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1.
J Lesbian Stud ; : 1-34, 2024 Sep 22.
Article in English | MEDLINE | ID: mdl-39308048

ABSTRACT

This qualitative research examines how sapphic people (i.e., umbrella term inclusive of lesbian, bisexual, and pansexual trans femmes, mascs, nonbinary people, and ciswomen) in South Carolina navigate informational barriers within healthcare systems. An information practices lens that examines how sapphic people create, seek, use, and share information to achieve desired healthcare outcomes describes such navigation. The research focuses on how intersectional identities, with a particular emphasis on age and considerations of race/ethnicity, geography, and gender, mediate these practices and their outcomes. The research uses participant data from semi-structured interviews and focus groups with 34 sapphic people about their health information practices. Participants varied in age and generational representation from 18 through 64. Data analysis utilized qualitative coding to compare how participants experience and circumnavigate health information barriers across age and generation. Data analysis highlighted age-related and generational barriers and facilitators in health information practices within SC sapphic communities. These barriers, shaped by cultural and community dynamics, affected how participants sought and shared health information. Older participants faced barriers rooted in historical experiences, leading to mistrust of healthcare systems, while younger ones encountered challenges imposed by adults. Despite differences, both groups sought sources aligned with their identities and shared frustrations with changing LGBTQIA + language. Across generations, there was a consistent effort to support younger members through protective and defensive health information practices. Implications of these findings identify strategies for healthcare providers and information professionals to dismantle health and healthcare information barriers experienced by those under the LGBTQIA + umbrella who experience less visibility than white gay men from urban areas-additional implications center on strategies for sapphic communities to engender communal care spanning generations.

2.
Front Public Health ; 11: 1046563, 2023.
Article in English | MEDLINE | ID: mdl-37006528

ABSTRACT

This paper describes creating and implementing a 30-h LGBTQIA+ specialty training for community health workers (CHWs). The training was co-developed by CHW training facilitators (themselves CHWs), researchers with expertise in LGBTQIA+ populations and health information, and a cohort of 11 LGBTQIA+ CHWs who theater tested and piloted the course. The research and training team collected cohort feedback through focus groups and an evaluative survey. Findings stress the importance of a curriculum designed to elicit lived experiences and informed by a pedagogical framework centered on achieving LGBTQIA+ visibilities. This training is a vital tool for CHWs to foster cultural humility for LGBTQIA+ populations and identify opportunities to support their health promotion, especially considering their limited and sometimes absent access to affirming and preventative healthcare. Future directions include revising the training content based on cohort feedback and adapting it to other contexts, such as cultural humility training for medical and nursing professionals and staff.


Subject(s)
Community Health Workers , Curriculum , Humans , Focus Groups , Health Services Accessibility , Health Promotion
3.
J Am Med Inform Assoc ; 29(2): 239-248, 2022 01 12.
Article in English | MEDLINE | ID: mdl-34725682

ABSTRACT

OBJECTIVE: This qualitative research examines how transgender and gender nonbinary (T/GNB) persons from South Carolina navigate informational barriers within healthcare systems. This navigation can be described through the lens of information practices, or how T/GNB participants create, seek, use, and share information to achieve desired healthcare outcomes. Special focus is given to the roles of Information and Communication Technologies (ICTs) in shaping these practices. MATERIALS AND METHODS: The research utilizes participant data from semistructured interviews and focus groups conducted with 26 T/GNB individuals focusing on their health information practices. Data analysis utilized emic/etic coding and the constant comparative method to identify themes describing transexclusionary information barriers and respondent ICT-led information practices. RESULTS: Findings note healthcare systems producing cisnormativity by design resulting in T/GNB individuals viewing healthcare spaces as exclusionary. Exclusionary barriers included over reliance on medical, expert authority ignoring T/GNB embodiment, and a lack of contextual perspective to identities. In response, T/GNB seek, create, use, and share information via ICTs to challenge exclusionary practices. DISCUSSION: T/GNB ICT use addresses systemic barriers within healthcare systems suggesting a need to reframe healthcare systems through the lens of design justice, one that values T/GNB agency in understanding and producing health knowledge. CONCLUSION: While many healthcare providers are not intentionally being transexclusionary, the design of healthcare information systems rely on cisnormative values, thus excluding many T/GNB from accessing healthcare in comfortable and safe ways. Shifting toward the values and practices of T/GNB as informed by ICT use will afford healthcare providers ways to undo barriers to care.


Subject(s)
Transgender Persons , Delivery of Health Care , Focus Groups , Gender Identity , Humans , Qualitative Research
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