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1.
Am J Public Health ; 109(S1): S79-S85, 2019 01.
Article in English | MEDLINE | ID: mdl-30699018

ABSTRACT

The digital divide related to consumer information technologies (CITs) has diminished, thus increasing the potential to use CITs to overcome barriers of access to health interventions as well as to deliver interventions situated in the context of daily lives. However, the evidence base regarding the use and impact of CIT-enabled interventions in health disparity populations lags behind that for the general population. Literature and case examples are summarized to demonstrate the use of mHealth, telehealth, and social media as behavioral intervention platforms in health disparity populations, identify challenges to achieving their use, describe strategies for overcoming the challenges, and recommend future directions. The evidence base is emerging. However, challenges in design, implementation, and evaluation must be addressed for the promise to be fulfilled. Future directions include (1) improved design methods, (2) enhanced research reporting, (3) advancement of multilevel interventions, (4) rigorous evaluation, (5) efforts to address privacy concerns, and (6) inclusive design and implementation decisions.


Subject(s)
Behavior Therapy , Consumer Health Information , Health Equity , Information Technology , Humans , Social Media , Telemedicine
2.
Phys Ther ; 97(4): 104-407, 2017 04 01.
Article in English | MEDLINE | ID: mdl-28499003

ABSTRACT

One in five Americans experiences disability that affects their daily function because of impairments in mobility, cognitive function, sensory impairment, or communication impairment. The need for rehabilitation strategies to optimize function and reduce disability is a clear priority for research to address this public health challenge. The National Institutes of Health (NIH) recently published a Research Plan on Rehabilitation that provides a set of priorities to guide the field over the next 5 years. The plan was developed with input from multiple Institutes and Centers within the NIH, the National Advisory Board for Medical Rehabilitation Research, and the public. This article provides an overview of the need for this research plan, an outline of its development, and a listing of six priority areas for research. The NIH is committed to working with all stakeholder communities engaged in rehabilitation research to track progress made on these priorities and to work to advance the science of medical rehabilitation.This article is being published almost simultaneously in the following six journals: American Journal of Occupational Therapy, American Journal of Physical Medicine and Rehabilitation, Archives of Physical Medicine and Rehabilitation, Neurorehabilitation and Neural Repair, Physical Therapy, and Rehabilitation Psychology. Citation information is as follows: NIH Medical Rehabilitation Coordinating Committee. Am J Phys Med Rehabil. 2017;97(4):404-407.


Subject(s)
Disabled Persons/rehabilitation , Health Priorities , National Institutes of Health (U.S.) , Rehabilitation Research , Humans , Organizational Objectives , United States
3.
J Natl Cancer Inst ; 109(4)2017 04.
Article in English | MEDLINE | ID: mdl-28119347

ABSTRACT

An overview of proceedings, findings, and recommendations from the workshop on "Advancing Symptom Science Through Symptom Cluster Research" sponsored by the National Institute of Nursing Research (NINR) and the Office of Rare Diseases Research, National Center for Advancing Translational Sciences, is presented. This workshop engaged an expert panel in an evidenced-based discussion regarding the state of the science of symptom clusters in chronic conditions including cancer and other rare diseases. An interdisciplinary working group from the extramural research community representing nursing, medicine, oncology, psychology, and bioinformatics was convened at the National Institutes of Health. Based on expertise, members were divided into teams to address key areas: defining characteristics of symptom clusters, priority symptom clusters and underlying mechanisms, measurement issues, targeted interventions, and new analytic strategies. For each area, the evidence was synthesized, limitations and gaps identified, and recommendations for future research delineated. The majority of findings in each area were from studies of oncology patients. However, increasing evidence suggests that symptom clusters occur in patients with other chronic conditions (eg, pulmonary, cardiac, and end-stage renal disease). Nonetheless, symptom cluster research is extremely limited and scientists are just beginning to understand how to investigate symptom clusters by developing frameworks and new methods and approaches. With a focus on personalized care, an understanding of individual susceptibility to symptoms and whether a "driving" symptom exists that triggers other symptoms in the cluster is needed. Also, research aimed at identifying the mechanisms that underlie symptom clusters is essential to developing targeted interventions.


Subject(s)
Biomedical Research , Neoplasms/complications , Symptom Assessment , Congresses as Topic , Fatigue/etiology , Fatigue/therapy , Humans , Mood Disorders/etiology , Mood Disorders/therapy , Pain/etiology , Pain Management , Research Design , Sleep Wake Disorders/etiology , Sleep Wake Disorders/therapy
4.
Heart Lung ; 35(4): 217-24, 2006.
Article in English | MEDLINE | ID: mdl-16863893

ABSTRACT

The New York Heart Association (NYHA) Classes are used to appraise the status of patients with heart disease and evaluate treatment outcomes in clinical and research settings. Ambiguity exists concerning the construct the Classes represent and the optimal way to capture and interpret the information. This article examines the NYHA Classes within the context of a published functional status framework by Leidy. The framework proposes that (1) physiological indicators provide information on capacity, (2) physical activity characterizes performance, and (3) symptoms accompanying activity offer insight into reserve. It is proposed that the NYHA Classes provide a summary statement of both the reduction in reserve accompanying a decline in capacity and the concomitant increase in capacity utilization required to maintain performance in patients with heart disease. This premise is illustrated quantitatively through secondary analysis of data from 22 patients with ischemic heart disease and left ventricular dysfunction.


Subject(s)
Heart Diseases/classification , Societies, Medical , Ventricular Function/physiology , Heart Diseases/physiopathology , Humans , New York , Severity of Illness Index
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