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1.
J Health Care Chaplain ; 28(sup1): S57-S78, 2022.
Article in English | MEDLINE | ID: mdl-35135436

ABSTRACT

The authors developed Acceptance and Forgiveness Therapy (AFT), a psychospiritual group intervention that guides veterans with moral injury experientially from a trauma-focused (damaged, broken, guilty, unforgivable, hopeless, unacceptable) to restorative (worthy, connected, hopeful, forgiven, responsible) view of self. A mental health (MH)-trained chaplain and MH provider, as co-leaders, provide psychoeducation, facilitate therapeutic interaction, and encourage home practice. The curriculum includes evidence-driven psychological interventions, spiritually oriented practices, and metaphor, story, and art to illustrate concepts and facilitate self-expression. Scores on the Brief Symptom Inventory-18 and Acceptance and Action Questionnaire-2 showed decreased distress and increased flexibility. Post-group drawings reflect renewed purpose, greater self-acceptance, and meaningful engagement with others. Retention rate across seven group administrations ranged from 50% to 100%. Outcomes suggest AFT is a promising practice for veteran moral injury meriting further study and implementation.


Subject(s)
Forgiveness , Stress Disorders, Post-Traumatic , Veterans , Clergy , Guilt , Humans , Stress Disorders, Post-Traumatic/psychology , Stress Disorders, Post-Traumatic/therapy , Veterans/psychology
2.
Mil Med ; 185(1-2): 97-104, 2020 02 12.
Article in English | MEDLINE | ID: mdl-31247101

ABSTRACT

INTRODUCTION: Many studies have linked hope with better mental health and lower risk of suicide. This is especially true in those who have experienced severe physical or emotional trauma. Religious involvement is associated with greater hope. We examine here the relationship between hope, religiosity, and mental health in a sample of Veterans and Active Duty Military (ADM) with PTSD symptoms. MATERIALS AND METHODS: A cross-sectional multi-site study was conducted involving 591 Veterans and ADM from across the United States. Inclusion criteria were having served in a combat theater and the presence of PTSD symptoms. Measures of religiosity, PTSD symptoms, depression, and anxiety were administered, along with a single question assessing the level of hope on a visual analog scale from 1 to 10. Bivariate and multivariate relationships were examined, along with the moderating effects of religiosity on the relationship between hope and symptoms of PTSD, depression, and anxiety. RESULTS: Hope was inversely related to PTSD, depression, and anxiety symptoms (r = -0.33, -0.56, and -0.40, respectively, all p < 0.0001), but was positively related to religiosity (r = 0.32, p < 0.0001). Religiosity remained significantly related to hope (p < 0.0001) after controlling for demographics, military characteristics, as well as PTSD, depression, and anxiety symptoms, and this relationship was partly but not entirely mediated by social factors (marital status, relationship quality, community involvement). Religiosity did not, however, moderate the strong inverse relationships between hope and PTSD, depression or anxiety symptoms. CONCLUSION: Hope is inversely related to PTSD, depression, and anxiety in Veterans and ADM with PTSD symptoms. Although religiosity is positively related to hope, independent of demographic, military, social, and psychological factors, it does not buffer the negative relationships between hope and PTSD, depression, or anxiety. While further research is warranted, particularly longitudinal studies capable of addressing questions about causality, providing support for the existing religious beliefs of current and former military personnel may help to enhance hope and mental health in the setting of severe combat-related trauma.


Subject(s)
Military Personnel , Stress Disorders, Post-Traumatic , Veterans , Cross-Sectional Studies , Humans , Mental Health , Religion , Stress Disorders, Post-Traumatic/epidemiology , United States/epidemiology
3.
J Cancer Surviv ; 14(1): 36-42, 2020 02.
Article in English | MEDLINE | ID: mdl-31707565

ABSTRACT

PURPOSE: This study aimed to establish and evaluate the referral pathway from a hospital-based oncology service to a multidisciplinary community-based health service supporting survivors to engage in self-management. METHOD: The evaluation involved understanding patterns of health service utilisation and health professionals' perspectives on the implementation of the community-based model of survivorship care, the Good Life Cancer Survivorship (GLCS) program. Survivors referred to GLCS were undergoing or had completed cancer treatment and unable to participate in intensive ambulatory oncology rehabilitation. Health service utilisation was tracked over 5 months, and the perspectives of health professionals referring to and involved in the GLCS program were recorded using semi-structured interviews. RESULTS: The oncology service made 25 referrals. The most accessed services at Carrington Health were physiotherapy with 18 appointments, followed by psychology (12) and dietitian services (11). Four themes emerged from the interviews: (1) Allied health services are relevant to people with cancer; (2) Education and information needs; (3) Communication gaps; (4) A one-stop multidisciplinary and holistic care model. CONCLUSION: This project demonstrated that community health may be a valid setting to support cancer survivors in managing their health. Supporting ongoing awareness, education and understanding of services across both community and acute care settings will foster care coordination and strengthen referral pathways. IMPLICATIONS FOR CANCER SURVIVORS: Accessing appropriate community-based allied health services can support cancer survivors in developing self-management skills to manage their own health and improve their health outcomes and wellbeing in the survivorship phase.


Subject(s)
Public Health/methods , Survivorship , Aged , Female , Humans , Male , Neoplasms/mortality
4.
Eur J Cancer Care (Engl) ; 28(4): e13096, 2019 Jul.
Article in English | MEDLINE | ID: mdl-31094044

ABSTRACT

OBJECTIVE: Wellness centres offer people affected by cancer to access to information and services in a supportive environment. This study aimed to understand stakeholder opinions and perspectives about the potential of wellness centres to contribute to cancer care. METHODS: This study adopted a qualitative approach with health professionals, leaders of key cancer organisations and cancer policy stakeholders interviewed. Results were analysed with thematic analysis. RESULTS: Twenty-three stakeholders representing 13 organisations participated. The following three key themes were identified: (a) The promise and ambition of wellness centres; (b) The hesitations and questions; and (c) Optimising wellness. While many recognised the ambition of wellness centres to offer non-clinical spaces and support for patients and family, there were several concerns raised about the drivers, evidence, throughput, access and equity of services, in the context of other cancer care priorities. Participants made recommendations that focused on use of data; models of community or clinical integration; accessibility and scope; approaches to engaging minority or disadvantaged groups and contribution to cancer care and psycho-oncology. CONCLUSION: Professional stakeholders hold varied views about the potential of wellness centres in contributing to cancer care. Research opportunities include understanding models of community clinical engagement and how to engage minority or disadvantaged populations to ensure equity of access.


Subject(s)
Cancer Care Facilities , Fitness Centers , Neoplasms/therapy , Stakeholder Participation/psychology , Attitude of Health Personnel , Attitude to Health , Delivery of Health Care/standards , Female , Humans , Male , Neoplasms/psychology , Social Support
5.
Mil Med ; 184(3-4): e271-e278, 2019 03 01.
Article in English | MEDLINE | ID: mdl-29912418

ABSTRACT

INTRODUCTION: There is growing evidence that moral injury (MI) is related to greater suicide risk among Veterans and Active Duty Military (V/ADM). This study examines the relationship between MI and suicide risk and the moderating effect of religiosity on this relationship in V/ADM with post-traumatic stress disorder (PTSD) symptoms. MATERIALS AND METHODS: This was a cross-sectional multi-site study involving 570 V/ADM from across the USA. Inclusion criteria were having served in a combat theater and the presence of PTSD symptoms. Multidimensional measures assessed MI, religiosity, PTSD symptoms, anxiety, and depression. In this secondary data analysis, a suicide risk index was created based on 10 known risk factors. Associations between MI and the suicide risk index were examined, controlling for demographic, religious, and military characteristics, and the moderating effects of religiosity were explored. RESULTS: MI overall was correlated strongly with suicide risk (r = 0.54), as were MI subscales (ranging from r = 0.19 for loss of trust to 0.48 for self-condemnation). Controlling for other characteristics had little effect on this relationship (B = 0.016, SE = 0.001, p < 0.0001). Religiosity was unrelated to suicide risk and did not moderate the relationship between suicide risk and MI or any of its subscales. CONCLUSION: MI is strongly and independently associated with risk factors for suicide among V/ADM with PTSD symptoms, and religiosity does not mediate or moderate this relationship. Whether interventions that target MI reduce risk of suicide or suicidal ideation remains unknown and needs further study.


Subject(s)
Spirituality , Stress Disorders, Post-Traumatic/complications , Suicide/statistics & numerical data , Adult , Aged , Aged, 80 and over , Cross-Sectional Studies , Humans , Male , Middle Aged , Military Personnel/psychology , Military Personnel/statistics & numerical data , Protective Factors , Risk Factors , Stress Disorders, Post-Traumatic/epidemiology , Stress Disorders, Post-Traumatic/psychology , Suicide/psychology , Surveys and Questionnaires , United States/epidemiology , Veterans/psychology , Veterans/statistics & numerical data
6.
Ann Clin Psychiatry ; 30(4): 262-270, 2018 11.
Article in English | MEDLINE | ID: mdl-30372503

ABSTRACT

BACKGROUND: We examined U.S. veterans' interest in spiritually-oriented therapy (SOT) for treating inner conflict/moral injury (ICMI); identified combat-related, demographic, religious, and psychological characteristics of those interested in this treatment modality; and determined which participants would prefer SOT therapy. METHODS: This study was a cross-sectional multi-site study of 464 veterans with posttraumatic stress disorder (PTSD) related to war time experiences. Participants were recruited from several U.S. Department of Veterans Affairs (VA) hospitals and interest in SOT was assessed. Bivariate and multivariate analyses were used to examine the prevalence and correlates of participants' willingness to participate. RESULTS: More than 85% of participants indicated willingness to participate in SOT, including 41% who indicated they "definitely" would participate. Logistic regression examining correlates of definitely wanting to participate found it was associated with less time since deployment, more education, not being married, more severe PTSD, and greater religiosity. Level of ICMI was not related to willingness to engage in SOT. Active duty military were less likely than veterans to show interest in SOT. Most participants preferred VA psychologists to provide the therapy, except those who indicated religion was important or very important. CONCLUSIONS: Many U.S. veterans with PTSD are interested in SOT, particularly when delivered by psychologists. Given widespread ICMI among veterans, the development and empirical testing of such treatments is warranted.


Subject(s)
Spirituality , Stress Disorders, Post-Traumatic/therapy , Veterans/psychology , Cross-Sectional Studies , Female , Humans , Male , Middle Aged , Psychology , United States , United States Department of Veterans Affairs , Veterans/statistics & numerical data
7.
J Relig Health ; 57(6): 2325-2342, 2018 Dec.
Article in English | MEDLINE | ID: mdl-30120690

ABSTRACT

Religious involvement is associated with mental health and well-being in non-military populations. This study examines the relationship between religiosity and PTSD symptoms, and the mediating effects of anxiety and depression in Veterans and Active Duty Military (V/ADM). This was a cross-sectional multi-site study involving 585 V/ADM recruited from across the USA. Inclusion criteria were having served in a combat theater and PTSD symptoms. Demographics, military characteristics, and social factors were assessed, along with measurement of religiosity, PTSD symptoms, depression, and anxiety. Bivariate and multivariate analyses examined the religiosity-PTSD relationship and the mediating effects of anxiety/depression on that relationship in the overall sample and stratified by race/ethnic group (White, Black, Hispanic). In bivariate analyses, the religiosity-PTSD relationship was not significant in the overall sample or in Whites. However, the relationship was significant in Blacks (r = - 0.16, p = 0.01) and in Hispanics (r = 0.30, p = 0.03), but in opposite directions. In the overall sample, religiosity was inversely related to anxiety (r = - 0.07, p = 0.07) and depression (r = - 0.21, p < 0.0001), especially in Blacks (r = - 0.21, p = 0.001, and r = - 0.34, p < 0.0001, respectively); however, in Hispanics, religiosity was positively related to anxiety (r = 0.32, p = 0.02) as it was to PTSD symptoms. When anxiety/depression was controlled for in multivariate analyses, the religiosity-PTSD relationship in the overall sample reversed from negative to positive, approaching statistical significance (B = 0.05, SE = 0.03, p = 0.079). In Blacks, the inverse association between religiosity and PTSD was explained by quality of relationships, whereas the positive relationship in Hispanics was explained by anxiety symptoms. In conclusion, religiosity was inversely related to PTSD symptoms in Blacks, positively related to PTSD in Hispanics, and unrelated to PTSD in the overall sample and in Whites. Anxiety/depression partially mediated the relationship in the overall sample and in Hispanics. Although longitudinal studies will be necessary to determine how these relationships come about, consideration should be given to spiritual/religious interventions that target anxiety/depression in V/ADM with PTSD.


Subject(s)
Anxiety/psychology , Depression/psychology , Military Personnel/psychology , Religion , Spirituality , Stress Disorders, Post-Traumatic/psychology , Veterans/psychology , Adult , Aged , Aged, 80 and over , Anxiety/epidemiology , Cross-Sectional Studies , Depression/epidemiology , Female , Humans , Male , Middle Aged , Prevalence , Stress Disorders, Post-Traumatic/epidemiology , United States/epidemiology
8.
Glob Adv Health Med ; 7: 2164956118759939, 2018.
Article in English | MEDLINE | ID: mdl-29497585

ABSTRACT

BACKGROUND: Post-traumatic stress disorder (PTSD) is a debilitating disorder, and current treatments leave the majority of patients with unresolved symptoms. Moral injury (MI) may be one of the barriers that interfere with recovery from PTSD, particularly among current or former military service members. OBJECTIVE: Given the psychological and spiritual aspects of MI, an intervention that addresses MI using spiritual resources in addition to psychological resources may be particularly effective in treating PTSD. To date, there are no existing empirically based individual treatments for PTSD and MI that make explicit use of a patient's spiritual resources, despite the evidence that spiritual beliefs/activities predict faster recovery from PTSD. METHOD: To address this gap, we adapted Cognitive Processing Therapy (CPT), an empirically validated treatment for PTSD, to integrate clients' spiritual beliefs, practices, values, and motivations. We call this treatment Spiritually Integrated CPT (SICPT). RESULTS: This article describes this novel manualized therapeutic approach for treating MI in the setting of PTSD for spiritual/religious clients. We provide a description of SICPT and a brief summary of the 12 sessions. Then, we describe a case study in which the therapist helps a client use his spiritual resources to resolve MI and assist in the recovery from PTSD. CONCLUSION: SICPT may be a helpful way to reduce PTSD by targeting MI, addressing spiritual distress, and using a client's spiritual resources. In addition to the spiritual version (applicable for those of any religion and those who do not identify as religious), we have also developed 5 religion-specific manuals (Christianity, Judaism, Islam, Buddhism, and Hinduism) for clients who desire a more religion-specific approach.

9.
J Nerv Ment Dis ; 206(5): 325-331, 2018 05.
Article in English | MEDLINE | ID: mdl-29494381

ABSTRACT

Moral injury (MI) involves feelings of shame, grief, meaninglessness, and remorse from having violated core moral beliefs related to traumatic experiences. This multisite cross-sectional study examined the association between religious involvement (RI) and MI symptoms, mediators of the relationship, and the modifying effects of posttraumatic stress disorder (PTSD) severity in 373 US veterans with PTSD symptoms who served in a combat theater. Assessed were demographic, military, religious, physical, social, behavioral, and psychological characteristics using standard measures of RI, MI symptoms, PTSD, depression, and anxiety. MI was widespread, with over 90% reporting high levels of at least one MI symptom and the majority reporting at least five symptoms or more. In the overall sample, religiosity was inversely related to MI in bivariate analyses (r = -0.25, p < 0.0001) and multivariate analyses (B = -0.40, p = 0.001); however, this relationship was present only among veterans with severe PTSD (B = -0.65, p = 0.0003). These findings have relevance for the care of veterans with PTSD.


Subject(s)
Religion , Stress Disorders, Post-Traumatic/psychology , Veterans/psychology , Adult , Aged , Aged, 80 and over , Anxiety/epidemiology , Anxiety/psychology , Cross-Sectional Studies , Depression/epidemiology , Depression/psychology , Female , Humans , Male , Middle Aged , Psychiatric Status Rating Scales , Risk Factors , Stress Disorders, Post-Traumatic/epidemiology , Surveys and Questionnaires , United States/epidemiology , Veterans/statistics & numerical data , Young Adult
10.
Mil Med ; 183(11-12): e659-e665, 2018 11 01.
Article in English | MEDLINE | ID: mdl-29590380

ABSTRACT

Introduction: To develop a short form (SF) of the 45-item multidimensional Moral Injury Symptom Scale - Military Version (MISS-M) to use when screening for moral injury and monitoring treatment response in veterans and active duty military with PTSD. Methods: A total of 427 veterans and active duty military with PTSD symptoms were recruited from VA Medical Centers in Augusta, GA; Los Angeles, CA; Durham, NC; Houston, TX; and San Antonio, TX; and from Liberty University, Lynchburg, Virginia. The sample was randomly split in two. In the first half (n = 214), exploratory factor analysis identified the highest loading item on each of the 10 MISS scales (guilt, shame, moral concerns, loss of meaning, difficulty forgiving, loss of trust, self-condemnation, religious struggle, and loss of religious faith) to form the 10-item MISS-M-SF; confirmatory factor analysis was then performed to replicate results in the second half of the sample (n = 213). Internal reliability, test-retest reliability, and convergent, discriminant, and concurrent validity were examined in the overall sample. The study was approved by the institutional review boards and the Research & Development (R&D) Committees at Veterans Administration medical centers in Durham, Los Angeles, Augusta, Houston, and San Antonio, and the Liberty University and Duke University Medical Center institutional review boards. Findings: The 10-item MISS-M-SF had a median of 50 and a range of 12-91 (possible range 10-100). Over 70% scored a 9 or 10 (highest possible) on at least one item. Cronbach's alpha was 0.73 (95% CI 0.69-0.76), and test-retest reliability was 0.87 (95% CI 0.79-0.92). Convergent validity with the 45-item MISS-M was r = 0.92. Discriminant validity was demonstrated by relatively weak correlations with social, religious, and physical health constructs (r = 0.21-0.35), and concurrent validity was indicated by strong correlations with PTSD, depression, and anxiety symptoms (r = 0.54-0.58). Discussion: The MISS-M-SF is a reliable and valid measure of MI symptoms that can be used to screen for MI and monitor response to treatment in veterans and active duty military with PTSD.


Subject(s)
Mass Screening/standards , Psychometrics/standards , Stress Disorders, Post-Traumatic/diagnosis , Syndrome , Adult , Factor Analysis, Statistical , Female , Humans , Male , Mass Screening/methods , Middle Aged , Psychometrics/instrumentation , Psychometrics/methods , Reproducibility of Results , Stress Disorders, Post-Traumatic/psychology , Surveys and Questionnaires , United States , United States Department of Veterans Affairs/organization & administration , United States Department of Veterans Affairs/statistics & numerical data
11.
J Relig Health ; 57(1): 249-265, 2018 Feb.
Article in English | MEDLINE | ID: mdl-29196962

ABSTRACT

The purpose of this study was to develop a multi-dimensional measure of moral injury symptoms that can be used as a primary outcome measure in intervention studies that target moral injury (MI) in Veterans and Active Duty Military with PTSD. This was a multi-center study of 427 Veterans and Active Duty Military with PTSD symptoms recruited from VA Medical Centers in Augusta, Los Angeles, Durham, Houston, and San Antonio, and from Liberty University in Lynchburg. Internal reliability of the Moral Injury Symptom Scale-Military Version (MISS-M) was examined along with factor analytic, discriminant, and convergent validity. Participants were randomly split into two equal samples, with exploratory factor analysis conducted in the first sample and confirmatory factor analysis in the second. Test-retest reliability was assessed in a subsample of 64 Veterans. The 45-item MISS-M consists of 10 theoretically grounded subscales assessing guilt, shame, moral concerns, religious struggles, loss of religious faith/hope, loss of meaning/purpose, difficulty forgiving, loss of trust, and self-condemnation. The Cronbach's alpha of the overall scale was .92 and of individual subscales ranged from .56 to .91. The test-retest reliability was .91 for the total scale and ranged from .78 to .90 for subscales. Discriminant validity was demonstrated by relatively weak correlations with other psychosocial, religious, and physical health constructs, and convergent validity was indicated by strong correlations with PTSD, depression, and anxiety symptoms. The MISS-M is a reliable and valid multi-dimensional symptom measure of moral injury that can be used in studies targeting MI in Veterans and Active Duty Military with PTSD symptoms and may also be used by clinicians to identify those at risk.


Subject(s)
Military Personnel/psychology , Morals , Psychometrics/instrumentation , Stress Disorders, Post-Traumatic/diagnosis , Stress Disorders, Post-Traumatic/psychology , Surveys and Questionnaires/standards , Veterans/psychology , Adaptation, Psychological , Adult , Cross-Sectional Studies , Disability Evaluation , Factor Analysis, Statistical , Humans , Los Angeles , Middle Aged , Military Personnel/statistics & numerical data , Reproducibility of Results , Veterans/statistics & numerical data
12.
Patient Educ Couns ; 100(5): 846-857, 2017 05.
Article in English | MEDLINE | ID: mdl-28081937

ABSTRACT

OBJECTIVE: People with cancer can experience psychological distress but do not always desire, or engage with, professional support to assist with managing distress. Interventions that are self-directed or guided by patients may hold promise as they allow patients to engage with interventions as they need. The objective of this review is to describe and appraise the evidence for effectiveness of self-guided interventions that aim to manage psychological distress in people with cancer. METHODS: A systematic search of Medline, PsychInfo and CINAHL identified 15 relevant papers, reporting on 14 studies. RESULTS: Of the interventions, three studies comprised hard-copy workbooks, six studies used resource packs, four were online resources and one was a brief multimedia resource. One study was adequately powered and demonstrated a positive effect. Almost all interventions required some level of facilitation. Distressed participants may benefit more from interventions. CONCLUSION: Self-guided interventions represent a potentially efficient way of delivering support for people affected by cancer, however evidence supporting them is lacking. PRACTICE IMPLICATIONS: There is a need to generate evidence to understand the impact of self-guided interventions for: i) the ideal delivery point in the disease trajectory, ii) patient groups, iii) intervention content and iv) type and mode of delivery.


Subject(s)
Multimedia , Neoplasms/psychology , Self Care/methods , Self-Management/methods , Stress, Psychological/therapy , Adult , Humans , Internet , Quality of Life , Self-Management/psychology , Stress, Psychological/psychology
14.
BMJ Open ; 2(6)2012.
Article in English | MEDLINE | ID: mdl-23253874

ABSTRACT

OBJECTIVES: To develop an internationally validated measure of cancer awareness and beliefs; the awareness and beliefs about cancer (ABC) measure. DESIGN AND SETTING: Items modified from existing measures were assessed by a working group in six countries (Australia, Canada, Denmark, Norway, Sweden and the UK). Validation studies were completed in the UK, and cross-sectional surveys of the general population were carried out in the six participating countries. PARTICIPANTS: Testing in UK English included cognitive interviewing for face validity (N=10), calculation of content validity indexes (six assessors), and assessment of test-retest reliability (N=97). Conceptual and cultural equivalence of modified (Canadian and Australian) and translated (Danish, Norwegian, Swedish and Canadian French) ABC versions were tested quantitatively for equivalence of meaning (≥4 assessors per country) and in bilingual cognitive interviews (three interviews per translation). Response patterns were assessed in surveys of adults aged 50+ years (N≥2000) in each country. MAIN OUTCOMES: Psychometric properties were evaluated through tests of validity and reliability, conceptual and cultural equivalence and systematic item analysis. Test-retest reliability used weighted-κ and intraclass correlations. Construction and validation of aggregate scores was by factor analysis for (1) beliefs about cancer outcomes, (2) beliefs about barriers to symptomatic presentation, and item summation for (3) awareness of cancer symptoms and (4) awareness of cancer risk factors. RESULTS: The English ABC had acceptable test-retest reliability and content validity. International assessments of equivalence identified a small number of items where wording needed adjustment. Survey response patterns showed that items performed well in terms of difficulty and discrimination across countries except for awareness of cancer outcomes in Australia. Aggregate scores had consistent factor structures across countries. CONCLUSIONS: The ABC is a reliable and valid international measure of cancer awareness and beliefs. The methods used to validate and harmonise the ABC may serve as a methodological guide in international survey research.

15.
J Clin Epidemiol ; 62(6): 642-9, 2009 Jun.
Article in English | MEDLINE | ID: mdl-19108986

ABSTRACT

OBJECTIVE: This study examined the classical pre-intervention/post-intervention assessment (pre-post) and the single post-intervention transition question assessment (transition question) to determine how well these methods reflected qualitative interview-based participant-reported outcomes from chronic disease self-management education programs (CDSMEPs). STUDY DESIGN AND SETTING: A mixed-method qualitative and quantitative approach was applied in 25 interviews with participants recruited from CDSMEPs within Australia. Qualitative interviews with participants were used as a relative "gold standard" and compared with questionnaire-based pre-post and transition question assessments. RESULTS: Comparison of the two questionnaire-based assessments showed that most of the individual paired responses were discordant (61%). Using participant's qualitative narratives as a "true" indicator, the pre-post assessment was found on more occasions to be discordant with participant-reported outcomes than the transition question. The origin of the inconsistency was largely because of a change in respondents' perspective that had occurred after pretest, which was mediated by CDSMEPs' experiences and insights. CONCLUSION: This study suggests that the pre-post assessment has poor validity for the assessment of health education program outcomes. Alternative assessments, such as the transition question, may result in a more accurate reflection of the impact of such programs on participants.


Subject(s)
Chronic Disease/psychology , Health Education , Surveys and Questionnaires/standards , Australia , Chronic Disease/rehabilitation , Female , Health Education/standards , Humans , Male , Middle Aged , Patient Education as Topic/standards , Program Evaluation , Qualitative Research , Reproducibility of Results , Self Care/methods
16.
J Med Screen ; 13(1): 8-13, 2006.
Article in English | MEDLINE | ID: mdl-16569299

ABSTRACT

OBJECTIVES: The Genetic Health Services Victoria maternal serum screening (MSS) quadruple test has been available to pregnant women in Victoria since 1996. The objectives of this study were to follow up the pregnancies screened by MSS between July 1998 and June 2000 and to determine the performance characteristics of the test for Down's syndrome, trisomy 18 and neural tube defects (NTDs). METHODS: MSS results were matched to pregnancy outcome information from the Perinatal Data Collection Unit and Birth Defects Register, using automated probabilistic record linkage. For unmatched pregnancies, manual follow-up was carried out by contacting referring doctors and hospitals, resulting in a very high follow-up rate of 99.2% (18,989/19,143). RESULTS: The sensitivity of MSS for Down's syndrome was 85% (23/27-95%CI 72-99%) with a falsepositive rate (FPR) of 6.8% (risk threshold >or= 1 in 250). While using a fixed 5% FPR, the sensitivity for Down's syndrome was slightly lower (78%). The sensitivity for trisomy 18 was 44% (4/9 - 95% CI 12-77%) with a FPR of 0.5% (risk threshold of >or= 1 in 200). 11 of the 15 (73 - 95%CI 51-97%) cases of open NTDs were detected from screening, with a 1% FPR (risk threshold alpha-fetoprotein [AFP] >or=2.5 MoM). All cases of anencephaly had increased AFP levels. CONCLUSION: Probabilistic record linkage and manual follow-up is an efficient method for ascertainment of pregnancy outcomes, with a higher follow-up rate than that reported in similar studies. MSS should remain an available option for all pregnant women in Victoria, with test characteristics comparable with other recent reports of the quadruple test.


Subject(s)
Chromosomes, Human, Pair 18 , Down Syndrome/diagnosis , Neural Tube Defects/diagnosis , Trisomy/diagnosis , Adult , False Positive Reactions , Female , Follow-Up Studies , Humans , Mass Screening , Models, Statistical , Pregnancy , Pregnancy Outcome , Prenatal Diagnosis , Probability , Records , Reproducibility of Results , Risk , Sensitivity and Specificity , Victoria , alpha-Fetoproteins/metabolism
17.
Aust N Z J Public Health ; 28(1): 72-9, 2004 Feb.
Article in English | MEDLINE | ID: mdl-15108751

ABSTRACT

OBJECTIVE: Using probabilistic record linkage, this study aimed to determine the predictors of incomplete immunisation in Victorian children. METHODS: Records of all births in Victoria in 1998 were linked with records from the Australian Childhood Immunisation Register (ACIR). The outcomes of interest were the predictors of immunisation status at 12 and 24 months of age. RESULTS: A total of 91.1% of birth records were linked with records from the ACIR (n=55,129). Immunisation coverage was 92.8% at 12 months and 89.2% at 24 months. After multivariate analysis, the following maternal factors were significant predictors of incomplete immunisation in children aged 12 months: higher parity, 12-23 months interval between pregnancies, not being married, Aboriginal or Torres Strait Islander or born overseas, younger age, no private health insurance, home birth, metropolitan place of birth, and being in the highest or lowest socioeconomic quintiles. Low birthweight and singleton birth were also significant predictors. All of these factors were also predictive of incomplete immunisation in children aged 24 months, with the exception of low birth weight, which was only significant in the very low birth weight category. Congenital malformations or prematurity were not significant predictors. CONCLUSIONS AND IMPLICATIONS: Record linkage is an effective means of determining the relationship between immunisation status and socio-demographic and health-related factors. It enabled small groups within a large population to be studied, confirming findings from previous survey studies and indicating that several population groups were at increased risk of incomplete immunisation. The main limitation of the study was the under-reporting of immunisation status to the ACIR.


Subject(s)
Immunization Programs/statistics & numerical data , Medical Record Linkage , Patient Compliance/statistics & numerical data , Registries , Birth Certificates , Child, Preschool , Forms and Records Control , Health Status , Humans , Immunization Programs/organization & administration , Immunization Schedule , Infant , Logistic Models , Patient Compliance/ethnology , Patient Compliance/psychology , Risk Factors , Socioeconomic Factors , Victoria
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