxonomy could help to standardize definitions of acute pain in clinical studies of patients undergoing needle procedures.


Subject(s)
Acute Pain , Anesthetics , Chronic Pain , Child , Humans , Acute Pain/diagnosis , Analgesics , Chronic Pain/diagnosis , Pain Measurement/methods , Societies, Medical , United States
2.
J Pain Symptom Manage ; 60(1): 28-36.e1, 2020 07.
Article in English | MEDLINE | ID: mdl-32058011

ABSTRACT

CONTEXT: Health care professionals (HCPs) currently judge pain presence and intensity in patients with delirium despite the lack of a valid, standardized assessment protocol. However, little is known about how they make these judgments. This information is essential to develop a valid and reliable assessment tool. OBJECTIVES: To identify pain cues that HCPs report to judge pain in patients with delirium and to examine whether the pain cues differed based on patient cognitive status and delirium subtype. METHODS: Mixed qualitative-quantitative design. Doctors and nurses were recruited. All participants provided written informed consent, and before the recorded interview, demographic information was collected; then participants were asked to describe their practices and beliefs regarding pain assessment and management with older patients who are cognitively intact and patients with delirium. Interviews were transcribed verbatim and coded for pain cues. Coded data were imported into SPSS software (IBM SPSS Statistics Version 24; IBM Corporation, Armonk, NY) to conduct bivariate analyses. RESULTS: The pain cue self-report was stated more often for intact than for delirium patients (χ2 [1; N = 106] = 22.56; P < 0.001). HCPs stated yelling (χ2 [2; N = 159] = 11.14; P = 0.004), when describing pain in hyperactive than in hypoactive and mixed delirium patients; and significantly more HCPs stated grimace (χ2 [2; N = 159] = 6.88; P = 0.03), when describing pain in hypoactive than hyperactive and mixed patients. CONCLUSION: This study outlines how HCPs conduct pain assessment in patients who are delirious and, also, identifies pain behavior profiles for the subtypes of delirium.


Subject(s)
Cancer Pain , Delirium , Neoplasms , Aged , Cues , Delirium/diagnosis , Health Personnel , Humans , Neoplasms/complications , Psychomotor Agitation
3.
Pain Med ; 19(4): 658-676, 2018 04 01.
Article in English | MEDLINE | ID: mdl-28340045

ABSTRACT

Objective: Age-related patterns in cancer pain remain equivocal. Most studies ignore heterogeneity across multiple domains of well-being, and the potential role of physical (PH) and mental health (MH) quality of life (QOL) in these age-related patterns is unknown. We investigated the relationships between age and cancer pain intensity, qualities, and interference, and physical and psychosocial adaptation and the interaction between age and PH and MH QOL on pain and adaptation to cancer pain. Design: In this cross-sectional study, 244 patients with advanced cancer and pain completed measures of pain, QOL, physical function, and psychosocial well-being. Pearson's correlations and ANOVAs assessed relationships between age and demographic and clinical factors, pain, and physical and psychosocial measures. Regression models tested the role of age and its interaction with PH and MH QOL on pain and physical and psychosocial adaptation. Results: Older age was associated with a lower likelihood of receiving an opioid prescription, greater likelihood of having comorbidities, and worse functional status. When we did not account for these factors, age was not associated with pain and most adaptation indices. When we did account for these factors and PH QOL, older age was associated with lower non-neuropathic and neuropathic pain and several indices of psychosocial adaptation. Most interestingly, older age was associated with lower non-neuropathic pain among those with high, but not low, MH QOL. Conclusions: This study addresses knowledge gaps about factors underlying age-related patterns in cancer pain. Impaired MH QOL may be a proxy for age-related patterns in cancer pain. Summary: This study investigated age-related patterns in the experience of cancer pain and the role of quality of life in resilience and vulnerability to pain and adaptation to pain. Older age is associated with lower non-neuropathic pain among those with high, but not low, mental health quality of life, suggesting that impaired mental health quality of life is an important indicator of vulnerability to multidimensional pain outcomes.


Subject(s)
Cancer Pain/epidemiology , Cancer Pain/psychology , Quality of Life/psychology , Adaptation, Psychological , Age Factors , Aged , Cross-Sectional Studies , Female , Humans , Male , Middle Aged , Surveys and Questionnaires
4.
J Pain ; 19(3): 301-316, 2018 03.
Article in English | MEDLINE | ID: mdl-29155166

ABSTRACT

Age differences are not evident in pain-related stoicism and cautiousness in people with cancer pain. Little is known about the factors associated with these pain-related attitudes or age-related patterns in these associations. The present cross-sectional study investigated the biopsychosocial correlates of the attitudes in younger and older patients with advanced cancer. Pain-related stoicism (fortitude, concealment, superiority) and cautiousness (self-doubt, reluctance) were assessed using the Pain Attitudes Questionnaire-Revised (PAQ-R). Participants, 155 younger (younger than 60 years old) and 114 older (60 years old or older) patients with advanced cancer completed the PAQ-R and measures of sociodemographic and medical characteristics, pain intensity, cognitive-affective pain-related responses, physical functioning, psychological distress and well-being, and psychosocial functioning. Backwards regression analyses identified correlates for each PAQ-R factor separately for younger and older patients. Activity engagement was a frequent correlate, but its relationship with concealment was the only association common to both age groups. Younger and older patients exhibited different avoidance-related constructs suggesting relational challenges in the former group (avoidant attachment) and intrapersonal fear in the latter (cognitive avoidance). Medical correlates also showed age differences: younger patients showed symptom-focused correlates, whereas older patients showed aging-related correlates. Findings support a biopsychosocial framework of cancer-pain adaptation incorporating a lifespan-developmental perspective. PERSPECTIVE: To our knowledge, this article is the first to identify biopsychosocial correlates of stoic and cautious attitudes toward cancer pain in younger and older patients with advanced cancer. Findings highlight possible age-related motivations for greater pain-related stoicism or cautiousness and can potentially inform interventions addressing challenges in cancer-pain adaptation in advanced cancer.


Subject(s)
Adaptation, Psychological , Aging , Cancer Pain/psychology , Philosophy , Adult , Aged , Aged, 80 and over , Attitude , Cognition Disorders/etiology , Cross-Sectional Studies , Female , Humans , Male , Middle Aged , Mood Disorders/etiology , Pain Measurement , Self Report , Surveys and Questionnaires , Young Adult
5.
Prog Neuropsychopharmacol Biol Psychiatry ; 87(Pt B): 207-215, 2018 12 20.
Article in English | MEDLINE | ID: mdl-28947182

ABSTRACT

Dementia is a progressive disease associated with irreversible impairment and loss of cognitive abilities. About half of older people with dementia experience pain. In this paper, we propose that pain in older people with dementia can be conceptualized as the final result of the interaction of three heterogeneous phenomena, pain, aging, and dementia, which are created and influenced by the interactions of predisposing, lifelong, and current biopsychosocial factors. We review pain assessment in people with dementia using both self-report and observational/behavioral measures. We then review the biological/sensory, psychological (cognitive and affective) and social dimensions of pain in dementia. The available data suggest that dementia does not impact pain threshold or tolerance. To date, there is little research on the social dimension of pain in dementia. Changes in the affective domain in response to experimental pain have been contradictory with evidence supporting both increased and decreased unpleasantness and emotional responsiveness in people with dementia compared to healthy controls. Clinically, depression is a significant burden for older people with dementia and chronic pain. The relationship between pain and other neuropsychiatric symptoms is controversial, and there is insufficient evidence on which to base conclusions. Some of the most important dementia-related changes may arise in the cognitive domain, including impairments of semantic and episodic memory for pain, executive function, and pain anticipation. Changes in brain activation and interconnectivity support many of these conclusions. Despite methodological limitations, we conclude there are compelling preliminary data to support a biopsychosocial framework of pain and dementia. Future research directions, especially the need for improved assessment tools, are highlighted.


Subject(s)
Aging , Biobehavioral Sciences , Dementia/complications , Dementia/psychology , Pain/complications , Humans
6.
J Pain ; 18(7): 811-824, 2017 07.
Article in English | MEDLINE | ID: mdl-28267630

ABSTRACT

Pain-related stoicism and cautiousness are theorized to be more prevalent in older than younger patients and to lead to greater pain under-reporting and consequently inadequate pain management in older patients. The Pain Attitudes Questionnaire-Revised (PAQ-R), which measures 5 pain-related stoicism (fortitude, concealment, superiority) and cautiousness (self-doubt, reluctance) factors in chronic pain, can help test this hypothesis in advanced cancer but requires validation. We conducted a psychometric evaluation of the PAQ-R in 155 younger (younger than 60 years) and 114 older (aged 60 years and older) patients with advanced cancer. Participants showed disagreement with self-doubt items and floor effects with the subscale. Confirmatory factor analyses revealed good fit of the PAQ-R's 5 factors to younger and older groups' data but collinearity between fortitude and concealment. Multisample confirmatory factor analyses supported partial scalar invariance between age groups. Few hypothesized age-related differences were observed. Younger patients reported higher superiority scores than older patients. Whereas older patients showed greater fortitude and superiority with lower average pain intensity, younger patients showed greater concealment or fortitude with greater worst and average pain intensity. Furthermore, whereas older patients displayed greater superiority with lower interference in relations with others, younger patients displayed greater concealment and superiority with greater interference in walking ability and greater concealment and self-doubt with more interference in relations with others. Cross-validation of the PAQ-R's factor structure and identification of pathways to the factors and effect on pain-related outcomes using multivariate approaches are warranted. PERSPECTIVE: This article presents the psychometric properties of a measure of 2 particular pain-related attitudes. The measure can help clarify whether these attitudes adversely influence pain reporting in older patients with advanced cancer as hypothesized and, in turn, explain the inadequate pain management frequently reported with this clinical group.


Subject(s)
Cancer Pain/psychology , Health Knowledge, Attitudes, Practice , Neoplasms/complications , Pain Measurement/standards , Psychometrics/instrumentation , Adult , Aged , Aged, 80 and over , Cancer Pain/etiology , Female , Humans , Male , Middle Aged , Philosophy , Reproducibility of Results , Severity of Illness Index , Surveys and Questionnaires/standards , Young Adult
7.
Am J Hosp Palliat Care ; 34(10): 958-965, 2017 Dec.
Article in English | MEDLINE | ID: mdl-28273749

ABSTRACT

Delirium complicates pain assessment and management in advanced cancer. This retrospective cohort study compared health-care workers' (HCWs) cancer pain judgments between older patients with advanced cancer with and without a diagnosis of delirium. We reviewed HCWs' daily chart notations about pain presence and good pain control in 149 inpatients with advanced cancer, ≥65 years of age, admitted to a palliative care inpatient unit. Any day with 1 or more notations of pain presence was counted as 1 day with pain; days with notation(s) indicating good pain control were similarly counted. Proportions of days that HCWs judged inpatients to have pain and good pain control were calculated. Patients with and without a delirium diagnosis were compared on both pain outcomes. The moderating effect of highest analgesic class administered was examined. Although most patients received opioid analgesics, mean proportions of days with judged pain were high (39%-60%) and mean proportions of days with judged good pain control were low (<25%) across groups. Among patients receiving either opioid or nonopioid medication, patients with delirium demonstrated lower proportions of days with judged good pain control than patients without delirium ( P ≤ .001), even though groups did not differ in proportions of days with judged pain ( P = .62). Cancer pain is difficult to manage in advanced cancer, especially when delirium is present; however, misinterpretation of delirium symptoms as pain cues may inflate pain judgments. Findings require replication but suggest the need for better pain assessment in older patients with advanced cancer and delirium.


Subject(s)
Attitude of Health Personnel , Delirium/epidemiology , Pain Measurement/methods , Pain/epidemiology , Palliative Care/organization & administration , Aged , Aged, 80 and over , Analgesics, Opioid/therapeutic use , Cancer Pain/drug therapy , Cancer Pain/psychology , Female , Humans , Male , Pain/drug therapy , Pain/psychology , Retrospective Studies , Socioeconomic Factors
8.
Psychooncology ; 25(8): 979-89, 2016 08.
Article in English | MEDLINE | ID: mdl-26383625

ABSTRACT

OBJECTIVE: Acute leukemia (AL) is a life-threatening cancer associated with substantial morbidity and mortality, particularly in older adults. Given that there has been little research on the psychological impact of such malignancies with acute onset, we assessed the prevalence and correlates of depression and hopelessness in patients with AL. METHODS: Three hundred forty-one participants were recruited within 1 month of diagnosis or relapse and completed the Beck Depression Inventory-II (BDI-II), Beck Hopelessness Scale (BHS), Memorial Symptom Assessment Scale, and other psychosocial measures. Multivariate regression analyses identified correlates of depression and hopelessness. RESULTS: 17.8% reported clinically significant depressive symptoms (BDI-II ≥ 15), 40.4% of which were in the moderate-severe range (BDI-II ≥ 20). 8.5% reported significant symptoms of hopelessness (BHS ≥ 8). Depression was associated with greater physical symptom burden (adjusted R(2) = 48.4%), while hopelessness was associated with older age and lower self-esteem (adjusted R(2) = 45.4%). Both were associated with poorer spiritual well-being. CONCLUSIONS: Clinically significant depressive symptoms were common early in the course of AL and related to physical symptom burden. Hopelessness was less common and associated with older age and lower self-esteem. The results suggest that whereas depression in AL may be related to disease burden, the preservation of hope may be linked to individual resilience, life stage, and realistic prognosis.Copyright © 2015 John Wiley & Sons, Ltd.


Subject(s)
Depression/psychology , Hope , Leukemia, Myeloid, Acute/psychology , Self Concept , Adaptation, Psychological , Adult , Aged , Chronic Disease , Depression/etiology , Female , Humans , Leukemia, Myeloid, Acute/complications , Life Change Events , Male , Middle Aged , Prevalence , Psychiatric Status Rating Scales
9.
Palliat Support Care ; 14(2): 151-8, 2016 Apr.
Article in English | MEDLINE | ID: mdl-26480837

ABSTRACT

OBJECTIVE: Pain and delirium are commonly reported in older people with advanced cancer. However, assessing pain in this population is challenging, and there is currently no validated assessment tool for this task. The present retrospective cohort study was conducted to understand how healthcare workers (HCWs; nurses and physicians) determine that older cancer patients with delirium are in pain. METHOD: We reviewed the medical records of consecutive palliative care inpatients, 65 years of age and above (N = 113), in order to identify patient-based cues used by HCWs to make pain judgments and to examine how the cues differ by delirium subtype and outcome. RESULTS: We found that HCWs routinely make judgments about pain in older patients with delirium using a repertoire of strategies that includes patient self-report and observations of spontaneous and evoked behavior. Using these strategies, HCWs judged pain to be highly prevalent in this inpatient palliative care setting. SIGNIFICANCE OF RESULTS: These novel findings will inform the development of valid and reliable tools to assess pain in older cancer patients with delirium.


Subject(s)
Clinical Competence/standards , Delirium/therapy , Neoplasms/nursing , Pain/diagnosis , Palliative Care/methods , Aged , Aged, 80 and over , Female , Humans , Male , Neoplasms/complications , Neoplasms/drug therapy , Nurses/psychology , Nurses/standards , Pain/drug therapy , Prevalence , Retrospective Studies
10.
J Palliat Med ; 18(9): 758-64, 2015 Sep.
Article in English | MEDLINE | ID: mdl-26069934

ABSTRACT

BACKGROUND: Clinician-patient communication is central in palliative care, but it has not been described qualitatively which specific elements of communication are important for high-quality palliative care, particularly in the inpatient setting. OBJECTIVE: Our aim was to identify elements of communication that are central to quality of care and satisfaction with care on palliative care units (PCUs), as described by inpatients, family caregivers, and health care providers. METHODS: Qualitative interviews with patients/caregivers and focus groups with staff were conducted on four PCUs. Semi-structured interviews and focus groups elicited thoughts about the characteristics of satisfaction with care and quality of care for PCU inpatients and their family caregivers. Data were analyzed using a grounded theory method with an inductive, constant comparison approach; themes were coded to saturation. RESULTS: There were 46 interviews and eight focus groups. Communication was the most prevalent theme regarding satisfaction and quality of care, with five subthemes describing elements important to patients, caregivers, and staff. These included: 1) building rapport with patients and families to build trust and kinship; 2) addressing expectations and explaining goals of care; 3) keeping patients and families informed about the patient's condition; 4) listening actively to validate patients' concerns and individual needs; and 5) providing a safe space for conversations about death and dying. CONCLUSIONS: Patients, family caregivers, and health care providers affirmed that communication is a central element of quality of care and family satisfaction on PCUs. The five subthemes identified may serve as a structure for education and for quality improvement tools in palliative care inpatient settings.


Subject(s)
Communication , Palliative Care/standards , Professional-Patient Relations , Adult , Aged , Aged, 80 and over , Female , Focus Groups , Humans , Interviews as Topic , Male , Middle Aged , Ontario , Patient Satisfaction , Qualitative Research , Quality of Health Care
11.
BMJ Support Palliat Care ; 5(4): 381-8, 2015 Dec.
Article in English | MEDLINE | ID: mdl-24644172

ABSTRACT

BACKGROUND: Although an association between depression and physical burden has been demonstrated in advanced cancer, it remains unclear to what extent this is limited to specific physical symptoms, such as pain and fatigue, and is mediated by disease and treatment-related factors. We therefore investigated the relationship between depression and physical burden across a multitude of physical symptoms in this population, while controlling for cancer-related factors including disease severity and proximity to death. PATIENTS AND METHODS: A secondary analysis was performed on cross-sectional data in 487 patients with advanced cancer. Measures included the Beck Depression Inventory II and the Memorial Symptom Assessment Scale, which measured physical burden across 24 common cancer symptoms. Disease severity was assessed by survival time and by functional status using the Karnofsky Performance Status scale. RESULTS: Depression severity significantly correlated with number of physical symptoms, symptom distress and symptom severity independent of cancer type, functional status, chemotherapy status and survival time (all p<0.001). Depression was associated with increased incidence, severity and distress across multiple physical symptoms and was an independent predictor of physical burden on multiple regression analysis. CONCLUSIONS: These findings support the view that a synergistic relationship exists between depression and a broad array of physical symptoms in patients with advanced cancer.


Subject(s)
Depression/complications , Neoplasms/complications , Aged , Cross-Sectional Studies , Fatigue/complications , Female , Humans , Karnofsky Performance Status , Male , Mental Status Schedule , Middle Aged , Pain/complications , Survival Analysis
12.
J Pain ; 15(7): 756-70, 2014 Jul.
Article in English | MEDLINE | ID: mdl-24780200

ABSTRACT

UNLABELLED: Pain is among the most common symptoms of cancer. Because cancer can occur at any age, it is imperative that pain assessment tools are valid for use across the adult lifespan. The Short-Form McGill Pain Questionnaire-2 (SF-MPQ-2) is a valid and reliable tool for the assessment of the multidimensional qualities of pain in people with chronic nonmalignant pain, but its psychometric properties in people with cancer pain and in older versus younger people require investigation. This study evaluated age differences in the validity, reliability, and use of the SF-MPQ-2 in 244 people with advanced cancer and pain. We confirmed the previously reported 4-factor solution in older (≥ 60 years) and younger (<60 years) patients. Internal consistency reliability and convergent validity were similar across age groups, although the SF-MPQ-2 sensory subscales were correlated with mental health quality of life in older, but not younger, patients. Older and younger patients selected the same words with the same intensity to describe their pain. The most commonly selected words in both age groups were aching, tiring-exhausting, sharp, and dull. These results demonstrate that the SF-MPQ-2 is appropriate for use across the adult lifespan in people with cancer pain. PERSPECTIVE: This study demonstrated that the SF-MPQ-2 is valid for use in older and younger people with advanced cancer and pain. This measure could improve cancer pain assessment across the adult lifespan, which may lead to improved pain management.


Subject(s)
Aging , Neoplasms/complications , Pain Measurement/methods , Pain/diagnosis , Pain/etiology , Adolescent , Adult , Aged , Depression/etiology , Female , Humans , Karnofsky Performance Status , Male , Middle Aged , Neoplasms/epidemiology , Neoplasms/psychology , Pain/epidemiology , Pain/psychology , Quality of Life , Reproducibility of Results , Retrospective Studies , Sex Factors , Young Adult
13.
Support Care Cancer ; 22(9): 2435-43, 2014 Sep.
Article in English | MEDLINE | ID: mdl-24705856

ABSTRACT

PURPOSE: Treatment of adult acute myeloid leukemia (AML) is intensive, with induction treatment initiated in an inpatient setting and subsequent consolidation therapy often conducted in an outpatient setting. The purpose of the present qualitative paper is to provide insight into the experience of patients in the transition from inpatient to ambulatory care. METHODS: Participants were 35 AML patients who were interviewed about their experience of the illness and treatment. Utilizing the grounded theory method, we describe the adjustment of participants to the transition to ambulatory care. RESULTS: As outpatients, participants described adjusting to the intensity of ambulatory treatment and to the need to assume greater responsibility for their care. They also expressed a growing desire to understand their long-term care plan, compared to their preference to focus on the present prior to discharge, and they were struggling to construct a new sense of identity. CONCLUSIONS: AML patients are now leaving acute care settings sicker and earlier. Considering their perceptions can inform interventions to facilitate adjustment during the transition to outpatient care.


Subject(s)
Ambulatory Care/methods , Continuity of Patient Care , Inpatients , Leukemia, Myeloid, Acute/therapy , Outpatients , Adult , Aged , Ambulatory Care/organization & administration , Ambulatory Care/standards , Continuity of Patient Care/organization & administration , Continuity of Patient Care/standards , Female , Humans , Inpatients/statistics & numerical data , Long-Term Care , Male , Middle Aged , Patient Discharge/standards , Quality of Health Care
14.
J Pain Symptom Manage ; 48(5): 839-51, 2014 Nov.
Article in English | MEDLINE | ID: mdl-24703943

ABSTRACT

CONTEXT: Health care is increasingly focused on end-of-life care outcomes, but relatively little attention has been paid to how the dying experience is subjectively evaluated by those involved in the process. OBJECTIVES: To assess the quality of death of patients with cancer and examine its relationship to receipt of specialized palliative care and place of death. METHODS: A total of 402 deaths of cancer patients treated at a university-affiliated hospital and home palliative care program in downtown Toronto, Ontario, Canada were evaluated by bereaved caregivers eight to 10 months after patient death with the Quality of Dying and Death (QODD) questionnaire. Caregivers also reported on bereavement distress, palliative care services received, and place of death. RESULTS: Overall quality of death was rated "good" to "almost perfect" by 39% and "neither good nor bad" by 61% of caregivers. The lowest QODD subscale scores assessed symptom control (rated "terrible" to "poor" by 15% of caregivers) and transcendence over death-related concerns (rated "terrible" to "poor" by 19% of caregivers). Multivariable analyses revealed that late or no specialized palliative care was associated with worse death preparation, and home deaths were associated with better symptom control, death preparation, and overall quality of death. CONCLUSION: The overall quality of death was rated positively for the majority of these cancer patients. Ratings were highest for home deaths perhaps because they are associated with fewer complications and/or a more extensive support network. For a substantial minority, symptom control and death-related distress at the end of life were problematic, highlighting areas for intervention.


Subject(s)
Attitude to Death , Neoplasms/psychology , Neoplasms/therapy , Palliative Care , Terminal Care , Adult , Aged , Aged, 80 and over , Anxiety , Bereavement , Caregivers/psychology , Female , Humans , Male , Middle Aged , Multivariate Analysis , Ontario , Retrospective Studies , Surveys and Questionnaires , Young Adult
15.
Leuk Res ; 37(7): 731-6, 2013 Jul.
Article in English | MEDLINE | ID: mdl-23490030

ABSTRACT

We examined the symptoms and referral rates to specialized palliative care and psychosocial oncology services of patients with acute leukemia. The Memorial Symptom Assessment Scale (MSAS) was completed by 249 adult patients with acute leukemia. Patients reported a median of 9 physical and 2 psychological symptoms, and those with intense lack of energy, difficulty sleeping and pain were more likely to report intense worrying/sadness (P<0.001). No patients with moderate-severe pain were referred for specialized symptom control and only 13% of those with severe worrying/sadness were referred to psychiatry/psychology within one month of the assessment. Patients in this population have a substantial symptom burden; further research is needed to determine the benefit of early referral to specialized supportive care services.


Subject(s)
Health Services Needs and Demand , Leukemia/psychology , Palliative Care/statistics & numerical data , Referral and Consultation , Severity of Illness Index , Adolescent , Adult , Aged , Aged, 80 and over , Depression/etiology , Depression/psychology , Female , Humans , Leukemia/complications , Leukemia/therapy , Male , Middle Aged , Pain/etiology , Pain/psychology , Quality of Life , Symptom Assessment , Young Adult
16.
Leuk Res ; 37(5): 496-502, 2013 May.
Article in English | MEDLINE | ID: mdl-23352641

ABSTRACT

Symptoms of traumatic stress are common in acute leukemia. The goal of the present qualitative study was to understand this traumatic stress, as perceived by patients. Participants were 43 patients with acute leukemia in Toronto, Canada. Participants were asked in serial interviews about their experience of diagnosis and treatment. A total of 65 interviews were analyzed utilizing the grounded theory method. Our findings provide insight into the traumatic experience of the diagnosis and treatment, as well as the initial psychological response to this trauma. Patients coped by surrendering control to the medical team, in whom they felt great trust. Patients also expressed a strong preference for limited information, with a preference to avoid discussions about overall prognosis. These results may inform interventions to relieve traumatic stress in this high risk population.


Subject(s)
Interview, Psychological , Leukemia/epidemiology , Leukemia/psychology , Stress Disorders, Traumatic/epidemiology , Stress Disorders, Traumatic/psychology , Acute Disease , Adult , Aged , Humans , Leukemia/therapy , Male , Middle Aged , Stress Disorders, Traumatic/etiology , Stress Disorders, Traumatic/therapy
17.
Psychooncology ; 22(2): 299-307, 2013 Feb.
Article in English | MEDLINE | ID: mdl-22081505

ABSTRACT

OBJECTIVE: Acute leukemia is a condition with an acute onset that is associated with considerable morbidity and mortality. However, the psychological impact of this life-threatening condition and its intensive treatment has not been systematically examined. In the present study, we investigate the prevalence and correlates of post-traumatic stress symptoms in this population. METHODS: Patients with acute myeloid, lymphocytic, and promyelocytic leukemia who were newly diagnosed, recently relapsed, or treatment failures were recruited at a comprehensive cancer center in Toronto, Canada. Participants completed the Stanford Acute Stress Reaction Questionnaire, Memorial Symptom Assessment Scale, CARES Medical Interaction Subscale, and other psychosocial measures. A multivariate regression analysis was used to assess independent predictors of post-traumatic stress symptoms. RESULTS: Of the 205 participants, 58% were male, mean age was 50.1 ± 15.4 years, 86% were recently diagnosed, and 94% were receiving active treatment. The mean Stanford Acute Stress Reaction Questionnaire score was 30.2 ± 22.5, with 27 of 200 (14%) patients meeting criteria for acute stress disorder and 36 (18%) for subsyndromal acute stress disorder. Post-traumatic stress symptoms were associated with more physical symptoms, physical symptom distress, attachment anxiety, and perceived difficulty communicating with health-care providers, and poorer spiritual well-being (all p < 0.05). CONCLUSIONS: The present study demonstrates that clinically significant symptoms of traumatic stress are common in acute leukemia and are linked to the degree of physical suffering, to satisfaction with relationships with health-care providers, and with individual psychological characteristics. Longitudinal study is needed to determine the natural history, but these findings suggest that intervention may be indicated to alleviate or prevent traumatic stress in this population.


Subject(s)
Leukemia, Myeloid, Acute/psychology , Precursor Cell Lymphoblastic Leukemia-Lymphoma/psychology , Stress Disorders, Post-Traumatic/psychology , Adult , Aged , Canada , Female , Humans , Male , Middle Aged , Pain/psychology , Professional-Patient Relations , Regression Analysis , Severity of Illness Index , Surveys and Questionnaires
18.
J Pain ; 13(12): 1258-68, 2012 Dec.
Article in English | MEDLINE | ID: mdl-23182231

ABSTRACT

UNLABELLED: Pain is among the most common symptoms of cancer, with impacts on multiple domains of well-being. Biopsychosocial factors play an important role in adjustment to cancer pain. The Communal Coping Model (CCM), which may elucidate the social context of cancer pain, suggests that people catastrophize to convey distress and elicit support. Attachment style, one's ability to elicit and respond to available support, may be an important factor, but this has not been tested in people with cancer pain. This study examined pain catastrophizing, attachment style and relational context in relation to perceived solicitous, distracting, and punishing responses of significant others to pain in 191 patients with advanced cancer. Consistent with the CCM, higher pain catastrophizing was related to more frequent solicitous and distracting responses. Pain catastrophizing, attachment anxiety, and significant other type interacted in relation to punishing responses. Higher pain catastrophizing was related to less frequent punishing responses only in anxiously attached patients who identified their spouse/partner as their significant other. These results provide support for the CCM of cancer pain, and contribute to refinement of the model. Future research that includes patients and their caregivers is required to further explicate the social context of cancer pain. PERSPECTIVE: This article investigates the Communal Coping Model in people with cancer pain. In partial support of the model, we found that pain catastrophizing was related to more frequent solicitous and distracting responses but less frequent punishing responses only in anxiously attached patients who identified their spouse/partner as their significant other.


Subject(s)
Adaptation, Psychological , Catastrophization/psychology , Neoplasms/psychology , Object Attachment , Pain Measurement/psychology , Pain/psychology , Adult , Aged , Catastrophization/epidemiology , Cross-Sectional Studies , Female , Humans , Male , Middle Aged , Neoplasms/epidemiology , Pain/epidemiology , Pain Measurement/methods , Social Support , Surveys and Questionnaires
19.
J Pain ; 13(9): 849-56, 2012 Sep.
Article in English | MEDLINE | ID: mdl-22841472

ABSTRACT

UNLABELLED: Developing educational interventions about pain may lead to improved pain management for older people. A public group educational session, entitled "Pain in the Older Person," was presented in 7 cities across Canada (Vancouver, Calgary, London, Toronto, Ottawa, Montreal, and Halifax). The presentation lasted approximately 90 minutes and was followed by a question and answer period of at least 20 minutes. Prior to the educational session, participants provided demographic data and completed measures of pain intensity, frequency, interference, and treatment; of subjective health; and of knowledge about pain. Following the session, participants completed the same knowledge items again as well as items assessing satisfaction. Data were provided by 54 health care workers (HCW) and 54 older community members (66.3 ± 10.2 years old). Prior to the educational session, knowledge gaps were evident among the older community members, especially about analgesic use. Among the HCW, knowledge gaps were found about addiction and the relationship between pain and aging. Comparison of knowledge scores before and after the educational session revealed that both groups demonstrated significant knowledge gains. Satisfaction scores were very high, with no significant difference between HCW and older community members. This is the first study to show that a brief educational intervention is associated with gains in knowledge about pain and aging among both older community members and HCW. These results suggest that a brief public educational session is a promising method of pain education that may reduce barriers to pain management in older people. PERSPECTIVE: This article describes the results of a brief public educational session about pain and aging attended by older members of the community and health care workers. This intervention could potentially improve pain management for older people.


Subject(s)
Aging , Delivery of Health Care/methods , Health Personnel/education , Pain Management , Pain/rehabilitation , Adult , Aged , Aging/psychology , Analysis of Variance , Female , Humans , Knowledge , Male , Middle Aged , Pain/psychology , Pain Management/methods , Residence Characteristics , Retrospective Studies , Surveys and Questionnaires
20.
Clin Rehabil ; 26(2): 152-64, 2012 Feb.
Article in English | MEDLINE | ID: mdl-21937522

ABSTRACT

OBJECTIVE: The purpose of this study was to investigate the factor structure and psychometric properties of the Cardiac Rehabilitation Barriers Scale (CRBS). DESIGN, SETTING, AND PARTICIPANTS: In total, 2636 cardiac inpatients from 11 hospitals completed a survey. One year later, participants completed a follow-up survey, which included the CRBS. A subsample of patients also completed a third survey which included the CRBS, the Cardiac Rehabilitation Enrolment Obstacles scale, and the Beliefs About Cardiac Rehabilitation scale three weeks later. The CRBS asked participants to rate 21 cardiac rehabilitation barriers on a five-point Likert scale regardless of cardiac rehabilitation referral or enrolment. RESULTS: Maximum likelihood factor analysis with oblique rotation resulted in a four-factor solution: perceived need/healthcare factors (eigenvalue = 6.13, Cronbach's α = .89), logistical factors (eigenvalue = 5.83, Cronbach's α = .88), work/time conflicts (eigenvalue = 3.78, Cronbach's α = .71), and comorbidities/functional status (eigenvalue = 4.85, Cronbach's α = .83). Mean total perceived barriers were significantly greater among non-enrollees than cardiac rehabilitation enrollees (P < .001). Convergent validity with the Beliefs About Cardiac Rehabilitation and Cardiac Rehabilitation Enrolment Obstacles scales was also demonstrated. Test-retest reliability of the CRBS was acceptable (intraclass correlation coefficient = .64). CONCLUSION: The CRBS consists of four subscales and has sound psychometric properties. The extent to which identified barriers can be addressed to facilitate greater cardiac rehabilitation utilization warrants future study.


Subject(s)
Attitude to Health , Cardiac Rehabilitation , Cardiovascular Diseases/psychology , Psychometrics/standards , Rehabilitation Centers/statistics & numerical data , Surveys and Questionnaires , Aged , Cardiovascular Diseases/diagnosis , Cross-Sectional Studies , Factor Analysis, Statistical , Female , Follow-Up Studies , Hospitals, Teaching , Hospitals, University , Humans , Inpatients/statistics & numerical data , Likelihood Functions , Male , Middle Aged , Ontario , Patient Participation , Population Surveillance , Reproducibility of Results , Treatment Outcome
SELECTION OF CITATIONS
SEARCH DETAIL
...