Subject(s)
Neoplasms/rehabilitation , Self-Help Groups , Survivors , Arizona , Humans , Patient Advocacy , Self Care , United StatesABSTRACT
Although successes in treating cancer have dramatically increased the sheer numbers of survivors, these advancements have outpaced the availability to deliver adequate and responsible follow-up care. Multiple needs of cancer survivors, met and unmet, have been identified, as have several barriers to the delivery of follow-up care. Meanwhile, resources are increasing. Models of care are being developed. Collaboration is replacing competition. Survivors, along with their loved ones and health care providers, continue to work for better access to quality cancer care.
Subject(s)
Neoplasms/physiopathology , Survivors , Humans , Neoplasms/psychologyABSTRACT
When oncology evolved into a specialized field of medicine more than four decades ago, the primary goals of most cancer treatment included the extension of patients' life expectancies and the occasional hope for cure. Physicians were seen as the principal and solitary advocate for patients, and information regarding cancer diagnosis, treatment, and side effects was delivered or screened by a doctor. Patient education materials were scarce, formalized support systems were nonexistent, and the future was often difficult to define. Patient advocacy has since expanded to models of self, organizational, and public policy advocacy. This article provides examples of advocacy organizations and support systems that offer guidance to providers and patients throughout the continuum of cancer care and into longer-term survival.
