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1.
J Clin Med ; 11(5)2022 Feb 23.
Article in English | MEDLINE | ID: mdl-35268291

ABSTRACT

A person's sexual and emotional life is greatly impacted after allogeneic hematopoietic stem cell transplantation (allo-HSCT). This topic is not addressed very much by patients and caregivers. Physical, endocrine and genital chronic graft versus host disease (cGVHD)-related disorders are multiple and intertwined with psychological disorders. The Francophone Society of Bone Marrow Transplantation and Cellular Therapy (SFGM-TC) has issued recommendations for a better gynecological monitoring of female recipients after allo-HCT. A patient booklet was also offered to patients in the form of questions and answers to facilitate discussions between patients and caregivers and to improve the management of sexual and emotional life after transplant.

2.
Bull Cancer ; 107(12S): S151-S158, 2020 Dec.
Article in French | MEDLINE | ID: mdl-32747052

ABSTRACT

The Francophone Society of Bone Marrow Transplantation and Cellular Therapy (SFGM-TC) organises annual workshops in an attempt to harmonise clinical practices among different francophone transplantation centres. The SFGM-TC harmonisation workshops aim at establishing practical guidelines, on the one hand, from data from the literature and international recommendations and, on the other hand, by consensus in the absence of formally proven data. The sexual and emotional life of allogeneic hematopoietic stem cells transplanted (HSCT) patients is often very impacted and remains a subject relatively little addressed by patients and caregivers. This article is an update from a previous workshop and is accompanied by a patient booklet, which will be included in the post allograft follow-up workbook published by the SFGM-TC. The purpose of these two documents is to facilitate discussions between patients and caregivers on the subject and to present proposals for follow-up and tools to better manage the sexual and emotional life of allotransplanted patients.


Subject(s)
Hematopoietic Stem Cell Transplantation/psychology , Mental Health , Pamphlets , Sex Education/methods , Sexual Behavior , Congresses as Topic/organization & administration , Female , Hematopoietic Stem Cell Transplantation/adverse effects , Humans , Male , Patient Education as Topic , Sex Factors , Societies, Medical
3.
Soins ; 64(839): 27-29, 2019 Oct.
Article in French | MEDLINE | ID: mdl-31783944

ABSTRACT

The interview with the relatives of a deceased for a post-mortem and cardiac death multi-tissues donation is a complex and delicate act of care performed by hospital coordination nurses for organ and tissue donation. The desirable exercise in face to face can also be done by telephone.


Subject(s)
Heart Arrest , Tissue and Organ Procurement , Death , Exercise , Family , Hospitals , Humans , Tissue Donors
4.
Bull Cancer ; 106(1S): S83-S91, 2019 Jan.
Article in French | MEDLINE | ID: mdl-30528618

ABSTRACT

JACIE (Joint Accreditation Committee ISTC EBMT) regulations and standards impose a quality and safety requirement for graft reinjection by nurses. However, the standards do not provide a step-by-step graft reinjection procedure. Because of high medical team turnover, the opening of new transplant centers, and continual questions from colleagues trying to decipher the JACIE standards, the need for a specific procedure goes without saying. We collected graft reinjection procedures from each SFGM-TC center that participated in our survey, thus creating an inventory of the different steps that make up graft reinjection. In addition to reviewing the main regulatory texts and JACIE standards, we sought advice from medical and cellular therapy experts. We observed that most centers use a mix of practices and some unjustified practices. In some transplant units, it is still standard practice to defrost cell therapy products in the transplant unit. Caregivers are aware of the need for a rigorous application of the regulatory requirements and are willing to administer a procedure that provides specific steps for each stage of the process. In this workshop, we questioned each stage of the graft reinjection procedure, which helped us define clear methods of implementation. In the form of a checklist, we offer bone marrow and stem cell transplant units a step-by-step procedure.


Subject(s)
Bone Marrow Transplantation/standards , Hematopoietic Stem Cell Transplantation/standards , Retreatment/standards , Bone Marrow Transplantation/legislation & jurisprudence , Bone Marrow Transplantation/methods , Cryopreservation , France , Hematopoietic Stem Cell Transplantation/adverse effects , Hematopoietic Stem Cell Transplantation/legislation & jurisprudence , Hematopoietic Stem Cell Transplantation/methods , Humans , Patient Identification Systems/methods , Premedication/methods , Premedication/standards , Retreatment/adverse effects , Retreatment/methods , Societies, Medical , Temperature
5.
Bull Cancer ; 103(11S): S198-S200, 2016 Nov.
Article in French | MEDLINE | ID: mdl-27842861

ABSTRACT

Within the context of the SFGM-TC's 6th workshop series on the harmonization of clinical practices, our workshop proposes a standardization of the informed consent process for hematopoietic stem cell donors and recipients leading up to an autologous or allogenic transplantation. All informed consent was for bone marrow or peripheral stem cell donors, and mononuclear/lymphocyte donors according to usual procedures. The informed consent for autologous and allogenic related or unrelated adults and pediatric transplantation patients have been included. A first step has been conducted for collecting in advance the informed consent forms used routinely in all francophone transplantation centers. In a second step, a comprehensive version has been re-written by a multidisciplinary team. For the purposes of understanding the risks and advantages, language has been carefully considered and streamlined. In the third step, texts were sent to stem cell transplantation experts, experts at the French biomedical agency (agence de la biomédecine [ABM]), law specialists, members of the ethical committee of the French society of hematology and several transplant recipients to be edited and proofread.


Subject(s)
Consensus Development Conferences as Topic , Consent Forms/standards , Hematopoietic Stem Cell Transplantation/standards , Societies, Medical/standards , Tissue Donors , Adult , Child , Family , France , Hematopoietic Stem Cells , Humans , Lymphocytes , Pilot Projects , Validation Studies as Topic
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