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1.
Rural Remote Health ; 19(3): 4660, 2019 09.
Article in English | MEDLINE | ID: mdl-31521102

ABSTRACT

INTRODUCTION: Indigenous Australians with cancer tend to be diagnosed with more aggressive and advanced-stage disease, receive less treatment, have poorer survival and lower quality of life than other Australians. Reducing these inequalities requires an understanding of the supportive care needs of this cancer group. This study aims to describe the type and extent of unmet supportive care needs of Indigenous Australian cancer patients. METHOD: A multicentre, cross-sectional study recruited 145 Indigenous adults diagnosed with cancer in the previous 5 years in four Australian states and territories. Using a culturally specific tool, unmet needs were assessed in four domains: 'physical and psychological', 'hospital care', 'information and communication' and 'practical and cultural'. Moderate to high unmet need is that which requires some or a lot more help to be addressed. RESULTS: Two-thirds (65%) of patients reported at least one moderate to high unmet need and 20% of patients had moderate to high unmet needs with five or more items. Overall, patients most commonly reported moderate to high unmet needs in the physical/psychological (46%) and practical/cultural domains (34%), than the information/communication (23%) and hospital care domains (16%). More specifically, 'money worries' was the most frequently reported moderate to high unmet need (20%). CONCLUSION: Most Indigenous Australians living with cancer experience unmet supportive care needs. Physical/psychological and practical/cultural concerns were identified as priority areas for Indigenous cancer patients. These findings may inform priority areas for intervention towards optimal care pathways for Indigenous Australians diagnosed and living with cancer.


Subject(s)
Health Services Needs and Demand/statistics & numerical data , Native Hawaiian or Other Pacific Islander/statistics & numerical data , Needs Assessment/statistics & numerical data , Neoplasms/therapy , Adult , Aged , Australia , Female , Humans , Male , Middle Aged , Professional-Patient Relations , Social Support , Socioeconomic Factors
2.
Aust J Rural Health ; 26(3): 211-219, 2018 Jun.
Article in English | MEDLINE | ID: mdl-29799149

ABSTRACT

OBJECTIVE: To identify factors associated with psychosocial, physical and practical difficulties of daily living and distress among cancer survivors from a regional area in Australia. DESIGN: Cross-sectional study. SETTING: Riverina region of southern New South Wales. PARTICIPANTS: The sample included 134 patients who completed treatment for breast, colorectal, lung or cancer at the Riverina Cancer Care Centre. MAIN OUTCOME MEASURES: Distress was assessed by the Distress Thermometer. Psychosocial, physical and practical difficulties of daily living were assessed by the Patient-Reported Outcomes Measurement Information System questionnaires. RESULTS: A high proportion of cancer survivors had abnormal scores for physical function, sleep disturbance, satisfaction with role, fatigue and pain interference, with many also displaying abnormal scores for anxiety, depression and distress. Survivors living in rural areas and those who had undergone surgery had higher odds of having abnormal scores for sleep disturbance than their counterparts. Living without a partner increased the odds of anxiety and depression. Having advanced disease increased the odds of anxiety and pain. Colorectal cancer and higher education were associated with depression. CONCLUSION: Monitoring for abnormal physical and psychosocial issues after cancer treatment is essential to maintain or improve psychosocial well-being during survivorship. When developing survivorship care plans for patients residing in regional centres, health professionals should consider availability of high-quality and accessible support services in regional areas of Australia.


Subject(s)
Cancer Survivors/statistics & numerical data , Rural Population/statistics & numerical data , Activities of Daily Living/psychology , Anxiety/epidemiology , Breast Neoplasms/psychology , Breast Neoplasms/therapy , Cancer Survivors/psychology , Colorectal Neoplasms/psychology , Colorectal Neoplasms/therapy , Cross-Sectional Studies , Depression/epidemiology , Fatigue/epidemiology , Female , Health Status , Humans , Lung Neoplasms/psychology , Lung Neoplasms/therapy , Male , Middle Aged , New South Wales/epidemiology , Pain/epidemiology , Recovery of Function , Sleep Wake Disorders/epidemiology , Stress, Psychological/epidemiology , Surveys and Questionnaires , Treatment Outcome
3.
Cancer Nurs ; 41(5): E23-E39, 2018.
Article in English | MEDLINE | ID: mdl-28723724

ABSTRACT

BACKGROUND: Individual coping strategies are a fundamental element underpinning psychosocial distress. OBJECTIVE: The aim of this study was to describe coping strategies and their measurement used by survivors of breast, prostate, and/or colorectal cancer after treatment. METHODS: A search of electronic databases (PubMed, CINAHL, and PsycINFO) was conducted from January 1980 to March 2015. Data were extracted using standardized forms and included studies that explored the coping mechanisms of survivorship of breast, prostate, or colorectal cancer. RESULTS: Two thousand one hundred forty-seven studies were retrieved for potential inclusion; 19 publications met the inclusion criteria and were included in the review. CONCLUSIONS: Breast, prostate, and colorectal cancer survivors seem to use different coping strategies that varied throughout the survivorship trajectory. Breast cancer survivors highlighted the importance of accepting their diagnosis and engaging in physical activities that provided social and emotional support. Personality seemed to have a significant effect on coping for prostate cancer survivors. Colorectal cancer survivors emphasized the importance of seeking information to master self-management and return to social activities. IMPLICATIONS FOR PRACTICE: Understanding coping strategies, during the survivorship trajectories, is essential to planning contemporary care after cancer treatment. Nurses and other healthcare professionals may use this knowledge to improve quality of life and decrease distress after diagnosis.


Subject(s)
Adaptation, Psychological , Breast Neoplasms/psychology , Cancer Survivors/psychology , Colorectal Neoplasms/psychology , Prostatic Neoplasms/psychology , Quality of Life/psychology , Stress, Psychological/prevention & control , Adult , Aged , Aged, 80 and over , Female , Humans , Male , Middle Aged
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